AB 796 Page 1 Date of Hearing: January 12, 2016 ASSEMBLY COMMITTEE ON BUSINESS AND PROFESSIONS Susan Bonilla, Chair AB 796 (Nazarian) – As Amended January 4, 2016 NOTE: This bill is double referred, and if passed by this Committee, it will be referred to the Assembly Committee on Health. SUBJECT: Health care coverage: autism and pervasive developmental disorders. SUMMARY: Extends the sunset date for health care service plans to contract, and health insurance policies to provide coverage for behavioral health treatment for pervasive developmental disorders, from January 1, 2017 to January 1, 2022, and requires the Board of Psychology to create a list of evidence-based treatment modalities for autism or pervasive developmental disorders by December 31, 2017. EXISTING LAW: 1) Establishes the Board of Psychology, within the Department of Consumer Affairs (DCA), to license and regulate the practice of psychology. (BPC § 2900 et seq.) 2) Establishes the Board of Behavioral Sciences, within the DCA, to license and regulate clinical social workers, professional clinical counselors, marriage and family therapists and educational psychologists. (BPC § 4990 et seq.) 3) Establishes the Medical Board, within the DCA, to license physicians and surgeons and regulate the practice of medicine. (BPC § 2000 et seq.) 4) Establishes the Physical Therapy Board, within the DCA, to license physical therapists, and regulate the practice of physical therapy. (BPC § 2600 et seq.) 5) Establishes the Occupational Therapy Board, within DCA, to license occupational therapists, and regulate the practice of occupational therapy. (BPC § 2570 et seq.) 6) Establishes the Speech-Language Pathologists and Audiologists and Hearing Aid Dispensers Board, within DCA, to license and regulate the practice or speech-language pathology, audiology and hearing aid dispensing. (BPC § 2530 et seq.) 7) Establishes an entitlement to services for individuals with developmental disabilities under the Lanterman Developmental Disabilities Services Act (Lanterman Act). (Welfare and Institutions Code (WIC) § 4500 et seq.) 8) Grants all individuals with developmental disabilities, among all other rights and responsibilities established for any individual by the United States Constitution and laws and the California Constitution and laws, the right to treatment and habilitation services and supports in the least restrictive environment. (WIC § 4502) 9) Defines “behavioral health treatment,” for purposes of payment under a health care service plan contract or a health insurance policy, as professional services and treatment programs, AB 796 Page 2 including applied behavior analysis and evidence-based behavior intervention programs, which develop or restore, to the maximum extent practicable, the functioning of an individual with pervasive developmental disorder or autism, and sets forth criteria that must be met related to the treatment plan, prescription of the treatment, and the providers authorized to provide such treatment, which includes qualified autism service professionals, as specified. (Health and Safety Code (HSC) § 1374.73(c)(1), Insurance Code (INS) 10144.51(c)(1)) 10) Defines as “qualified autism service provider” as: a. A person, entity or group that is certified by a national entity, such as the Behavior Analyst Certification Board, that is accredited by the National Commission for Certifying Agencies, and who designs, supervises, or provides treatment for pervasive developmental disorders or autism, as specified; or, b. A person licensed as a physician and surgeon, physical therapist, occupational therapist, educational psychologist, clinical social worker, professional clinical counselor, speechlanguage pathologists, or audiologist, who designs, supervises or provides treatment for pervasive developmental disorders or autism, as specified. (HSC § 1374.73(c)(3) et seq.) 11) Defines a "qualified autism service professional" as a behavioral service provider approved as a vendor by a California regional center to provide services as an associate behavior analyst, behavior analyst, behavior management assistant, behavior management consultant, or behavior management program as defined in Title 17 CCR § 54342. (HSC § 1374.73 (c)(4)(D), INS § 10144.51(c)(4)(D)) 12) Defines “qualified autism service paraprofessional” as an unlicensed and uncertified individuals who is employed and supervised by a qualified autism service provider; and, provides treatment and implements services pursuant to a treatment plan developed and approved by the qualified autism service provider, as specified. (HSC § 1374.73 (c)(4)) 13) Defines a “qualified autism service professional” as an individual who provides behavioral health treatment and is employed and supervised by a qualified autism service provider, as specified. (WIC § 1374.73 (c)(4)) 14) Defines a “qualified autism service paraprofessional” as an unlicensed and uncertified individual who is employed and supervised by a qualified autism service provider; and, provides treatment and implements services pursuant to a treatment plan developed and approved by the qualified autism service provider. (WIC § 1374.73 (c)(5)) 15) Defines a “qualified autism service professional” as an individual who provides behavioral health treatment; is employed and supervised by a qualified autism service provider; provides treatment pursuant to a treatment plan developed and approved by the provider; and, is a behavioral service provider, as specified. (INS § 10144.51 (c)(4)) 16) Defines a “qualified autism service paraprofessional” as an unlicensed and uncertified individual who is employed and supervised by a qualified autism service provider; provides treatment and implements services pursuant to a treatment plan developed and approved by the qualified autism service provider; has adequate education, training and experience as certified by a qualified autism service provider, as specified. (INS § 10144.51 (c)(5)) AB 796 Page 3 THIS BILL: 1) Extends the sunset date for health care service plans to contract, and health insurance policies to provide coverage for behavioral health treatment for pervasive developmental disorders, and extends the definition of “behavioral health treatment” and “qualified autism service professional” from January 1, 2017 to January 1, 2022. 2) Requires the Board of Psychology to convene a committee to create a list of evidence-based treatment modalities for pervasive developmental disorders or autism by December 31, 2017. FISCAL EFFECT: Unknown. This bill is keyed fiscal by the Legislative Counsel. COMMENTS: Purpose. This bill is sponsored by the DIR Floor Time Coalition. According to the author, “AB 796 recognizes that there is no one size fits all behavior health treatment for an individual diagnosed with autism. Every child on the autism spectrum presents differently, as such treatment options must reflect that spectrum. This bill ensures children diagnosed with autism will receive insurance coverage for the type of evidence-based behavior health treatment that is right and selected for them by the medical professional that knows the child best.” Background. The Lanterman Act guides the provision of services and supports for Californians with developmental disabilities. Each individual under the Lanterman Act, is legally entitled to treatment and habilitation services and supports in the least restrictive environment. Lanterman Act services are designed to enable all consumers to live more independent and productive lives in the community. The term "developmental disability" means a disability that originates before an individual attains 18 years of age, is expected to continue indefinitely, and constitutes a substantial disability for that individual. It includes intellectual disabilities, cerebral palsy, epilepsy, and pervasive developmental disorder/autism spectrum disorder (PDD/ASD). Other developmental disabilities are those disabling conditions similar to an intellectual disability that require treatment (e.g., care and management) similar to that required by individuals with an intellectual disability. Autism Spectrum Disorders. Defined as a group of neurodevelopmental disorders linked to atypical biology and chemistry in the brain that generally appears within the first three years of life, autism is a growing epidemic among children. The diagnosis is often characterized by delayed, impaired, or otherwise atypical verbal and social communication skills, sensitivity to sensory stimulation, atypical behaviors and body movements, and sensitivity to changes in routines. Although symptoms and severity differ among individuals with an autism diagnosis, all individuals affected by the disorder have impaired communication skills, difficulties initiating and sustaining social interactions, and restricted, repetitive patterns of behavior and/or interests. According to the American Psychiatric Association, people with ASD tend to have communication deficits, such as responding inappropriately in conversations, misreading nonverbal interactions, or having difficulty building friendships appropriate to their age. In addition, people with ASD may be overly dependent on routines, highly sensitive to changes in their environment, or intensely focused on inappropriate items. The symptoms of people with ASD will fall on a continuum, with some individuals showing mild symptoms and others having much more severe symptoms. AB 796 Page 4 Information released in March 2014 by the Centers for Disease Control (CDC) Autism and Developmental Disabilities Monitoring (ADDM) Network estimates prevalence of ASD for children born in 2002 and surveyed in 2010 to be 14.7 per 1,000 children, which translates to one in 68 children. This is a drastic increase from CDC data for children born in 2000 and surveyed in 2008, which estimated the prevalence of children with ASD to be one in 88. Average prevalence for children surveyed in 2006 was one in 110 children. ASD continues to be five times more prevalent for boys than for girls. Early Intervention Services. Research shows that a child's development can be greatly impacted by early intervention treatment services, especially when provided during a child's first three years. During that time, a child is developing motor skills and language, and begins to socialize with others. Early intervention services for babies and toddlers that have been diagnosed with, or seem to be at risk for, a developmental delay or disability often include physical, cognitive, communication, social/emotional and self-help skill building. While there is no proven cure for ASD, early intervention can dramatically change the trajectory of a child's life over time, including his or her ability to learn new skills throughout childhood and an increased ability to integrate into, and have a positive relationship with, his or her community. Treatments for ASD. According to information retrieved from the National Institute of Mental Health, there are various modalities for treating ASD including a combination of medication, occupational therapy, speech therapy, physical therapy, and behavioral interventions. With regard to behavioral interventions, there are several different types that have been scientifically studied and found to be effective. There are also a number of behavioral treatments in practice that have not yet met the criteria to be considered “evidence-based.” In California, many practitioners report that the most widely reimbursed evidence-based behavioral treatment for ASD is Applied Behavioral Analysis. Providers also report that they utilize other forms of behavioral health treatment, e.g. Developmental, Individual Difference, Relationship-based (DIR) Floortime, but they list the treatment modalities under different billing codes to ensure they receive reimbursement. Applied Behavior Analysis (ABA). A widely accepted evidence-based treatment for ASD is ABA. There are many research articles demonstrating the efficacy of ABA as an intervention for individuals with autism. These studies range from group design outcome studies to single subject studies supporting the use of one specific intervention or technique. The goals of ABA are to shape and reinforce new behaviors, such as learning to speak and play, and reduce undesirable ones. This is done by systematically applying interventions, based upon the principles of learning theory, to improve socially significant behaviors to a meaningful degree. Further, the contingent use of reinforcement and other important principles to increase behaviors, generalize learned behaviors or reduce undesirable behaviors is fundamental to ABA. For example, ABA techniques use rewards—goldfish crackers, playing with toys, praise—to teach children all kinds of behaviors, lessons and life skills, step by tiny step, in intensive, oneon-one drills. Developmental, Individual Difference, Relationship-based (DIR)/Floortime Model—aims to build healthy and meaningful relationships and abilities by following the natural emotions and interests of the child. One particular example is the Early Start Denver Model, which fosters improvements in communication, thinking, language, and other social skills and seeks to reduce AB 796 Page 5 atypical behaviors. Using developmental and relationship-based approaches, this therapy can be delivered in natural settings such as the home or pre-school. SB 946. SB 946 (Steinberg), Chapter 650, Statutes of 2011, defined “behavioral health treatment” (BHT) as professional services and treatment programs, including ABA and evidence-based behavior intervention programs, that develop or restore, to the maximum extent practicable, the functioning of an individual with PDD or ASD. The bill mandated coverage of all evidence-based BHTs prescribed by a physician and surgeon, or developed by a psychologist, provided under a treatment plan prescribed by a qualified autism service provider, and administered by a qualified autism service provider, a qualified autism service professional, or qualified autism service paraprofessional. When defining the minimum requirements for providers, the bill referred to a section of Title 17 which references only one type of evidencebased BHTs, ABA. The sponsor believes that this was a mistake. The sponsor also believes that the spirit of the legislation was to allow for various modalities of treatment. The sponsor indicates that this discrepancy in existing law makes it difficult for parents to obtain coverage for prescribed treatments that their children need. Department of Managed Healthcare (DMHC) Task Force. SB 946 called for the DMHC to convene a task force to report to the Governor and Legislature with recommendations for implementing SB 946. The 18 member task force met for one year. An excerpt from the report summarizes the Task Force’s recommendations regarding BHT: A guiding principle of the Task Force was that every individual with autism or PDD is unique. Therefore, behavioral health interventions need to be highly individualized. Since treatment selection should be made by a team of individuals, who can consider the unique needs and history of the individual with autism or PDD, the Task Force determined that it would not be informative to state policy makers to merely develop a list of BHTs that are determined to be effective, based solely on current scientific literature. Since scientific research and findings naturally advance, the Task Force determined that the choice of BHTs should be grounded in scientific evidence, clinical practice guidelines, and/or evidence based practice. In regards to the individuals who are most appropriate to administer BHT, the Task Force concluded: The Task Force concluded that all top level providers [physician and surgeon, physical therapist, occupational therapist, psychologist, marriage and family therapist, educational psychologist, clinical social worker, professional clinical counselor, or speech language pathologist or audiologists] should be licensed by the state. The Task Force also included requirements for individuals who are unlicensed and who are not certified as follows: a) Have adequate training and specific competence in implementing BHT for autism, including competence in the scope of treatments outlined in the treatment plan and a minimum of 30 hours of interactive, competency-based autism-specific training, as verified by the treatment plan developer or treatment provider; AB 796 Page 6 b) Be enrolled in a bachelor’s program or possess a bachelor’s degree; be enrolled in an associate’s degree program or possess an associate’s degree; or, at minimum, possess a high school diploma; c) Receive adequate supervision. At least 60 to 75 percent of the supervision should be direct fact-to-face supervision and include significant co-therapy with the top or midlevel supervisor; and, d) The supervision shall cover the functions of ongoing treatment planning and case supervision. Prior Related Legislation. SB 479 (Bates) of 2015, would have established the Behavior Analyst Act which would have required a person to apply for and obtain a license from the Board of Psychology prior to engaging in the practice of behavior analysis, as defined, either as a behavior analyst or an assistant behavior analyst, and meet certain educational and training requirements. NOTE: This bill was held on the Senate Appropriations Committee suspense file. SB 946 (Steinberg), Chapter 650, Statutes of 2011, required health plan and health insurance policies to cover behavioral health therapy for pervasive developmental disorders or autism. The bill also requires plans and insurers to maintain adequate networks of autism service providers. AB 2041 (Jones) of 2014, would have required that a regional center classify a vendor as a behavior management consultant or behavior management assistant if the vendor designs or implements evidence-based behavioral health treatment, has a specified amount of experience in designing or implementing that treatment, and meets other licensure and education requirements. The bill would have required the Department of Developmental Services to amend its regulations as necessary to implement the provisions of the bill. NOTE: The bill died in the Senate Appropriations Committee. POLICY ISSUES: 1) The author has proposed that a subcommittee of the Board of Psychology develop a list of evidence-based treatments for behavioral health treatment. This would require the Board to consistently review treatments that emerge and add them to the list. An alternative would be to task the Board’s subcommittee with defining evidence based practices. This may help to clarify the standards that guide the classification of behavioral health treatments as evidencebased. 2) The author should consider the following technical and clarifying amendments: On page 16, line 19, and on page 20, line 22, consider amending the bill as follows: (g) No later than December 31, 2017, and thereafter as necessary, the Board of Psychology, upon appropriation of the Legislature, shall convene a committee to create a list of evidence-based treatment modalities for purposes of developing mandated behavioral health treatment modalities for pervasive developmental disorder or autism. The Board of Psychology shall post the list of evidence-based treatment modalities on their webpage no later than January 1, 2019. AB 796 Page 7 REGISTERED SUPPORT: None on file. REGISTERED OPPOSITION: None on file. Analysis Prepared by: Le Ondra Clark Harvey, Ph.D. / B. & P. / (916) 319-3301