STROUD COURT COMMUNITY TRUST POLICY & PROCEDURE FILE POLICY DOCUMENT ELECTRONIC VERSION TRANSITION POLICY STATEMENT Policy Statement: Transition For all on the autism spectrum, transition of any kind can be challenging, potentially confusing and anxiety provoking. In our environment there are many transitional periods that our clients have to encounter, be it from activity to activity, family home to residential unit, on-site to off-site activity and even room to room transitions within an established residence. Careful planning and appropriate support mechanisms are essential for our clients in any transition process in order to minimise confusion, disorientation and anxiety. This can be accomplished by using proactive and creative strategies that specifically address the cognitive, social and behavioural needs of our clients. Structured, predictable environments with reduced sensory stimulation are a key consideration in planning transition processes as well as specific targeted strategies for individuals. All transitions that are identified as potentially challenging for individual clients within Stroud Court will be analysed by a multi-disciplinary team and strategies to enable the transition will be designed within a three stage framework (Stoner et al, 2007) of a) identifying the potential challenge b) enabling the client to observe the change/transition in question and c) enabling the client to explore or experience the change/transition with support from staff. At each stage, reference will be made to six key elements in order to construct an effective approach for that individual. These key elements are: 1. 2. 3. 4. 5. 6. A Person Centred Approach Effective Communication Effective Preparation The Type of Transition and Appropriate Strategies The Identification of Barriers and Appropriate Responses, and Adequate Timeframes This document provides details on these elements below – together with notes and procedures on types of transition, the rights of individuals and record keeping. Autistic Spectrum Disorders and Transition It is well established (Frith, 1989; Morgan, 1996; Peeters, 1997 and 1999; Wing, 1996) that the characteristic impairments (Wing and Gould, 1979) associated with Autistic Spectrum Disorders (ASD) conspire on an individual level to make unexpected and unpredictable changes in routines and patterns very difficult for people with the condition. Impoverished and restricted imaginative skills can lead to an inability to cope effectively with unknown situations resulting in heightened anxiety, withdrawal, confusion and a range of complex and challenging behaviours (Schopler and Mesibov, 1994). Transition in all its forms is a common source of potentially unexpected change for clients and as such, needs to be managed as effectively as possible. Transition Policy Statement Page 1 of 7 Rev Oct 2012 STROUD COURT COMMUNITY TRUST POLICY & PROCEDURE FILE POLICY DOCUMENT ELECTRONIC VERSION TRANSITION POLICY STATEMENT It is our belief at Stroud Court that the impact of transition on individuals can and should be minimised through the application of careful, person centred approaches shaped to the identified needs of that individual. Although approaches will necessarily differ because of this, there are common themes that will be relevant to all, dependent not only on the person but also on the type of transition in question. Horizontal Transition or Transition on the micro level Horizontal or “micro” transitions typically occur frequently within the day to day experiences of clients and include much of what we all recognise as the natural routines of daily living – getting up, taking a break for food or refreshments, moving from one activity or local environment to another and so on. As clients become accustomed to their routines, micro transitions present little if any threat as they are part of the normal, predictable rhythm of life. However, there will always be occasions when some apparently minor element of the established transition procedure changes and this is when a more formal strategy is required in order to ensure the client remains comfortable with the process. A three stage approach is applied in such situations; identify-observe-explore (Stoner et al, 2007) Identification of potentially difficult transitions Preparation of client for transition – supported client observation or experience of the change during a low arousal/low stress period and Client experience or exploration of the setting/circumstances before the actual transition. At each stage, reference will be made to the six key elements as noted above and records kept of the main discussions that have taken place. Responsibilities: Unless there is reason to believe otherwise, the staff team responsible for the client in both/all settings are likely to be able to manage such micro transitions autonomously in close liaison (where appropriate) with family members, although additional support from senior staff and, if required, external professionals is available. The Team Leader of the staff team will lead the process and implement, monitor, evaluate and review the plan(s) as required. Vertical Transition or Transition on the macro level Vertical or “macro” transitions typically occur much less frequently and involve situations that are likely to be long lasting and considerably more significant in terms of the life experience of the individual – admission to or discharge from Stroud Court and moving to a new service, changing residential units within Stroud Court, starting a new activity programme. The same identify-observe-explore approach is applied but due to the nature of the transition in question, significant differences of range and depth will be noted: Identification of potentially difficult transitions (as for micro planning). Preparation of client for transition – observation or experience of the new setting for the client during a low arousal/low stress period. This may require Transition Policy Statement Page 2 of 7 Rev Oct 2012 STROUD COURT COMMUNITY TRUST POLICY & PROCEDURE FILE POLICY DOCUMENT ELECTRONIC VERSION TRANSITION POLICY STATEMENT additional resources in macro transitions as, for example, in the case of placement changes when details of the new service will not be immediately available. The use of video and pictures is likely to be important as is early contact with significant new people. Client experience or exploration of the setting/circumstances before the actual transition – typically this involves visits to the new setting/environment through a structured and programmed timetable with support as required from familiar staff/carers. Responsibilities: Given the significant nature of vertical/macro transitions, the involvement of senior staff and external professionals is essential at an early stage and close collaboration with family members and other significant parties will be important in agreeing strategies. Staff teams will be consulted throughout, but the process will be lead and supervised by a designated senior member of staff. Enabling Transition – The six key elements Transition on any level will require the identify-observe-explore strategy as noted above; however, the specifics will vary according to the unique nature of each client. In order to ensure a comprehensive, consistent and appropriate strategy is constructed for individuals, each transition plan will use the six key elements as a framework: 1. 2. 3. 4. 5. 6. A Person Centred Approach Effective Communication Effective Preparation The Type of Transition and Appropriate Strategies The Identification of Barriers and Appropriate Responses, and Adequate Timeframes Each of these elements will now be considered: 1. A Person Centred Approach The principles and values of a Person-Centred Approach (Dept. of Health, 2002; Webb et al, 2002) are recognised and promoted at Stroud Court The person is at the centre. Family members and friends are key partners in planning. Strengths, support needs and what that person values are all included The person is an important part of the community. Services are needs lead and not menu-driven. Plans will be monitored, evaluated and reviewed. Transition Policy Statement Page 3 of 7 Rev Oct 2012 STROUD COURT COMMUNITY TRUST POLICY & PROCEDURE FILE POLICY DOCUMENT ELECTRONIC VERSION TRANSITION POLICY STATEMENT In terms of transition, this means: Wherever possible, the individual will be involved in all decisions that are taken – with due note being taken of the provisions of the Mental Capacity Act 2005 (see below) All transition plans will be based on the particular aspirations, support needs and strengths of each individual; plans will not be agreed that meet the needs of the service to the exclusion of the client. Families and friends are important and will be consulted at every stage. When services are not available to meet specific needs, the Trust will do all it can to develop those services as a matter of urgency. Transition plans will be monitored, evaluated and reviewed regularly and frequently. 2. Effective Communication Communication is of crucial importance on many levels within the transition plan – not just communication with the client, but communication across staff teams, across services and with other significant parties. Several points are pertinent here – Clients o Communication with the client is essential if the second and third phases of the identify-observe-explore approach are to be effective. As each client will have distinct and unique communication systems, the involvement of the Communication Co-ordinator is likely to be necessary for both vertical and horizontal transition plans and, in consultation with the staff team(s), families and Community Learning Disability Team (CLDT), any individualised visual and communication support aids will be agreed and provided by the Communication Department. o In the case of vertical/macro transitions requiring visits to new environments/settings, again the involvement of the Communication Co-ordinator at an early stage is necessary in order to indentify any resource requirements and lead the communication elements within the overall plan. o At all stages the views of significant parties including families and other carers will be taken into account. Staff o o Clear and defined lines of communication between staff within teams and across teams will be agreed once the need for a formalised plan is established. In the case of horizontal/micro transition, this will be lead by the Team Leader of the unit concerned, in consultation with families and other significant parties. If the transition is of the vertical/macro variant, then a designated senior member of staff will be allocated the lead role in ensuring all involved parties are kept advised and updated. Where external professionals are involved, communication protocols for horizontal/micro transitions will be co-ordinated by the unit Team Leader and vertical/macro transitions by a named senior member of staff. Transition Policy Statement Page 4 of 7 Rev Oct 2012 STROUD COURT COMMUNITY TRUST POLICY & PROCEDURE FILE POLICY DOCUMENT ELECTRONIC VERSION TRANSITION POLICY STATEMENT Record keeping o The process of effective communication requires appropriate and adequate record keeping. This is usually the responsibility of the unit Team Leader, but in the case of complex vertical/macro transitions, a named senior member of staff will be designated to ensure records are maintained. o In the case of individuals considered unlikely to have capacity to make decisions, the framework for record keeping will comply with good practice guidance in line with relevant mental capacity regulations (see below). 3. Effective Preparation Particularly with respect to the final stages of the identify-observe-explore approach, effective preparation is important as it can ease the anxiety and confusion experienced by the individual. A good knowledge and understanding of the individual concerned is necessary in order to identify the specific elements within the planned transition that require proper preparation – and consequently, close liaison and collaboration with families, familiar staff and other significant people is likely to be important. For some individuals, additional resources may be indicated at the initial identification stage – augmented communication aids, visual schedules, additional staff support, environmental adaptations for example. In the case of routine horizontal/micro transitions, responsibility for effective preparation lies with the unit Team Leader. The more complex and potentially significant vertical/macro transitions will demand the attention of a named senior member of staff and the Communication Co-ordinator. For some transition preparations, especially those involving additional expenditure and/or staff expenses, it may be necessary to seek authorisation from the Registered Manager, Executive Director and/or member of the Board of Trustees. 4. The Type of Transition and Appropriate Strategies As noted above, although most if not all transitions will follow the broad identifyobserve-explore framework, the range scope of planning will vary according not only to the individual but also with the type of transition. Details on the types of transition likely to be applicable at Stroud Court have been noted above. 5. The Identification of Barriers and Appropriate Responses All formalised transition plans will take into account potential barriers to effective, positive transitions and proactive strategies will be designed to address these barriers wherever practical. Barriers that are encountered will vary widely according to environments, individuals and external factors (funding, staffing, and regulations) but essentially most barriers that we can influence will be centred on the individual client. Therefore, it is appropriate that the staff team, lead by the unit Team Leader in consultation with families and supported as necessary by senior staff and external professionals, will take primary responsibility for identifying barriers and responding accordingly. Transition Policy Statement Page 5 of 7 Rev Oct 2012 STROUD COURT COMMUNITY TRUST POLICY & PROCEDURE FILE POLICY DOCUMENT ELECTRONIC VERSION TRANSITION POLICY STATEMENT 6. Adequate Timeframes Finally, it is important that each client is offered support within the identify-observeexplore framework that is sympathetic to individuals' broad concepts of time. For some clients, this will necessitate a relatively long and carefully staged transition (particularly in the case of vertical/macro transitions) whilst for others there may be a clear need for the process to be managed as speedily as practicable. Unit Team Leaders, working with families and supported as necessary by senior staff and external professionals, will take primary responsibility for assessing appropriate time factors within transition plans. Transition and Individual Rights Notwithstanding the notes and procedures detailed above, it is also important for all staff to remember that individuals at Stroud Court have rights – both legal and ethical – as do their families. The principles of a person centred approach dictate that the wishes and aspirations of the client are foremost in decisions that are made about that individual, and similarly, the views of families must also be sought. Should clients be potentially unable to make decisions in relation to proposed transitions, formalised procedures are in place to ensure the individual is at all times at the centre of the process. In such situations, the involvement of senior staff is essential and staff will receive guidance on the Mental Capacity Act 2005 and good practice notes as required. References Department of Health (2002) Planning with People: Towards Person Centred Approaches: Guidance for Partnership Boards, London: Department of Health. Frith, U. (1989) Autism: Explaining the Enigma, Oxford: Blackwell Morgan, H. (1996) Adults with Autism, Cambridge: Cambridge University Press Peeters, T. (1997) Autism – From theoretical understanding to educational intervention, London: Whurr Publishers Peeters, T. & Gillberg, C. (1999) Autism: Medical and Educational Aspects, London: Whurr Publishers Schopler, E. and Mesibov, G.B. (1994) Behavioral Issues in Autism, New York: Plenum Press Stoner, J.B., Angell, M.E., House, J.J., Bock, S.J. (2007) “Transitions: Perspectives from Parents of Young Children with Autism Spectrum Disorder (ASD)”, Journal of Developmental and Physical Disabilities, 19, 23-39. Webb, T. et al (2002) "Planning with People - Accessible Guide" [WWW] Transition Policy Statement Page 6 of 7 Rev Oct 2012 STROUD COURT COMMUNITY TRUST POLICY & PROCEDURE FILE POLICY DOCUMENT ELECTRONIC VERSION TRANSITION POLICY STATEMENT http://www.helensandersonassociates.co.uk/PDFs/What%20is%20PCP%20%20easy%20to%20read%20version.pdf accessed 01/12/2008 Wing, L. (1996) The Autistic Spectrum: A guide for parents and professionals, London, Constable Wing, L. and Gould, J. (1979) “Severe impairments of social interaction and associated abnormalities in children: epidemiology and classification”, Journal of Autism and Childhood Schizophrenia, 9, 11-29. Training All new staff will be required to read this document as part of their induction process. In house training is arranged annually and all relevant staff will be expected to attend as necessary. Breaches of this Policy Any breach of this policy will be taken very seriously by the Trust and, depending on the specific circumstances of the case, may result in disciplinary action being taken up to and including summary dismissal in accordance with the SCCT Disciplinary Procedure. Distribution and Review This policy statement will be provided to every member and employee of Stroud Court Community Trust at appointment or staff induction, and be explained in full. The service management will review this document annually or as circumstances dictate. Reviewed: Oct 2012 Next review date: As required Signed: Name: Chris Atkins Position: Executive Director Transition Policy Statement Page 7 of 7 Rev Oct 2012