DIAGNOSTICIAN UNDERSTANDING Documenting Disabilities in Postsecondary Settings: Diagnosticians’ Understanding of Legal Regulations and Diagnostic Standards Allyson G. Harrison, Benjamin Lovett, Michael Gordon 1 DIAGNOSTICIAN UNDERSTANDING 2 Abstract Increasing numbers of students with learning disability and ADHD diagnoses are applying for accommodations in postsecondary education and employment settings. However, students’ documentation of these conditions is often substandard. One possible reason for this is that clinicians have failed to apply proper criteria when determining disability status. We surveyed 119 clinicians who diagnosed these conditions in students applying for accommodations, to determine clinician levels of knowledge about appropriate diagnostic and legal standards. We found weak clinician knowledge on certain key issues, including the meaning of functional impairment and understanding of the different laws governing academic accommodation of children versus adults. The average respondent’s score on a 30-item true/false questionnaire was only 69% correct. Implications of these results for practice and future research are discussed. DIAGNOSTICIAN UNDERSTANDING 3 Documenting Disabilities in Postsecondary Settings: Diagnosticians’ Understanding of Legal Regulations and Diagnostic Standards Over the past two decades, there has been a considerable increase in the number of students requesting disability-related accommodations in postsecondary education settings (e.g., Ranseen & Parks, 2005). This includes applications for accommodations on classroom tests, college and graduate/professional admissions tests, certification and licensure tests, and even employment evaluations. The increase in accommodation requests parallels growth in the numbers of individuals with disabilities now attending college (College Committee on Disability Issues, 2004; Heiman & Precel, 2003; Ontario Human Rights Commission, 2003; Mull, Sitlington, & Alper, 2001; Sharpe & Johnson, 2001) and/or seeking professional employment (Katsiyannis, Zhang, Landmark, & Reber, 2009), and the growth in special resources available to students with disabilities in these settings (Madaus, 2011). Students with disabilities are legally entitled to provision of appropriate accommodations, services, and supports in their postsecondary programs to ensure that their impairments do not unfairly interfere with their ability to participate equally and to demonstrate mastery of course material (Katsiyannis, Zhang, Landmark, & Reber, 2009). Accommodations, however, must be individualized, determined based on the interaction between the nature of the task in question and the current impairments experienced by the individual (Roberts, 2012). Most students with disability diagnoses in postsecondary settings report learning, cognitive, or psychiatric disorders rather than physical or sensory handicaps (e.g., Government Accountability Office, 2011; Ontario Human Rights Commission, 2003). Learning and attention problems are particularly common in these students (Ontario Ministry of Training, Colleges and Universities, 2008). Therefore, one consequence of the growth in access for students with DIAGNOSTICIAN UNDERSTANDING 4 disabilities has been a market for psychoeducational evaluations that explicitly address accommodation needs in postsecondary contexts. This is especially important for the many students who were never diagnosed in childhood and who first receive diagnoses in college or after. However, even for students with earlier diagnoses, there is often a “documentation disconnect”; that is, the documentation that supported special education services does not sufficiently address someone’s needs after secondary school (Gormley, Hughes, Block, & Lendmann, 2005; National Joint Committee on Learning Disabilities [NJCLD], 2007; Sitlington & Payne, 2004). The increase in formal evaluations is a positive development, increasing postsecondary access for students who need various accommodations. However, there are also several potential problems with this process. First, the dynamics of the evaluation process can lead to overdiagnosis of disabilities. Unlike school-based special education evaluations, those evaluations conducted by private diagnosticians are paid for directly by students and their families. This fact, combined with the client’s desired outcome (a positive diagnosis, access to accommodations and other services) may lead clinicians to make diagnoses with insufficient evidence or in order to assist students in obtaining accommodations (Wolforth, 2012). In Canada, the incentives for a diagnosis are especially high; for instance, students accessing governmentsponsored bursaries to pay for an updated psychoeducational assessment will only receive a reimbursement for this expense if the assessment results in a learning disability diagnosis. Clinicians may discount the effects of these incentives, despite the large literature establishing the effects of financial incentives on diagnostic test performance (for discussion, see Chafetz, Prentkowski, & Rao, 2011). DIAGNOSTICIAN UNDERSTANDING 5 Second, and relatedly, many clinicians do not use formal measures to detect clients who may be investing low effort or exaggerating symptoms in order to obtain a disability diagnosis. This occurs despite research conducted over 20 years ago which showed that low effort or avoidance of disliked tasks could negatively influence children’s performance on achievement tests and result in inaccurate diagnoses (Adleman, Lauber, Nelson, & Smith, 1989). Moreover, symptoms of learning and attention problems can also be convincingly feigned—that is, students who are deliberately attempting to feign a learning disability (LD) or attention deficit/hyperactivity disorder (ADHD) can easily score in the “clinical” range on many tests used to diagnose these problems (e.g., Booksh, Pella, Singh, & Gouvier, 2010; Frazier, Frazier, Busch, Kerwood, & Demaree, 2008; Harrison, Edwards, & Parker, 2007; 2008; Jachimowicz & Geiselman, 2004), and clinicians are unable to identify suboptimal effort accurately using clinical judgment alone (Faust, Hart, & Guilmette, 1988; Faust, Hart, Guilmette, & Arkes, 1988). Even more worrisome, a substantial minority of those seeking assessments for learning and attention disorders in postsecondary settings are found, upon closer inspection, to have been exaggerating their symptoms or purposely exhibiting poor effort during diagnostic testing (Harrison, 2006; Harrison & Edwards, 2010; Sollman, Ranseen, & Berry, 2010; Suhr, Hammers, Dobbins-Buckland, Zimak & Hughes, 2008; Sullivan, May, & Galbally, 2007; see also Gordon, 2009, for a striking case of malingering in a testing accommodations case). Formal assessments of symptom credibility should be included in any such assessments (Harrison, Green, & Flaro, 2012), yet in our own consulting work, the present authors see that fewer than 10% of applicants have documentation that includes formal assessments of symptom credibility. Finally, clinicians may not understand the standards for certifying someone as legally disabled and needing accommodations at the postsecondary level. These standards are distinct DIAGNOSTICIAN UNDERSTANDING 6 from the standards for clinical diagnosis, since a person may meet diagnostic criteria for a disorder, but not be sufficiently impaired in their activities to meet disability certification standards and require accommodations. Diagnosis concerns whether or not someone has a disorder; disability certification concerns how the disorder affects the person in real-world settings. In both Canada and the United States of America, provision of academic accommodations and supports at the elementary and secondary school level is governed by specific legislation that applies only to publically funded educational systems. In the US, the Individuals with Disabilities Education Act (IDEA) requires that special education services be given to students with certain kinds of disabilities, and accommodations are just a small part of those services. In Canada, each province has specific educational legislation that applies to the K-12 school system. For instance, in Ontario, provisions governing special education were introduced into the Education Act by the Education Amendment Act, 1980, more commonly known as Bill 82 (Government of Ontario, 1981). This legislation allows elementary and secondary schools to provide academic accommodations and supports to any student who is identified as “an exceptional learner”; this legislation was part of a worldwide movement towards providing all children with the opportunity for a publicly funded education, regardless of disabilities. Special education laws do not apply to postsecondary studies; in Canada, Human Rights legislation (provincial and federal) applies. Eligibility for accommodations under this legislation requires, in part, a diagnosis of a disability, but that diagnosis, in and of itself, does not necessarily compel accommodation, even if that person was given special education services in the past (Roberts, 2012). Instead, at the postsecondary level, special education per se is not available, and accommodations are only provided when the impairments that flow from a DIAGNOSTICIAN UNDERSTANDING 7 disorder interfere with equal ability to access and utilize the educational system. Furthermore, Human Rights legislation does not guarantee the right to an education nor does it guarantee that accommodations will result in successful performance. It requires only that a student be given an equal opportunity to participate and that artificial barriers to such equal participation be removed or minimized. Unlike accommodations and supports at the K-12 level, postsecondary programs are also not obliged to provide accommodations that would undermine the essential requirements of a course or examination. For students with learning or attention disorders to request accommodations at the postsecondary level, they must provide documentation that not only reports a diagnosis of a disability, but also explains how impairments arising from that condition interfere with equal participation in the current setting. Determining impairment, however, is difficult. Unlike the United States where there is a clearly defined demarcation (functioning substantially below the average person; Lovett, Gordon, & Lewandowski, 2009), Canadian human rights laws have focused on equality of opportunity to participate in society rather than on delineating a definition of how to determine who is disabled (Harrison & Holmes, 2012). For instance, the Canada Student Loans Program (CSLP) defines a permanent disability as a “functional limitation caused by a physical or mental impairment that restricts the ability of a person to perform the daily activities necessary to participate in studies at a post-secondary school level or the labour force and is expected to remain with the person for the person's expected life.” (Government of Canada, 2009). No parameters, however, help clinicians define at what specific level an individual must be performing in order to qualify as functionally limited. We return to this point below. Problems in the Diagnosis of High-Incidence Disabilities DIAGNOSTICIAN UNDERSTANDING 8 Assessing learning and attention problems is especially vulnerable to the concerns raised above, since there are a variety of methods by which these problems are diagnosed. In the first study to examine documentation consistency, McGuire, Madaus, Litt, and Ramirez (1996) examined the documentation submitted by 415 college students to support their LD diagnoses. These investigators found “serious problems in the type and quality of documentation” submitted (p. 301). For instance, fewer than half of the psychological reports submitted mentioned the students’ academic achievement. Moreover, many reports that mentioned achievement did not administer any formal academic skills testing, instead contributing only vague and generic statements about students’ reported performance in school or on high-stakes tests. Finally, almost half of the reports contained no information about when an initial diagnosis of LD had been made, despite the importance of early history when assessing developmental disorders in college students. More recent work suggests that problems of inadequate documentation continue. For instance, Harrison, Nichols, and Larochette (2008) reviewed the documentation submitted by 247 students, all seeking accommodations and related services at one of three Ontario postsecondary institutions under the LD classification. Fully one quarter of students failed to submit any documentation, and other students only submitted special education documents or a physician’s letter. Although over half of the students submitted a psychologist’s report, fewer than half of these reports even included a clear statement of a diagnosis, and not all of the clear diagnostic statements were for LD. These findings are similar to those reported by Reed, Lewis, and Lund-Lucas (2006), who found half of the students with LD who were surveyed arrived at their respective Canadian postsecondary institutions with inadequate disability documentation. DIAGNOSTICIAN UNDERSTANDING 9 Even when the types of documentation are equivalent across applicants, marked variability in diagnostic standards is still found. Sparks and Lovett (2009) examined the diagnostic test scores (IQ and academic achievement scores) of 378 U.S. college students who had been diagnosed with LD and provided accommodations. Given that there is disagreement in the field over how to diagnose this disorder, these investigators applied five different sets of objective criteria for diagnosis of LD to these assessment reports (three sets based on IQAchievement discrepancies, one based on the DSM-IV, and one requiring early onset and low achievement), and found that more than half of the students failed to meet any of the five sets of criteria even though they had already been diagnosed and provided with accommodations. Moreover, fewer than 10% of the students met sets of criteria that required academic impairment in an absolute sense (i.e., academic achievement test scores of 1 standard deviation below the mean or lower). Sparks and Lovett’s results have been replicated by a more recent study (Weis, Sykes, & Unadkat, 2012) finding that many diagnosed college students fail to meet objective criteria for LD. Studies regarding diagnosis of attention deficit hyperactivity disorder (ADHD) have been just as disappointing. For instance, Joy, Julius, Akter, and Baron (2010) examined the files of 50 medical students with ADHD diagnoses who requested accommodations on the COMLEX exam (taken by osteopathic physicians for licensure). There are five official criteria required for diagnosing ADHD found in the current edition of the Diagnostic and Statistical Manual of Mental Disorders, the DSM (American Psychiatric Association, 2000), and Joy et al. coded each applicant’s file to indicate whether each of the five criteria was met. Remarkably, only seven files (14%) had evidence demonstrating that the applicant met all five criteria, and most applicants’ files only met one or two of the criteria. In sum, studies of the diagnosis of learning DIAGNOSTICIAN UNDERSTANDING 10 and attention problems suggest that many clinicians make diagnoses without necessarily adhering to published or agreed upon diagnostic standards. Clinician Understanding of Disability Law Even when clinicians use evidence-based strategies for diagnosing disability conditions, it is unclear if their determinations of legal disability status and their recommendations for accommodations are appropriately made. Indeed, a study of American clinicians suggests weak understanding of how to apply disability laws in diagnostic situations. Gordon, Lewandowski, Murphy, and Dempsey (2002) surveyed 147 diagnosticians who had performed evaluations used by students requesting accommodations on a law school entrance exam. In the United States, these issues are governed primarily by the Americans with Disabilities Act (ADA), which requires that “reasonable accommodations” be given to individuals who are substantially impaired, relative to the general population, in “major life activities” such as reading (Latham & Latham, 2011). Gordon et al. (2002) found widespread misunderstanding of ADA’s key provisions. For instance, over half of the surveyed clinicians indicated that a client would be disabled under ADA with an average reading score, as long as the client’s IQ was well above average. Similarly, over a third of the clinicians indicated that ADA provides for accommodations that will “guarantee that the individual…will perform at his or her best.” Indeed, although the 27 items on the survey had a true/false design (and therefore respondents could get a 50% correct score through random guessing), the average correct score was only 75%. Gordon et al. concluded that their results indicated a need for increased training in disability evaluations, specifically focused on “current case law, guidelines for documentation, and the importance of DIAGNOSTICIAN UNDERSTANDING 11 providing valid, empirically based evidence of substantial impairment in real-life functioning” (p. 362). In the present study, we aimed to extend Gordon et al.’s (2002) work to a Canadian sample, where the relevant disability-related laws are somewhat different. We expected that there might also be an effect of time, since approximately a decade had passed since Gordon et al. surveyed clinicians, and disability issues have become more prominent in the interim. Method Participants Students seeking disability-related accommodations for LD or ADHD must present their Disability Services Office at college or university with documentation from a professional diagnosing their disability. In the present ethics-approved study, a survey was mailed to all clinicians who had authored LD or ADHD-specific documentation that had been submitted between 2008-2011 either by grade 12 students from across Ontario who were participating in an online transition program for students identified as having LD or ADHD1, or by students seeking academic accommodations at a major Canadian university2. This yielded a list of 119 individuals (45 male; 38%) who were registered Psychological service providers. Apart from three clinicians who practiced Psychology in British Columbia, clinicians to whom surveys were sent came from all regions of Ontario and there was no one city or region that was disproportionally represented. Of the 119 surveys distributed (by either regular mail alone or both mail and email), 12 envelopes were returned unanswered (five clinicians had retired; five had moved with no forwarding address; two indicated that they no longer practiced in this area of psychology). In addition, three participants specifically indicated via email that they did not wish to participate in this survey, and one more indicated that she only assessed children in K-12 and so did not feel DIAGNOSTICIAN UNDERSTANDING 12 she needed to understand the requirements for accommodation at the postsecondary level. This left 103 viable potential participants, and we received completed surveys from 58 of them (37.9% male), yielding a response rate of 56%. Of the respondents, 37 were doctoral level psychological practitioners (see Table1). The single largest group of professionals consisted of clinical psychologists (39.6%) followed by school/educational psychologists (22.4%), psychological associates (12.1%), and 25.6% either did not respond or represented other specialties. The mean age of respondents was 56.4 years (SD = 8.2), the mean number of years in practice was 23.5 (SD=9.8), and the mean number of LD and ADHD assessments conducted during the past year was 18.2. With few exceptions, individuals who returned the survey considered themselves to be experts in the diagnosis of LD and ADHD (see Table 3). Materials A questionnaire was developed, consisting of two parts. The first part comprised 30 true/false questions modeled after the survey by Gordon et al. (2002), examining respondents’ knowledge of diagnostic and human rights issues. The questions focused on several issues: the differential relevance of special education versus human rights laws in making disability determination for students at the postsecondary level; the appropriateness of diagnosing LD or ADHD when students exhibit only relative weaknesses (i.e., compared to their other skills); the relevance of early history in making diagnoses and accommodation decisions in postsecondary settings; the importance of using formal diagnostic criteria when assessing LD and ADHD; and the appropriateness of making diagnoses when a client only shows symptoms of a disorder in testing situations (e.g., test anxiety, or a history of poor performance only on timed exams). DIAGNOSTICIAN UNDERSTANDING 13 The original questions used in the Gordon et al. (2002) survey were developed by expert consensus. All items relevant to Canadian postsecondary practices were retained. For those that addressed American legislation regarding accommodation of students with disabilities, items were revised to reflect relevant Canadian or provincial legislation. In addition, three new questions were developed for inclusion. These items were created based on the experience of the lead author and dealt with issues identified as problematic in disability documentation at Canadian postsecondary institutions. These items were then provided to a group of six Canadian Disability Services experts for review and revision prior to being included in the survey. Additionally, in order to minimize the possibility of respondents answering questions in a biased manner (e.g. all true or all false), items were written so that correct responses varied between true and false. The second part of the questionnaire asked about demographic information. In addition to typical demographic questions (age, gender, number of years in practice, etc.), respondents were asked if they considered themselves to have expertise in diagnosing ADHD and LD, how often they assess students for these conditions, and how often their evaluations result in positive diagnoses of these conditions. We were interested in determining if clinicians’ understanding of legal standards and best practices in clinical diagnosis were related to their self-reported expertise and diagnostic record. Procedure Contact information for each assessor was obtained from the letterhead of the provided assessment report. In this way, the Disability Services Office could decouple the identity of the assessor from the diagnostic report provided, and thus protect the identity of the students in question. The method of soliciting participation for this survey followed an approach DIAGNOSTICIAN UNDERSTANDING 14 recommended by Dillman (1991), which purports a success rate of 75%. This method involves sending waves of invitations. Thus, one advance-notice letter/e-mail and three waves of letter/email surveys were sent to potential participants. These professionals were told that completion of the questionnaire would be taken as consent to participate. Paper copies were sent to all participants and included a self-addressed stamped envelope in which to mail the completed survey, and were provided with a separate self-addressed envelope in which they could return a ballot to win one of eight prizes (three $100 gift certificates for purchase of psychological test materials, five $10 gift certificates to a popular coffee company). In this way, the identity of the individuals was protected while also offering an incentive to participate. In the letter of introduction, participants were informed that they could complete the survey either on paper or by email, and an anonymous survey link was provided if they preferred to complete they survey on-line. In addition, email addresses for 64 of the assessors were also obtained. These individuals were also sent an email invitation using an on-line survey provider (Survey Monkey). The introductory letter soliciting participation via email was identical to the paper version with the exception that it also included a link on which recipients could click if they did not wish to receive any further emails regarding this survey. Survey Monkey has the advantage that it can track response rate and automatically resend a second and third email to non-responders, while keeping the actual names of respondents confidential. On-line participants were offered the option of being redirected to a separate location after completing the survey where they were asked to enter their names into the prize draw electronically. Results Table 2 presents the results of the survey, ordered by the proportion of respondents who answered each item correctly. We computed a total score for each respondent, simply their DIAGNOSTICIAN UNDERSTANDING 15 proportion of correct answers3.The average correct score of respondents was 69.2% (SD = 14.8), with the scores ranging from 23.3% to 96.7% correct. No respondent answered every item correctly, and fewer than 15% of respondents obtained a score of 85% or above, which might be taken to signal mastery. We were also interested in the knowledge levels of different groups who participated in the survey. However, many groups (e.g., physicians) were too small to perform meaningful statistical tests comparing the groups, and several respondents chose not to respond to the optional demographic questions. An exception was respondents’ level of education; we found that there was no difference between the knowledge of evaluators trained at the masters level (n = 13, M = 68.26, SD = 14.4) and those trained at the doctoral level (n = 36, M = 68.71, SD = 15.4), t(47) = .09, n.s. Finally, we were interested in which areas of information were known to more respondents. None of the 30 questions were answered correctly by all respondents. Twelve items were answered correctly by at least 85% of respondents, and most of these items concerned diagnostic standards for LD and ADHD. On the other hand, four questions were answered correctly by fewer than one third of respondents; these items concerned the purpose of accommodations, the distinction between K-12 and postsecondary legislation, the assessment of effort in diagnostic testing, and choosing appropriate norms for determining disability status in postsecondary settings. The item with the lowest proportion of correct responses queried whether the purpose of accommodations is to “allow a disabled individual to perform at his or her best”; only 12.3% of respondents recognized this to be false. Table 3 presents the results of the supplemental questions; we note several trends here. Fewer participants chose to respond to these optional questions, but of those who did, most DIAGNOSTICIAN UNDERSTANDING 16 considered themselves to be experts in the assessment of both LD and ADHD. In addition, most reported doing a significant number of LD/ADHD evaluations each year (at least approximately one each month) and that most of their clients qualified as disabled. Finally, almost all respondents indicated that they needed at least some additional training in these issues. Discussion In this study, we surveyed clinicians who provided evaluations and supportive documentation to students seeking accommodations related to LD or ADHD at a major Canadian university. The survey concerned best-practice standards for diagnosis of these disabilities, as well as relevant legal standards concerning disability status and the determination of appropriate accommodations. Although the survey’s items were presented in a true/false format, allowing a 50% chance of getting the correct answer by guessing, the average score of respondents was only 69.2, and none of the respondents answered all items correctly. Our average score of 69.2 is slightly lower than the average score of “approximately 75” reported by Gordon et al. (2002). The similar scores suggest that Canadian evaluators are not more knowledgeable than American evaluators about these issues, nor has knowledge increased in the decade since Gordon et al.’s study. In any case, given the response format of the survey, our average score is disappointingly low. An item-level analysis reveals areas of stronger and weaker knowledge. Knowledge of best-practice standards for assessing ADHD was an area of relative strength; the vast majority of respondents understood that ADHD cannot be diagnosed using either psychological test scores or self-reported symptoms alone, and that other disorders must be ruled out prior to making this diagnosis. Another area of relatively strong knowledge was the process of applying for accommodations; the vast majority of respondents understood the importance of recent and DIAGNOSTICIAN UNDERSTANDING 17 comprehensive documentation, as well as the need to consider the appropriateness of accommodations even when an applicant has indicated a desire for them. In contrast, respondents had a particularly weak understanding of certain general issues in clinical assessment; fewer than half of respondents understood the importance of using general population (or age-based) norms when making judgments about disability, or the importance of using formal tests of response effort (e.g., the Word Memory Test; Green, 2003) when judging if a client was putting forth full effort during an assessment. We also call out for special attention three items concerning issues that were of particular interest. Although 86% of respondents recognized that it was inappropriate to make a diagnosis of LD or ADHD when clients failed to meet official criteria, 14% felt that this was appropriate. Even more respondents (31%) seemed to endorse the existence of a test-taking disability, indicating that a person could qualify as having a disability even if their only area of impairment was on timed, multiple-choice tests. Finally, almost half (44.6%) of respondents reported that the purpose of a psychoeducational evaluation is to help the client secure those accommodations. It appears, then, that many clinicians see their role as advocates rather than as objective evaluators. Finally, if we ignore the accuracy of answers, we can examine respondents’ answers in terms of agreement or consensus. On approximately half of the survey items, fewer than 75% of the respondents gave the same answer (i.e., “true” or “false”). This either indicates a general lack of professional consensus on these matters, or else guessing due to ignorance. Many of the survey items in this group dealt with issues of impairment—how to determine if someone with symptoms of LD or ADHD is actually impaired in real world settings, and who should serve as the comparison for impairment standards. Implications for Practice DIAGNOSTICIAN UNDERSTANDING 18 One practice implication involves the training of clinicians with respect to diagnostic assessment of LD and ADHD in postsecondary contexts, and related training in making recommendations for educational accommodations. These topics are not covered in great detail in the training of most clinical psychologists (the most common background of the evaluators in our sample). Indeed, nowhere in Canada except perhaps in British Columbia is specific training required to arrive at a diagnosis of LD or ADHD, apart from registration with a provincial licensing body (Philpott & Cahill, 2008). Although psychologists and other professionals have an ethical duty to obtain whatever further training is needed to perform in their chosen areas of practice, the clinical issues covered by our survey constitute particularly neglected areas in which it is difficult for clinicians to find adequate instruction. Given the growth in diagnosis of LD and ADHD in postsecondary settings, relevant training programs (in clinical, school, and educational psychology) must address these issues and direct students toward research-based resources for further training including discussion of the psychologist’s role as an objective evaluator in diagnostic contexts. Although the advocate is a recognized role that psychologists can play at times, there are times where the psychologist is instead expected to provide objective information to educational institutions and testing agencies, and at these times advocacy can interfere with appropriate practice. This problematic nature of the advocacy role relates to a second, larger implication: many respondents consistently endorsed diagnostic practices that would lead more people to be diagnosed than meet official criteria. Therefore, we must conclude that concerns expressed, in both scholarly and popular venues, about the overdiagnosis of LD and ADHD in highfunctioning populations (e.g., Lerner, 2004; Tapper, Morris, & Setrakian, 2006; Vickers, 2010) have a rational basis. Although some such concerns have clearly been overblown (for discussion, DIAGNOSTICIAN UNDERSTANDING 19 see Cook, Gerber, & Murphy, 2000; Englandkennedy, 2008), the results of the present study suggest that many evaluators endorse practices that may lead to overdiagnosis. As another implication for pratice, Disability Services Offices (DSOs) interested in ensuring that appropriate standards are being followed must conduct their own thorough review of documentation rather than relying on diagnosticians’ conclusions. Admittedly, some DSO staff may not feel able to interpret psychoeducational assessment reports, but in fact many staff without clinical background can be trained to identify certain common flaws in documentation. When difficult cases arise, it is helpful to have consulting psychologists who have clinical training but also expertise in relevant research and legal standards. There may be an additional benefit to review by outside consultants, beyond the expertise that they will have when well-chosen. Wolforth (2012) argued that clinicians who make diagnoses and recommend accommodations are often in a position with a conflict of interests. On one hand, the clinicians are being asked to provide an objective evaluation of the student, but on the other hand, they are advocating for a client who is paying for their services. In an effort to help their clients, some clinicians may err on the side of overdiagnosis and unnecessary accommodation recommendations. More research must be done to evaluate how serious and problematic this potential conflict of interest is, but an advantage of outside consultants is that they lack such a conflict. Finally, it would also be appropriate for postsecondary institutions to post clear guidelines for incoming students on their websites outlining exactly the type of documentation that is required for accommodation at the postsecondary level. This proactive step would put the onus on the student and his/her clinician to ensure evidence is available to make appropriate accommodations. DIAGNOSTICIAN UNDERSTANDING 20 Limitations and Future Research Needs Our study had expected limitations, each of which prompts needed future research. Our sample was fairly small, and we surveyed only clinicians who authored reports submitted by applicants seeking disability-related accommodations in one province; it is possible that clinicians in different provinces are more aware of these postsecondary-specific accommodation issues than are those in Ontario. Given the number of assessments each clinician in our survey estimated s/he performs for students in general, however, we believe that our sample was representative of evaluators who conduct such assessments for students seeking accommodations at the postsecondary level, at least in Ontario; nonetheless, more research is needed at other institutions in other provinces, and also by testing agencies. Larger samples would also allow more refined analyses relating knowledge to specific evaluator characteristics. Although many such institutions and agencies have shown reluctance to engage with the evaluators who provide documentation submitted by students, such engagement is needed to ensure that the diagnoses and recommendations can be trusted. Another expected limitation involved the format of our survey; although the response format allowed for easy coding of responses, it did not permit nuanced responses. We intentionally designed items to be statements that could be reasonably scored simply as true or false, but respondents may have had more complex views that led their knowledge to be underestimated. Interviews, focus groups, or other research methods with open-ended survey items would produce richer narrative information about evaluators’ perspectives on these issues, and we would encourage such work. DIAGNOSTICIAN UNDERSTANDING 21 Footnote 1. High school students in the on-line transition group were planning to attend either community college or university, and so were representative of a broad range of students identified as exceptional learners within the province. 2. Given that provincial licensing bodies do not provide separate listings for clinicians who undertake psychoeducational assessments for LD and ADHD, we felt that this method of recruitment would ensure that the survey was distributed only to clinicians who engage in this area of practice. Furthermore, this method allowed us to obtain a more accurate response rate, since it was sent only to clinicians who were known to practice in this area of psychology rather than to all registered psychologists in the province, many of whom do not perform such assessments. 3. Occasionally, data for a particular respondent was missing for a particular item; we calculated the score out of the number of questions that were answered. DIAGNOSTICIAN UNDERSTANDING 22 References Adleman, H. S., Lauber, B., Nelson, P., & Smith, D. (1989). Minimizing and detecting false positive diagnoses of learning disabilities. Journal of Learning Disabilities, 22, 234-244. American Psychiatric Association. (2000). Diagnostic and Statistical Manual of Mental Disorders (4th ed., text revision). Washington, DC: Author. Booksh, R. L., Pella, R. D., Singh, A. N., & Gouvier, W. D. (2010). Ability of college students to simulate ADHD on objective measures of attention. Journal of Attention Disorders, 13, 325-338. Doi: 10.1177/1087054708329927 Chafetz, M. D., Prentkowski, E., & Rao, A. (2011). To work or not to work: Motivation (not low IQ) determines symptom validity test findings. Archives of Clinical Neuropsychology, 26, 306-311. Doi: 10.1093/arclin/acr030 College Committee on Disability Issues. (2004). CCDI submission to the Postsecondary Review. Retrieved from http://www.disabilityissues.ca/english/link_doc/review_docs/Rae_Review_submission_f or_CCDI final.doc Cook, B. G., Gerber, M. M., & Murphy, J. (2000). Backlash against the inclusion of students with learning disabilities in higher education: Implications for transition from postsecondary environments to work. Work, 14, 31-40. Dillman, D. A. (1991). The design and administration of mail surveys. Annual Review of Sociology, 17, 225-249. Englandkennedy, E. (2008). Media representations of attention deficit disorder: Portrayals of cultural skepticism in popular media. Journal of Popular Culture, 41, 91-117. Doi: 10.1093/arclin/acr030 DIAGNOSTICIAN UNDERSTANDING 23 Faust, D., Hart, K., & Guilmette, T. J. (1988). Pediatric malingering: The capacity of children to fake believable deficits on neuropsychological testing. Journal of Consulting and Clinical Psychology, 56, 578-582. Faust, D., Hart, K., Guilmette, T. J., & Arkes, H. R. (1988). Neuropsychologists’capacity to detect adolescent malingerers. Professional Psychology: Research and Practice, 19, 508515. Frazier, T. W., Frazier, A. R., Busch, R. M., Kerwood, M. A., & Demaree, H. A. (2008). Detection of simulated ADHD and reading disorder using symptom validity measures. Archives of Clinical Neuropsychology, 23, 501-509. Doi: 10.1016/j.acn.2008.04.001 Gordon, M. (2009). ADHD on trial: Courtroom clashes over the meaning of “disability.” Westport, CT: Praeger. Gordon, M., Lewandowski, L., Murphy, K., & Dempsey, K. (2002). ADA-based accommodations in higher education: A survey of clinicians about documentation requirements and diagnostic standards. Journal of Learning Disabilities, 35, 357-363. Gormley, S., Hughes, C. A., Block, L. & Lendmann, C. (2005). Eligibility assessment requirements at the postsecondary level for students with learning disabilities: A disconnect with secondary schools? Journal of Postsecondary Education and Disability, 18, 63-70. Government Accountability Office. (2011). Higher education and disability: Improved federal enforcement needed to better protect students’ rights to testing accommodations. Washington, DC: Author. Government of Canada (2009). Glossary: Permanent disability. Retrieved from http://www.canlearn.ca/eng/main/help/glossary/severe_permanent_disability.shtml DIAGNOSTICIAN UNDERSTANDING 24 Government of Ontario (1981). The Education Amendment Act, 1980. Revised Statutes of Ontario, Chapter 129. Toronto: Queen's Printer for Ontario. Green, P. (2003). Word Memory Test for Windows. Alberta, Canada: Author. Harrison, A.G. (2006). Adults faking ADHD: You must be kidding! ADHD Report, 14(4), 1-7. Harrison, A. G., & Edwards, M. J. (2010). Symptom exaggeration in post-secondary students: Preliminary base rates in a Canadian sample. Applied Neuropsychology, 17, 135-143. Doi: 10.1080/09084281003715642 Harrison, A. G., Edwards, M. J., & Parker, K. C. H. (2007). Identifying students feigning ADHD: Preliminary findings and strategies for detection. Archives of Clinical Neuropsychology, 22, 577-588. Doi: 10.1016/j.acn.2007.03.008 Harrison, A. G., Edwards, M. J., & Parker, K. C. H. (2008). Identifying students feigning dyslexia: Preliminary findings and strategies for detection. Dyslexia, 14, 228-246. Doi: 10.1002/dys.366 Harrison, A. G., Green, P., & Flaro, L. (2012). The importance of symptom validity testing in adolescents and young adults undergoing assessments for learning and attention problems. Canadian Journal of School Psychology, 27(1), 98-113. Doi: 10.1177/0829573512437024 Harrison, A. G., & Holmes, A. (2012). Easier said than done: Operationalizing the diagnosis of Learning Disability for use at the post-secondary level in Canada. Canadian Journal of School Psychology, 27(1), 12-34. Doi: 10.1177/0829573512437021 Harrison, A. G., Nichols, E., & Larochette, A. (2008). Investigating the quality of learning disability documentation provided by students in higher education. Canadian Journal of School Psychology, 23, 161-174. Doi: 10.1177/0829573507312051 DIAGNOSTICIAN UNDERSTANDING 25 Heiman, T., & Precel, K. (2003). Students with learning disabilities in higher education: Academic strategies profile. Journal of Learning Disabilities, 36, 248-258. Doi: 10.1177/002221940303600304 Jachimowicz, G., & Geiselman, R. E. (2004). Comparison of ease of falsification of attention deficit hyperactivity disorder diagnosis using standard behavioral rating scales. Cognitive Science Online, 2, 6-20. Joy, J. A., Julius, R. J., Akter, R., & Baron, D. A. (2010). Assessment of ADHD documentation from candidates requesting Americans with Disabilities Act (ADA) accommodations for the National Board of Osteopathic Medical Examiners COMLEX exam. Journal of Attention Disorders, 14, 104-108. Doi: 10.1177/1087054710365056 Katsiyannis, A., Zhang, D., Landmark, L., & Reber, A. (2009). Postsecondary education for individuals with disabilities: Legal and practice considerations. Journal of Disability Policy Studies, 20(1), 35–45. Doi: 10.11771044207308324896 Latham, P. S., & Laham, P. H. (2011). Legal rights and qualification under the Americans with Disabilities Act. In S. Goldstein, J. A. Naglieri, & M. DeVries (Eds.), Learning and attention disorders in adolescence and adulthood: Assessment and treatment (2nd ed., pp. 289-323). Hoboken, NJ: Wiley. Lee, H., & Templeton, R. (2008). Ensuring equal access to technology: Providing assistive technology for students with learning disabilities. Theory Into Practice, 47, 212-219. Lerner, C. (2004). “Accommodations” for the learning disabled: A level playing field or affirmative action for elites? Vanderbilt Law Review, 57, 1041-1122. Lovett, B. J., Gordon, M., & Lewandowski, L. J. (2009). Measuring impairment in disability evaluations: Legal and ethical issues. In S. Goldstein & J. Naglieri (Eds.), Assessment of DIAGNOSTICIAN UNDERSTANDING 26 impairment: From theory to practice (93-103). New York: Springer. Madaus, J. W. (2011). The history of disability services in higher education. New Directions for Higher Education, 154, 5-15. Doi: 10.1002/he.429 McGuire, J. M., Madaus, J. W., Litt, A.V., & Ramirez, M. O. (1996). An investigation of documentation submitted by university students to verify their learning disabilities. Journal of Learning Disabilities 29(3), 297-304 Ministry of Training, Colleges and Universities: Postsecondary Education Division. (2008, November). Disabilities statistics at Ontario universities for discussion at IDIA. Paper presented at the Inter-University Disability Issues Association meeting, Toronto, ON. Mull, C., Sitlington, P. L., & Alper, S. (2001). Postsecondary education for students with learning disabilities: A synthesis of the literature. Exceptional Children, 68, 97-118. National Joint Committee on Learning Disabilities [NJCLD]. (2007). The document disconnect for students with learning disabilities: Improving access to postsecondary disability services. Retrieved from http://www.ldonline.org/about/partners/njcld Nichols, E., Harrison, A.G., McCloskey, L., & Weintraub, L. (2002). Learning Opportunities Task Force 1997-2002. Final report. Richmond Hill, Canada: Learning Opportunities Task Force (LOTF). Retrieved from http://www.ontla.on.ca/library/repository/mon/6000/10315040.pdf Ontario Human Rights Commission (2003).The opportunity to succeed: Achieving barrier-free education for students with disabilities. Retrieved July 3 2012 from http://www.ohrc.on.ca/en/opportunity-succeed-achieving-barrier-free-education-studentsdisabilities DIAGNOSTICIAN UNDERSTANDING Philpott, D., & Cahill, M. (2008). A Pan-Canadian perspective on the professional knowledge base of learning disabilities. International Journal of Disability, Community and Rehabilitation , 7 (2). Ranseen, J. D., & Parks, G. S. (2005). Test accommodations for postsecondary students: The quandary resulting from the ADA’s disability definition. Psychology, Public Policy, & Law, 11, 83-108. Reed, M. J., Lewis, T., & Lund-Lucas, E. (2006). Student, alumni and parent perspectives on access to post-secondary education and services for students with learning disabilities: Experiences at two Ontario universities. Higher Education Perspectives, 2(3), 50-65. Roberts, B. (2012). Beyond psychometric evaluation of the student—task determinants of accommodation: Why students with learning disabilities may not need to be accommodated. Canadian Journal of School Psychology, 27 (1), 72-80. Doi: 10.1177/0829573512437171 Sharpe, M. N., & Johnson, D. R. (2001). A 20/20 analysis of postsecondary support characteristics. Journal of Vocational Rehabilitation, 16, 169-177. Sitlington, P. L., & Payne, E. M. (2004). Information needed by postsecondary education: Can we provide it as part of the transition assessment process? Learning Disabilities: A Contemporary Journal, 2(2), 1-14. Sollman, M. J., Ranseen, J. D., & Berry, D. T. (2010). Detection of feigned ADHD in college students. Psychological Assessment, 22, 325-335. Doi: 10.1037/a0018857 Sparks, R. S., & Lovett, B. J. (2009). Objective criteria for classification of postsecondary students as learning disabled: Effects on prevalence rates and group characteristics. Journal of Learning Disabilities, 42, 230-239. Doi: 10.1177/0022219408331040 27 DIAGNOSTICIAN UNDERSTANDING 28 Suhr, J. A., Hammers, D., Dobbins-Buckland, K., Zimak, E., & Hughes, C. (2008). The relationship of malingering test failure to self-reported symptoms and neuropsychological findings in adults referred for ADHD evaluation. Archives of Clinical Neuropsychology, 23, 521-530. Doi: 10.1016/j.acn.2008.05.003 Sullivan, B. K., May, K., & Galbally, L. (2007). Symptom exaggeration by college adults in attention-deficit hyperactivity disorder and learning disorder assessments. Applied Neuropsychology, 14, 189-207. Doi: 10.1080/09084280701509083 Tapper, J., Morris, D., & Setrakian, L. (2006). Does loophole give rich kids more time? ABC news, url: http://abcnews.go.com/Nightline/print?id=1787712 Vickers, M. Z. (2010). Accommodating college students with learning disabilities: ADD, ADHD, and Dyslexia. Raleigh, NC: Pope Center for Higher Education Policy. Weis, R., Sykes, L., & Unadkat, D. (2012). Qualitative differences in learning disabilities across postsecondary institutions. Journal of Learning Disabilities, 45 (6), 491-502 Doi: 10.1177/0022219411400747 Wolforth, J. (2012). Why we need reliable, valid, and appropriate learning disability assessments: The perspective of a postsecondary disability service provider. Canadian Journal of School Psychology, 27, 58-71 Doi: 10.1177/0829573512437025 DIAGNOSTICIAN UNDERSTANDING 29 Table 1 Respondent Characteristics (N=58) % Gender Highest degree earned Profession Year licensed Men 37.9 Women 56.9 Not reported 5.2 M.A. 24.1 Ph.D. 63.8 Other 6.9 Not reported 5.2 Clinical psychologist 39.6 School/educational psychologist 22.4 Psychological associate 12.1 Other 15.3 Not reported 10.3 Before 1980 10.4 1980-1989 12.0 1990-1999 39.7 After 1999 13.8 Unlicensed/unreported 24.1 DIAGNOSTICIAN UNDERSTANDING 30 Table 2 Knowledge Survey Items and Results Item # 11 21 12 5 25 26 29 4 19 28 30 Item It is appropriate to make the diagnosis of ADHD based largely or solely on a pattern of scores from psychological testing. The purpose of the Ontario Human Rights Code is to outlaw discrimination against individuals with disabilities, not to optimize their academic performance. Diagnosis of ADHD may be made mainly from self-reported symptoms on a survey like the Brown Attention Deficit Disorders Scale. A student identified prior to college/university under special education laws (such as Bill 82) would automatically qualify for accommodations at college/university. To assign a diagnosis of ADHD-Primarily Inattentive Type, the clinician must firmly rule out other psychiatric and learning disorders that may better account for symptoms. If an individual is diagnosed with LD or ADHD, the institution must provide any and all accommodations that the applicant believes will be beneficial. Data from self-report checklists documenting significantly above average symptoms of ADHD is sufficient to demonstrate impaired functioning in two or more major life areas. Testing organizations (e.g. ETS, MCAT) have the right to request complete documentation (including report cards, transcripts, testing data, and a rationale for the diagnosis) in support of an accommodations request. Most post-secondary documentation guidelines require that evaluations be conducted within three to five years of the accommodations request. Self-reports of early academic struggles or current problems are insufficient bases for documenting impairment. To assist a student in obtaining test accommodations it is appropriate to make a diagnosis of LD or ADHD even if clinical data do not completely meet agreed upon diagnostic criteria such as those in the DSM-IV. Correct Response % Correct F 98.3 T 98.2 F 93.1 F 89.5 T 89.5 F 87.7 F 87.7 T 87.3 T 86.2 T 86.0 F 86.0 DIAGNOSTICIAN UNDERSTANDING 16 15 17 23 7 27 22 24 18 14 8 6 2 20 Relative discrepancies between cognitive abilities and academic achievement are not a sufficient basis for making a diagnosis of adult LD. If someone is highly intelligent, it is likely that his or her ADHD symptoms will not appear until college/university or graduate school. A diagnosis of LD may be made on the basis of one or two outlier scores that are significantly discrepant from the overall pattern of performance. Well-controlled research has demonstrated conclusively that extra time on an examination helps individuals with ADHD more than it does non-ADHD individuals. Under the OHRC, an individual with a measured Full Scale IQ of 135 and a reading standard score of 110 could, because of the discrepancy in scores, qualify for accommodations as Reading Disabled. Evidence that an individual reads slowly is sufficient to justify an accommodation of extra time. Clinicians providing documentation are required to demonstrate how each proposed accommodation alleviates the impact of the disability. An individual can be considered disabled even if performance on timed, multiple choice exams is their only area of weak functioning. An adult can be classified as ADHD even if he had no significant childhood impairment, never required accommodations prior to graduate school, and had no history of brain injury. To be considered disabled at the post-secondary level, an individual has to show impairment when compared to an average person in the population. In Ontario, test anxiety is not a legitimate basis for declaring an individual as disabled. If an individual has been assigned a clinical diagnosis of ADHD or LD, he or she automatically qualifies as disabled under the Ontario Human Rights Code (OHRC). Disability legislation such as the Ontario Human Rights Code was intended to help individuals with disabilities improve their academic success and testing performance. The purpose of a clinical evaluation for patients seeking accommodations is to help secure those accommodations. 31 T 85.7 F 78.9 F 77.2 F 75.4 F 73.2 F 72.7 T 72.4 F 69.0 F 63.8 T 63.2 T 60.7 F 60.0 F 56.1 F 55.4 DIAGNOSTICIAN UNDERSTANDING 13 1 10 3 9 Individuals who have graduated from college/university without any prior diagnoses or formal accommodations might still meet professional criteria for LD or ADHD because of the increased level of difficulty present in graduate school. Provincial legislation such as Bill 82 requires post-secondary institutions to accommodate students diagnosed with disabilities. To demonstrate the need for accommodations, clinicians should determine impairment by comparing a patient’s test scores with norms for students at similar educational levels. Studies show that clinicians are not able to reliably determine if a student is answering honestly and investing good effort in testing without the aid of specific effort tests. The purpose of accommodations is to allow a disabled individual to perform at his or her best. 32 F 32.8 F 29.8 F 29.8 T 29.1 F 12.3 DIAGNOSTICIAN UNDERSTANDING 33 Table 3 Respondents’ Supplemental Question Percent Endorsements (N= 58) Yes Expertise Are you an expert in the diagnosis of LD 86.2 Are you an expert in the diagnosis of ADHD 79.3 Experience with LD/ADHD Approximately how many LD/ADHD evaluations do you conduct per year <5 5-10 11-20 >20 1.7 3.4 24.1 58.6 22.4 22.4 31.0 15.5 <=25 26-50 51-75 >=76 3.4 13.8 29.3 36.2 Approximately how many evaluations do you conduct that are requested at least in part to document the need for accommodations for someone in higher education Of all the LD/ADHD evaluations you have conducted for individuals in higher education seeking academic accommodations, approximately what percent of the time have you found the individual to qualify as disabled? Professional development # of workshops attended in the past 5 years 0 1-2 3 4 5-6 7+ 27.6 15.5 6.9 3.4 1.7 3.4 DIAGNOSTICIAN UNDERSTANDING # of books or journal articles read in the past 5 years Do you feel you need more training? 34 5.2 17.3 1.7 6.9 5.1 22.4 Not at all Somewhat Very much 3.4 36.2 19.0