Supplemental Table 1
Websites of bioethics committees, medical associations & human genetics societies searched
1. Académie des sciences de l’Institut de France
2. Académie des sciences de l’Institut de France – le groupe science et société
3. Académie des sciences morales et politique
4. Académie national de médecine
5. Académie royale de médecine de Belgique
6. Advisory committee on genetic testing
7. Agence de la biomédecine
8. Agencia de evauacion de technologias sanitarias
9. American Academy of Pediatrics (AAP)
10. American Association for the advancement of science
11. American Board of Genetic Counseling
12. American Board of Medical Genetics
13. American College of Epidemiology
14. American College of Medical Genetics (ACMG)
15. American College of Obstetricians and Gynecologists (The) (ACOG)
16. American College of Physicians
17. American Medical Association (AMA)
18. American Medical Women’s Association (AMWA)
19. American Nurses Associations (ANA)
20. American Public Health Association (APHA)
21. American Society for Reproductive Medicine (ASRM)
22. American Society of Human Genetics (ASHG)
23. Association française pour le dépistage et la prévention des handicaps de l'enfant
(AFDPHE)
24. Association of American Medical Colleges (AAMC)
25. Association of Genetic Nurses and Counselors
26. Association of Professors of Human or Medical Genetics
27. Association of Public Health Laboratories (APHL)
28. Association of Reproductive Health Professionals (ARHP)
29. Association of State and Territorial Health Officers (The) (ASTHO)
30. Association of Women's Health, Obstetric and Neonatal Nurses (AWHONN)
31. Australasian Association of Genetic Counselors (ASGC)
32. Australian Research Council
33. Australian Government – Gene Technology Ethics Committee (GTEC)
34. Australian Government – National Health and Medical Research Council
35. Australian Academy of Science
36. Australian Catholic Bishops Conference
37. Australian GenEthics Network (AGEN)
38. Australian Health Ethics Committee (AHEC)
39. Australian Health Ministers’ Advisory Council
40. Australian Law reform Commission
41. Australian Medical Association (AMA)
42. Australian National Genomics Information Service (ANGIS)
43. Australian Commonwealth Department of Industry Science and Technology
44. Belgian Advisory Committee on Bioethics
45. Bioethics Society of Singapore
46. Bioethics and Law – Spain
47. Bioethics Consultative Committee – Malta
48. British Fertility Society
49. British Medical Association (BMA)
50. British Society for Human Genetics (BSHG)
51. Canadian Association of Genetic Counsellors (CAGC)
52. Canadian College of Medical Geneticists (CCMG)
53. Canadian Medical Association (CMA)
54. Canadian Pediatric Society (CPS)
55. Canadian Policy Research Networks
56. Center for Disease Control and Prevention (CDC)
57. Center for Ethics and Health
58. Center for Ethics and Law
59. Clinical Genetics Society (CGS)
60. Comite Consultatif de Bioéthique de Belgique
61. Commission Nationale d’Ethique pour les Sciences de la vie et de la santé –
Luxembourg
62. Committee of Medical Ethics of the Polish Camber of Physicians and Dentists
63. Council for International Organization of Medical Sciences (CIOMS)
64. Council for Responsible Genetics (CRG)
65. Council for Science and Technology, Bioethics Committee
66. Council of Europe
67. Council of Europe – Steering Committee on Bioethics (CDBI)
68. Council of Regional Networks for Genetic Services (CORN)
69. Cyprus National Bioethics Committee
70. Dutch Federation of Medical Scientific Societies (FMWV)
71. Dutch Ministry of Health
72. EuroGentest Network of Excellence
73. European Forum for Good Clinical Practice
74. European Commission - European Group on Ethics in Science and New
Technologies (EGE)
75. European Medical Research Council (EMRC)
76. European Parliament / Temporary Committee on Human Genetics and Other New
Technologies on Modern Medicine
77. European Society of Human Genetics (ESHG)
78. European Society of Human Reproduction and Embryology (ESHRE)
79. Finnish Medical Association (FMA)
80. Finnish National Ethics Committee
81. French Institute of Health and Medical Research (INSERM)
82. Genetics Society of America (GSA)
83. Genetics Society of Australia (GSA)
84. German National Ethics Council (Geschäftsselle des Nationalen Ethikrates)
85. German Society of Human Genetics (Deutsche Gesellschaft für Humangenetik
e.V.)
86. Greece - National Bioethics Commission
87. Health Council of the Netherlands
88. Health Research Council of New Zealand (HRC)
89. Hellenic National Bioethics Committee
90. Human Genetics Advisory Committee (HGAC)
91. Human Genetics Commission
92. Human Genetics Society of Australasia (HGSA)
93. Ibero-American Society of Human Genetics of North America (IASHGNA)
94. Icelandic Medical Association
95. Icelandic National Bioethics Committee
96. Institute of Biology
97. International Association of Bioethics
98. International Council for Science (ICSU)
99. International Federation of Gynecology and Obstetrics (FIGO) - Committee for
the Study of Ethical Aspects of Human Reproduction
100.
International Federation of Human Genetics Societies (IFHGS)
101.
International Society for Neonatal Screening (ISNS)
102.
International Society of Bioethics (SIBI)
103.
International Society of Nurses in Genetics (ISONG)
104.
Ireland Department of Health and Children/Commission on Assisted
Human Reproduction
105.
Irish Council for Bioethics
106.
Irish Society of Human Genetics (ISHG)
107.
Italian Society of Human Genetics
108.
Joint Committee on Medical Genetics
109.
Maternal and Child Health Bureau (MCHB)
110.
Medical Council – Ireland
111.
National Academy of Science – Institute of Medicine (IOM)
112.
National Association of Pediatric Nurse Practitioners
113.
National Bioethics Advisory Committee (NBAC)
114.
National Coalition for Health Professionals Education in Genetics
(NCHPEG)
115.
National Consultative Ethics Committee for Health and Life Sciences
(CCNE)
116.
National Health Policy Forum
117.
National Human Genome Research Institute (NHGRI)
118.
National Institute for Clinical Excellence
119.
National Institutes of Health (NIH)
120.
National Newborn Screening and Genetics Resource Centre (NNSGRC)
121.
National Society of Genetic Counselors (NSGC)
122.
Netherlands Scientific Council for Government Policy (WRR)
123.
Network of Applied Genetic Medicine
124.
New Zealand National Health Committee
125.
New Zealand Ministry of Health
126.
NHS Quality Improvement Scotland
127.
NHS Sickle Cell and Thalassaemia Screening Programmes
128.
Nordic Committee on Bioethics
129.
Norway/Government – Ministry of Health and Social Affairs
130.
Norwegian Board of Health
131.
Nuffield Council on Bioethics
132.
Paediatric Society of New Zealand
133.
Pan American Health Organization (PAHO)
134.
Parliament European Temporary Committee on Human Genetics and other
New Technologies in Modern Medicine
135.
Poland Government – Bioethics Commission of the Ministry of Health
136.
Public Health Genetics Unit (PHGU)
137.
Royal College of Obstetricians and Gynecologists (RCOG)
138.
Royal College of Physicians (RCP)
139.
Royal Commission on New Reproductive Technologies
140.
Science and Technology Ethics Committee
141.
Scottish Council on Human Bioethics
142.
Scottish Intercollegiate Guidelines Network (SIGN)
143.
Secretary’s Advisory Committee on Genetic Testing (SACGT)
144.
Secretary’s Advisory Committee on Genetics, Health and Society
(SACGHS)
145.
Health
Slovakia Government - Central ethics Committee of the Ministry of
146.
Society for Women’s Health Research (SWHR)
147.
Society of Obstetricians and Gynaecologists of Canada (SOGC)
148.
Swedish Medical Research Council (MFR)
149.
Swedish National Council on Medical Ethics (SMER)
150.
Swiss Academy of Medical Sciences (SAMS)
151.
Swiss National Advisory Commission on Biomedical Ethics (NEK-CNE)
152.
Swiss Society of Medical Genetics
153.
The Academy of Medical Sciences
154.
The Clinical Medical Genetics Society (CMGS)
155.
The Danish Central Scientific Ethical Committee (Den Centrale
Videnskabsetiske Komité)
156.
The Danish Council of Ethics (Det Etiske Râd)
157.
The Hastings Centre
158.
The President's Council on Bioethics
159.
The Royal Australian and New Zealand College of Obstetricians and
Gynaecologists (RANZCOG)
160.
The Royal College of Midwives (RCM)
161.
The Royal College of Paediatrics and Child Health (RCPCH)
162.
The Wellcome Trust
163.
UK Newborn Screening Programme Centre
164.
UNESCO - International Bioethics Committee (IBC)
165.
United Nations Educational, Scientific and Cultural Organization
(UNESCO)
166.
United States - Department of Health and Human Services (DHHS) - U.S.
Preventive Services Task Force (USPSTF)
167.
United States National Science Foundation (NSF)
168.
United States/Government Deaprtment of Energy (DOE) – Office of
Science
169.
World Health Organization (WHO)
170.
World Medical Association (WMA)