NHS GGC Acute Services Division Women and Children’s Directorate Hospital Paediatrics and Neonatology Action plan for safe and sustainable cardiac services for children Standard Criticism The mechanism for commissioning paediatric cardiac services and related services was unclear and confusing and had led to disjointed service provision. Action There are multiple commissioners of paediatric cardiac services and related services in Scotland. Scottish Government policy is for local commissioning by NHS Boards wherever appropriate, with national commissioning being used sparingly, and only where required to sustain a service. SGHSC has designated some elements of paediatric cardiac and related services as national specialist services, and these elements are commissioned by National Services Division, NHS National Services Scotland; other elements are locally commissioned by the 14 territorial NHS Boards. NSD and NHSGGC will ensure that commissioning arrangements are communicated effectively, and will work with territorial NHS Boards to streamline and join up commissioning mechanisms. Excellent Care The panel felt that leadership within the hospital generally and in paediatric surgical services was poor as there was no clear leadership structure. There appeared to be a lack of cohesion between the senior team members. NHSGGC will commit to holding a series of organisational development workshops with clinicians and managers involved with the paediatric cardiac service to focus on leadership, team building, roles and responsibilities and shared service objectives. NHSGGC will subsequently implement and monitor any approved recommendations for change to existing arrangements. A network for the child and family The hospital identified a broad range of stakeholders; however these were largely inwards facing and represented different staff groups within the hospital. NHSGGC and NSD will work jointly to submit an application for a nationally designated Managed Clinical Network in paediatric cardiac services. If approved by SGHSC, it is anticipated that this network will be formally commissioned by April 2013. Prior to this both agencies will work to establish a shadow MCN also by Summer 2012. The network will be led by an independent chair. A steering group will be established to govern the network. Members of the steering group will be co-opted on to the group from a variety of different professions and organisations. As above The hospital did not identify patients and parents or DGHs within the network as key stakeholders. NHSGGC will develop an operational framework for including public focused patient involvement in key service decision making. A public patient involvement sub group will be established. A work plan for introducing PFPI across cardiac services will be developed and taken forward. As above The hospital had an informal relationship with DGHs in the network predicated on strong personal relationships. The hospital failed to meet several of the standards including - active leadership of the network - formal protocols agreed with the network - a nominated nurse leader - md working across the network The network will focus on developing, implementing and monitoring clinical protocols to be used by cardiac services. A clinical protocol sub group will be established to oversee this part of the network work plan. Close links between the cardiac service and District General Hospital clinicians across Scotland will be a key feature of the network with robust referral management, pathways of shared care and effective communication plans in place between RHSC and DGHs NSD and NHSGGC will encourage local DGH clinician involvement and where appropriate support their appointment to key offices within the MCN. The network will be encouraged to support the concept of multidisciplinary working across cardiac services and the wide geography the service covers. The development of cardiac liaison nurses at local DGH level will be considered as part of the review of this type of post. Multidisciplinary working will be seen as a cross cutting theme through the network. The network will also be challenged with developing robust education and learning plans for all professional groups working across cardiac services. A clinical sub group will be established to develop and oversee the agreed work plan in this area of clinical interest. As above/ Safe and Sustainable The panel felt that £50k available for funding administrative support for the network was insufficient in developing network, as dedicated clinical leadership is also necessary. The funding envelope requested to support this development will include resource to cover medical and nurse clinical leadership, network management, administration and non pay costs. A network for child and family The implementation plan for delivering the proposal for the network was unclear. The network will, if approved, be commissioned nationally through NSD. Standard commissioning and hosting arrangements for nationally designated MCNs between NSD and a hosting Board will be used. As above/ safe and sustainable It was unclear what the implications of extending the geography of the network would have on the network. Medical and nursing workforce plans being completed across paediatric cardiac services will ensure appropriate capacity is in place to deliver against all network Safe and sustainable services For example, there may be a requirement to recruit additional staff if the network expands further, and this had not been recognised in the proposals for the network. service objectives including outreach clinics and other elements of care delivered locally. The hospital failed to meet several of the standards including: - 4 surgeons - minimum of 7wte cardiac liaison nurses - a dedicated lead cardiac nurse NHSGGC will complete a medical workforce plan for paediatric cardiac surgery, cardiac anaesthesia, intensive care and cardiology. The hospital had 3 surgeons. Work was not evenly distributed between these surgeons. One surgeon undertook approx 140 cases per year whilst the other 2 surgeons each undertook approximately 70 procedures per year The panel also raised concerns regarding the number of intensivists and PICU nurses NHSGGC will ensure that surgical workforce plans allow all surgeons to achieve a minimum of 100 cases per year and have flexibility to provide a robust on call system out of hours. Annual job planning of the consultant team will reinforce this core objective with remedial strategies implemented where concern arises around number of procedures any individual surgeon is completing. NHSGGC will ensure that all senior medical service commitments for paediatric intensive care will be met safely and effectively. This will be the key criterion for an agreed medical workforce plan in this specific area of service. Plans are in place to recruit to the vacant consultant posts in cardiology and intensive care. There are currently 8 substantive PICU consultants with successful recruitment to a 9th post. Until the 9th post holder commences a locum in place. Recruitment is underway for the 10th Consultant. NHS GGC will complete a nursing workforce plan for paediatric intensive care and cardiac services. The service will develop an appropriate recruitment strategy for approved recommendations following completion of these nursing workforce plans. NHS GGC will ensure that all professional nursing standards are achieved in paediatric intensive care. They will also ensure that the capacity plan for paediatric intensive care is robust in meeting all service challenges including the provision of hypoplastic left heart surgery. This will be formally reported through quality outcome measurement for PICU. The family experience The panel was told that there had been a relatively recent reduction in the number of cardiac liaison nurses, There is a clear commitment to meeting the standards for Cardiac Specialist Nursing posts. The number of posts has been revised to meet the 300 procedures Excellent Care Safe and sustainable services The family experience Safe and sustainable and the panel observed little evidence of plans to rectify this by increasing the number of nurses to meet the standards. per year in Scotland from the 400 per year in England. This means that the service will require 4.5 wte Cardiac Nurse Specialists. The recruitment process is anticipated to begin mid June 2012. The option of liaison nurses being hosted at DGH level will be actively considered. Whilst the hospital described several new working practices, these were often not innovative practices as they had already been implemented in other organisations in the UK. An example of this was the recent introduction of HLHS by the hospital. As part of the planning arrangements for the New Children’s Hospital (NCH) NHSGGC will construct a specific redesign project stream for paediatric cardiac services. The hospital had identified the need to recruit a further 2 intensive care consultants increasing number to 10 doctors. However there was a recognition by hospital staff - and endorsed by the panel - that this may still leave the PICU stretched. In any event there were concerns over an ability to recruit additional intensivist capacity. See comments listed earlier on cardiac surgery, cardiology, and PICU medical staffing and completion of dedicated medical workforce plans across these professional groups. The hospital had attempted to recruit an additional cardiologist. However this was unsuccessful. There was limited evidence of robust plans to increase the number of cardiac liaison nurses. The panel felt that the hospital held a view that liaison nurses must be based in Glasgow, when they can in fact be based within a DGH. In the panel's opinion this demonstrated a lack of understanding and appreciation of the benefits of a network approach which was ultimately to the detriment of care for children and their families. The hospital had not identified any plans to increase their PICU nursing workforce. There were concerns over recruitment for some posts. The hospital had not indicated plans to increase all areas of the workforce where there were deficiencies such as PICU nursing. NHSGGC is currently recruiting to consultant vacancy in cardiology. It is noted that this work stream will look to develop a range of practice development and service change ahead of the NCH opening in 2015. This will also include formal approach to reviewing/ testing/ implementing new techniques. NHSGGC is currently actively recruiting to intensive care consultant vacancies (see above). See previous comments on cardiac liaison nurses; and actions to be taken. See comments listed earlier on the development of a managed clinical network and the provision of services delivered more locally. See previous comments on nurse staffing levels across intensive care and completion of a dedicated workforce plan for PICU nursing. The panel felt that nurse staffing levels in PICU may not be currently safe and were certainly not sustainable and this had led to low resilience, in particular because there was not separate or bespoke staff for emergency retrieval. The introduction of HLHS had further increased pressure on PICU capacity to a degree that is unsustainable and may become unsafe. As above The panel noted that the PICU would be stretched even with 10 consultants; at the time of the visit there were only 8 consultants. A 1:4 on call rota covering 22 beds was deemed insufficient. The hospital will continue to publish all the required clinical data on completed cardiac surgery and interventional cardiology procedures through the UK Congenital Cardiac Audit Database, and PICU clinical data through the UK PicaNet database; highlighting clearly all subsequent clinical outcome measures against set UK clinical standards See previous comments on PICU medical staffing. As above The hospital had moved to a Hospital at night model which tended to lead to a more junior, less specialist skill mix on call. The hospital will continue to support the successful Hospital at night service that functions within RHSC and as part of the service redesign for NCH and has plans to enhance this service. The family experience The hospital did not provide quiet rooms in all relevant care areas including OPD. NHSGGC will ensure the provision of quiet rooms in all relevant care areas, including outpatients. NHSGGC will monitor this as a key quality outcome indicator for service. Safe and sustainable There must be immediate action to fill the 2 consultant PICU vacancies; even then hospital staff acknowledged that this would leave the PICU stretched to an unacceptable and unsustainable level. The panel had concerns that whilst plans to increase the workforce were in place, the hospital had not demonstrated a commitment to apply funding. There were concerns that the hospital may not be able to recruit additional staff. See comments earlier in this section. See comments earlier on commissioning, recruitment and introduction of HLHS service aspects. Funding has been assigned to the plans outlined above. Recruitment is underway following confirmation of additional funding for Intensive Care consultants and HLHS programme from NSD. NHSGGC will continue to review and develop its various ongoing recruitment strategies. It is noted RHSC is seen as an attractive area of employment in children’s health care evidenced by various specialist posts which have been recently successfully filled. The family experience The hospital did not demonstrate an understanding of the role of some staff groups such as cardiac liaison nurses. As noted earlier NHSGGC is committed to the completion of a review of the liaison nurse specialist post. NHSGGC has already initiated a review of clinical psychology input to cardiac services. As above The concern over the role and use of cardiac liaison nurses remains valid if activity increases to 400 procedures or more RHSC has no plans to extend service to 400 cases per annum. As above The need to develop plans remains valid whether or not activity increases to 400 procedures or more Excellent care Whilst the hospital indicated a strong appetite for research, this appeared aspirational as there was no research strategy, and staff had limited capacity available for undertaking research. As above The hospital demonstrated commendable aspirations with regards to research; however this was not encapsulated in a strategy. As above The concerns over ensuring excellent care, particularly with regard to implementing plans for research remain valid if activity increases to 400 procedures or more. As above. NHSGGC will develop a coherent research strategy outlining all major research areas and indicating opportunities for working in partnership with other centres. NHSGGC will ensure sufficient capacity and resources exist to implement the research strategy, including dedicated time in work plans for clinicians to undertake research. RHSC has no plans to extend service to 400 cases per annum. As above Age appropriate care The need to develop plans for ensuring excellent care will remain valid if activity increases to 400 procedures or more. As above. Although the panel was presented with a transition policy, there was little evidence of compliance with the standard. NHS GGC will develop a comprehensive approach to transition. This will include a review of current transition arrangements taken forward in partnership with adult congenital heart disease service, and local DGHs. Any recommendations from this review will be considered and implemented as appropriate. This will be a key component in the service’s quality outcome indicator reporting. As above There was only one nurse led clinic per month. The review will cover capacity planning for transition between paediatric and adult congenital services. As part of the nursing workforce plan NHSGGC will recruit dedicated resources to transition nursing. As above/ family experience There were no dedicated beds for adolescents although cubicles were made available for adolescents where possible. NHSGGC will review current estate and provide a dedicated area and facilities for adolescents. Age appropriate care There was insufficient staff for transition working in the network. Ensure plans for transition exist within the network as well as the designated surgical centre in partnership with adult congenital heart disease services. As above There were no plans to develop transition capacity within the network. As above. As above/ a network for child and family The panel raised concerns that there was little active patient involvement or engagement in developing plans for transition and ensuring care was age appropriate. See previous comments on the PFPI work plan related to MCN. The concerns over transition within the network remain valid if activity increased to 400 procedures or more. RHSC has no plans to extend service to 400 cases per annum. The need to develop plans for transition will remain valid if activity increases to 400 procedures or more. As above. Age appropriate care