1 SIF Graduate Research Ethics Syllabus Module curriculum We have developed a model that combines (1) an overview of different systems of ethical reasoning, (2) the specific forms that research ethics in its different understandings, principles and argumentations takes in various disciplines and domains, (3) reflection on the parameters that society and subsystems such as science, economics, knowledge production at 3rd and 4th level, law set for such ethical enquiries. The guiding idea is to develop research ethics from the different approaches to ethics as a working knowledge of the researcher who is responsible to him/herself for his/her own integrity, and at the same time co-responsible for shaping the structures in which research will takes place and shape the life worlds and agency of citizens in the future. Teaching model: Components 1 and parts of 3 are taught jointly for postgraduates from different disciplines, component 2 is based on domain-specific reflection. Teaching outcomes: At the end of the module participants will be expected to be able to recognise and compare traditions of ethical reasoning, their guiding anthropologies, and their understanding of key concepts analyse the framework of international Human Rights and of European conventions, principles and their interpretations relevant to one’s research. articulate and situate their own position in relation to the different approaches find out what is morally relevant in particular research topics and methods justify and implement an ethically reflected research proposal. ___________________________________________________________________ FIRST PART (May 14-15, 2008): Introduction and exemplary issues: Regimes of research ethics governance, case studies, international ethics conventions Wednesday, May 14, 2008: 9.00-10.45 Overview of Module Disciplines, approaches, understanding key concepts in core international conventions, writing an ethically reflected research proposal 11.15-13.00 Current Regimes of Research Ethics: Principles of Research on Vulnerable Human Subjects 2 Dr Jean Whyte, The Children’s Research Centre, TCD Institutionalising Ethical Guidelines for Research with Children 14.00-16.00 Case Studies in Scientific Research Dr Alan L. Kelly, Dean of Graduate Studies and Senior Lecturer in Food Technology, UCC Ethical Issues in Scientific Research: Data Selection, Collaboration, Publication Thursday, May 15, 2008: International Conventions on Biomedical Research - Origins and Current Controversies 9.00-10.45 Prof. Dr Dietmar Mieth, Centre for Ethics in the Sciences and Humanities, University of Tübingen, Germany, and former member of the European Group of Ethics at the European Commission, Brussels Ethics and Law in the EU – Bridging or Fudging Different Traditions of Moral and Legal Argumentation? 11.00-12.30 Case Studies: Process of Institutional Agreement and Vetos Ethics as consensus management in expert cultures or through civic debate in the public sphere? 14.00-15.00 Recognising traditions of argumentation in philosophical ethics (e.g., Virtue, communitarian, deontological, utilitarian, contract, discourse ethics) Prof. Linda Hogan, TCD, Prof. Maureen Junker-Kenny, TCD 15.00-16.00 Feedback from postgraduates in their different disciplines, questions for Part II _____________________________________________________________________ Between the first and the second parts, development of research proposal, journal accompanying research experience. ______________________________________________________________________ SECOND PART (June 10-12, 2008) Tuesday, June 10, 2008: Key concepts and models of ethical agency; development of discipline-specific themes (Linda Hogan, Maureen Junker-Kenny) 9.00-11.00 Comparison of key concepts and models of ethical agency (e.g., autonomy, human dignity, informed consent, human flourishing, justice, rights and obligations, trust, preference, risk/benefit, consensus) and their interpretation 11.30-13.00 Prof Des O’Neill, TCD-Tallaght Hospital Individual, Professional and Social Ethical Issues in the Practice of Medical Research 14.00-16.00 Introduction to area-specific issues, division into disciplines. Themes, e.g.: Health Care Informatics Post-conflict Communities (expert from Irish Dept of Foreign Affairs) Cultural Heritage, Archaeology, History (expert from UNESCO) Energy and ethics, natural resources and sustainability 3 Ethics of Genetic Engineering Ethics of Clinical Research in Developing Countries Animal Ethics Wednesday, June 11, 2008: Discipline-specific reflections arising from PG’s research themes, e.g.: Humanities: Archaeology and politics; literature and narrative ethics; heritage, memory cultures, identity construction and difference; Social Sciences: Justice as distribution or as recognition of difference? Integration of minority cultures, or contribution from their internal resources? Engineering and ICT: Sustainability re. depletion of natural resources, carbon footprints.Values in the information society Biomedical Ethics: Traditions of moral argumentation and legal frameworks in Europe. Different interpretations of guiding concepts such as autonomy, dignity, trust, justice. Rights, duties and conflicts in the physician-patient relationship. Animal Ethics: Basis for recognising inherent worth of animals; international standards; alternatives to animal research Business Ethics, e.g.: virtues of honesty, accountability; structural issues of power between national states and international business corporations; framework of justice bounded society or cosmopolitan scale? Thursday, June 12, 2008: Parameters of research 1) Values inherent in research: verifiability, transparency, failures and successes, increase in knowledge and in (more precise) lack of knowledge (e.g., expert from Genetics) 2) Paradigm changes, priorities, possibility of parallel or alternative research, funding and dependency, research ethics boards as for-profit-organisations? (experts from funding bodies and Science Foundation Ireland) 3) Transition from scientific to public discourse, media impact, societal expectations (media expert) 4) Innovating institutions to anticipate problems: early warning systems inside and beyond the professions to ensure accountability and anticipation of emerging problems (legal expert) Basic literature for Days 1-3: Robert L. Arrington, Western Ethics. An Historical Introduction (Oxford: Blackwell, 1998) Onora O’Neill, Autonomy and Trust in Bioethics (Cambridge: CUP, 2002) Stella Reiter-Theil et al. (eds.), Ethics Codes in Medicine. Foundations and Achievements of Codification since 1947 (Aldershot: Ashgate, 1998) European Commission, Ethics for Researchers. Facilitating Research Expertise in FP 7, Luxembourg 2007 4 Alderson, P., Morrow, V., Ethics, social research and consulting with children and young people (Barkingside: Barnardo's, 2004) Christoph Rehmann-Sutter et al. (eds.), Bioethics in Cultural Contexts. Reflections on Methods and Finitude (International Library of Ethics, Law, and the New Medicine, Vol 28) (Dordrecht: Springer, 2006) Some weblinks to international bioethical conventions and debates: Council of Europe Convention on Human Rights and Biomedicine (1997): http://bioethik.tripod.com/bioet-en.htm. European Group on Ethics in Science and new Technologies, European Commission: http://europa.eu.int/comm.european_group_ethics/index_en.htm Intergovernmental Bioethics Committee (IGBC): http://portal.unesco.org/shs/en/ev.php@URL_ID=1881&URL_DO=DO_TOPIC&URL_ SECTION=201.html Module assessment methods and use of non-examination assessment/ recognition methods (e.g., portfolio, projects, presentations etc.) where possible The goal of the research ethics syllabus is to teach articulacy in models of ethical argumentation and to develop the ability to relate them to one’s specific research. The assessment will be based on students’ developed research proposal (3000 words) which will include a referenced piece of ethical discussion (40-60%). The criteria of assessment will be that 40-60 % of the marks will be awarded for the conceptual part in which ethical models will be analysed and critically interpreted. By asking students to show their knowledge of ethical concepts and of the traditions of thinking that shape their interpretation, and to relate them to their topic, two goals are achieved: One is to avoid plagiarism by copying from existing resources; the other is to develop their capacity to act as reflective researchers with individual responsibility and awareness of the social consequences of research, rather than as isolated parts of a compartmentalised system that is subject to predetermined external goals in a globalised economy. Plans for Inputs from stakeholders and study of models for modules in similar areas in other institutions and countries: Apart from the expertise in research ethics present in TCD, UCC and NUIG a major feature of the module is the possibility to encounter and discuss with key international figures articulating and modelling the practice of research ethics in their professions (e.g., from the European Group of Ethics, European Commission, Brussels, from the UNESCO, and from national agencies of research).