April 14, 2010 Draft
Idaho Summit on Autism Spectrum Disorders
Action Plan
April 14, 2010 Draft
Submitted by Interagency Planning Group
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April 14, 2010 Draft
Goal/Impact Statement Act Early Summit Feb, 2010
Idaho has a high quality, comprehensive, coordinated, family-centered, accessible, cost-effective system of supports for
children and youth with autism spectrum disorders (ASDs) by:
 Identifying children as early as possible;
 Providing effective, evidence-based services; and
 Providing supports to meet the needs of these children, their families, educators, and their communities in order for
each child to reach his or her potential.
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April 14, 2010 Draft
Interagency Action Plan
Area:
Screening, diagnosis, and assessment
Goal:
Children are correctly screened, assessed, diagnosed in all critical areas at the earliest possible age.
Outcome Measure:
Outcome Measure:
Outcome Measure:
Percentage of children identified corresponds to national prevalence data (NIH, IDEA, CDC etc.).
Percentage of Health Care Providers conducting ASD screening of all children by 18 months of age.
Percentage of IDEA Part C and Part B providers conducting developmental and ASD screening as a part child find
activities.
Resources:
AAP, Family Practitioners, Medicaid, Infant Toddler Programs, Developmental Disabilities, public schools, Autism
parent and advocacy groups, private providers, Center on Disabilities and Human Development (CDHD),
ISU/BSU/UI, school nurses, WIC and Public Health, Idaho 211, Juvenile Justice, Idaho Telehealth at ISU/BSU, Idaho
P.L.A.Y. Project
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April 14, 2010 Draft
Timeline
(start & end)
1. Screening:
 Assessment
a. Update Idaho screening and
document by
assessment document: Autism
April 15, 2010
Spectrum Disorders: A Guide to
 Convene primary
Best Practice in Screening and
medical care
Assessment (linkage to use of
providers (e.g.
assessment information o design
Indian Health,
of interventions)
FQHCs)
b. Increase awareness of Act Early
workgroup to
initiative through public
develop
awareness resources of the ACT
dissemination
Early initiative.
plan based on
c. Promote universal screening for
Assessment
ASD in all children at 12, 18, and
document by ?
24 months of age by health care
 Plan developed to
providers, childcare providers,
provide
early intervention and preschool
Assessment
personnel for both developmental
document and
concerns and ASD early red flags.
training to
d. Promote universal screening for
primary medical
ASD in all IDEA child find activities
care providers set
for both developmental concerns
by ? and
and ASD early red flags.
implemented by
e. Provide training on early screening
?
(M-CHAT, STAT)
f. Ensure connections are made to
intervention offered by DHW, SDE,
etc.
Activity (what we will do to turn the curve)
Person/ Agency
Responsible
SDE
DHW
Public Health
Sherry Iverson/AAP
Dr. Leavell
Migrant Council
Tribal Health rep
Family Practitioners
Head Start
IdahoSTARS
Childcare Health
Consultants
Quality: How well are the activities
working? (Evaluation strategy)
Plan developed to provide Assessment
document and training using AAP and Act
Early Resource packets to primary medical
care providers.
Record of referral rates established and
tracked
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2. Assessment
a. Update Idaho screening and
assessment document: Autism
Spectrum Disorders: A Guide to
Best Practice in Screening and
Assessment (linkage to use of
assessment information o design
of interventions)
b. Provide training to all
Infant/toddler and school
personnel
c. Assist partners (e.g. AAP Idaho,
DHW) in providing training to
primary medical care and other
health care providers who engage
in diagnosis
d. Align screening and assessment
with Medicaid redesign
requirements for assessment
required for eligibility.
3. Identify sources of surveillance and
prevalence data, compile annually and
report to public and all state agencies
such as;
a. American Academy of Pediatrics,
Center for Disease Control, NY
Times, NIH
 April 15, 2010
revision
 May 2010:
convene team
for review
SDE/Mary Bostick LEAD
CDHD/Julie Fodor
Invited participants:
Dr. Leavell
Dr. Whitney
Paul Norstag
Mary Bostick
Julie Fodor
Mary Jones
Betsy Wilson
Jaynetta Rasmussen,
CDHD
Infant Toddler
DD
Medicaid
SDE
April 14, 2010 Draft
Document adapted/developed,
dissemination plan developed for full
Summit group approval
SDE gather National Prevalence Data to
report to?
Annual Data Report beginning?
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April 14, 2010 Draft
Interagency Action Plan
Area:
Effective Interventions
Goal:
Individuals with autism spectrum disorders and their families will receive evidence-based interventions by trained
interventionists that are of sufficient quality and quantity to meet their specific needs based on their age and
abilities and that result in measureable progress.
Outcome Measure:
Percentage of families that report they are satisfied with the services their child receives (e.g. receive the right
services, at the right time, in the right amount to achieve best outcome) using current IDEA Part C and B measures
Raise score on program quality indicators developed by the National Professional Development in Autism
monitoring in every 5 years.
Develop appropriate data to indicate delivery of appropriate, post-school outcomes (IDEA Part B Data), and parent
measures.
Outcome Measure:
Outcome Measure:
Activity (what we will do to turn the curve)
1. Program Assessment:
a. Convene a workgroup to review and
recommend selection of current PDA
Program and Fidelity Assessments for
utilization in Infant/Toddler and school
programs.
b. Develop and implement a plan for
comprehensive data collection and
analysis regarding the program quality
Timeline (start &
end)
July 2010- ongoing
with yearly
training plan
submitted and
carried out by
interagency
partners
Person/Agency
Responsible
SDE
DHW
ASD Planning Committee
Quality: How well are the activities working?
(Evaluation strategy)
Program assessment:
a. Adopted
b. Disseminated with training to
Infant/Toddler and school personnel
c. Annual increases in scores on Quality
Indicators reported to ASD Policy Group
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Activity (what we will do to turn the curve)
Timeline (start &
end)
Person/Agency
Responsible
See above,
ongoing annual
plan
SDE
DHW
IHEs
April 14, 2010 Draft
Quality: How well are the activities working?
(Evaluation strategy)
Indicators from all constituents
(families, direct services personnel,
etc.).
c. Align with Medicaid redesign measures:
encourage Medicaid to adopt family
indicators
2. Training on evidence-based practices:
a. Expand CDHD/SDE Autism Supports
Project to train school personnel in
current evidence-based treatment
packages and interventions (e.g. PDA
evidence-based practice briefs,
Foundations in ASD, Autism Internet
Modules)
b. Expand cross-system coordination, and
family involvement
 Training Provided
 Training evaluations positive and reflected in
monitoring of programs using PDA Program
Assessment
 Increase in Program Assessment and
competency-based intervention following
training
August, 2010
c. Develop and sign interagency
agreements for CDHD, SDE, Medicaid
and DHW
d. Garner agency support for ongoing
advisory group
e. Align with Medicaid redesign
f. CDHD liaison coordinates quarterly
conference calls among agencies
g. CDHD liaison coordinates bi-yearly web
conferences with ASD Advisory Group
h. Disseminate evidence-based ASD
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Activity (what we will do to turn the curve)
Timeline (start &
end)
Person/Agency
Responsible
April 14, 2010 Draft
Quality: How well are the activities working?
(Evaluation strategy)
practices widely through personnel
preparation, CDHD website, and public
policy activities (e.g. PDA EvidenceBased Practice Briefs)
3. Provide online course materials for
graduate level course on ASD supported
by the Teacher Certificate Project to all
IHEs
CDHD
SDE
DHW
IPUL
Data collected and reported to all agencies
4. Provide ongoing short web-based
training opportunities
5. Short web courses (e.g. 3-4 webinar
series, 2 hours per webinar)
6. Short just-in-time training opportunities
(e.g. 1 hr max)
7. Provide information on EBP to EC
Consortium
8. Access to services: establish a familyfocused and easily accessible system:
a. Develop and implement a plan to
evaluate access to services for
children and youth with ASD.
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April 14, 2010 Draft
Interagency Action Plan
Area:
Family Involvement
Goal:
Family members will have an increased opportunity and choice to partner in the design, delivery, and
implementation of plans for their child.
Outcome Measure:
Outcome Measure:
Percentage of families that report they are satisfied with the services their child receives (e.g. receive the right
services, at the right time, in the right amount to achieve best outcome) using current IDEA Part C and B measures
Increase percentage of parents report that they received information and/or training on evidence-based practices
and who report their training increased their skills to participate as an equal partner in the design, delivery and
implementation of the plans for their child.
Activity (what we will do to turn the curve)
1. Develop a statewide format for a
child/student Portfolio. This would
be used by the child/student and
family to communicate with new
programs/service providers/etc.
Timeline
Person/Agency Responsible
(start & end)
Quality: How well are the activities working?
(Evaluation strategy)
Committee
selected
Nov. 2010?
Increase parent satisfaction.
Portfolio
developed
May 2011
DHW
SDE
Family subgroup of ASD Task Group
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April 14, 2010 Draft
Activity (what we will do to turn the curve)
Timeline
Person/Agency Responsible
(start & end)
2. Develop a statewide orientation
packet for families that describes
the Idaho ASD model for service
delivery system.
a. Health care providers
b. Infant Toddler Program
c. Public schools
SDE
3. Develop or adopt a family
satisfaction survey to be completed
through web-based and hard copy
formats.
SDE
Quality: How well are the activities working?
(Evaluation strategy)
Increase in parent satisfaction
DHW
IPUL
Increase in parent satisfaction
DHW
4. Use family surveys currently used by Reviewed at IPUL
IDEA Parts C and B
ASD Advisory SDE
Meeting
DHW
9/2010
Surveys adopted and used
5. Include state ASD Parent, Advocacy,
and support groups in Advisory
Group to assist in guiding parent
training
Increase in parent satisfaction
IPUL
Federation of Families
TV Autism
Panhandle Autism
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April 14, 2010 Draft
Interagency Action Plan
Area:
Public Policy
Goal:
Children with autism and their families receive continuous coordinated services, supported by public
policy, from the time of initial diagnosis for as long as needed.
Outcome Measure:
Outcome Measure:
Percentage of families that report they are satisfied with the services their child receives (e.g. receive the right
services, at the right time, in the right amount to achieve best outcome) using current IDEA Part C and B measures
Development of an Interagency Agreement/MOU across agencies that deliver services to children and youth with
ASD.
Activity (what we will do to turn the curve)
1. Develop an ASD Needs Assessment to
identify gaps in service
Timeline
(start & end)
1. Sept.
2010
a. ASD Advisory Group to provide
guidance on needs assessment
2. CDHD summarizes and reports findings to
Interagency group and ASD Advisory
Group
Person/Agency
Responsible
3.
4.
5.
6.
SDE
DHW
Medicaid
CDHD
Quality: How well are the activities
working? (Evaluation strategy)
7. Needs Assessment summary
created, disseminated, summarized
2. May
2011
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April 14, 2010 Draft
Timeline
(start & end)
August, 2010
and annually
Person/Agency
Responsible
CDHD
DHW
SDE
Quality: How well are the activities
working? (Evaluation strategy)
4. Reviews funding in Interagency MOU
annually and revise as needed/possible to
address gaps.
August, 2010
and annually
Funding proposals reviewed and adjusted
in MOU annually
5. Develop Interagency MOU: to include
protocol, policy and procedure guidance
for sharing data, mutual training, and
identification of resources to establish
effective practices in screening,
assessment, evidence-based
interventions.
August 2010
and annually
Annually
CDHD
DHW
SDE
Utah LEND
CDHD
SDE
DHW
Activity (what we will do to turn the curve)
3. Review and refine existing policies that
affect children and youth with ASD to
identify changes or additions to current
policies.
Policies, procedures changed through
whatever mechanism is needed (e.g.
proposed rules, memo/handbook changes,
etc.)
State interagency MOU/agreements in
place.
a. Act Early and ASD Interagency
Agreement to be carried out
though coordination by ASD
Supports Project at CDHD
b. Develop a mechanism to ensure
local interagency planning and
agreements for service delivery.
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April 14, 2010 Draft
Activity (what we will do to turn the curve)
6. Educate policy makers, legislators, and
local communities regarding evidencebased practices for children with ASD and
state resources.
Timeline
(start & end)
Legislative
sessions
Person/Agency
Responsible
ASD Advisory Group
CDHD
DHW
SDE
Quality: How well are the activities
working? (Evaluation strategy)
Awareness level materials available on
all state websites (e.g. Idaho Training
Clearinghouse, Idaho Child, etc.) and
disseminated to legislators, hospitals,
etc.
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April 14, 2010 Draft
Interagency Action Plan
Area:
Personnel Preparation
Goal:
All personnel who impact the delivery and provision of services to children and youth with ASD have adequate
knowledge, skills, and abilities to support increased success for children with ASD in home, school, and community.
Outcome Measure:
Outcome Measure:
Increased percentage of personnel meeting high quality personnel competency indicators.
Increased knowledge, skills, and ability from personnel development activities using pre-post data.
Activity (what we will do to turn the curve)
1. Disseminate low-incidence course
sequence to all IHEs: a personnel
development system that is based on
coordination/linking of existing efforts
(e.g. Autism Supports Project, Teacher
Certificate Project) and ensure that
training and consultation on evidencebased ASD practices is disseminated
statewide for public and private
providers, families, primary medical
providers, and IHEs.
Timeline
(start & end)
Person/Agency Responsible
SDE
DHW
DDAs (IADDA)
CDHD
BSU
ISU
U of Idaho
Quality: How well are the activities working?
(Evaluation strategy)
System developed
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April 14, 2010 Draft
Activity (what we will do to turn the curve)
Timeline
(start & end)
Person/Agency Responsible
Quality: How well are the activities working?
(Evaluation strategy)
2. Work toward reinstatement of an
endorsement on special education
certification based on 2009 CEC
advanced professional standards for
Developmental Disabilities and Autism
Spectrum Disorders
SDE
DHW
DDA Association (IADDA)
CDHD
BSU
ISU
U of Idaho
Personnel Competencies developed.
3. Develop and implement pre-post
measures of personnel competencies
for personnel based on 2009 CEC
advanced professional standards for
Developmental Disabilities and Autism
Spectrum Disorders.
CDHD- Lead
SDE
DHW
DDA Association (IADDA)
BSU
ISU
U of Idaho
Increase in assessed competencies.
4. Using adopted competencies for highly
qualified personnel, develop selfassessment tools to be used with staff
that impact delivery and provision of
services to ASD.
CDHD- Lead
SDE
DHW
DDA Association (IADDA)
BSU
ISU
U of Idaho
Self-Assessment finalized and disseminated
with training.
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April 14, 2010 Draft
Activity (what we will do to turn the curve)
Timeline
(start & end)
Person/Agency Responsible
Quality: How well are the activities working?
(Evaluation strategy)
6. Continue through the Autism Support
Project, to develop/disseminate
distance and face-to-face personnel
development activities (accessible
statewide) to meet competencies as
outlined on personnel development
plan.
Sept. 2007
CDHD- LEAD
SDE
DHW
DDA Association (IADDA)
BSU
ISU
U of Idaho
PDA Activities developed and disseminated
annually through websites.
7. Develop a state interagency agreement
on personnel development around
ASD.
Fall 2006
CDHD- LEAD
SDE
DHW
Agreement in place
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April 14, 2010 Draft
Interagency Action Plan
Area:
Research
Goal:
Create a research subcommittee of the Idaho Policy Council on ASD that ensures the Council recommends
implementation of evidence-based practices that will result in positive life outlooks for people with autism.
Outcome Measure:
Outcome Measure:
Outcome Measure:
Number of programs, providers and organizations implementing Best Practices recommendations.
Number of policy changes as a result of research activities.
Number of system changes in Personnel Preparation, Assessment/Diagnosis, Intervention, cross
systems coordination, organizational structures, family support, based on research outlines.
Activity (what we will do to turn the curve)
Timeline
(start & end)
Person/Agency
Responsible
1. Identify external resources to address
Idaho ASD research agenda.
IHEs LEAD
2. Use national sources of information
(e.g. OSEP, NIH) to compare Idaho
data to national data. Develop gap
analysis to drive research agenda.
CDHD
Quality: How well are the activities working?
(Evaluation strategy)
ASD Policy Group
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April 14, 2010 Draft
ATTACHMENT 1
ACRONYMS/ABBREVIATIONS USED IN THIS DOCUMENT
Definition
Acronym
Acronym
Definition
ASD
Autism Spectrum Disorder
MOA
Memorandum of Agreement
CEU’s
Continuing Education Units
OT
Occupational Therapy
DDA
The Developmental Disability Agency
PBS
Positive Behavior Supports
DDA
Developmental Disabilities Agencies
PDA
Personnel Development Activities
DD-CMH
Developmental Disabilities – Children’s Mental Health PT
Physical Therapy
DHW
Department of Health and Welfare
PSRs
Psychosomatic Rehabilitation
ESC
EPSDT Service Coordination
SDE
State Department of Education
ESL
English as a Second Language
SSI
Social Security Insurance
HCP
Health Care Providers
TSC
Targeted Service Coordination
HQ
Highly Qualified
UCLA
University of California Los Angeles
IARC
Idaho Research Consortium
LEA
Local Education Agency
IBI
Intensive Behavior Intervention
MOA
Memorandum of Agreement
IATP
The Idaho Assistive Technology Project
OT
Occupational Therapy
IDEA
Individuals with Disabilities Education Act
PBS
Positive Behavior Supports
IEP
Individual Education Program
PDA
Personnel Development Activities
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April 14, 2010 Draft
Acronym
Definition
Acronym
Definition
IFFCMH
Federation of Families for Children’s Mental Health
PT
Physical Therapy
IFSP
Individual Family Service Plan
PSRs
Psychosomatic Rehabilitation
IHE
Idaho Higher Education
SDE
State Department of Education
IPUL
Idaho Parents Unlimited, Inc.
SSI
Social Security Insurance
LEA
Local Education Agency
TSC
Targeted Service Coordination
MOA
Memorandum of Agreement
UCLA
University of California Los Angeles
OT
Occupational Therapy
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