Peer Review in Paediatric Endocrinology Self Assessment Questionnaire Centre: Date: Visitors: 12/02/16 Explanatory Notes Introduction The need for Peer Review of UK endocrine units was agreed by the Clinical Committee of the BSPED in 2011. The Committee recommended that a series of voluntary external visits be piloted. The project is clearly relevant to the agendas of Clinical Governance in Endocrinology, Consultant Appraisal and Consultant Revalidation. Other representative bodies (for example British Thoracic Society1,2 , British Renal Association 3 and Cystic Fibrosis Trust 4) have successfully undertaken such schemes. Purpose The main purpose is to improve services for paediatric endocrine patients. Visits will focus on basic standards of paediatric endocrine care and service provision. Visits will form the basis for an exchange of ideas and experiences, and allow areas of concern to be voiced. Proposed structure A visit will be made over one day by two consultants from different areas of the UK, one of whom will be based in a district general hospital. As the project develops, consideration will be given to the inclusion of nursing and patient members in the visiting team. A separate document (‘Planning a Peer Review Visit’) contains recommended timetables and templates for a visit. Visit Report The visit report will highlight examples of endocrine excellence, matters for consideration and recommendations for change. The report ought to provide a powerful lever to support local improvements (for example, to highlight a need for consultant expansion). The report will be supportive, rather than punitive, but will highlight any problems. Those reviewed will have an opportunity to correct any factual inaccuracies in a draft version of the report. The report will be confidential, and the final version will sent to the BSPED Peer Review Officer, and to no other party without the express permission of the consultants reviewed. Those reviewed will have the opportunity to provide feedback on the review process to their reviewers. The reviewers will also be sent a feedback questionnaire. Peer Review visits across the UK These PR documents are adapted from the SfE Adult Endocrinology Services Peer Review documents, developed over several years. They are based on the UK Standards for Paediatric Endocrinology produced in 2010. The plan is to conduct a comprehensive review of all UK Paediatric Endocrine Units over the coming years. Conclusion It is vital the BSPED is active in Clinical Governance. No nation-wide scheme currently exists for our speciality, although the process is also just being developed for Paediatric Diabetes. Such a scheme presents an opportunity to improve patient 2 12/02/16 care, gain additional resources for service provision and to lift morale within the paediatric endocrine community. References 1. Page RL, Harrison BDW. Setting up Interdepartmental Peer Review. Journal of the Royal College of Physicians of London 1995; 29, 319-324 (www.britthoracic.org.uk) 2. Page RL, Harrison BDW. Interdepartmental Peer Review. British Medical Journal 1997; 314, 765-766 3. Cameron J.S. Treatment of adult patients with renal failure. Recommended standards and audit measures. 2nd Edition. Royal College of Physicians 1997 (www.renalreg.com) 4. Standards for the clinical care of children and adults with cystic fibrosis in the UK 2001. CF Trust 2001 (http://www.cftrust.org.uk/aboutcf/publications/consensusdoc/C_3000Stan dards_of_Care.pdf) 5. UK Standards for Paediatric Endocrinology 2010. www.bsped.org.uk 3 12/02/16 Action Please complete the Self Assessment Questionnaire as fully as possible. It may be possible for the local Business Manager and his/her administrative team to enter the activity data and other factual details, in collaboration with the Lead Clinician for Endocrinology. The completed Questionnaire should be sent to the Reviewers at least 4 weeks before the visit so that pre-visit planning can be undertaken. It will not be possible to visit all ‘feeder’ DGHs because of time constraints. However, following local consultation, consultants from one DGH site will be invited to attend the main site visit to contribute formally to the review process. Importantly, please assemble the supporting documentation which may include some or all of the following: Endocrine Unit handbook Protocol sheets Patient Information sheets Shared Care documents (eg GnRH agonists, GH) Commissioned surveys (eg clinic appointment waiting times, letter turnaround, MRI/DEXA waiting times) Recent Endocrine Audit reports Unit Research summary Web site URLs if appropriate These supporting papers can be given to the Reviewers on the day of the visit. 4 12/02/16 Pre-visit Questionnaire Section 1: GENERAL INFORMATION ABOUT YOUR REGION/DISTRICT What is the population of your Region or District? Does your Region or District have any particular characteristics (social deprivation, preponderance of ethnic minorities, rural access problems etc)? How many hospitals provide paediatric endocrine services within your Region? district? List and Name all hospitals: Teaching District General How many paediatric endocrine consultants are there in your centre? Please give names and indicate the number of hours per week each individual allocates specifically to paediatric endocrinology (not including general paediatrics or Diabetes) a) . b) c) d) e) f) g) How many paediatric diabetes consultants are there in your centre? Please give names h) i) j) k) l) m) 5 12/02/16 Section 2: OUT PATIENTS Out Patient Workload (Please use separate sheets if necessary) Number of Paediatric Endocrine New Patients seen annually in your centre If possible please give a breakdown for different sub-speciality clinics Growth Turners General endocrinology Disorders of sexual development Adolescent/Transitional Late Effects of childhood cancer Metabolic Bone Thyroid Other Number of Endocrine Review Patients seen annually in your centre If possible please give a breakdown for different sub-speciality clinics Growth Turners General paediatric endocrinology Disorders of sexual development Adolescent/Transitional Late Effects of childhood cancer Metabolic Bone Thyroid Other Number of Endocrine Day Cases seen annually in your Investigation Unit What is the waiting time for New Patients? Urgent Non-Urgent Are there shortages of appropriately timed Review appointments for any of the endocrine clinics? Please specify (giving as much detail as possible) What is the average time between receipt of a referral letter & an appointment being issued? 6 12/02/16 Are the clinics dedicated to Paediatric Endocrinology or mixed General Paediatrics & Endocrinology? Out Patient Staffing & Clinic Support Do you consider there are sufficient consultants for the endocrine out-patient workload? Are any clinics regularly held in the absence of a consultant? Are there sufficient junior medical staff to help with clinics? Are they provided with written guidelines for investigation & management? Are there sufficient nursing staff to run the clinics efficiently? Is there a Paediatric Specialist Endocrine Nurse? Does a PSpEN participate in routine out patient clinics? Are your secretarial facilities adequate? What is the average ‘dictation to typing’ interval? (Please attach results of any recent surveys?) What is the average ‘dictation to dispatch’ interval? (Please attach results of any recent surveys?) Is electronic communication used? Endocrine out patient referrals Clinic letters to referring clinicians E-mail consultations with GPs 7 12/02/16 Out Patient Facilities Do you have a dedicated Endocrine clinic area or are clinics held within a general out patient facility? Is there a stadiometer in clinic? Is it correctly placed? Is it frequently calibrated? Is there a set of ‘heavy duty’ scales in clinic? Are there facilities for venesection? Are there facilities for cold-spinning blood samples or for rapid specimen transport to the endocrine laboratory? Are there sufficient consulting rooms and examination rooms? Are there adequate X-ray viewing boxes/ access to PACS in the consulting rooms? General Points on Out Patients Are the clinics generally well-run and efficient? If not, what are the main problems? Do patients have any endocrine blood tests before seeing the doctor? Is there a supply of local leaflets about various endocrine conditions? Is there a supply of leaflets about the Child Growth Foundation, Turner Syndrome Support Society and other Endocrine self-help groups? Are patients given written instructions on how to manage their condition? Who decides whether or not patients who have not attended should be sent further appointments? Are post-clinic case discussion meetings held? If so, what are the main objectives of such meetings? 8 12/02/16 Section 3: IN PATIENTS In Patient Workload What is the total number of paediatric endocrine admissions annually in your centre? What is the total number of endocrine consultations annually (for in-patients in other wards in your centre)? Is there a specialist on-call rota for paediatric endocrinology? If so, what is the on-call frequency? How often are the consultants on-take for General paediatrics? In Patient Staffing Are there sufficient consultants to support the in-patient workload? Are there sufficient junior doctors to support the in-patient workload? Are there sufficient middle-grade staff available to provide continuous specialist cover for endocrinology? Is the ward staffed adequately with nurses, PAMs & support staff? 9 12/02/16 In Patient Facilities Are all paediatric endocrine patients admitted to a dedicated ward? Do patients with endocrine problems as part of another diagnosis get referred quickly to the paediatric endocrine team (eg neuro-oncology patients, PICU patients)? Is there a ‘high dependency’ area in the ward (or hospital) for patients with severe metabolic problems? Are the imaging facilities easily accessible? Is the ward well run and efficient? Are results from investigations available on the same day as requesting (eg cortisol, thyroid function tests) Secretarial Support and Facilities Does each consultant have at least 1 WTE of secretarial support? Is there sufficient secretarial support for the clinical needs of the department? Is there sufficient secretarial support to service the additional demands of education and research? Are the IT infrastructure & support satisfactory? Endocrine Testing/Day Cases Is there a unit for Endocrine Investigation? Is it staffed by Specialist Endocrine Nurses? Is the Unit adequately staffed? Is there an up to date Endocrine Handbook? Are there resuscitation facilities? Is there a waiting list for endocrine 10 12/02/16 investigations? If so, what is the current waiting time for routine tests? Chemical Pathology/Endocrinology Is there a chemical pathologist who specialises in endocrine biochemistry? Are there regular meetings with chemical pathologists? Are the turnaround times adequate for routine hormone assays (eg. cortisol, thyroxine and prolactin), as clinical need dictates? Are the arrangements adequate for Supra-Regional endocrine assays? Does the local laboratory participate in NEQAS? Are there any particular investigation problems or limitations to highlight? For example Is the local TFT strategy satisfactory? Is there access to SHBG or free testosterone assays? Imaging Facilities Is there a MRI scanner? What is the waiting time for ‘routine’ pituitary MRI? Are there facilities for bone densitometry? What is the waiting time for DEXA? Are facilities for radionuclide scans satisfactory? What is the waiting time for a radionuclide scan? Are facilities for ultrasound satisfactory? What is the waiting time for USS? Are the images number coded? 11 12/02/16 Is there a PACS system? Does it link easily with other hospitals in the region? Is there a radiologist with a special interest in endocrine radiology? 12 12/02/16 Section 4: SPECIALIST CLINICS Are multidisciplinary, specialist clinics held for certain groups of patients? For example: Disorders of sexual development Turner’s syndrome ‘Late Effects’ of Childhood Cancer Transition clinics Renal/endocrine clinics Metabolic Bone Disease Neuroendocrine Tumours Endocrine Genetics Others (please give details) Section 5: TRAINING Consultants Are the consultants able to keep abreast of developments in Endocrinology by attending local,regional and BSPED meetings? Are the consultants able to fulfil their CPD requirements? Junior Medical Staff Does the unit hold regular formal ‘topic teaching’ meetings for junior staff? Does the Unit have written policy documents on various conditions? Are adequate IT & library facilities available onsite? Are specialist registrars encouraged to undertake ‘endocrine consultations’ around the hospital? If so, how are their opinions ‘checked’? Are the juniors encouraged to undertake research or write case reports? Are the juniors able to take study leave? 13 12/02/16 When was the most recent School of Paediatrics training inspection? Nursing Staff Does the unit hold regular training sessions for nurses? Section 6: RESEARCH Is the unit active in research? If so, please provide the unit research summary If not, is this because of lack of staff, time or resources? Are the juniors encouraged to undertake research? Section 7: AUDIT Does the unit regularly audit its activities? If so, please give examples of recent audit reports Does the unit maintain an endocrine diagnostic database? 14 12/02/16 Section 8: MEETINGS Does the unit have regular specialist meetings? Does the unit have regular radiology meetings? Does the unit have regular meetings with a clinical biochemist? Is there any formal liaison with surgeons to discuss cases? Are there any regular regional meetings? Section 9: RELATIONSHIPS WITH OTHER DEPARTMENTS Are there any special links with particular consultants in other departments such as: Paediatric urology/ gynaecology Adult endocrinology Neuro/pituitary surgery Radiotherapy Psychology/psychiatry Nuclear Medicine Thyroid surgery Ophthalmology Are any of these links unsatisfactory? Are any of these activities performed in other hospitals? If so, does this present any particular problems? Are the links with Primary Care satisfactory? Do ‘shared care’ arrangements work well? 15 12/02/16 Section 10: MEDICAL RECORDS Are these satisfactory? Are there difficulties in locating notes for out patient clinics? Is there a flow sheet for serial results? Section 11: BUDGET HOLDING Does the unit have its own budget? Are there any problems with this? Are there problems with funding of expensive endocrine therapies such as GH & IGF-1? If so, how many hours per week does the Lead Clinician have to spend on these negotiations? Section 12: LOCAL PERCEPTIONS FOR CHANGE What are the changes most wanted by the endocrine unit? How would they like the endocrine unit to be developed? Does this relate to any of the local NHS priorities for change? 16