Fetal Alcohol Spectrum Disorder
Website Abstract
Human service professionals have a dedicated commitment to meeting the needs
of diverse populations. The prevalence and importance of Fetal Alcohol Spectrum
Disorder (FASD) has been recognized and is being addressed. Surprisingly little
information is available about the knowledge, attitudes and beliefs about FASD of those
human service professionals who work with the most vulnerable of children. Due to its
importance, it would be advisable to include FASD content as an integral part of a
training curriculum in human service organizations. A website resource table for FASD
can be used as a guide for child welfare agencies who are interested in incorporating
knowledge of FASD in their programs.
© 2004-2005 CDHS College Relations Group Buffalo State College/SUNY at Buffalo Research Foundation
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Organization Name
Website Address
The ABC’s of FAS/FAE:
Teacher’s Guide and
Resource Booklet
http://www.lcsc.edu/education/fas/
Description
These documents will provide background information on
FAS/FAE and the terminology used in describing this
condition, but in layperson's language. This does not imply
stupidity, but this is difficult to enough to understand,
without having to decipher the difficult terms before you
can begin to absorb the information. An illustration appears
after the data on FAS. Some of the facial characteristics may
be found on FAE children as well.
Alcohol Related Birth Injury http://www.arbi.org
(FAS/FAE) Resource Site
This site offers information about Fetal Alcohol Syndrome
and Alcohol Related Birth Injury in a format designed for
quick access to information you require and quick access to
links of many related sites.
American Association on
Mental Retardation
(AAMR)
444 North Capitol Street,
NW, Suite 846
Washington, DC 200011512
Phone - (202) 387-1968 or
(800) 424-3688
The American Association on Mental Retardation
AAMR) promotes progressive policies, sound research,
effective practices, and universal human rights for people
with intellectual disabilities.
http://www.aamr.org
© 2004-2005 CDHS College Relations Group Buffalo State College/SUNY at Buffalo Research Foundation
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The Arc of the United States http://thearc.org
The Arc’s Fetal Alcohol
http://www.thearc.org/misc/faslist.html
Syndrome Resource Guide
The Arc of the United States
1010 Wayne Avenue, Suite
650 Silver Spring, Maryland
20910 Phone - (301) 5653842
The Arc is the national organization of and for people with
mental retardation and related developmental disabilities
and their families. The Arc’s FAS Resources and Materials
Guide and a comprehensive list of FAS information and
related links can be found at the website.
The Arc of the United States works through education,
research and advocacy to improve the quality of life for
children and adults with mental retardation and related
developmental disabilities and their families and works to
prevent both the causes and the effects of mental
retardation.
The Arc’s Publication’s
Desk 300 Pleasant Valley
Lane, Suite C Arlington, TX
76015 Phone: 1-888-3688009 (toll-free) Fax: 817314-9432 .
http://www.thearcpub.com/
This resource guide was written for parents, families and
educators who are involved in caring for, living with and
educating individuals with Fetal Alcohol Syndrome (FAS).
The ability to access current and accurate information about
FAS is critical in becoming a source of help and hope for
children and adults living with FAS. The goal of this
resource guide is to encourage you to learn more about FAS,
including what causes it, how to prevent it, and how FAS
impacts the everyday lives of people. The guide was
developed through a grant from the Centers for Disease
Control & Prevention and will be revised periodically by
The Arc. The resources listed are not an endorsement from
The Arc and, therefore, The Arc does not assume
responsibility for the quality or availability of the resources
in this guide
Canadian Centre on
http:// www.ccsa.ca
A non-profit organization working to minimize the harm
© 2004-2005 CDHS College Relations Group Buffalo State College/SUNY at Buffalo Research Foundation
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SubstanceAbuse
75 Albert Street, Suite 300
Ottawa, Ontario, Canada
K1P 5E7
Phone - (613) 235-4048
associated with the use of alcohol. This information service
operated by the Canadian Centre on Substance Abuse,
provides links to support groups, prevention projects,
resource centers, and experts on FAS/FAE. It also provides
information on FAS/FAE to a variety of clients, including
caregivers, educators, social workers, health care and
treatment professionals, members of the legal community,
policymakers and planners, researchers, and the general
public.
Center for Substance Abuse
Prevention (CSAP)
Substance Abuse and
Mental Health Services
Administration.
5600 Fishers Lane
Rockville, Maryland 20857
Phone - (301) 443-0365
http://www.prevention.samhsa.gov
The Center for Substance Abuse Prevention (CSAP) is
the sole Federal organization with responsibility for
improving accessibility and quality of substance abuse
prevention services. The Center provides national
leadership in the development of policies, programs, and
services to prevent the onset of illegal drug use, underage
alcohol and tobacco use, and to reduce the negative
consequences of using substances.
Fetal Alcohol Syndrome
Consultation, Education and
Training Services, Inc.
(FASCETS): Providing
Alternative Paradigms for
Understanding Facets of
Behavior
P.O. Box 83175 Portland
OR 97283 Phone/fax: (503)
621-1271
http://www.fascets.org
FASCETS is a private, nonprofit organization for parents
and professionals that offers services designed to increase
understanding, build on strengths, expand options for
developing effective parenting and professional techniques,
enhance existing programs, and support the development of
new programs. FASCETS offers community education
through conferences, workshops, and professional seminars
and provides professional development and consultation
services.
© 2004-2005 CDHS College Relations Group Buffalo State College/SUNY at Buffalo Research Foundation
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Fetal Alcohol Syndrome
Family Resource Institute
(FASFRI) P.O. Box 2525
Lynnwood, WA 98036
Phone: (252) 531-2878
http://www.fetalalcoholsyndrome.org
FASFRI is a nonprofit organization that provides a variety
of resources and services to families affected by FAS and
ARBD. The Institute’s services include referrals and support
in finding help, parent support and advocacy groups,
information for parents and professionals, a newsletter and
brochures, prevention programs, as well as training sessions
and workshops.
Family Empowerment
Network Supporting
Families Affected by
FAS/FAE (FEN)
610 Langdon St., Room 517
Madison, Wisconsin 537031195
Phone - (800) 462-5254 or
(608) 262-6590
www.dcs.wisc.edu/pda/hhi/fen/
The Family Empowerment Network (FEN) is a national
resource, referral, and support organization serving families
affected by Fetal Alcohol Syndrome and Fetal Alcohol
Effects as well as the professionals involved in their lives.
FAS World Toronto
250 Scarborough Golf Club
Road, Toronto, Ontario
Canada M1J3G8
Phone(416) 264-8000,Fax:
(416) 264-8222
http://www.fasworld.com
The mission of FAS world is to raise awareness about the
effects of prenatal alcohol exposure. The organization aims
to educate leaders, lawmakers, and other policymakers
around the world so they can better make decisions and
formulate laws and policies that will ensure a healthier
society by reducing the incidence of FAS and other alcoholrelated disabilities and by providing needed intervention
services to those already affected.
© 2004-2005 CDHS College Relations Group Buffalo State College/SUNY at Buffalo Research Foundation
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Fetal Alcohol Syndrome
Family Resource Institute
(FAS*FRI)
P.O. Box 2525
Lynnwood, Washington
98036
Phone - (253) 531-2878 or
in Washington state (800)
999-3429
http://www.fetalalcoholsyndrome.org
FASFRI is a nonprofit organization that provides a variety
of resources and services to families affected by FAS and
ARBD. The mission of the FAS Family Resource Institute
is to identify, understand and care for individuals disabled
by prenatal alcohol exposure and their families, and to
prevent future generations from having to live with this
disability.
March of Dimes Birth
Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Phone - 888-MODIMES
(663-4637)
http://www.modimes.org
The mission of the March of Dimes is to improve the
health of babies by preventing birth defects and infant
mortality. [They] support this vital mission through four
programs: community services, advocacy, education and
research.
A pamphlet is included in this Binder for this resource
National Organization on
Fetal Alcohol Syndrome
(NOFAS)
216 G Street, North East
Washington, DC 20002
Phone - (202) 785-4585
http://www.nofas.org
The National Organization on Fetal Alcohol Syndrome
(NOFAS) is committed to raising public awareness of
Fetal Alcohol Syndrome (FAS)—the leading known cause
of mental retardation—and to developing and
implementing innovative ideas in prevention, intervention,
education, and advocacy in communities throughout the
nation.
Substance Abuse and
Mental Health
http://www.samhsa.gov
The Substance Abuse and Mental Health Services
Administration (SAMHSA) is the Federal agency
© 2004-2005 CDHS College Relations Group Buffalo State College/SUNY at Buffalo Research Foundation
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Services Administration
(SAMHSA)
5600 Fishers Lane
Rockville, Maryland 20857
Nation's
charged with improving the quality and availability of
prevention, treatment, and rehabilitative services in order
to reduce illness, death, disability, and cost to society
resulting from substance abuse and mental illnesses.
Substance Abuse and Mental Health Services
Administration's (SAMHSA's) National Clearinghouse for
Alcohol and Drug Information (NCADI) is the one-stop
resource for the most current and comprehensive
information about substance abuse prevention and
treatment. NCADI is one of the largest Federal
clearinghouses, offering more than 500 items to the
public, many of which are free of charge.
Fetal Alcohol and Drug Unit http://depts.washington.edu/fadu
at the University of
Washington, Seattle
The Fetal Alcohol and Drug Unit conducts research relating
to the prevention, intervention, and treatment of FAS and
FAE. The unit also disseminates information on fetal
alcohol and drug effects and provides consultation for those
affected by prenatal exposure to alcohol.
National Center on Birth
Defects, and Developmental
Disabilities (NCBDDD)
The NCBDD at the Centers for Disease control and
Prevention (CDC) seeks to promote optimal fetal, infant,
and child development; prevent birth defects and childhood
developmental disabilities; and enhance the quality of life
and prevent secondary conditions among children,
adolescents, and adults who are living with a disability. The
fetal alcohol syndrome prevention office of the NCBDDD
conducts FAS surveillance and prevention research.
http://www.cdc.gov/ncbddd/fas
© 2004-2005 CDHS College Relations Group Buffalo State College/SUNY at Buffalo Research Foundation
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© 2004-2005 CDHS College Relations Group Buffalo State College/SUNY at Buffalo Research Foundation
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