APPROVED MINUTES FROM NICAN NURSING GROUP MEETING : W EDNESDAY 16TH MARCH 2005
NICAN
Minutes from Inaugural NICaN Nursing Group Meeting
Wednesday 16th March 2005
9.00am – 3.30pm
Templeton Hotel, Templepatrick
Attendees
Seamus Carey – Beeches Mgmt.
Sally Campalani – BCH/ BPH
Ronan Carroll – Daisy Hill Hospital
Dr Dermott Davison – NICaN Team
Eileen Deery - UHT
Marie Glackin - QUB
Liz Henderson – NICaN Team & BCH
Liz England - Alt
Toni Lenfestey – Mater
Ann McLean -RVH
Lisa McWilliams – NICaN Team
Phil Mahon – Foyle Trust
Hazel Neill – CAHGT
Nicki Patterson - DHSSPSNI
Alison Porter - UCHT
Apologies
Dr Gerard Daly and Sandra McKillop – NICaN Team
Welcome and Introduction, Liz Henderson
Liz Henderson welcomed everyone to the inaugural meeting of the NICaN
Nursing Group and expressed excitement at working together. Roundtable
introductions were made before it was highlighted that Seamus Carey would be
helping to facilitate some of the group work sessions.
The purpose of the meeting was outlined two fold
 To agree the Terms of Reference and effective working arrangements for
the NICaN Nursing group; and
 To agree an outline of the work priorities for the group
Session 1 – Reviewing Progress and Exploring the Changing Context
Liz briefly reflected on where the group had come from by outlining a number of
positive cancer nursing developments across the region since the 1996 Campbell
Report, including the role out of Chemotherapy and the work taken forward by
the Lead Nurses Group.
Seamus Carey explained that a short group work session had been arranged to
discuss the changing context, including the establishment of NICaN, and to
enable new members to be brought up to speed. Members were divided into
three groups - each with at least one new member and a NICaN Team member
– and asked to consider the following questions in order to develop a shared
understanding:



Why was there a need to review the remit of the Lead Nurses Group?
What are the opportunities within the Network?
How can the Network support the development of cancer nursing?
A summary of responses is contained within Appendix 1
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APPROVED MINUTES FROM NICAN NURSING GROUP MEETING : W EDNESDAY 16TH MARCH 2005
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Following the group discussions Liz reinforced the linkages within the Network, in
particular, highlighting where the Nursing Group fitted in to the proposed Network
structures.
Session 2 - Group Terms of Reference
Purpose Statement
Liz reviewed the thinking to date, which had been done around the draft purpose
statement and made reference to the papers1 contained within the members
packs. The Draft Purpose statement was devised at the last Lead Nurses
Meeting and read as follows:
“To give leadership and continuously develop cancer nursing in Northern
Ireland, to ensure high quality person centred care.”
Dermott Davison asked Nicki for clarification that the purpose would not be
perceived as attempting to usurp any Departmental role and Nicki confirmed that
it is what she expected this Group’s purpose to be. The floor was then opened
for suggestions and there followed some discussion around proactivity,
connectedness and the inclusion of the word “people affected by cancer”. It was
also suggested that the statement was over simplistic, with particular omissions
noted as evaluation, innovation and education. It was agreed that additional
points could be bulleted under the purpose statement, and that these would be
informed by the agreed work plan.
The redrafted and agreed purpose statement is as follows:
“To give leadership and seek to continuously develop nursing for people
affected by cancer in Northern Ireland, to ensure high quality person centred
care.”
and
“To agree clinically effective treatment and care.”
Group Membership
Seamus stated that it was necessary to ensure that the core membership is
appropriate to fulfil the agreed group purpose. A proforma had been developed
to capture each member’s sphere of influence and contacts (see Appendix II).
Extensive time was then spent feeding this information back. A full record is
contained within Appendix III.
It was agreed that the breadth and spread of potential influence was wide
reaching but it was suggested that the membership be expanded to include a
representative of those commissioning nursing services along with additional
community input i.e. district nursing.
Group Linkages
Seamus stated that the last Lead Nurses meeting some time had been spent
identifying stakeholders that this Group needed to communicate with. This list
will be reviewed periodically and the processes for linking with them will need to
be developed. With regards to one of the identified stakeholders, Chaplaincy,
1
Relevant papers : Initial Thinking, Concept Map and Draft Terms of Reference
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APPROVED MINUTES FROM NICAN NURSING GROUP MEETING : W EDNESDAY 16TH MARCH 2005
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Anne McLean reported that the first extended Chaplaincy meeting had been held
last week in the Royal. It was suggested this forum could be a good contact.
Before breaking for lunch Liz reiterated that the NICaN Nursing Group would
develop strong links with the Regional Tumour Site Specific Groups, NICaN
Pharmacy and NICaN Chemotherapy Group.
Session 3 – Business Meeting and Agreeing Work Priorities
Updates
At the start of the afternoon session Liz Henderson provided three updates;
Northern Ireland Cancer Nursing Research Forum
This forum has agreed to become the NICaN Nursing Research & Development
subgroup of this regional group. A meeting had been held yesterday (15 th March)
to start to develop its work plan for the year ahead. Progress against work plan
will be reported at future NICaN Nursing Group Meetings.
Education
It was reported that Nicki Patterson 2 had chaired a meeting last week at the
request of the ECGs to discuss province wide cancer nursing education priorities
for the next year. It has however been agreed that the future direction will come
from the NICaN Nursing Group, which may require a subgroup to be created –
with representation of the key players.
Chemotherapy Nurses Subgroup
The Manual of Cancer Services recommends that Cancer Networks have a
Chemotherapy Nurses Subgroup to inform nursing competency issues. It was
reported that the Lead Cancer Nurses had discussed this at a previous meeting
and Hazel Neill had agreed to act as the Lead, should there be agreement
around this table that it was acceptable. This was unanimously agreed. It was
however suggested, and subsequently agreed; that the subgroup should be
called a cancer nurses treatment subgroup rather than chemotherapy nurses
subgroup
One of the agenda items at last weeks NICaN Pharmacy Group meeting was the
regional extravasation policy and following a recent incidence at the Ulster
hospital it was suggested that there was a need for a treatment plan for this
policy. It was questioned whether this could be a piece of work for the cancer
nurses treatment subgroup to consider.
Work Priorities
Liz Henderson reported that each Regional Group were required to agree a work
plan for May 2005 – April 2006, and to provide reports against it to the NICaN
Board. Members were again split into their three groups and asked to discuss
priority work areas. (A summary of the group work is contained within Appendix
IV.) Highlighted priorities include; nursing education, establishing a baseline of
activity, developing leadership, service improvement and integrated team work.
All groups expressed a fear that the scale of the task was overwhelming.
2
Nicki Patterson had left the meeting before this discussion.
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There was some discussion around the development of a chronic disease
management model for cancer nursing. It was acknowledged that this was a
very long-term task. Phil Mahon reported that departmental funding via that
health boards was available for flagship projects and it was suggested that this
Group investigate the possibility of applying for funding for this project. Phil
agreed to forward a copy of an application template developed and information
on the scheme.
Following much discussion and a realisation that the work plan needed to be
deliverable and effective it was suggested that the work plan focus on distinct
pieces of work around chemotherapy nursing i.e. ”Improving the quality of care
for people receiving chemotherapy”. To take this work forward it was agreed that
the Lead Cancer Nurses meet to develop a proforma to capture baseline activity
and vision for the future, which once developed will be issued to the wider
constituency for input.
Session 4 – Agreeing the next steps
The date for the next NICaN Nursing Group Meeting was agreed as 12th May
2005 (2.00 - 5.00pm)
The actions from the meeting were summarised as follows:
1. Produce a report of meeting
Chair & NICaN Team
2. Amend Draft Terms of Reference
Chair & NICaN Team
3. Phil Mahon to forward details of
Flagship Project funding
Phil Mahon
4. Lead Cancer Nurses to develop a
Chemotherapy Nursing Baseline and
Vision proforma
Lead Cancer Nurses
5. Next Meeting to b held on Thursday
12th May 2005 (2.00 –5.00pm)
ALL
Liz Henderson closed the meeting, and on behalf of the Team thanked all for
attending what was agreed, had been a highly informative and productive
meeting. She also thanked Seamus Carey, for helping to facilitate the
proceedings.
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APPROVED MINUTES FROM NICAN NURSING GROUP MEETING : W EDNESDAY 16TH MARCH 2005
AP P EN DIX I
SESSION 1 GROUP WORK
SUMMARY OF RESPONSES
Why was there a need to review the remit of the Lead Nurses Group?
Formality
New structure
Complexity/workforce
Expand roles/new roles
Patient information
Expand
Re focus on care – need to expand membership
C. Nursing
Core skills – exchange – core skills
Community
Provide remit action – voice vs support
Need to stop paying I.P service to education
What are the opportunities within the Network?
Equity - access
- treatment
- outcomes
- standardisation, even
between cancer sites
Education – MDT
Collaboration
OPP – demonstrate effectiveness of a network
Information Exchange
Horizon scanning
Sharing Out
How can the Network support the development of cancer nursing?
RCN represents/lobby voice
Education on agenda
Systematic, integrated co-ordinated way approaches.
Informed
Respond
Implement
Overwhelming workload
Lift initiatives to strategic level
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APPROVED MINUTES FROM NICAN NURSING GROUP MEETING : WEDNESDAY 16TH MARCH 2005
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NICA
A P P E N D I X II
Stakeholder Proforma
By drawing spider diagrams please indicate the stakeholders who you will be communicating with as a Core Member of the Regional Nursing Group,
and in turn who they will communicate with.
Regional Nursing Group
Core Member
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APPROVED MINUTES FROM NICAN NURSING GROUP MEETING : W EDNESDAY 16TH MARCH 2005
NICAN
A P P E N D I X III
Spheres of Influence
Liz H
Marie
Nicki
Phil
NICaN Team / Board
NICaN Nursing R+D Forum
BCH Lead Cancer Team
RACC
CNAC
CNAC + R+D Sub-Group
NICaN Chemo Group
NDP
MDTs
Development Forum
RGH BCH Meeting
ECGs
Education Facilitator Group
Curriculum Planning Group
Reginal Ed. Group for Cancer
Support Information Centre
Pt Hotel
Ca Framework Steering
Ca Forum (Charities)
NCI/ROI/NI
QUB/BCH Practice Educations
Craigavon CNS PD Group
Practice Development Colloquium
BCH/RGH Collaborative PD Programme
Trust Lead Team
Network Lead Nurse
Nurse Prescribing Groups
Other University and School
Administration Committees
University Staff Cancer Team
All Ireland Cancer Nurses Group (NCI)
Nursing & Midwifery Advisory Group
– CNO
– UK CNO Group
1 RMAG RACC
Cancer Forum
Nursing Officer @ DHSSPS
Nurse Officer for Prescribing
Project Director Redesign of Community
Nursing
Nurse Consultant Revision
CNAC
DBS Steering Group
Nurse Leaders Network
Directors of Nursing + Ed Leads NIPEC
All Ireland Cancer Nursing Group
Trust Board + Senior Management Team
Lead on Audit + R+D
DBS WHSSB Group
GP Liaison Forum (Foyle)
Vol. Groups
Old People POC + Comm. Health Care
AHPs + Nurses + Health Visitor
WHSSB Nurse Prescribing Group
Foyle Medicine Management
NI Trust Directors of Nursing Group
Nurse Leaders Network
M&W Education Consortia
Business + Contacts at DHSSPS
GP Pressures + W/List Steering Group
Acute Nursing Network
Essence of Care Steering Group
BPBC
NLN
Business Contracts Manager – Education
Realising Governance Steering Group
Children’s Nursing Advisors
Re-Design of Community Nursing Project
CNAC (Observer)
RMAG Committee
Cancer Services Framework Project Team
Emergency Pressures and Waiting List
Steering Group
N&W ECG
Cancer Board Group
Cancer Unit Group
Information Links to Foyle Hospice
Derry Well Women Cancer Groups
Trust User Panel
Trust Contracts with Marie Curie Night
Service
Links to Children’s Hospice – Home Care
Lymphodoema Group and Children’s
Palliative Care Board Group
N/W Communities Network
WASNAG (Western Senior Nurse)
Clinical and Social Care Government
Drugs and Therapeutics Committee
(Alt/Foyle)
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APPROVED MINUTES FROM NICAN NURSING GROUP MEETING : W EDNESDAY 16TH MARCH 2005
Ronan
Sally
Toni
Liz
Internal link
Non-Cancer Hospital
Nurse Prescribing SHSSB
Oncology & Haematology Nursing
Bone Marrow Transplant Co-ordinator
End of Life Group
Clinical Governance Steering Group
BCH Drugs & Therapeutics Group
Oncologists
N&W Belfast Nursing & Palliative Care
Groups
S&E Belfast Nursing & Palliative Care
Groups
NI Hospice Council
Radiotherapy Groups
Child Protection (BCH & EHSSB)
Cancer Centre
Bed Utilisation Audit
AHPs
Chaplaincy
Infusional Services
CL Nurse Specialist Group
RCH Chair
All Ireland NCI
N&W Palliative + Cancer Group, Belfast
Palliative Care
EHSSB – Pall Care and Cancer Care
Group + Non-cancer Group
Lead in-care Pathways – Dying Patient
Nursing Group
Bereavement Services Group
User Involvement Group
Chaplins Meetings
Hospital Groups
- Audit (RMAG)
- Drugs and Therapeutics
EHSSB – Member Cancer and Palliative
Care
EHSSB – Member of Non-Cancer Group
(Lung)
National Council for Palliative Care
Trust
Board
DN
Cancer Unit Development
Unit
CSM Forum
Board Strategy Group
(Exec)
Generalist
Care Access
Investment in all local
groups (tumour)
AHPS
Chaplaincy - Sperrin Lakeland needs
- Board wide Groups
Information sources – WHSSB Area
Lead Team R&D Forum Chemotherapy
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Pre Reg Curriculum Monitoring Group
Post Reg ECG
Palliative Care Team
Outreach Issues
Education Links to Queens
3 PD Nurse
1 SDO who co-ordinated a lot of
placements for Non Cancer Centre
placements
NICaN Lead Nurses/Clinical Chemo
Group
Patient Hostel for information and support
centre
Governance and Audit
MP Forum
Directorate Meeting
XRV Development
GLC
Projects/Topics of Interest
Telephone Advice
Bridge Wates Suite
Task Force
Clinical Services Transfer Group (BPH –
New Centre)
Lead Nurse in Project in the case of the
dying Pathway EHSSB
Palliative Care CWS and PCT information
cancer unit
RCN – Palliative Care Forum
Care Pathway for the Dying
CNS Macmillan Mater Trust
Macmillan Mentor of CWS and new posts
Member of all Ireland Nursing Group –
Ireland, Northern Ireland, NCI USA
Weekly PCT meeting in AHPS/Social
Worker and Chaplain
Members of Pastoral Group
Lead Prof. in Bereavement Services
Group
Vice-Chair – Lung Cancer Group
Chair of RMAG Audit PCT
Member of Drugs and Therapeutics Group
Member of Essence of Care
Member of User Involvement Group
Chair – PCT
Clinical Governance (hosp)
Pharmacy Service Group
Director of Nursing Acute Trust
GSM – Trust wide
General Nurses in Acute Care
Nurse Specialist Caring for Patients with
Cancer across Board
Site Specific Lead Teams
Board Strategic Cancer Forum
Chemotherapy Unit Ward, OPD Admin
Multidisciplinary Development Teams
Health Promotion Board Wide Working
Group
Steering Group Foyle/Altnagelvin
Intermediate Care Group
APPROVED MINUTES FROM NICAN NURSING GROUP MEETING : W EDNESDAY 16TH MARCH 2005
Group
Cois – Team led @ Alt (Neutropenic
Management Audit)
Regional Audit Team Hospital
Alison
Hazel
Eileen
Ann
NICAN
National Council for Palliative Care
Nurse Specialist Forum
Lead Cancer Clinician and Director of Nursing
Cancer services
Medical Director
Palliative care Groups + Executive
Clinical Nurse Specialist
Macmillan access
EHSSB Palliative Care Forum
GP Facilitators Link
Site Specific Groups
Trust Access
Regional Breast Care Group
District Nursing (Palliative Care)
and Community Hospitals
Community Palliative Care Team
ECG Link
Marie Curie
NI Hospice
Lead Nurse UHCHT potential
primary care
Lead Cancer CNS and some
benign (Acute)
EHSSB Breast Screening
Programme
MDT Breast Regional BCN Group
– Ulster Hospital
NICaN Nursing Research Group
Lead Nurse Cancer Unit
Drugs and their Groups
CSM Groups – Southern Area Hospice
Cancer Services Steering Group
Staff and Specialist Nursing Teams
Working Group Commissioners
SHSSB – Palliative Care Steering Group
and DPH (Exec Level) – Priorities
Link to AHPS
and Funding
ECG Sub-Group
Trust Clinical Audit Team
Acute & Comm Facilitator
Screening/Breast – Link
Counselling and Physio – Ulster Cancer
(Boardwide)
Foundation
ECG Cancer Sub-Group
Health Promotions Services Trust
Primary Care Teams through GP
Chaplins – Link to Palliative Services – Practice
Facilitator
Development
Service Users/families within
Service Users Contract – Link to Breast
service management role
Screening – Lead Team
Palliative Care Steering Group
SHSSB
Chaplains Awareness/Training
Macmillan
Hospital Cancer Committees
UHT Education Commission
NHSSB Cancer Project BS – Priorities
Groups
All professionals represented
COIS Local Group
NHSSB Palliative Care Forum
Lead Clinician
- GP’s Hospice
D.D.N
NHSSB Palliative Care Team
UHT Causeway Trust
- Local site
H/First Palliative Care Co-ordination
- Specific Leads
Chemo Unit User Involvement
ECG (United)
Group
Local Site Specific Chairs
National Council of Palliative Care
NOF ICP Project Lead
Palliative Care Team – LM responsibility
Lead Clinician (e-mail)
Cancer Strategy Group – Executive (Internal
NICaN Cancer Nurse Group
Focus)
Extended Team (Network)
Disease Specific Groups – OSP Patient
Lead Clinicians, Chief Executive &
Associations
General Manager
Cancer and Palliative Care – Management
Site Specific CNS
Team
Colo-rectal neuro oncology Lung
Clinical Ethics Committee
Cancer
EHSSB Palliative Care Forum
OPA Brainwaves Colo-rectal
Nursing Division Managers Group
(Support Group)
Chaplin Inv. – Chair Extended Team
Cancer Centre
(Professionals and Chaplins etc)
Clinicians/Nurse/Manager
RCN Palliative Care Forum
(RGH/BCH)
Now Oncology Group
EHSSB Forum
Director Nursing Monthly Meeting
NCPC NI Branch
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Dermott
Facilitated by Deirdre O’Brien, Director of
Nursing/Patient Services
Local Palliative Care GP and NHSSB Palliative
Care GP
Cancer Centre Steering Group GP (PC Regional
Group)
DHSSPS PC Directorate
Cancer Service Steering Group
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RCN Forum
P.C Strategy – Regional
Pathology Review
Macmillan PC Lead Group –
Macmillan GP Group
CSF Department
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APPROVED MINUTES FROM NICAN NURSING GROUP MEETING : W EDNESDAY 16TH MARCH 2005
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AP P EN DIX I V
Potential Work Areas – Group Work Summary
GROUP 1

Breaking down traditional boundaries – sharing of roles – in and out.


Prevention – Health Promotion
Believe in the message and how to deliver it.

Planning and pilot proposed innovations – look at models in our services, e.g.
crisis intervention. Chronic Disease Management.

Identifying and growing cancer leaders, people who are interested rather than
nominated especially extended multi-professional personnel.

Education integral to practice. HC at home?
Group 2


Coherent Education and Training Strategy
(-CDM)
-
communication and information skills
assessment
treatment and symptom management
technical skills
care skills – role development


Standardisation of Practice and Guidelines
(All treatment) e.g. PICC
o General Spec.
o Chemo Admin (outside and in)

Baseline Assessment

System and Processes (CDM)
-

communications
information exchange
assessment/admin
pathways
documentation
Role Development (proactive/systematic)
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Group 3
Proactive
Planning
Review
current
Service
organisations/?
Generic
Nurse led
Clinics Spec nurses
role
development
CNS
Workforce
Spec.
Education
Chemotherapy
INTEGRATED TEAM
Pre-chemo
assessment
Skill mix
scenario
Review clinics
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Competencies
Outreach
services
Chemotherapy