Table of Contents Chapter 1: EarlySteps, Louisiana’s Early Intervention System This chapter introduces EarlySteps Louisiana’s Early Intervention System. Each required component of the statewide early intervention system is described, highlighting the way in which each component is implemented. Topics in this chapter include: Mission and Philosophy For Louisiana’s Early Intervention System Part C of Public Law 108-446 Introduction State Lead Agency Interagency Agreements Central Directory Public Awareness Program Manager Assistant Program Manager Training Coordinator Quality Assurance Coordinator Provider Relations Specialist Statewide Parent Liaison State Interagency Coordinating Council (SICC) Mission Goal Purpose Membership Quarterly Meetings Public Comments Committees Organizational Structure Dissemination of Information Regional Interagency Coordinating Councils (RICC) Regional Coordinators Regional Community Outreach Specialist Regional Quality Assurance Specialist Central Finance Office (CFO) System Point of Entry (SPOE) Other Personnel in EarlySteps Family Support Coordination Agency Service Provider The following services are provided by EarlySteps Personnel Standards Comprehensive System of Personnel Development Training Requirements Quality Enhancement (QE) Technical Assistance Monitoring Data Collection and Reporting Indicator # 9 State Performance Plan (SPP) Who Do You Call? Page 2 4 4 5 5 5 6 6 6 7 7 7 8 8 8 8 8 9 9 9 10 11 11 12 12 12 12 13 13 13 14 14 14 14 15 15 16 16 17 17 17 18 7/2010 Chapter 2: Parents’ Rights, Opportunities, and Responsibilities This chapter details the procedural safeguards and rights provided through Part C of the Individuals with Disabilities Education Act (IDEA). These rights and safeguards must be vigorously enforced throughout the early intervention process. Page The Rights of a Family in EarlySteps 2 Parents’ rights in EarlySteps include 2 Family Roles and Responsibilities in EarlySteps 3 Some suggestions for making the most of each visit 3 Definitions of Procedural Safeguards 4 Consent means 4 Native language 4 Personally identifiable information 4 Surrogate Parent 4 Prior, Written Notice of Action 4 Consent 5 Confidentiality 5 Opportunity to Examine Records 6 Resolution of Disputes: Complaints, Mediation, and Due Process Hearings 7 Complaints 7 Initiating Formal Complaints 7 Timelines 7 Complaint Types 8 Indicator # 10 8 Mediation and Due Process 8 What is Medication? 8 What is Due Process? 8 Requesting Mediation 9 Mediator Qualifications 9 Due Process/Appeal 9 Effect on Due Process Hearing Timelines 10 Appointment of an Impartial Person 10 Parents Rights in Administrative Proceedings 10 Due Process Resolution 11 Civil Action 11 Status of a Child during Proceedings 11 Indicator # 11 11 Child’s Right to a Surrogate Parent 11 Immunity from Liability 12 Children under the Care and Custody of the State 12 Other Procedural Safeguards: Accept or Decline Services 12 Refuse to Complete/Sign Documents 13 Indicator # 4 13 Freedom of Choice 13 Evaluation and Assessment 13 Individualized Family Service Plan 13 RECOMMENDED PRACTICE: 14 PROVIDING PROCEDURAL SAFEGUARDS INFORMATION TO FAMILIES 7/2010 Chapter 3: Child Find and Referral This chapter describes the child find activities used in EarlySteps to locate those children who may be eligible for the EarlySteps system of early intervention. Requirements for referral are also detailed. Page Child Find Procedures 2 Residency Requirements 2 Referral Procedures 3 Step 1: Receipt of Referral 3 Step 2: Acknowledgement of Referral 3 Step 3: Contacting the Family 4 Referral Process Chart 5 Indicator # 7 5 System Point of Entry List 6 Chapter 4: Intake This chapter describes the steps in the process to enroll a child in EarlySteps. The topics included in this chapter: Page Intake Process 2 Step 1: Consent to Proceed 2 Step 2: Health History 2 Step 3 : Collect existing information from 3 Step 4: Vision, Hearing, and Nutrition Screenings 3 Step 5: Conduct Developmental Screening Ages and Stages Questionnaire (ASQ) 5 Step 6: Completion of DHH Application 6 Louisiana Department of Health and Hospitals Application for Services Children 0-3 with Special Needs 6 Medicaid 7 Office for Citizens with Developmental Disabilities (OCDD)/Human Service Authority/District (HSA/D) 8 Children’s Special Health Services (CSHS) 8 Medicaid Waiver Registry 8 Dissemination of The Louisiana Department of Health and Hospitals Application for Services Children 9 0-3 with Special Needs Procedure EarlySteps Referral Process for CSHS 11 SPOE/FSC Procedures for CSHS Referral 11 Medicaid Eligibility Verification 11 Referral to Office of Community Services 12 Initial Eligibility Refused/Child does not qualify for EarlySteps 12 Referral to EPSDT 12 For Children Referred to EarlySteps after Age 2 Years, 2 Months 12 For Children Re-Referred after Closure 12 Early Intervention Records- System Point of Entry 13 SPOE Records 13 Early Intervention Official Record 13 Intake Coordinators “Working File” 14 Electronic Early Intervention Record 14 Access to Records 14 Maintaining the Early Intervention Record 15 Transfer of Documentation after Initial IFSP 15 Early Intervention Records – Additional Information 15 Early Intervention Record Protections 15 Opportunity to Examine Records 15 Destruction of the Early Intervention Record 16 System Point of Entry Personnel 17 Intake Coordinator 17 Intake Coordinator Caseload 17 Intake Coordinator Supervisor 17 7/2010 Supervision Activities Supervisor Caseload Documentation of Supervision Frequently Asked Questions about Intake Intake Process Chart 17 17 18 18 19 Chapter 5: Initial Eligibility Determination This chapter describes the steps in the process to determine initial eligibility for a child to enter EarlySteps. Annual eligibility redetermination is covered in Chapter 7. The topics included in this chapter: Eligibility Determination for EarlySteps EarlySteps Eligibility Determination Overview Evaluation Assessment Step 1. Review of referral information and decision to proceed Step 2: Selecting Provider for Eligibility Evaluation Step 3: Conducting the Eligibility Evaluation Conducting an Eligibility Evaluation at a Child Care Center Step 4: Reporting Evaluation Results Providing Evaluation and Assessment Results to Family Indicator # 7 Timelines Intake Timelines Exceeding 60 Calendar Days Step 5: Eligibility Determination EarlySteps Eligibility Criteria Definition of Developmental Delay ICD-9 Codes for Developmental Delay Use of Informed Clinical Opinion to Determine Eligibility To establish eligibility using informed clinical opinion the following procedures must be utilized Initial Eligibility Determination Re-Determination of Eligibility ICD-9 Codes for Informed Clinical Opinion Established Medical Conditions Diagnosed Conditions List and ICD-9 Codes Redetermination of Eligibility Using Established Medical Conditions Indicator # 5 & 6 Step 6: Preparation for the Multidisciplinary Eligibility Team Meeting Eligibility Determination Process Report and BDI-2 Evaluation Report Eligibility Determination Team Members Required Eligibility Determination team members Intake Coordinator Family Support Coordinator FSC Nurse Consultant Early Intervention Consultant EarlySteps Providers Family Members Non-EarlySteps Providers Nondiscrimination in Eligibility Determination Native Language Family Assessment of Concerns, Priorities, and Resources (CPR) Indicator Principles for Identifying Family Concerns, Resources, and Priorities Team Meeting Notice and Minutes Form Step 7: Conducting the Team Meeting for Eligibility Determination Eligibility Determination Process Report and BDI-2 Evaluation Report 7/2010 Page 3 3 4 4 4 5 5 5 5 6 6 6 7 7 7 7 8 8 8 8 8 9 9 9 13 14 14 14 14 14 15 15 16 16 16 16 16 16 16 17 17 17 17 18 18 Team Meeting Requirements Statement of Eligibility Section Documentation of Evaluation Results Verification of Informed Clinical Opinion If Child Meets Eligibility Criteria If the family of an eligible child declines to move to IFSP development following Eligibility Determination If Child Does Not Meet Eligibility Criteria Medicaid Registration Eligibility Verification Step 8: Follow-up Documentation Frequently Asked Questions about Eligibility Determination Reference and Recommended Reading Eligibility Determination Process Flowchart: Role of Intake Coordinator Weight Conversion Chart 18 19 19 20 22 23 23 24 24 24 25 25 26 27 Chapter 6: Individualized Family Service Plan Development The steps and requirements of the IFSP are detailed in this chapter. Topics in this chapter include: IFSP Information: Overview of IFSP Development Parent’s Role in Choosing Early Intervention Services IFSP Team Service Guidelines Medical Services versus Developmental Services Nontraditional Services IFSP Outcomes Strategies to Achieve IFSP Outcomes IDEA PL-108-446 for Pre-literacy and Language Skills Daily Routines and Activities in Typical Settings Indicator # 2 Justification for Early Intervention Services Delivered Outside of the Child’s Natural Environments Determining Early Intervention Services Determining Frequency, Intensity and Length of Early Intervention Services Determining Method of Service Delivery Prescriptions Determining the Need for Assistive Technology Other Services Interim IFSP Selecting Providers No Provider Available No FSC Available IFSP Process Indicator # 7 Step 1: Preparation for Initial IFSP Meeting Step 2: IFSP Meeting Indicator # 3 Indicator # 8 IFSP Team Meeting Minutes Required components of these minutes Completing the IFSP Process Step 1: Provide the family with a Notice of Action Step 2: Implement the IFSP Timely Services Recommended Practice for Writing Quality IFSPs IFSP Development Individualized Family Service Plan (IFSP) IFSP Team Services Process From 7/2010 Page 2 2 3 3 5 6 6 7 7 8 8 8 9 9 9 9 10 10 10 11 11 11 12 12 12 13 15 17 19 19 20 20 20 20 20 21 22 32 Chapter 7: Ongoing IFSP Implementation, 6 Month-Reviews, and Annual IFSP Evaluation Ongoing support coordination (FSC) responsibilities to ensure the provision of appropriate early intervention are presented in this chapter. Topics included in this chapter: Ongoing IFSP Implementation, 6 month Reviews and Annual IFSP Evaluation Teaming for Success in EarlySteps Strategies for Fostering Teaming FSC Role in Ongoing IFSP Implementation Process for Conducting Review/Revision Team Meetings EarlySteps Team Meetings Monthly Contact Suggested Questions for Monthly FSC Telephone Contacts and Quarterly Reviews Quarterly Meetings 6 Month Review of the IFSP Autism Screening Annual Eligibility Determination and IFSP Meetings Re-Determination of Eligibility using Informed Clinical Opinion Re-Determination of Eligibility using Established Medical Condition Re-Determination of Eligibility using Developmental Delay IFSP Revisions Required Documents to be Sent to the SPOE and Family Following a Revision Justification for Early Intervention Services Delivered Outside of the Child’s Natural Environments Changing a FSC or Provider Substituting Early Intervention Providers Extended Services References IFSP Revision FSC Quarterly Progress Report/6 month review Optional FSC Case Note IFSP Team Services Process Form Page 2 2 2 3 3 4 5 5 5 5 6 6 7 7 8 8 9 9 10 11 11 12 13 17 18 19 Chapter 8: Early Transition, Transition at Age Three and Record Closure Transition activities out of Part C at age three are presented in this chapter. Topics included in this chapter: Transition Early Transition Early Transition Process Early Exit – Record Closure Transferring from one Region to another Region FSC Responsibilities Sending (current or old) SPOE Responsibilities Receiving or “New” SPOE Responsibilities Transition at Age Three Transition Process Notification of a Child Turning Three IC/FSC Responsibilities LEA Responsibilities OCDD/HSA/D Responsibilities Family Responsibilities The Transition Meeting FSC Responsibilities Page 2 2 3 3 4 4 4 4 5 5 5 5 5 6 6 7 7 7/2010 LEA Responsibilities Other Transition Meeting Attendees Document and Implement the Transition Plan Outcomes Measurement Record Closure Transition Process for Late Referrals-SPOE Responsibilities Notification of a Child Turning Three The Transition Meeting Document and Implement the Transition Plan Record Closure OSEP Reporting Indicator # 8 Extended Services 7 7 8 9 9 10 10 10 11 11 11 12 12 Chapter 9: Support Coordination in EarlySteps This chapter describes the provision of support coordination for SPOE and FSC. Topics in this chapter include: Support Coordination in EarlySteps Introduction to Support Coordination Support Coordination in Part C Family Support Coordination Family Support Coordinator Responsibilities Referral to Office of Community Services FSC Medicaid Eligibility Verification Billing for FSC Services FSC Billing Summary Checklist Maximum Caseload of a FSC Caseload of a FSC Supervisor Supervision Activities Documentation of Supervision Early Intervention Authorizations Authorizing Services Submitting Authorizations to the SPOE Submission of Claims Changing a FSC or Provider Substituting Early Intervention Provider No Provider Available Early Intervention Records – Family Support Coordinator FSC File FSC Contact Notes FSC Monthly Contact FSC Quarterly Progress Report Early Intervention Records Responsibility Transfer of Documentation for IFSP’s Transfer of Records When a FSC Leaves an Agency Early Intervention Records – Additional Information Early Intervention Record Protections Access to Records Opportunity to Examine Records Destruction of the Early Intervention Record FSC Performance Indicators FSC Quarterly Progress Report FSC Contact Note Format (Optional) Family Support Coordination Billing Summary Targeted Case Management – Support Coordination Billable Service Activities Definitions Who Do You Call? Page 2 2 2 3 3 4 4 5 5 5 5 6 6 7 7 7 7 7 8 9 9 10 10 11 11 12 12 12 12 12 12 13 14 15 16 17 18 20 27 7/2010 Chapter 10: Service Providers Roles and Responsibilities The roles and responsibilities of the service providers are detailed in this chapter. Topics included in this chapter Introduction Service Delivery in EarlySteps: Recommended Practices for the Service Provider in Ongoing Service Delivery EarlySteps Providers Qualifications Roles and Responsibilities Referral to Office of Community Services Assessments and Evaluations by Service Providers Provider Enrollment Training Requirements Certification of Enrollment by the CFO The Service Matrix Changing a FSC or Provider Substituting Early Intervention Providers Service Authorizations Accessing the Online System for Authorizations Submission of Claims Medicaid Services Documentation Requirements for Service Providers Provider Contact Note Provider Monthly Report Documentation for Assistant Level Providers Services Provided outside of the Natural Environment Quality Management Early Intervention Records – Additional Information Opportunity to Examine Records Access to Records Destruction of the Early Intervention Record Professional Ethics Service Provider Performance Indicators Service Provider Contact Note Provider Monthly Report Who Do You Call? Page 2 2 10 10 10 11 11 11 14 14 14 14 15 15 15 16 16 17 17 18 19 19 20 20 20 21 22 22 24 25 26 27 Chapter 11: Assistive Technology Devices and Services Purpose Assistive Technology Definition Assistive Technology Service Procedure for Acquisition of Assistive Technology Devices for a Medicaid Eligible Child Completing Section 7 of the IFSP for an Assistive Technology Device FSC Responsibilities SPOE Responsibilities Provider Responsibilities Examples of allowable AT Devices Examples of Items that will not be purchased Equipment Control Requirements of the Inventory Control System Disposition of AT Devices and Equipment Table 1: Part C Assistive Technology Inventory List (for use by SPOEs and FSCs) 7/2010 Page 2 2 2 3 3 4 4 4 5 5 6 6 7 8 Chapter 12: Resources Topics in this chapter include: Terms You Need To Know Additional Information Websites Website for Language Development and Pre-literacy Skills Early Childhood Websites Resources for Transdisciplinary/Primary Service Provider Approach to Service Delivery Family Survey Indicator # 4 How EarlySteps Services are Determined Professional Conduct Personal Safety Guidelines Referral to IFSP Process Universal Precautions EarlySteps Recommended Practices Service Guidelines EarlySteps Services FACT Sheets Other Fact Sheets Developmental and Medical Services in Part C Eligibility Determination IFSP Local Education Agencies (LEA) Participation in Part C Natural Environment Who Do You Call? Page 2 4 4 4 4 5 5 5 6 7 9 12 15 17 22 25 58 58 60 68 70 72 74 Chapter 13: Provider Qualifications in EarlySteps 7/2010 Chapter 14: Forms Parents’ Rights: A Family Rights Handbook Surrogate Parent Determination Form Referral Form Acknowledgement of Referral Letter (referral source other than parent) Acknowledgement of Referral Letter (Parent) Record Access Log SPOE 45-day Checklist Notice of Action DHH Application for Services 0 – 3 with Special Needs Health History (IFSP Section 3a: Present Levels of Health Functioning) Health Summary Consent to Release and Share Information Change Form Early Intervention Services Transition Notification Freedom of Choice Provider Selection Form BDI-2 Evaluation Report & IFSP and Program Planning Reports Eligibility Determination Process Report Team Meeting Notice and Minutes Form Request for Authorization/Provider Status Change Form Worksheet for Audiology Evaluation/Assessment EarlySteps Eligibility Information for Office for Citizens with Developmental Disabilities (OCDD)/Human Service Authority (HSA)/District (D) or Medicaid Waiver Registry Referrals Family Assessment of Concerns, Priorities, and Resources Individualized Family Service Plan (IFSP) Service Provider Contact Note (Mandatory) Provider Monthly Progress Report (Mandatory) FSC Quarterly Progress Report/6 Month Review FSC Billing Summary Parent Activity Checklist (Optional) IFSP Team Services Process Form FSC Contact Note Form (Optional) 7/2010