Dr Peter Winocour Honorary Chairman of ABCD Department of Diabetes & Endocrinology QEII Hospital - Q114 Welwyn Garden City, Hertfordshire AL7 4HQ peter.winocour@nhs.net A response to Liberating the NHS from the Association of British Clinical Diabetologists (ABCD) – Service Commissioning Introduction The Association of British Clinical Diabetologists (ABCD) represents specialist trainees and consultants providing diabetes care in the United Kingdom, with the majority of registered specialists current members. ABCD support the aspirations of Liberating the NHS and strongly welcomes the opportunity to comment on the opportunity this White Paper affords for high quality patient focused care for the increasing number living with diabetes. Current estimates suggest that over 1 in 15 adults have diabetes and this will increase to 1 in 10 by 2030. Diabetes as a multifactorial condition requiring multidisciplinary care Diabetes mellitus is a UNIQUE complex multifactorial long term condition and requires a separate strategy. Unlike other chronic diseases the effective integration of care requires planning not only across primary and secondary care, but between many specialist medical and nursing disciplines, with input from podiatry, dietetics, psychologists and others. 1 Seamless care Individuals living with diabetes require services that operate seamlessly across administrative and service boundaries which recognise the frequent need for emergency access to specialist care. Failure to deliver this will lead to fragmentation of care, cost inefficiencies and adverse outcomes Whole system information programmes that communicate across these boundaries are vital to minimise duplication and waste and ensure rapid transfer of key clinical data. The commissioning of whole system diabetes care is best achieved with reference to the NHS Diabetes Commissioning Toolkits. Whilst GPs as lead commissioners have responsibility to ensure the vast majority of NHS care is provided , specialist diabetes services and integration of care will require close collaboration with local specialist diabetes teams, and ideally through engagement with effective local diabetes clinical networks or through diabetes leads in local trusts. This engagement will also ensure avoidance of any conflict of interests from commissioners with provider roles, and recognise the importance of specialised aspects of diabetes care. Diabetes networks work when there is full stakeholder engagement from primary care teams and commissioners, specialists and those living with diabetes, collaborating to deliver services. The recognition that diabetes services have evolved locally is vital with the local flavour enhancing the national guidelines and commissioning toolkits. The role of specialist diabetologist care Co-ordination of care for those with complications The greatest danger for those living with diabetes in the potential fragmentation of longer term diabetes care if many service providers are involved for bite size chunks of diabetes care. The screening for care of, e.g. retinal disease, cannot easily be separated from an individual’s frequent need for careful glycaemic, foot or renal care. Early intervention in those with complications to achieve optimal outcomes ABCD want to ensure that specialists involved in diabetes care are not simply involved in the care of those most complex cases including those with complication, but have earlier access to those with the first signs of complications where the impact of intensive input is now beyond doubt. New therapies including pumps Specialist Diabetologists are best placed to lead on the introduction of new therapies and the expansion of diabetes care in hospital in-patient settings , in the provision of services for insulin pump-glucose sensing systems , and in joint 2 specialist clinics supporting the care of those with complications. This approach has been demonstrated clearly to improve both the quality of care and patient outcomes. Children, Young People and pregnancy Models of optimal care emphasise the need for commissioned specialist diabetologist services for women with pre-gestational or gestational diabetes throughout pregnancy and in supporting the transitional care of adolescents with diabetes Patient education Structured patient education is the key to effective self management and specialist doctors’ input alongside other health professionals will ensure programmes are up to date Training of HCPs (specialist and generalist) One major concern of ABCD is to ensure that the future training of specialist doctors and other health care professionals (HCPs) is consolidated within future service commissioning. At present deaneries and acute trusts provide a rigid agreed training curriculum which is comprehensive. Future new diabetes service models must recognise the crucial need for integrated services involving specialists providing both service and training of patients and health care professionals in the community. It is vital that commissioning recognises the need to incorporate this aspect within any service level agreements. Research The future health of those living with diabetes must recognise the ever expanding research data base. This is making clear the need for much earlier proactive care involving specialist input and new therapies earlier in the natural history of diabetes. Liberating the NHS- Maximising the potential for Diabetes The need to ensure those living with diabetes see ‘the right person in the right place at the right time’ requires services commissioned to facilitate early specialist support rather than the current tariff based system which has operated as a disincentive to secure such input for generalists. The notion of integrated diabetes care was espoused in the Teams without Walls principles that the Royal Colleges of Physicians , General Practitioners and Child Health set out and which ABCD has fully engaged with, leading to the publication of the NHS Diabetes document ‘Commissioning Diabetes Without Walls’ in 2009. 3 ABCD had previously collaborated with the NHS Alliance in our shared document from 2008 –‘ Integrated Healthcare: From Aspiration to Implementation’. This paper made clear the need for primary care commissioners to ensure specialists were fully engaged to enable this vision to be realised. This would need to cover the provision of diabetes care in both community and hospital settings from childhood to old age. The collaboration of primary care with specialist services and patient representation in both planning and provision of care is vital to enable this to take place. Peter H Winocour Consultant Diabetologist and Chairman of ABCD October 2010 4