UCEDD Responses to Emergency Management (EM) Survey
May 2007
Center
EM Contact person
EM part of 5-Year Plan
Alaska:
Center for Human
Development
Emergency management initiatives of the UCEDD
*indicates initiative done in collaboration
with DDC or P&A
Preliminary discussions about incorporating emergency
management into our training curriculum and possible
research.
Collaborators
Municipality of Anchorage
Department of Public health
Contact: Karen Ward
afkmw@uaa.alaska.edu
For training, the
Alaska Mental
Health Trust
Authority.
Information
Dissemination
No current information
dissemination.
Research
funding not
identified.
EM part of 5-Year Plan?:
No
California:
USC UCEDD at CHLA
EM Initiative
Funding
Sources
1.
Contact: Barbara Wheeler
bwheeler@chla.usc.edu
As disability consultant for California Volunteers
(California's Americorps States program) we work
at a policy level with statewide initiatives related to
emergency response.
2.
We collaborated with one of CHLA's researchers
on a submission to NIH to study the preparedness
of school personnel to evacuate students with
disabilities when an emergency occurs.
3.
*The DDC works more closely with emergency
management than we do. We on occasion attend
the same meetings. DD Act Partners has not
made this a priority for our collaborative work.
EM part of 5-Year Plan?:
No
California:
Tarjan Center for
Developmental Disabilities
1.
Contact: Olivia Raynor
oraynor@mednet.ucla.edu
2.
We attended an emergency management
workshop aimed to exchange information about the
needs of the disability community as it applies to
planning for the state.
3.
*The Deputy Director of the DDC is part of the
state’s emergency management team. We
exchange information on an ongoing basis.
EM part of 5-Year Plan?:
No
We are involved, somewhat peripherally, through
our work within national service and through the
state DD Council.
California Volunteers (California's
AmeriCorps States Program)
None
Information
disseminated primarily
through SCDD (CA's
DDC) and California
Volunteers.
None
Information
disseminated through
California State Council
on Developmental
Disabilities
Center for Disability Issues and the
Health Professions (Western
University)

June Kailes wrote one of the
manuals related to emergency
response for people with
disabilities which is used in the
state.

Brenda Premo, who is the
Director of CDIHP, sends us
materials to disseminate to our
stakeholders.
California State Council on
Developmental Disabilities
California Volunteers
California State Council on
Developmental Disabilities
Page 1 of 15
UCEDD Responses to Emergency Management (EM) Survey
May 2007
Center
EM Contact person
EM part of 5-Year Plan
Guam:
Center for Excellence in
Developmental Disabilities
Education, Research, and
Service
Emergency management initiatives of the UCEDD
*indicates initiative done in collaboration
with DDC or P&A
1.
Collaborators
Though emergency management has become of
great concern for the island, initiatives were not
written into the current core grant work plan.
Office of Homeland Security
*The P&A has taken the lead in planning
emergency management initiatives to be
implemented by the Tri Agency
(P&A/DDC/UCEDD)
Guam Fire Department
1.
*Planning activities
Department of Health
2.
*Developing grants to expand resources
Department of Civil Defense
2.
Contact: Heidi San Nicolas
heidisan@uog.edu
Guam Police Department
Guam P&A
EM part of 5-Year Plan?:
No
Hawaii:
Center on Disability Studies
Contact: Martha Guinan
guinan@hawaii.edu
American Red Cross
EM part of 5-Year Plan?:
Yes
EM Initiative
Funding
Sources
Information
Dissemination
ADD provided
funding for the
P&A to attend
the emergency
management
federal meeting,
however grant
funding is
currently not
available, nor is
local funding to
support the
initiative.
No current information
dissemination.
Internal only at
the present.
No current information
dissemination.
Have submitted
two grants for
support.
Hawaii DDC and P&A
Iowa:
Center for Disabilities and
Development
1.
CDD is part of Iowa's State Emergency
Management Team. This team has attended the
two national meetings.
Contact: Jane Gay
Jane-gay@uiowa.edu
2.
CDD participated in first state meeting with
community ER offices. The target audience of this
meeting included consumers and staff from
community
EM part of 5-Year Plan?:
No
3.
*Iowa's DDC and P&A agreed that CDD should
represent the Iowa DD Network at the national
meeting ADD encouraged states to attend.
4.
*DDC helps support Iowa COMPASS (Iowa's
statewide I&R system administered by CDD).
COMPASS provides EM information.
The lead agency for Iowa’s state
team is the Office of Emergency
Management and Homeland Security.
Other entities include

Department of Public Health

Civil Rights Commission

Department of Human Services

Governor's office.
Iowa DDC & P&A
Page 2 of 15
The referenced
state agencies
and community
EM offices.
IDPH is seeking
federal funding.
CDD newsletters.
UCEDD Responses to Emergency Management (EM) Survey
May 2007
Center
EM Contact person
EM part of 5-Year Plan
Kansas:
Kansas University Center
on Developmental
Disabilities
Emergency management initiatives of the UCEDD
*indicates initiative done in collaboration
with DDC or P&A
Collaborators
EM Initiative
Funding
Sources
Information
Dissemination
Glen White, the KUCDD Associate Director, is engaged
in a host of activities related to emergency
preparedness. The most visible are activities identified
on the 'Nobody Left Behind' web page at
http://www.nobodyleftbehind2.org/ , the mission of
which is to investigate 30 randomly selected counties,
cities, or boroughs in the United States that have
recently experienced a natural or man-made disaster in
order to:

Determine if disaster plans and emergency
response systems for homes, businesses, and the
community include the health, safety, and survival
needs for persons with mobility impairment

Identify the morbidity and mortality of persons with
mobility impairments in these disasters

Assess if there were any post-disaster changes to
address the needs of persons with mobility
impairments

Identify emerging or Best Practices models for
counties to assist in disaster plans and emergency
responses to meet the needs of persons with
mobility impairments in hopes of preventing
injuries, saving lives, and assuring Nobody is Left
Behind.
Centers for Disease Control
Centers for
Disease Control
Dissemination via a
website:
http://www.nobodyleftbe
hind2.org
Louisiana:
Human Development
Center
1.
*An unfunded statewide initiative, 'The Louisiana
Delegates' Emergency Management Consortium' in
collaboration with both the DDC and P&A.
No external
funding to date
Dissemination via a list
serve.
Contact:
Sharon Holleran
sholle@lsuhsc.edu or
2.
*A Human Development Center-Advocacy Center
(LA P&A) collaboration- funded with Human
Development Center discretionary funds.
The Louisiana Delegates' Emergency
Management Consortium
collaborators include:

Primary: UCEDD, DDC, P&A, LA
Department of Health and
Hospitals (State Medicaid), LA
Department of Social Services,
American Red Cross, LA
Governor's Office of Elderly
Affairs

Secondary: LA Assistive
Technology Access Network,
National Alliance of the Mentally
Ill of Louisiana
Contact: Glen White
glen@ku.edu
EM part of 5-Year Plan?:
No
Joan Guillory
jguillor@lsuhsc.edu
EM part of 5-Year Plan?:
No
Page 3 of 15
UCEDD Responses to Emergency Management (EM) Survey
May 2007
Center
EM Contact person
EM part of 5-Year Plan
Massachusetts:
Institute for Community
Inclusion
Contact: Paula Sotnik
Paula.sotnik@umb.edu
EM part of 5-Year Plan?
In review
Emergency management initiatives of the UCEDD
*indicates initiative done in collaboration
with DDC or P&A
Collaborators
Through the National Service Inclusion Project, with
funding from the Corporation from National and
Community Service, ICI:
1. developed and conducts training,
Emergency/Disaster Planning and Response
for and by People with Disabilities, for several
state and national conferences
2. facilitated action planning with LA and MS on
inclusive disaster planning and response
3. conducted webinars in this topic
4. serve on a national service training provider
committee
5. provides TA on the topic
6. website pages at www.serviceandinclusion.org
• CNCS (funding agency)
• CNCS Training providers
• state commissions and state offices
• those UCEDDs involved in NSIP
activities
Page 4 of 15
EM Initiative
Funding
Sources
CNCS
Information
Dissemination



website pages at
www.serviceandincl
usion.org
TA on request from
national and
community service
National Webinar
(at least one per
year)
UCEDD Responses to Emergency Management (EM) Survey
May 2007
Center
EM Contact person
EM part of 5-Year Plan
Massachusetts:
Eunice Kennedy Shriver
Center
Contact: Erin McGaffigan
erin.mcgaffigan@umassme
d.edu
Emergency management initiatives of the UCEDD
*indicates initiative done in collaboration
with DDC or P&A
*Shriver is currently working with state and national
partners in the area of emergency preparedness. Our
project has three focus areas. The three focus areas
are provided below with a sample of activities.
1.



EM part of 5-Year Plan?:
Yes

2.







3.



Focus Area: Learn best practices.
Literature and web searches
Analyze and report on best practices
Conduct informational interviews with stakeholders
Identify gaps in planning at the national, state,
community, and provider level
Write a white paper on gaps and potential future
design of activities
Focus Area: Increase individual emergency
preparedness of people with developmental
disabilities.
Assist DMR to review and strengthen Continuity of
Operations (COOP) plans
Collaborate with stakeholders
Investigate efforts that are already in existence at
the local level
Pilot National Association of State Directors of
Developmental Disabilities Services (NASDDDS)
tool to assess and strengthen readiness
Develop a vision
Design materials and methods to improve
individual preparedness
Pilot tools and improve them
Focus Area: Work across disability groups to
strengthen individual preparedness.
Attend meetings to this project is in line with
regional, state, and federal efforts
Assist in planning cross-disability summits
Participate in information sharing on promising
practices
Collaborators
Although our project is fairly new
(started end of calendar year 2006),
we have already developed
collaborative relationships with local
providers as well as regional and
state representatives from the
Department of Mental Retardation.
We have sent out a general request
for stakeholder involvement to
regional consumer boards and selfadvocates and will continue to seek
this involvement.
EM Initiative
Funding
Sources
University of
Massachusetts
Medical School
The DD Council representative
receives routine updates on our
progress.
A representative from the Disability
Law Center (P&A) sits on our
personal preparedness workgroup.
http://www.redcross.org/
services/disaster/bepre
pared/mobileprogs.html
http://www.cdihp.org/ev
acuation/introduction.ht
ml#who
http://www.dshs.state.tx
.us/CSHCN/Newspage.
shtm
http://www.citizencorps.
gov/ready/research.sht
m
http://www.ready.
gov/america/geta
kit/disabled.html
http://www.ncd.g
ov/newsroom/pu
blications/2005/s
aving_lives.htm
http://www.nod.or
g/
http://www.urban.
org/katrinabiblio/
disasterplanning.cfm
http://www.addem-conf.com/
Page 5 of 15
http://ici.umn.edu/relate
dresources/definition.ht
ml
http://www.ada.gov/eme
rgencyprep.htm
For our cross disability efforts, our
partners include the Massachusetts

Emergency Management Agency

Department of Public Health
Office on Disability

Office on Elder Affairs

Executive Office of Public Safety.
On the national level, we continue to
work with the NASDDDS on the
creation and piloting of the
emergency preparedness web-based
assessment tool.
Information
Dissemination
http://www.c-cd.org/task_forces/dev_d
isabilities/tfdevelopdisability.htm
http://emsmx4.sradev.com/dhs/
http://www.disabilityprep
aredness.gov/
http://www.hsph.harvard
.edu/hcphp/products/we
bcasts/
http://www.hsrnet.net/ah
rq/MassMedCare/about.
htm
UCEDD Responses to Emergency Management (EM) Survey
May 2007
Center
EM Contact person
EM part of 5-Year Plan
Maine:
Center for Community
Inclusion and Disability
Studies
Emergency management initiatives of the UCEDD
*indicates initiative done in collaboration
with DDC or P&A
Collaborators
EM Initiative
Funding
Sources
Information
Dissemination
*The DDC is our lead network partner in the area of
emergency management. Our participation has been to
provide input to their initiatives.
Maine DDC
None
No current information
dissemination.
1.
NASDDDS
For the joint
project with
NASDDDS, we
are under
contract with this
organization.
Presentations at
conferences and plans
to write articles for
various publications.
Contact: Lu Zeph
Lu.zeph@umit.maine.edu
EM part of 5-Year Plan?:
No
Minnesota:
Institute on Community
Integration
Contact:
Patricia Salmi
salm0054@umn.edu
or
Charlie Lakin
lakin001@umn.edu



EM part of 5-Year Plan?:
Yes


2.
Joint project with NASDDDS to develop an
emergency preparedness web-based instrument
that state DD directors can use to assess their
state's readiness and inclusion of people with
disabilities in planning for emergencies.
This instrument applies to six levels: Individual,
service providers, local/municipal authorities,
county/regional authorities, state agencies, and
national emergency entities.
It addresses three management levels: Preparing,
responding, and recovering.
The content areas include: communication and
coordination, stakeholder involvement, shelter,
transportation, collaboration with emergency
management agencies, workforce, power
generation, identification and tracking, specialized
supports, and evacuation.
This instrument will provide states with general
reports as to how their state is doing, or can
produce specialized reports on specific areas.
The instrument is scheduled to be piloted in late
spring, early summer and should be ready for
states' use by fall, 2007.
Minnesota state agencies
We are also involved in a state initiative that pulls
together a number of state agencies to examine
and plan for inclusion of people with disabilities in
state emergency planning efforts.
Page 6 of 15
There are no
funders for the
state initiatives.
UCEDD Responses to Emergency Management (EM) Survey
May 2007
Center
EM Contact person
EM part of 5-Year Plan
Missouri:
UMKC Institute for Human
Development
Emergency management initiatives of the UCEDD
*indicates initiative done in collaboration
with DDC or P&A
*Joint planning with the Planning Council and P&A.
Collaborators
Missouri DDC & P&A
EM Initiative
Funding
Sources
Information
Dissemination
None
No current information
dissemination.
UCEDD
RRTC
Information will be
posted on
www.ruralinstitute.umt.e
du
State Department of Transportation
Contact:
Laura Walker
walkerl@umkc.edu
EM part of 5-Year Plan?:
Yes
Montana:
The University of Montana
Rural Institute
1.
2.
GIS activities for multiple states including Montana.
Also involved in Campus activities to design
emergency management procedures.
None
Contact:
Alexandra Enders
enders@ruralinstitute.umt.e
du
EM part of 5-Year Plan?:
No
Page 7 of 15
UCEDD Responses to Emergency Management (EM) Survey
May 2007
Center
EM Contact person
EM part of 5-Year Plan
New Mexico:
Center for Development
and Disability
Contact: Anthony Cahill
acahill@salud.unm.edu
EM part of 5-Year Plan?:
Yes
Emergency management initiatives of the UCEDD
*indicates initiative done in collaboration
with DDC or P&A
1.
2.
3.
4.
5.
6.
7.
Research: 'Assessing the Impact of Hurricane
Katrina on Persons with Disabilities'; - joint project
with the University of Kansas funded by NIDDR;
'Needs and Priorities of New Mexico Emergency
Managers Regarding Disability'
Tip Sheets for First Responders: over 40,000 of
these have been distributed across the united States
Development of Training Program for First
Responders on Disability: this modularized, four
hour training course will be piloted in the summer of
2007. It will focus on practical information for first
responders, and will be modeled on the Tip Sheets
for First Responders.
The Prepared Community: A Guide for CommunityBased Preparedness and Response: this three-part
training program is designed to increase the
capacity of community-based organizations such as
community health councils to prepare inventories of
resources that can be used in a disaster and identify
and locate individuals with disabilities in their
communities.
Training and Technical Assistance to States: on-site
training and technical assistance is being provided
to states including Iowa, South Carolina, Wyoming
and Maine on establishing a state task force on
emergency preparedness and people with
disabilities
New Mexico Task Force on Targeted Populations
and Emergency Preparedness and Response: the
Center is co-lead on this task force which is
assessing state plans and making recommendations
for ensuring that the needs and priorities of people
with disabilities are met.
National Consortium on Disaster Planning and
Emergency Response for People with Disabilities:
the Center is co-lead, with the American Association
on Health and Disability and the University of
Kansas, of this national organization that has held
two national meetings.
Collaborators
American Association on Health and
Disability
University of Kansas
New Mexico Office of Health
Emergency Management;
New Mexico Office of Homeland
Security
Page 8 of 15
EM Initiative
Funding
Sources
Information
Dissemination
National Institute
on Disability and
Rehabilitation
Research
(NIDRR)
Katrina Study available
at
http://www.rtcil.org/prod
ucts/NIDRR_FinalKatrin
aReport.pdf
Disability and
Health Program,
Centers for
Disease Control
and Prevention
Tip sheets available at
http://cdd.unm.edu/prod
ucts/TipsForFirstRespo
nders.htm
New Mexico
Office of Health
Emergency
Management
New Mexico
Office of
Homeland
Security
UCEDD Responses to Emergency Management (EM) Survey
May 2007
Center
EM Contact person
EM part of 5-Year Plan
New York:
Rose F. Kennedy Center
Emergency management initiatives of the UCEDD
*indicates initiative done in collaboration
with DDC or P&A
1.
Contact: Arnold Birenbaum
birenbau@aecom.yu.edu
Contact: Charles Drum
drumc@ohsu.edu
We are attempting to get the cooperation of the
staff in the new emergency room at Jacobi Hospital
in the Bronx to learn about how to better
communicate with people with developmental
disabilities.
1.
*Collaborative discussion and update with the DDC
and P&A
Participation with at least one state task force
Developed proposal to train EMS workers (one
group of First Responders) on disability issues
Proposal to train CILs on developing personal
plans Testimony to a joint legislative committee
Student project on developing info sheets based on
diagnostic condition
2.
3.
4.
5.
EM part of 5-Year Plan?:
Yes
Jacobi Medical Center
EM Initiative
Funding
Sources
Information
Dissemination
None
Information
disseminated through
the NYS DDPC.
Self-funded;
applying to CDC
(through our
ODH) and
applying to the
state PHS
we're still early in our
process and not
generating much
information at this point;
if we get funding, we'll
publicize through the
PHS, CILs, our own
listserv, DDCouncil, etc
NYS DDPC and P&
The other 2 UCEDDS in NY State
2.
EM part of 5-Year Plan?:
No
Oregon:
Oregon Institute on
Disability & Development
*We are working with the NYS DDPC, the P&A and
the other 2 UCEDDS in NY State to determine
what emergency plans are in place to assist people
with developmental disabilities
Collaborators
Public Health
CDC
Centers for Independent Living
Oregon DDC and P&A (plan to take
the pending proposals to the DD
Partners at our next meeting).
Page 9 of 15
UCEDD Responses to Emergency Management (EM) Survey
May 2007
Center
EM Contact person
EM part of 5-Year Plan
Pennsylvania:
Institute on Disabilities
Contact: George Heake
gheake@temple.edu
EM part of 5-Year Plan?:
Yes
South Dakota:
Center for Disabilities
Emergency management initiatives of the UCEDD
*indicates initiative done in collaboration
with DDC or P&A
Collaborators
We are currently involved in the following initiatives
1. City of Philadelphia Emergency Preparedness
Review Implementation Task force, supporting all
activities relating to Special Populations
2. Readiness Region Campaign (Tri State PA, DE,
NJ) involving the counties surrounding the
Philadelphia area, supporting all activities related to
Special Populations, which includes TA for section
508 compliance.
3. *PA State Department of Health Emergency
Preparedness Work group for Special Populations.
4. SPAR-GIS: Special Population Analysis and
Research with GIS initiative.
5. PA-Argonne Pilot: 5 County pilot of Special
Population database development with GIS
Technology. The Special Population Planner (SPP)
tool developed by Argonne National Labs is one of
the primary tools being used in the pilot.
6. Emergency Preparedness SIG at AUCD
Philadelphia pilot.:

All major government agencies
of Philadelphia

Service provider agencies are
being identified based on interest

Center for Preparedness,
Research, Education and
Practice (CPREP)

PA Department of Public Health

Philadelphia Department of
Health

PA State Department of Health
*We have a staff person on a state planning group.
State agencies and DD Network on
the state planning group.
EM Initiative
Funding
Sources
Information
Dissemination
As of 3/29/07
funding
negotiations are
still being
conducted and
have not been
finalized.
http://www.temple.edu/i
nstituteondisabilities/
None
No current information
dissemination.
http://www.spargis.org
http://www.temple.edu/c
prep/index.htm
SPAR-GIS: Temple, Penn, Yale,
John Hopkins, Columbia, Harvard,
University of Montana, University of
New Mexico
Argonne National Lab: Emergency
Preparedness Group and others.
Contact: Shelly Grinde
Shelly.Grinde@usd.edu
EM part of 5-Year Plan?:
No
Page 10 of 15
UCEDD Responses to Emergency Management (EM) Survey
May 2007
Center
EM Contact person
EM part of 5-Year Plan
Tennessee:
Boling Center for
Developmental Disabilities
Emergency management initiatives of the UCEDD
*indicates initiative done in collaboration
with DDC or P&A
1.
Collaborators
*Tennessee Stakeholders Meeting on Emergency
Preparedness and Response for Individuals with
Functional Need. The Boling Center , in
collaboration with the Vanderbilt University
Kennedy Center, TN DD Council, TN Disability and
Law Center and multiple stakeholders, has
participated in meetings to inform state and local
emergency planning to better meet the needs of
people with disabilities and other special needs.
Stakehohlders' Meeting and follow
up:

TN Department of Health

TN Deptartment of Homeland
Security

TN Emergency Management
Agency

TN Commission on Aging and
Disability.
2.
Interdisciplinary Leadership Training Series. In
April 2006, we presented a 4 hour seminar entitled
'Emergency Preparedness: Mid-South
Perspectives,' with representatives from TN
Emergency Management Agency, MS Protection
and Advocacy (video connection), TN Disability
Law and Advocacy Center (video connection), and
Department of Earth Sciences, University of
Memphis. The session was broadcast to sites
across Tennessee.
Emergency Preparedness Seminar:

TN Emergency Management
Agency

MS P&A (video connection)

TN Disability Law and Advocacy
Center (video connection)

Department of Earth Sciences,
University of Memphis (Center
for Earthquake Research and
Information).
3.
*At the Annual DD Nursing Conference sponsored
by the Boling Center, a representative from the TN
Emergency Management Agency presented a talk
entitled 'What Nurses Should Know About
Emergency Preparedness.'
The Nursing Conference is presented
in collaboration with the UT College
of Nursing and the West TN DD
Nurses Association.
Contact: Ruth Roberts
rrobert8@utmem.edu
EM part of 5-Year Plan?:
No
Page 11 of 15
EM Initiative
Funding
Sources
ADD UCEDD
funding
LEND (MCHB)
UT College of
Nursing
Federal Court
Information
Dissemination
TN UCEDD websites,
Boling Center list
serves, UT College of
Nursing list serve,
Tennessee Disability
MegaConference
presentation June 1,
2007 (Vanderbilt
UCEDD, TN
Department of Health,
TN EMA).
UCEDD Responses to Emergency Management (EM) Survey
May 2007
Center
EM Contact person
EM part of 5-Year Plan
Tennessee:
Vanderbilt Kennedy Center
Contact: Terri Urbano
terri.urbano@vanderbilt.ed
u
EM part of 5-Year Plan?:
No
Emergency management initiatives of the UCEDD
*indicates initiative done in collaboration
with DDC or P&A
1.
2.
3.
4.
5.
*Leadership in a state level emergency planning
executive committee focusing on improving
services for individuals who are aging or have
disabilities and their families;
*Chair of a related subcommittee re: emergency
preparedness training needs (for emergency
responders and for individuals/families;
*A three part series on emergency preparedness in
our Vanderbilt LEND program;
*Planned presentations on a) the functional needs
section of the state plan and b) an individual/family
oriented session on individual preparation and
response...these will be presented at the
Tennessee MegaConference representing more
than 50 disability and advocacy agencies; and
Author: The Complete Bioterrorism Survival Guide
(Sentient Publications, 2006).
Emergency preparedness is a priority goal of the DD
network in Tennessee.
Collaborators
EM Initiative
Funding
Sources
Division of Health, Bureau of
Licensure and Regulation
Pooled
resources.
Division of Health, Emergency
Medical Services
NO additional
funding...though
we need some
Information
Dissemination
UCEDD newsletters
DD Network newsletters
Stakeholders' meeting
November,2006
DD Network members;
Homeland Security;
Tennessee Emergency Management
Agency
Commission on Aging and Disabilities
All activities except the book are
being conducted in collaboration with
the DDC, the P&A and the other
Tennessee UCEDD (the Boling
Center).
Page 12 of 15
Presentations at the
MegaConference
UCEDD Responses to Emergency Management (EM) Survey
May 2007
Center
EM Contact person
EM part of 5-Year Plan
Texas:
Center on Disability and
Development
Contact: Laura Stough
lstough@tamu.edu
Amy Sharp
sharpt@tamu.edu
EM part of 5-Year Plan?:
Emergency management initiatives of the UCEDD
*indicates initiative done in collaboration
with DDC or P&A
Collaborators
1. Project REDD (Research & Evaluation on
Disability and Development), whose mission
is to conduct high-quality research and
evaluation on the issue of disaster and its
affects on individuals with disabilities and their
families, and provide research-based training
and outreach on the topic of disability and
disaster for communities, organizations,
families, and individuals.
2. Publications:
o The Texas Guide to Supports & Services
for Individuals with Disabilities and their
Families Affected by Disasters (2006).
o The Disability and Emergency Acronym
Guide (2007).
3. Assisted the Disability Policy Consortium
(Texas) with the planning of a Disaster
Preparedness Summit for People with
Disabilities.
4. Collaborating with the Texas Interagency
Interfaith Disaster Response, which is the
disaster response agency for Central Texas
VOAD, in integrating activities and
collaborations with the disability community.
5. Laura Stough has been accepted at
Dartmouth as a Fellow in the Disaster
Research Education Mentoring program.
6. Texas A&M University houses several other
Centers with whom faculty from the Center on
Disability and Disaster are collaborating:
o Texas Extension Disaster Education
Network (EDEN)
o Hazard Reduction & Recovery Center
(HRRC)
o Integrative Center for Homeland Security
o National Emergency Response and Rescue
Project REDD:
o Texas Governor’s Office
Advocacy Inc.
o Disability Policy Consortium
Texas Interagency Interfaith
Disaster Response
o Central Texas Voluntary
Agencies Active in Disaster
o Gulf Coast Voluntary
Agencies Active in Disaster
o UT School of Social Work
o National Center on Post
Traumatic Stress Disaster
o UT Southwest Medical
School
o Texas Department of Health
and Human Services
o Independent Living Research
Utilization
o American Association on
Health and Disabilities as well
as other organizations
o UCEDDs at the University of
New Mexico, the University of
Kansas, and Utah State
University
Training (NERRTC)
Page 13 of 15
EM Initiative
Funding
Sources
AUCD
NDRN
Dartmouth
College
Information
Dissemination
UCEDD Responses to Emergency Management (EM) Survey
May 2007
Center
EM Contact person
EM part of 5-Year Plan
Emergency management initiatives of the UCEDD
*indicates initiative done in collaboration
with DDC or P&A
Utah:
Center for Persons with
Disabilities
1.
Contact: Judith Holt
judith.holt@usu.edu
3.
4.
EM part of 5-Year Plan?:
Yes
West Virginia:
Center for Excellence in
Disabilities
2.
5.
6.
7.
8.
1.
State Advisory Group for Special Needs
Populations
Guidebooks for agency preparedness and
community collaboration
Curricula for persona; preparedness
Computer modeling-egress for persons with
disabilities from large venues (CDC and NIDRR)
Training for First Responders
Online course on Emergency Preparedness
Presentations at regional and national conferences
Refereed publications
*National Service Inclusion Project-promoting
inclusion of individuals with disabilities in volunteer
activities related to emergency planning and
response.
Participation in development of 'Special Needs
Curriculum' for emergency planners, first
responders, public health, disability organizations,
consumer groups.
Participation on Special Needs Task Force with
WV Bureau for Public Health, Office of Threat
Preparedness-Interagency group conducting a
coordinated effort to develop a plan for including
disabilities and other special needs in emergency
planning and response.
Contact: Lori Risk
lrisk@hsc.wvu.edu
2.
EM part of 5-Year Plan?:
Yes
3.
Wisconsin:
Waisman Center
The Chair of our Consumer Advisory Committee (Carl
DuRocher) participated as a member of the Wisconsin
Team that attended the national meeting on Emergency
Preparedness in Washington DC, that ADD was very
involved with. The purpose of this meeting was to
support state teams to develop a state plan.
Contact: Dan Bier
bier@waisman.wisc.edu
EM part of 5-Year Plan?:
No
Collaborators
EM Initiative
Funding
Sources
Information
Dissemination
State DD agency
Texas A&M UCEDD
State SILC
UT Homeland Security
UT Parent Center
UT Family Voices
Independent Living Research
Utilization (Houston TX)
ADD
NIDRR
ILRU
CDC
state agencies
www.cpd.usu.edu
VMC/Homeland Security Programs at
West Virginia University
Bureau for Public Health, Office of
Threat Preparedness
The Arc of Wood County
Volunteer Organizations Active in
Disaster
WV Commission for National and
Community Service/ Community
Emergency Response Volunteers
(CERV)
WV Dept. of Military Affairs and
Public Safety
WV Office of Behavioral Health
Services
WV Commission for the Deaf and
Hard of Hearing
NSIP-AUCD
Will be developing
section of CED web
site.
The Wisconsin Department of Health
and Family Services has designated
a staff person to be the lead for
development of a State Plan.
Yes, both the state DDC and P&A had a representative
attend the conference referred to in the previous item.
Page 14 of 15
Curriculum
DevelopmentVMC/Homeland
Security
Programs
Other activitiesno specific
funding
ADD supported
travel to the
national
conference.
We are not doing a
great deal of promotion
on our own part...Rather
we leave that to the
state team leaders.
UCEDD Responses to Emergency Management (EM) Survey
May 2007
Center
EM Contact person
EM part of 5-Year Plan
Wyoming:
Wyoming INstitute for
Disabilities
Emergency management initiatives of the UCEDD
*indicates initiative done in collaboration
with DDC or P&A
Training Homeland Security Emergency Managers
Training EMTs statewide Co-sponsoring a conference
on emergency evacuation of people with disabilities
Collaborators
State Homeland Security Department
State Health Department
Contact: Dave Schaad
dschaad@uwyo.edu
EM part of 5-Year Plan?:
Yes
Page 15 of 15
EM Initiative
Funding
Sources
Information
Dissemination
State Homeland
Security
Department
State Health
Department MIG
Grant
http://wind.uwyo.edu/co
nnect/