Gastro-Intestinal (GI) Consequences of Pelvic Radiotherapy Task and Finish Working Group - Terms of Reference Purpose NICaN will establish a task and finish group to assess the current pathway for patients with gastro-intestinal consequences following pelvic radiotherapy treatment to bring forward recommendations to improve the pathway and patients’ experience. The working group will take account of strategic developments already being progressed by established HSCB groups namely: the Transforming Cancer Follow Up Programme (TCFU), Radiotherapy Expansion Programme and Development of Acute Oncology. The scope of the group’s assessment will comprise: diagnostic/referral pathways, medical and surgical management of patients with GI consequences of pelvic radiotherapy. Specifically the GI Consequences of Pelvic Radiotherapy task and finish group will focus on: Establishing a baseline Identify a clinical champion within each Trust Implementation of redesigned pathway to include patient information, raising awareness with GPs and introduction of treatment summary records (the early part of Royal Marsden algorithm) Explore the way forward with complex cases The Working Group will operate as a task & finish group and will produce a report to NICaN and HSCB before end of February 2016. It is envisaged that the working group will meet regularly and include external input from elsewhere in the UK. Chair The Working Group will be chaired by Dr Tony Tham, Gastroenterologist, South Eastern Health and Social Care Trust Consultant Membership Membership will be sought from individuals with HSC Trusts, HSCB and PHA, NI Cancer Registry, and Patient and Public Involvement. Version 4, March 2015 The following membership is proposed Consultant Oncologists Dr Jackie Clarke – BHSCT Dr Anne Drake – BHSCT Dr Ursula McGivern – BHSCT Dr Darren Mitchell - BHSCT Dr Suneil Jain - BHSCT Consultant Gastroenterologist Dr Tony Tham – SEHSCT Dr Andrew Murdock – SHSCT Dr Charlie Ferguson - WHSCT Dr Graham Turner – BHSCT Intestinal Failure Unit Dr Mike Mitchell – BHSCT Dr Colin Rodgers – NHSCT Dr Eugene Campbell – WHSCT Dr Gerard Rafferty - BHSCT Consultant Colorectal Surgeon Professor Keith Gardiner – BHSCT Intestinal Failure Unit Mr William Wallace – BHSCT Representation from the other trusts to be confirmed. Palliative Care Consultant Dr Bernie Corcoran - BHSCT Dr Joan Regan - BHSCT Primary Care Dr Gerry Millar – GP, SHSCT Macmillan Cancer Support Ms Liz Henderson – Special Advisor RTS Clinical Psychology Dr Nuala Brady, Clinical Psychologist, NHSCT Trust Management Ms Davinia Lee, General Manager Cancer Services, BHSCT Ms Pat McClelland, General Manager, Cancer Services, NHSCT Ms Wilma Boyd-Carson, Clinical Manager for Cancer Service, SEHSCT Ms Elizabeth England, Macmillan Lead Nurse / General Cancer Manager, WHSCT Ms Fiona Reddick, Head of Cancer Services, SHSCT Ms Elish McColgan –Gynae Oncology CNS, BHSCT Ms Kerry Chambers –Uro-Oncology CNS, WHSCT Ms Martina Finn – Colorectal CNS, SET Cancer Nursing Specialist Radiographer Allied Health Professional Experts by experience NI Cancer Registry PHA Ms Helen Vennard, Breast/Gynae Specialist Radiographer, BHSCT Mr Pat Sheils, Bracytherapy Specialist Radiographer, BHSCT Ms Thamra Ayton, Physiotherapist, BHSCT Ms Alison Robinson, Physiotherapist, BHSCT Ms Brenda Nugent, Dietician, BHSCT Mrs Janine McCann Urology PPI representative TBC Dr Anna Gavin Dr Miriam McCarthy - Consultant in Public Health Ms Jenny Keane – AHP Consultant Version 4, March 2015 NICaN Ms Mary Jo Thompson – Nurse Consultant Ms Lisa McWilliams – Network Manager Dr Martin Eatock – Medical Director NICaN Ms Edel Aughey – Service Improvement Lead The Working Group will be supported by Cancer Network Personnel. Other members will be co-opted on as required. Accountability and reporting arrangements The Groups authority will come from its credibility. This credibility will be evidenced by the application of the Group and its member’s knowledge and expertise. It will be the principal source of advice to indicate service improvements that are possible within existing resources, and to quantify the resource implications of any proposed development in line with best evidence available. Individual members will be accountable to their own profession and are responsible for reporting back to their own multi-disciplinary teams. The Lead/Chair of the group will be held accountable to the NICaN Board, via a member of the NICaN management team, for the delivery of the agreed work plan. The Lead/Chair will be responsible for reporting to the NICaN Board annually. Version 4, March 2015