National Renal Advisory Board Meeting
MEETING DETAILS
Date and time:
Venue:
9.30am to 2.30pm Friday 9 May 2014
Conference Room 3, Manukau Super Clinic, 901 Great South Road, Manurewa
Committee Members
Murray Leikis (Chairperson), David McGregor, Michael Papesch, Rachael Walker, Tonya Kara, Kay McLaughlin, Lucia Bercinskas, Kelvin Lynn, Fredric Doss, Jo-Anne
Deane, Nick Polaschek, Janine Cochrane, John Schollum, Ian Dittmer, Chris Hood
Michael Papesch, Jo-Anne Deane, John Schollum
Apologies
By Invitation
Minutes Taken By
No.
Prue Fieldes
Item
Discussion/Action
Responsibility
Presentation
Hla Thein +
Catherine Tracy
CMDHB –
Open Discussion
Hla and Catherine unable to come and present the Counties-Manukau Home dialysis policy. They are to be invited to
present at next NRAB meet on Friday 15 August.
Murray
General Business
Declaration of Conflict of
Interest to any of the
following agenda items
1
Review of the Board
minutes recorded at
the previous meeting
held on 21st
February 2014, and
subsequent
correspondence –
Open Discussion
2
Review of the action
points recorded on
21st February 2014 –
Open Discussion
3
Review of the public
version of NRAB
minutes from the
meeting held on 21st
February 2014 –
Open Discussion
Request for action points to be listed by person to action on separate column of minutes.
Nick
Murray
Public
NRAB_Mins_21Feb14.doc
Thanks to Michael Papesch for summarising minutes into a public version. Nick Polaschek to publish on NRAB website.
Murray to send out to Heads of Units who can distribute within their DHBs as they wish. NRAB members to disseminate
Auckland District Health Board – Templates – March 2010
National Renal Advisory Board Meeting
No.
Item
Discussion/Action
Responsibility
to their representative groups.
Regional Roundup
4
Northern
North Shore had their Apollo Unit Opening on 2 May. It has 20 beds and is underneath Rangitoto College.
Will support both haemodialysis and peritoneal dialysis.
Waikato
Nothing to report.
Central
There is a new Dialysis Unit on Kenepuru site for semi-dependent care patients.
Southern
Waiting on word on Home Training Unit in Christchurch which needs to be replaced.
5
NRAB Structure,
Composition, and
Function - All
The meetings discussed the membership of the NRAB. In particular:


Everyone
Member’s terms to be updated and fed back to Nick
Change in TOR - membership: New Zealand Nephrology Group or delegate to be part of committee, as will be
the head of the National Renal Transplantation Service once appointed. New Terms of reference appended.
Terms of reference 1
May 2014.doc
6
NZ Chapter of the
ANZSN - Murray
7
Tier 2 document
update - Nick
The meeting noted that:
 Murray has been elected as Chair of NZ Chapter of ANZSN.
 Annual NZ Renal Group meeting will be held in Christchurch 16 and 17 October. Planning is underway.
The meeting discussed Initiating a workstream for updating the Tier 2 document and the Standards and Audits
document.
Murray
Ian volunteered to lead the project, with Kelvin, Tonya, Kay and Fredric to be part of group. Ian to send out a draft of the
document to wider group, together with Carmel (KHNZ) and Jenny Walker as current chair of the Standards and Audits
committee.
Ian/Tonya/
Kelvin/Kay
The NRAB noted that some of the standards, the latest audit report shows quite wide variance across the country. The
standards need to be looked at ensure they are appropriate. Kelvin will send previous review of the Standards and
Audits documents to Murray.
Kelvin
Funding for ANZData could be included in Standards. There is a list of publications that would be of assistance to the
MOH to see the value of ANZDATA. Tonya to send Nick the link.
Tonya
Transplant standards could be assessed by the National Renal Transplant service once this is formally organised.
Auckland District Health Board – Templates – March 2010
National Renal Advisory Board Meeting
No.
8
Item
Discussion/Action
PTAC Nephrology
subcommittee Murray
Murray met with PHARMAC yesterday. The renal PTAC sub-committee is still looking for one more non-medical person.
First meeting is likely to be called in next 3 months.
Responsibility
Tacrolimus brand has changed with PHARMAC issuing supporting documents for the change.
Intravenous iron has had a ‘black box’ label by the FDA regarding adverse reaction risk. This has also been noted by
Medsafe who recommend it only be given where resuscitation support is available. ANZSN is undertaking a survey of all
Intravenous Iron use, this is being organised through Rob McGinley. For now each individual DHB will need to
acknowledge that home haemodialysis patients use IV iron at home and they will need to take appropriate actions for
managing the risk at a DHB level. There has been no reported incidence of reactions to home use in NZ to Medsafe.
A letter to go from NRAB to support continued home use to each Renal HOD. Murray to write letter.
Murray
CKD
9.
CKD pilots /
Symposium /
National Strategy –
Nick/Kelvin
The final consensus document is at the stage of being signed off and this will take about 2 months. Nick to email to
whole group, with a time limit for responses so as to be ready prior to next meeting. This to be implemented into primary
care.
Nick/Everyone
/Kelvin
Dialysis
10.
Electrical Standards Murray
The electrical standards are still sitting with Standards Australia awaiting formal review. Their recommendations are likely
to be accepted with a few changes.
11.
Electricity
dependence for
home dialysis –
Nick
Management of
ineligible patients
within NZ –
Jo-Anne Deane
Nick to send out “Home dialysis patients as medically dependent electricity consumers” document.
PD Registry Update /
PDOPPS update
Ian to investigate funding of PD Registry. There may be a funding stream that currently exists for the ADHB. Nick could
find PUK code number for Ian if necessary.
12.
13.
A questionnaire regarding the ineligible people receiving treatment, and the standard costs to be applied, will be sent out
to departments. Ian will send out information re standard costs.
Nick
Jo-Anne
Ian
The questions to be asked will include:
 As of 1 March 2014 – how many non-eligible patients are receiving haemodialysis and peritoneal dialysis from
your DHB?
 Date they started and what the modality/treatment is.
The PD Registry has been slow to report, with no formal reports though some sample reports. It is now being
progressed. The meeting discussed that the PD Registry must demonstrate some useful output reports for current data;
historical data can be done at a later time. The PD registry could also be looked at as an inclusion in the Tier 2
Auckland District Health Board – Templates – March 2010
Ian
National Renal Advisory Board Meeting
No.
14.
16.
17.
19.
20.
21.
23.
24.
Item
Disaster Planning,
patient and service
preparedness –
Nick
National Tx activity /
ANZDATA
Update for NHB
review of Renal
Transplantation
models and funding.
Live Donor RFP
Paired Exchange
RFP
Update for National
Strategy for Pacific
Renal Service
Development
Report on KHNZ
Subcommittee
reports
Discussion/Action
documents. It may already be in from previous version.
While there is no new activity:
 Nick to put documents on NRAB website
 Earthquake information to be put on website.
A Northern Regional plan is being developed.
Ian is to check website has latest allocation version. Need to clarify that waiting time commences from the time of 2 nd
tissue typing.
Still awaiting formal process of recommendation by NHB and Minister of Health
Responsibility
Nick
Ian
Website is now live: www.kidneydonor.org.nz Mark Marshall will be sending booklets to all units to use.
Jo Burton has an appointment for 0.3FTE to facilitate this programme.
This is still with ANZSN
Report tabled by Kelvin Lynn.
Standards and Audits.
Tonya
Consideration to be given to report on assisted dialysis in the annual report to reflect changes in practice. This could be
for both haemodialysis and peritoneal dialysis. Kay McLaughlin offered to be RSA rep on Standards and Audit
committee.
RSA/Nursing Interest Group:
Nil to report
NABDP:
Report tabled.
25.
Renal Service
Improvement Project
Other Business
26.
Minutes to be Sent to
Everyone
27.
Correction to
Previous Minutes
No new information. Nick Polaschek to consider inviting Astrid Koornneef from the NHB to next meeting to discuss
progress on the national renal service.
Nick
To be undertaken by Murray.
Murray
Item 18 on Friday 21 February 2014 Minutes second sentence to read:- Long term health risks and increased chance of
getting renal failure on “KHNZ” (not “KHA”) website to be updated by Kelvin and Michael.
Murray
Auckland District Health Board – Templates – March 2010
National Renal Advisory Board Meeting
No.
Item
Discussion/Action
28.
Responsibility
NZ Renal
Prue asked Murray prior to meeting if Renal Departments Hospital postal addresses plus phone numbers of key people
Murray
Department List
(not team administrators) can be added to list to make it more complete.
29.
Apologies for 15
Ian unable to attend as he will be away.
Murray
August Meet
Next Meeting:- Manukau Super Clinic, 901 Great South Road, Manurewa
Date: Friday 15 August 2014
Time: 9.30am
Venue: Conference Room, Manukau Super Clinic, 901 Great South Road,
Manurewa
Auckland District Health Board – Templates – March 2010