NATIONAL PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS MacDonald Wells Consulting Table of Contents ANPHA PREVENTIVE HEALTH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS ............. 1 MacDonald Wells Consulting .................................................................................................................. 1 Executive summary ......................................................................................................................................... 4 Background .................................................................................................................................................... 4 Method ............................................................................................................................................................. 4 Key findings.................................................................................................................................................... 4 Strategy for preventive health research ........................................................................................ 4 Research...................................................................................................................................................... 5 Systems and infrastructure................................................................................................................. 5 Capability.................................................................................................................................................... 6 Culture ......................................................................................................................................................... 6 Role of ANPHA .......................................................................................................................................... 6 Issues for developing the National Preventive Health Research Strategy ...................... 7 Background ......................................................................................................................................................... 8 Terms of Reference ..................................................................................................................................... 8 Approach to the analysis of consultations and submissions ..................................................... 9 Findings of the consultations and analysis ......................................................................................... 10 General comments.................................................................................................................................... 10 Background and preamble of the Strategy..................................................................................... 10 The Strategy framework ........................................................................................................................ 10 Principles...................................................................................................................................................... 12 Research priorities ................................................................................................................................... 13 Translational research ....................................................................................................................... 13 Knowledge and policy cycle............................................................................................................. 15 Proposed priorities ............................................................................................................................. 16 Return on investment ............................................................................................................................. 19 Evidence synthesis ................................................................................................................................... 20 System and infrastructure development ............................................................................................. 20 A governance structure for the preventive health research system ................................... 20 Creating national infrastructure for data to underpin preventive health research ...... 20 Supportive approaches to research funding for preventive health ..................................... 22 Preventive health research funding .................................................................................................. 23 Evaluation .................................................................................................................................................... 24 Funding for collaboration...................................................................................................................... 24 Incentives and drivers ............................................................................................................................ 25 Researcher and user capability ........................................................................................................... 25 Culture to support the Strategy ............................................................................................................... 28 Relationship of each stakeholder category to the National Preventive Health Research Strategy .............................................................................................................................................................. 28 Evaluation of the Strategy ..................................................................................................................... 30 Role of ANPHA ................................................................................................................................................ 30 Issues for the Preventive Health Research Strategy ....................................................................... 31 Conclusion ........................................................................................................................................................ 33 Appendix A—A systems approach to change .................................................................................... 34 Appendix B—Submission authors.......................................................................................................... 35 Appendix C—Stakeholders and their potential involvement in the Preventive Health Research Strategy .......................................................................................................................................... 37 Abbreviations .................................................................................................................................................. 45 PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 3 Executive summary Background The Australian National Preventive Health Agency (ANPHA) commissioned Macdonald Wells Pty Ltd to review the outcomes from consultations ANPHA had conducted on developing the National Preventive Health Research Strategy (the Strategy). The purpose was to identify issues arising from the consultations and their implications for the Strategy. Method The following approach was taken: a. The written submissions and reports of interviews with key informants were analysed according to a systems model based according to the McKinsey 7S framework. The model is shown at Appendix A. b. Additional interviews were conducted with key informants, including from outside the health sector. c. Discussions were held with the ANPHA Expert Committee on Research and committee members were interviewed. d. A brief, targeted review of literature was undertaken to inform thinking on specific aspects of the submissions. e. Discussions were held with relevant ANPHA staff. Information was captured and analysed under the following category headings: Strategy; Systems and Infrastructure; Capability; and Culture. All of the elements required for comprehensive Strategy development are incorporated under these headings. Key findings Strategy for preventive health research While they provided suggestions on strategy detail, respondents strongly supported the need for a national preventive health research Strategy and the approach proposed by ANPHA in its 2011 Interim Strategy. The premises most widely supported were that: The research strategy should be a national strategy involving all stakeholders and not just a strategy for ANPHA. The purpose of the Strategy should clearly set out the overall contribution of research to improved health for Australians; the roles of the various stakeholders including governments, the community, funders of research, research institutions and researchers; and the particular sub-strategies in relation to research priorities, infrastructure and capacity building and linking research with population and policy needs. The role of ANPHA within the broader Strategy should be clearly identified. PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 4 The Strategy needs to be inclusive, involving sectors outside health, and promote understanding of the need for and the role of a health prevention system. The Strategy should focus on evidence to promote health building rather than disease cure. The Strategy should support strategic priority policy or problem-based approaches. Emphasis must be placed on communicating research findings to the general public and to stakeholders. Research In terms of the research priorities, there were several key points of agreement on key priorities and strategies. These included: Conducting high priority translation research to support policy and program development. Building on existing information. Many submissions urged analysis of what exists, as a first step in exploring what to do next. Filling evidence gaps. Developing ongoing working relationships between users (decision makers at all levels) and researchers to build understanding among all partners of the nature of user needs and how research can inform decision-making in specific contexts. Improving intervention design by better understanding the implementation factors and conditions for change across different community contexts. Enhancing the interest and capacity of researchers from a range of fields and policy/decision makers to work together so that research is better targeted to design and implementation needs. Major priority approaches were: Broaden the scope from the priority areas of alcohol, tobacco and obesity and to produce new information across a spectrum of topics such as mental health; all drugs; healthy ageing including productive mid-life; and large studies to support legislative and policy such as research into constituents of processed food and its contribution to obesity. Foster more comprehensive or different research approaches, such as whole-of-life approaches, research-based in community settings and involving community actors such as consumers and service providers. Developing the methods and approaches to support whole-of-system design, wholeof-government action and Strategy implementation research and evaluation. Systems and infrastructure Respondents identified a need to for improved approaches to information collection and analysis to support a comprehensive and effective preventive health research approach. Key aspects included the need for improved access to routinely-collected data; and capacity for data linkage and nationally consistent approaches to data collected for surveillance and PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 5 other specific purposes. Funding for longitudinal and cohort data collections and for biorepositories was also a priority. There were concerns that current funding arrangements by the major research funders, National Health and Medical Research Council (NHMRC) and the Australian Research Council (ARC), discouraged researchers from undertaking preventive health research. Peer review systems that are discipline–based and focus on research track record do not encourage either multidisciplinary team approaches or emphasise research translation, both of which are essential features of preventive health research. Incentives for academics under institutional performance assessment schemes (such as the national scheme for assessing universities’ research performance, Excellence in Research Australia [ERA]) do not recognize research impact as a component of excellence and tend to discourage collaboration between institutions because of the tight nexus between institutional performance and funding and reputation. Evaluation of policies and programs was seen as a high priority for research infrastructure development. Many respondents advocated national standards for rigorous evaluation and commitments from governments to have programs independently evaluated according to those standards. It was also argued that there should be more research into evaluation. Capability There was a commonly shared view about the need for and the means of achieving a suitably skilled research workforce to enable strategic objectives and research priorities to be met. Development programs that support careers in translational research and team performance as well as individual performance need to be developed. Dedicated funding for Australian researchers to collaborate with international researchers was seen as a high priority for building Australia’s research workforce in preventive health. Specific programs to increase capacity in such areas as data linkage and analysis were also identified as a preventive health research workforce priority. There is support for a specific preventive health research workforce development program including components such as traineeships; programs to encourage researchers and users to collaborate in the design and conduct of research; and translation of findings into policies and programs. Culture Implicit in many responses was the need to change research and policy cultures if preventive health research is to better inform policies and programs. The current cultures in both research and policy arenas are largely products of historical organisational and institutional silos that persist and are reinforced by funding and other practices. Role of ANPHA For most respondents, ANPHA was seen as a leader and catalyst in supporting the development of the preventive health research field. This ongoing role requires facilitating the community and decision makers in working together on determining research priorities and approaches. PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 6 ANPHA would also play an important role in advocating for preventive health research including for funding and infrastructure support. Partnering with funding agencies in supporting suitable funding and assessment processes to ensure quality and relevant research would be a key approach. Several respondents favoured ANPHA having an information brokerage role – a central source for information and advice for researchers and decision makers. ANPHA would provide a link between the two for sharing information and understanding the relative contributions of each sector and ensuring that the community and other sectors’ perspectives are taken into account. ANPHA is also perceived as a key facilitator in the development of community health literacy in preventive health to ensure that relevant research evidence is communicated effectively across the community to inform debate and aid decision making. Issues for developing the National Preventive Health Research Strategy There is strong support for a national strategy to draw together the currently fragmented research activities and approaches. The key issues include: The Strategy should be national and articulate the roles of all players and the shared goals and expected outcomes from the Strategy in short, medium and long term horizons ANPHA’s role in research as part of the National Partnership Agreement on Preventive Health (NPAPH) will need to be refined, agreed and marketed well. ANPHA, the NPAPH and other stakeholders should consider and agree their priorities for the Strategy among the spectrum of identified needs. The Strategy should provide a clear and strategic focus for all partners and pathways to long-term outcomes. Progress measures, including outputs, should be clearly identified. The Strategy should recognise that outcomes will need time to be achieved. A ten to fifteen year time frame should be considered. ANPHA needs to consider how it can work optimally to support prevention research and consider how to mobilise other parties and stakeholders (NPAPH, universities, NHMRC, ARC, and a broad range of sectors) to participate in a more purposeful way in this effort. Complementary roles of all members of the NPAPH will need to be explored and agreed. Governance structures will need to be developed to lead and ensure implementation and evaluation of agreed actions. PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 7 Background ANPHA started developing the National Preventive Health Research Strategy in June 2011. This stemmed from Expert Committee on Research (ECR) advice that a national strategy was needed to direct and facilitate the necessary infrastructure and capacity building to enable translational research to occur for the policy results required. Although it was aware of the guidance required by ANPHA for expenditure of the Research Fund the ECR thought that there was an additional need for a national strategy under which actions for a translational research system could be prioritised. Two rounds of consultation have been undertaken, with the second aiming to broaden the input. Public calls for submission were supplemented by consultations with Commonwealth, state and territory governments and with other key stakeholders. The development process to-date has been: Development of an interim Strategy (September 2011). Interviews with selected stakeholders (November 2011 – January 2012) and production of a report of these interviews. Call for submissions with release of the consultation draft and interview report (July – September 2012). Collation and categorisation of the 56 submissions (October 2012). Visits to five states and territories for focus group discussions (September – October 2012). Engagement of MacDonald Wells and presentation of analysis to- date to ECR (Nov 2012). Terms of Reference The contractor is required to provide a service to ANPHA to ensure stakeholder views are taken into account and create ideas that can be harnessed in the process of finalising the Strategy. The report will: a. Describe the consultation process, taking into account all submissions and other material generated from consultations. b. Categorise and describe the stakeholders who provided comment. c. Explain the expected relationship of each stakeholder category to the final Strategy d. Summarise and categorise stakeholders’ suggested actions and research priorities that could potentially be included in the final version of the Strategy. e. Reflect on stakeholder input and how this might have already been addressed in other preventive health research strategies in Australia. f. Summarise any comments from feedback about how the Strategy may contribute to collaboration and coordination for knowledge-creators and knowledge-users in translating preventive health research into policy and programs. PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 8 g. Report on any suggestions made during the consultation process about how the Strategy could be evaluated. h. Highlight both positive and negative comments and any emerging themes that arise through the submissions that may need addressing or elaborating. Approach to the analysis of consultations and submissions The use of a systems approach was endorsed by ANPHA’s Expert Committee on Research (Appendix A). The following information is structured according to the categories of Strategy; Systems and Infrastructure; Capability; and Culture. All of the elements required for comprehensive strategy development are included in that model. The following approach was undertaken in the development of this report. Analysis of submissions to ANPHA about the Preventive Health Research Strategy. The 56 respondents for the Strategy consultation included: Australian and state government health departments; a variety of researchers; health promotion agencies such as Vic Health; non-government organisations; disease-specific, and group–specific advocacy groups; industry (health-insurance, weight loss and fitness); the Public Health Association; Drinkwise; professional associations; and consumers. Only one Indigenous-specific organisation made a submission—the Victorian Aboriginal Community Controlled Health Organisation Inc (VACCHO). Details of the submission authors are at Appendix B There were no submissions from human services agencies such as the Department of Families, Housing, Community Services and Indigenous Affairs (FaHCSIA). This is of concern as ‘healthy public policy’ and associated initiatives (policies and interventions which produce health outcomes but are not directly connected to health strategies e.g. housing, income support, employment and environmental protection) should be incorporated as important contributors in building Australia’s health. Discussions with the Expert Committee on Research and interviews of members.. A review of interview notes of consultations between the ANPHA representatives and state governments, researchers and other key stakeholders Interviews with two key stakeholders from FaHCSIA—a department involved with healthy public policy—were undertaken to ascertain departmental interest and perspectives on preventive health research. A brief, targeted review of literature to inform thinking on specific aspects of the submissions. PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 9 Findings of the consultations and analysis General comments The submissions and consultations indicated strong support for the development of the Preventive Health Research Strategy and its stated objectives. It is seen as a mechanism advocating production of relevant evidence to solve challenging and intransigent societal problems that threaten health, and to take action on building more protective systems. Respondents see the potential of the Strategy to make a direct contribution to Australia’s National Research Priorities, particularly the priority of ‘Promoting and Maintaining Good Health’. There was a general understanding that promoting good health promotes quality of life, the ability to increase social and economic participation, and potentially reduce costs to the economy from illness and disease. While the views of respondents varied according to their specific roles and interests, this report attempts to convey their general ideas and proposals for the development of research capacity; skills; relationships between sectors; and methods for addressing new challenges. Background and preamble of the Strategy While there was general support for the content of the background and preamble, many believed it should be expanded in scope and detail. The Strategy should incorporate more about the context, leading to the rationale for more action on research in preventive health. It should make the case for prevention including commenting on the unsustainable growth in the costs of health care and outline key challenges in preventive health research. Among these are: recognition of inequalities in chronic disease; risky health behaviours within the Australian population; the ageing of the population; and the challenges of improving Indigenous health status. The Strategy should also articulate how research would support the objectives of the NPAPH and the National Research Priorities to achieve a ‘healthy Australia’. As part of this ANPHA’s role in preventive health research should be clearly articulated alongside roles of other major players. The background could be expanded to offer more direction to ANPHA and the agencies it works with. In particular, for the Strategy to be successful it must have a clearly defined purpose and scope, be implementable and build on what exists. In particular there was a call for ANPHA to refine, define and reference its role more clearly in relation to other research and research funding organisations. The Strategy framework Stakeholders believed that the focus of the Strategy should be more prominent and clear and be jargon-free. The framework was expressed in terms of ‘primary purposes’ and ‘secondary purposes’. PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 10 Primary purposes are to foster research and evaluation which would enable individuals to make healthy living the norm, enable communities, workplaces, schools and other institutions to make decisions and implement programs that enhance living etc. Secondary purposes are to build on the already strong research and evaluation capacity in preventive health in Australia.1 Respondents supported the Strategy’s intent. We welcome and support the commitment to research addressing preventive strategies at a range of levels: individual, community and workplace, social systems and regulatory intervention in market activities; and the emphasis on building health assets and health promotion settings rather than focusing on modifying health and behavioural deficits ’PHAA 2 We also endorse the secondary focus on capacity building, including the emphasis on collaborative linkages between research policy and implementation and on effective evaluation. (PHAA) A number of respondents thought that ANPHA’s role was more in tune with the secondary purpose so the order of these objectives should be reversed. Others recommended simpler language with the use of familiar terms such a purpose, aims and objectives. It was also suggested that a definition of health promotion be included as a framing issue and that this be drawn from the Ottawa Charter for Health Promotion. Health promotion is the process of enabling people to increase control over, and to improve, their health. To reach a state of complete physical, mental and social wellbeing, an individual or group must be able to identify and to realize aspirations, to satisfy needs, and to change or cope with the environment. Health is, therefore, seen as a resource for everyday life, not the objective of living. Health is a positive concept emphasizing social and personal resources, as well as physical capacities. Therefore, health promotion is not just the responsibility of the health sector, but goes beyond healthy life-styles to well-being.3 A majority of respondents advocated that preventive health should be informed by relevant evidence. The underpinning research system to build that evidence base should take a systems approach which might include: large-scale population studies to inform policy; surveillance of risks and disease; methods of preventing and curtailing the effects of unnecessary injury and disease; and settings-based research. These might also include research and evaluation of client-centered multiservice interventions at the local level. A systems approach would ensure that the various elements were mutually supporting and coordinated rather than fragmented, as is the case now in Australia. 1 ANPHA National Preventive Health Research Strategy: Consultation Draft , July 2012. Morgan and Ziglio 2007 ‘Revitalising the evidence base for public health: an assets model’, Promotion and Education, Vol. 14, pp. 17-22. 3 Available at: www.who.int/healthpromotion/conferences/previous/ottawa/en 2 PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 11 Systems thinking can be more readily incorporated into transdisciplinary approaches to research that also includes communities and local practitioners who support the principles of quality, impact, inclusiveness and collaboration. In encompassing a wide range of fields and disciplines, preventive health research provides information to support decision making such as the need for regulation, policy services and systems. In doing so it requires a broad and multidisciplinary approach in such areas as health and safety, regulatory, economic, socio economic and behavioural perspectives.4 Goldsmith5 denotes ‘four faces of the prevention spectrum as an organisational framework for economic analysis’. These include Clinical prevention – includes one-on-one activities involving a heath care provider and a recipient of care (patient or client), who may accept or decline the service or recommended health action. Health promotion – includes interventions delivered at a group or population level that encourage individual behaviours believed to produce positive health effects and discourage behaviours that produce negative health effects. Health protection – includes interventions delivered at an organisational (e.g. hospital policy), local, provincial, national or international level that reduce health risks by changing the physical or social environment in which people live, such that the role of individual beneficiaries of health protection intervention is either passive or limited to compliance with laws or regulations. Healthy public policy – includes social or economic interventions that act on the determinants of health, and thereby affect health but do not have health as the main policy objective. The submissions and consultations called for research action on all of the above domains of prevention. A number discussed the need for research about systemic approaches, which may include taking into account how all the domains of prevention interact together in the local context. It was noted that interventions work differently in different contexts, and understanding of ‘soft systems’, such as community development programs, is important to understanding what promotes healthy behaviour. Principles There was strong support for commitment to the principles of quality, impact, inclusiveness and collaboration for research. The inclusion of ‘ethical practice’ in research was also recommended by a number of the respondents. The principle of research quality was endorsed and further explored. Respondents recommended that quality of research process and design should be judged not only in terms of suitability of process and methods but on their impact or their capacity to be used. 4 www.who.int/healthpromotion/conferences/previous/ottawa/en/ Goldsmith L J, Hutchinson B, Hurley, J 2004, ‘Economic Evaluation across the Four Faces of Prevention: A Canadian Perspective’, Centre for Health Economics and Policy Analysis, Working Paper 06-01. 5 PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 12 There was strong support for including non-health sector research and decision makers’ perspectives in ‘healthy public policy’. Indeed there was a strong view by some influential stakeholders that the term ‘preventive health research’ did not make sense and actively discouraged involvement by key stakeholders across fields of relevant effort outside the health sector under the broad category of healthy public policy. This view is reinforced by the fact that no stakeholder outside health participated through the submissions process. The concept of inclusion should also extend to people who are generating and using research at community levels – the health promotion practitioners, and community researchers. Many welcomed the principle of ‘collaboration’. There was a common view that collaboration between researchers across disciplines and institutions is essential if the complex factors affecting health and wellbeing are to be better understood and effective population level interventions developed. Research will need to address the social, economic, environmental and locational factors that combine to produce inequalities in health areas such as obesity, chronic disease and tobacco and problematic alcohol consumption. Mechanisms need to be found to encourage collaborative approaches to translational research becoming the norm rather than the exception. While some respondents seemed to believe that the suggested research priorities should be a funding responsibility of ANPHA, many reflected the view that preventive health research is a shared responsibility across governments and sectors, all of whom are engaging in preventive research through a number of strategies. Most commonly ANPHA’s role is seen as ‘catalytic’: stimulating research and evaluation; identifying research gaps; building capacity; and supporting the greater use of research evidence in policy and system development relating to preventive health. ANPHA’s role is further explored under the heading ‘Role of ANPHA’. Research priorities The following section outlines the key issues raised by the submissions and consultations regarding the research emphasis and priorities. Translational research The Consultation Draft Strategy identifies a goal to ‘facilitate research that will embed evidence and evidence-creating approaches into prevention efforts Australia-wide’. The orientation to translational research in the Strategy was strongly supported as one means to encourage research use, in this case, the take up of evidence by decision makers. The interpretation of ‘translational research’ varies so it was important either to change the terminology to reflect the needs of preventive health or to define it for the purpose of the Strategy. Another term frequently used is ‘implementation research’, which is more suited to a policy and system context. There is also a need for knowledge translation from research undertaken upstream of implementation research. In any case there was strong support for the view that preventive health research should be designed and structured with potential use in mind. addressing the implementation of research is a current challenge. Disease prevention PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 13 and health promotion represent major translational opportunities for health and medical research. (Council of Academic Public Health Institutions) The following quotes capture the tenor of the discussions which included developing the mechanisms and relationships to ensure research is relevant to user’s needs CCV supports investing in evidence for effective strategies to encourage healthier lifestyle as a primary goal, but stresses that this investment should recognise the importance of also investing in expert advice about how to convert evidence into policy. This is because the usability and application of research is equally important as the existence of good research. (Cancer Council Victoria) Foster a concerted national effort to improve academic institutions’ and researchers’ understanding of implementation science. (Cancer Council Victoria) There are two main processes related to translational research: 1) the process which begins with research generation for population health (studies of efficacy and effectiveness within a system) through replication, dissemination and institutionalisation; and 2) research brokerage or communication between researchers and policy makers. Together these processes work to establish research priorities. (Bauman, Sydney School of Public Health) Edwards6notes that interactive approaches between researchers and policy makers covering both the production and take up of knowledge—that is, when research becomes part of the decision making processes—seems more effective than the linear production of evidence followed by policy formulation. Many noted the complexity of the challenge including for different social and environmental contexts and that there needed to be investment in structures and processes to reduce the cultural divides between researchers and users. Many respondents advocated the use of round tables, secondments, joint-research work and knowledge brokers. Successful examples were also provided such as the Cancer Council Victoria’s secondments of government staff to work with them and long-term relationships developing between drug and alcohol research centres and government. Opportunities for shared experience between researchers and policy/decision makers are seen as a way to foster communication between the sectors and across the range of disciplines. Interaction between policy areas, program managers and service providers—which are all participations of the service delivery supply chain—frequently requires whole-ofgovernment involvement and this poses even more challenges for interaction between the sectors. However benefits can accrue such as: streamlining effort, having broader perspectives to guide the research and its implementation; and for building understanding between sectors. The Greater Green Triangle University Department of Rural Health noted that: … the emphasis on collaboration between researchers and decision-makers is fundamental, and may perhaps be expanded to highlight the need for collaboration 6 Edwards, M 2010, ‘In search of Useful Research: Demand and Supply Challenges for Policy Makers’, Public Administration Today, October – December. PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 14 within and between sectors – clearly, determinants of health also lie outside the health sector, so achieving population-level behavioural change and health gains necessitates intersectoral collaboration and a whole of Government approach. Encouraging partnerships between and within sectors and disciplines should also be considered, as a means of reducing duplication of effort, optimising use of human and economic resources, and facilitating standardised and consistent methodologies. Moreover, there is a need for efforts to be integrated across jurisdictions. (Greater Green Triangle University Department of Rural Health). Much of the discussion has centred on decision maker involvement with the policy and design of national strategies. However many respondents advocated for inclusion of community-based research to understand the dynamics that influence the readiness and receptiveness of communities to benefit from whole-of-population strategies. In the rolling out of national programs that cannot be adapted to local circumstances not only disenfranchises local health promotion practitioners, but does also discourages them from becoming engaged with research. Goodson (2010) particularly calls for the closing of the gap between researchers and practitioners by encouraging research that is based in practice, and practice that is based in research. There is an implication throughout the consultation data and the framework that ‘research translation’ is a one-way process. This ‘top-down’ approach to research translation needs to be challenged and health promotion practitioners need to be included in all research processes, including being able to adapt interventions at a local level to best suit local circumstances. (Central Queensland University) Knowledge and policy cycle The initial consultation report’s knowledge and policy cycle—which was adapted from Lomas7—received a mixed response. Some respondents identified their place in it but others noted that it was too simple and did not convey the rich relationship-building and role changes required by effective translational research. Others noted that there was no recognition of the role of the consumer as a contributor to or as a user of research. Other approaches, including the work of Edwards referred to above, shed more light on the complexity of the interrelationships between evidence and policy. Bowen8 and others show the interplay between a seminal discovery, the nature of its dissemination in both scholarly and public media, its applicability to a current policy issue, the roles of researchers, policy advisors and others in building a consensus around action and the willingness of politicians to invest political capital into policies and programs. This work highlights that evidence is a relative term and different participants in the research/policy cycle have varying criteria for what constitutes evidence. 7 Figure 2 in ‘Development of the National Preventive Health Research Strategy: Report of the initial consultation with key stakeholders’ November – January 2012. 8 Bowen S, Anthony B Z, Sainsbury P, Whitehead M 2009, ‘Killer facts, politics and other influences: what evidence triggered childhood intervention studies in Australia?’ , Evidence & Policy, Vol. 5 No.1, pp. 5-32. PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 15 Similarly, a review for the UK Government Social Research Unit9 concluded that; The interviews demonstrated a clear need for policy officials to better understand the relative merits of different types of evidence, and for analysts to better understand the needs of, and demands on, policy makers to better provide customer-sensitive services,” p 7. 10 The work of Kania and Kramer11 highlights the complexity of process and players necessary to achieve change in practice. They argue that complex problems require a whole–of-system approach (as distinct from focusing on parts of a system) that will have a ‘collective’ impact on the system, described as follows: ‘Collective Impact Initiatives are long term commitments by a group of important actors from different sectors to a common agenda for solving a specific problem. Their actions are supported by a shared measurement system, mutually reinforcing activities, and ongoing communication, and are staffed by an independent backbone organization.’ (Kania and Kramer 2011, 39). Several respondents argued that there was a need for such research and that it had an impact on design, methods and use. It would necessarily use research translation processes by involving all the participants in implementation and evidence production. In commenting on the interaction between the principles and the knowledge framework, Central Queensland University notes the absence of the mention of community members in the knowledge cycle and makes the case for the inclusion of health promotion practitioners and community members as a norm12. Local action is a fundamental approach to health promotion and research needs to involve practitioners and community members in both the production and use of research. It also recommends a greater emphasis on inclusion of health promotion practitioners in the framework and that the arrows represent a two-way process between all the stakeholders. Proposed priorities Three broad categories of research were proposed. The first (A) was oriented to expanding the knowledge base in particular topic areas, the second (B) focused on more systems-based approaches to research and (C) proposed a focus on supporting decision making on large policy questions, Strategy design and implementation. The assumption underpinning this categorization is that much is known about effective interventions already and large systemic questions have not been effectively addressed. (A) Broaden the scope from the priority areas of alcohol, tobacco and obesity and to produce new information across a spectrum of topics such as mental health; all drugs; healthy ageing including productive mid-life; and large studies to support legislative and policy such as research into constituents of processed food and its contribution to obesity. 9 Government Social Research Unit, Analysis for policy: evidence-based policy in practice, HM Treasury, UK, 2007. 10 Op. Cit. 11 Kania J and Kramer K 2011, ‘Collective Impact’, Stanford Innovation Review, Winter 2011, p. 39. 12 Figure 2 in the Development of ‘National Preventive Health Research Strategy: Report of the initial consultation with key stakeholders’ November – January 2012. PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 16 Other research areas proposed: included neonatal, childhood and adolescent health; ageing including dementia; nutrition, diet and exercise; medications and drugs; workplace health and injury; and risk factors relating to major chronic diseases (B) Capacity to foster more comprehensive or different research approaches, such as whole-of-life approaches, research-based in community settings and involving community actors such as consumers and service providers. In addition to suggestions for priority research areas, many submissions commented on what might be best described as ‘approaches to research’: that is they advocated for research approaches that are not disease-based nor aimed at cures for illnesses. They argued that research should be undertaken into the underlying issues that need to be addressed to improve the health of the population. The starting point for these approaches is that there is already a good deal known about the social and economic factors that are predictive of likely health outcomes for groups within society: the socially and economically disadvantaged will generally have poorer health than the better-off. The challenge for research and policy is not to define this problem further but to investigate ways of mitigating the effects of social disparity … to ‘flatten the gradient’ in health outcomes across social sectors for reasons of equity and societal and economic gain. Underpinning this broad approach around social determinants are proposals to study particular social groups or regions where poor health outcomes are clustered. The argument is that some groups have been well identified as clearly disadvantaged and some of the key factors are well known and can be acted upon within current policy parameters. The following are the key areas identified through the submissions and ANPHA consultations: Social determinants of health and how they interact to support or deter health promoting behavior. Whole-of-life approaches to research to understand how to promote health and continued economic participation as people age. Population groups: Indigenous; culturally and linguistically diverse (CALD); disadvantaged; rural and remote; ‘hard to get’ and vulnerable. ‘Whole-of-society’ and ‘whole-of-government’ approaches going beyond the health sector for both research and implementation. Focus on risk factors and their mitigation with different groups and settings. Settings-based research especially to evaluate whole-of-community and nondisease-specific interventions. Many of these approaches highlight the need to involve those acting in the ‘healthy public policy domain’ i.e. those addressing issues which are not seen as health problems but have a strong population health effect. Housing, community support, income protection and employment are some of these areas. PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 17 (C) Developing the methods and approaches to support whole-of-system design, whole-ofgovernment action and Strategy implementation research and evaluation. A number of respondents felt that the Strategy should address bigger questions, such as how government and society can create societal and environmental conditions that lead to healthy environments, foster healthy choices and reduce the chance of making choices injurious to health. This approach requires understanding and acting on the underpinning causal factors which many respondents have described generally as the ‘social determinants of health’. Evidence must be comprehensive as much as possible and suggest a portfolio of 13 strategies, across all the areas, rather than just single intervention. If recommendations for policy are sought, or provided, then they must be feasible from an economic and implementation point of view and provide options for short-, medium- and long-term strategies. The Population Health Division of the Victorian Department of Health takes a systemic or systems approach to preventive health … embed systems thinking into the way population health measures are developed, implemented and evaluated. (Victorian Department of Health) A combination of research strategies and research disciplines is required to understand the complex intersection of factors affecting health and risk behaviours to design effective interventions and to evaluate preventive interventions in the real world setting. (PHAA) Much of this type of research requires fundamental change to research approaches and to policy involvement from different funders. This is a challenge for policy makers and funders for governance, funding and program design approaches. It can also be challenging for system and program design, particularly the impact on collaboration across sectors and levels of the system. Such research would shift the focus from individual health behaviour change to addressing socio economic causal factors more systematically and creating the conditions to support individuals and the community to take up health-building behaviours. It would address the complex and multiple intersecting factors impacting on behaviours within disadvantaged communities or groups. Disease prevention and health promotion are best understood as a 100-year view of policy and practice: controlling disease, building resilience, addressing drivers of Disease prevention and health promotion research tackles priority problems using both established and cutting-edge methodologies. Action is required at local, national, regional and global levels. Barriers to systemic approaches occur at all levels. Some respondents called particular attention to both the importance and fragility of local action in prevention. 13 Ritter, A 2011, ‘The role of research evidence in drug policy development in Australia’ PolitickaMisao Vol. 48 No. 5 pp. 141 -142. PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 18 Dr Taylor from James Cook University in her submission notes that this situation undermines the ability to measure the value of community primary prevention because: inadequacies in measuring intervention outcomes. funding insecurity for community based programs that rely on short-term funding. difficulty with collecting longitudinal data.14 She proposes that the research agenda of ANPHA should embrace research about community involvement in primary prevention. Examples of such research include: Developing methodologies to evaluate whole-of-community and non-diseasespecific interventions. Researching how to achieve effective partnerships between communities and the health sector. Researching the contextual community factors that affect partnership processes and the primary prevention interventions. Respondents noted that current research has only been marginally useful to inform decision making when major effort is being designed. New approaches to research are required to cope with the demands of the questions such as how to build systems that support and sustain pro-health lifestyles throughout all settings, and how to reduce the illness producing choices. Such research requires research processes to support complex policy processes i.e. interdisciplinary, problem-based, strategic and multifactorial. Health research is only one part of the overall effort and some claim, a minor part. These respondents noted that research process and methods had to take into account the policy process in that it incorporates evidence from many fields involving whole-ofgovernment effort. This will require cross-sectoral input and collaborative thinking about the nature of the problem and the information required, and in conjunction with users engage in collaborative planning, working and reflective practice. Human service agencies in particular are key stakeholders. All parties will need ongoing active professional relationships and more collaborative and ongoing effort across the research and evaluation spectrum. Return on investment Economic studies are seen to be fundamental to making the case for the value of having a more comprehensive system of achieving a healthy society (the objective of preventive health) in parallel with the competing demands of maintaining a health care system to treat illness. Stakeholders are supportive of an emphasis on economic studies and the further development of economic methods in the national Strategy. 14 Taylor J, Braunack-Mayer A, Cargo M, Larkins S, Preston R 2012, ‘A Role for Communities in Primary Prevention of Chronic Illness?; Case Studies in Regional Australia’ Qualitative Health Research, Accepted July 12. PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 19 Evidence synthesis Many respondents urged that before undertaking new research, a priority should be assessing the evidence we already have. This will require a mix of approaches including research around implementation and consensus conferences. … the highest priority in the research area DrinkWise Australia is concerned with is not research to discover what we must do; there is widespread agreement about what needs to be done. The highest priority is for applied policy-driven research that helps us understand what interventions work best, for which population sub-groups and under what conditions … If the proposed Strategy simply fosters more of the same, that is investment in a project-based approach to preventive health research funded through the current mix of government and non- government sources, Australia will continue to face the same problems with uncoordinated underinvestment, and a less than optimal impact of findings on policy and practice in five years’ time. (Drinkwise). Many respondents pointed to a burgeoning investment in evidence synthesis to identify good practice from research and to identify where there are gaps in knowledge. Users and respondents have recommended the extension of this capacity as a priority. System and infrastructure development Governance of the Strategy and its implementation Governance in the context of this Strategy involves the processes of gaining authorization for the Strategy and agreement on implementation arrangements. The purpose would be to ensure the establishment of a framework for planning, action and reporting. Features of the governance arrangements would involve the following. An inclusive arrangement embracing government, research funding agencies (NHMRC and ARC), the research community, stakeholder groups (from health and welfare sectors), industry and consumer groups. Responsibility for determining the various contributions to the implementation of the Strategy and agreeing with key players their contributions, timeframes. A monitoring and reporting role on the progress towards implementing the Strategy. Revising the Strategy according to an agreed timeframe (e.g. every three years). ANPHA is seen to be the appropriate body to support the national governance arrangements providing the ‘spine’ of the Strategy. Creating national infrastructure for data to underpin preventive health research Many respondents commented on the need for and use of a wide range of data as an essential precondition for effective preventive health policies and programs. These resources are vital to support effective research for decision making. A key issue is for PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 20 researchers and the public to have knowledge of and affordable access to routinely collected data and the ability to link data across these sets (within privacy and ethical requirements). Extensive data are collected nationally, at state levels and within government agencies. Many data sets are routinely collected for administrative purposes (e.g. Medicare, hospital services, income and employment, deaths and a whole raft of social data such as government benefits under federal and state welfare programs). As these data are collected for administrative purposes (e.g. payment of patient rebates under Medicare) they are comprehensive and quite accurate. However of themselves they are often not sufficiently rich to provide information for research into complex issues. Linking and mining these data sets should be a high priority for preventive health research: ANPHA should explore, as a matter of priority how the new population health data linkage capacity in Australia, seed funded by NCRIS [National Collaborative Research Infrastructure Scheme] can be leveraged to monitor and report on the effects of exposure to alcohol and patterns of drinking on health and social outcomes, provide a platform for more cost-effective evaluation of strategies and interventions, and support both a stronger policy-driven applied and investigator-driven research effort in the next 10 years. (Drinkwise) Data are also collected by governments through a variety of surveys for health surveillance and monitoring purposes. Many respondents pointed out the fragmentation in approaches with different jurisdictions collecting their own data with little consistency in what data are collected, frequency of collection and methods of collection. Consequently it is difficult to build up a national picture or understand variations across jurisdictions. Often collections are one-off to meet a particular need and do not give a picture of change over time. The Burden of Disease Study 1993, which has been used as a basis for a broad spectrum of research is only now being updated. Respondents commonly called for more nationally consistent data collections, and longitudinal data sets. Some respondents also highlighted gaps in current collections. In terms of ANPHA priorities, a key identified gap in data is the lack of alcohol sales, which is necessary to identify patterns of drinking and in turn linked to other data sets to understand more clearly the extent of unsafe drinking and particular consequences (e.g. violence and health effects). Another important gap data collection was around infant and early childhood sudden and unexplained deaths, especially as Australia’s rates are concerning. A common theme in responses related to difficulties in linking data about individuals across data sets. While there are some technical issues associated in correctly identifying individuals across different data sets, the key issues have been around privacy and security of the linked data, the general principle being that data collected for one purpose (e.g. drivers’ licenses) should not be used for a different purpose (e.g. tracking health status) without the individual’s informed consent. There have been recent advances in improving capacity to link data at the national level through the approval by the Commonwealth for the Australian Institute of Health and Welfare (AIHW) to be a Data Integrating Authority, enabling it to link identified data and then provide the linked data in de-identified form to researchers. However many see this as a limited first step only. PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 21 One respondent showed clearly the potential for greater activity in this area: As part of the ANPHA research agenda there would be value in investigating the potential for monitoring activities to be integrated into long term data collection systems that allow comparable data to be collected that is comparable across jurisdictions and provides trends overtime. Much of the monitoring that has been done in related to obesity (and nutrition and physical activity) in recent times has occurred through one-off sporadic surveys that are limited in their comparison with other data collection methods. The ongoing debates about the best source of data to measure the NPA-PH benchmarks illustrates this point well. Given that shifts in physical activity and nutrition are likely to be long-term in nature it will be important to establish systems that allow for routine data collection that is consistent across the country and comparable over time. There may be opportunities by building systematic surveillance systems at currently existing points of contact with the health system.’ (DHHS, Tasmania) Another respondent summarised the data access issues as follows: To some extent data availability (including data linkage) is more of a problem for researchers than funding. So many more questions could be answered in a timely and cost-effective manner just by accessing and using national data that already exists. For example, one major barrier to data access is that individual states and territories won’t allow AIHW or ABS to release basic details on their data when pooled at the national level (e.g. geographic area [SLA], Indigenous status, gender groups). (Consultation) More generally respondents noted that infrastructure requirements to support effective preventive health research are broad and under-resourced. This was summed up in the following comment: Provide dedicated funding for research platforms and infrastructure that recognise a broader definition of ‘infrastructure’ to support large scale ambitious Public Health research initiatives required to take Public Health research to the next level (eg investing in large long term cohort studies, bio-repositories). (The Council of Academic Public Health Institutions Australia) Supportive approaches to research funding for preventive health Many respondents identified issues with current approaches to research funding that inhibit health prevention research and identified roles for research funders in improving capacity for preventive health research. Funding programs must recognise that relevance and impact are key requirements of quality research in the preventive area. A track record in policy engagement alongside more traditional academic markers should be a key factor in assessing grant applications. One respondent commented: We do not need more research to understand the social determinants of health. We already know a lot about those. What we need is research that will take the evidence PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 22 we have and identify best how to develop policies and programs that will effectively tackle the problems. (interview: senior administrator). This view is supported by an internal analysis by Australian Preventive Health Agency of NHMRC funding for research into the social determinants of health using a model by Milat et al (2001)15 that the funding is going mostly to research projects which help define the problems, not devise solutions, associated with socio-economic determinants. Research assessment criteria and their influence A common argument is that the current assessment criteria for peer review by major research funding agencies (NHMRC and ARC) do not adequately reflect the range of skills required for preventive health research. The emphasis on academic track record as measured by previous grant success and peer-reviewed publications in scholarly journals does not rate researchers’ capacity to articulate research findings that are a contribution to policy and program performance. Research teams that include members with policy and program skills rather than traditional academic skills are less competitive. Consequently there is little incentive for researchers to focus on ‘implementation’ research. The current system … does not encourage innovation within research. Indeed, it is likely to do the opposite as such a system encourages the reinforcement of paradigms and processes already established. If the ANPHA is serious about promoting quality, impact, inclusiveness and collaboration within its research program, the processes associated with the grant application rounds need to embrace a peer review system that judges the applications on merit…’. (Central Queensland University) Given that research is a global system it may be unwise for Australia to advance too far in this area unilaterally. However, Australian research funding bodies might well participate with their global peers in developing rigorous but appropriate assessment approaches to accommodate the need. As part of this process, discussion with editors of relevant highranking journals could be undertaken to review their assessment processes for research articles. Submissions also assert that research-funding agencies need to develop assessment and funding models that support collaborative programs rather than individual, competitive researchers and institutions. It is also suggested that specific funds should be identified for this type of research. The current NHMRC Partnership Centres program referred to above is a positive step in this direction. Preventive health research funding Some respondents suggested increased availability of research funds for preventive health research. Governments, through competitive commissioning approaches, fund the bulk of preventive health research and the extent of such funding varies with need and agency budgets. There is no defined budget for this category of research. The NHMRC has several funding streams that are appropriate sources for preventive health research including 15 Milat AJ, Bauman AE, Redman S and Curac N 2011 ‘Public health research outputs from efficacy to dissemination: a bibliometric analysis BMC Public Health Vol. 11 pp. 934-942. PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 23 Partnership Grants, Practice Fellowships and the recently-initiated Partnership Centres funding program. Under the Partnership Centres program, NHMRC matches stakeholder investment in a research program and stakeholders have a strong role in determining the research priorities and approaches, as well as ongoing monitoring of performance. One partnership centre in the preventive health area that has been announced is Systems Perspectives on Preventing- Lifestyle related Chronic Health Problems. Evaluation A key issue with current peer-review approaches is that they do not favour evaluation as a research approach because evaluation is not a discipline in itself with its own set of universally-applied principles. In fact most discovery in ‘policy friendly’ research derives from studying the impacts and outcomes of the policies and programs that have been applied to particular problems and needs. Many respondents have welcomed the specific inclusion of evaluation in the Strategy. Evaluation allows a focus on systematic approaches that are specifically designed to respond to particular problem or issues. It draws on a range of methodologies; considers the impact of context specific matters; and allows the use of multisectoral and multidisciplinary research inputs as well as skills in policy and program analysis. Many have noted the need for training for researchers in evaluation methods and also for the further development of standards in evaluation to ensure quality of effort. Funding approaches need to be built to support the type of research and evaluation required for preventive health research. These include long-term, collaborative and iterative research that is responsive to needs, including evaluation of complex community interventions. There is also a need for reasonably certain funding for longitudinal databases that extend over decades rather than years. One respondent submitted that: The National Preventive Health Research Strategy should bring forward new models of sustained funding rather than the traditional short term grant funding cycle to enable more sustained development and implementation of solutions particularly in regard to having an impact on the social determinants of health.(Prevention Partnership Australia) Funding for collaboration Other respondents highlighted the need for research to involve a wide range of stakeholders, including policy and system managers, service providers and consumers. The comment from the Greater Green Triangle University Department of Rural Health in Translational Research under the heading ‘ researcher and user capability’ noted the complexities of interventions and the need for multiple sources of evidence. Funding for such approaches is not readily available. Support for Australian research to leverage capacity and develop innovative research methodologies through international collaborations is also lacking This support could include investing in improved communications technologies and programs to encourage exchanges PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 24 of researchers across countries. Some initiatives around comparative studies between Australia and Canada provide models on which broader programs could be developed.16 The following comment illustrates other possible approaches: [There is a need to] Provide dedicated research funds for leveraging international funding partnerships on strategic global health priorities. Previous NHMRC bids to partner with larger international funding bodies failed, but success may yet be possible if we partner strategically based on shared health concerns that require a global solution, and where Australia offers world- leading research expertise and research infrastructure (e.g., large-scale population-based interventions, systems approaches). (The Council of Academic Public Health Institutions Australia). Incentives and drivers To attract researchers into policy relevant research requires reasonable academic prospects in this area, which partly goes to developing appropriate academic recognition of research track record in relevant fields and development of career pathways that will allow a more interactive relationship with policy stakeholders, e.g. through movement between research environments and policy environments at various career points. Researcher and user capability Preventive health research capability refers to the development of skills of both researchers and decision makers from multiple domains to work effectively together to produce research that is useful and used to inform policy and practice. The development of relationships between researchers and users is seen to be important in generating mutual responsiveness. A common theme raised though the submissions and consultations was the need to build greater research capability in the area of preventive health. Proposals related both to building capacity of researchers to undertake appropriate research in collaboration with policy/decision maker stakeholders and from policy stakeholders to understand better how research evidence can inform their processes. From the perspective of researchers’ capacities the following key issues were identified: 16 Researchers need to acquire skills in relating research evidence to policy concerns. Current incentives encourage researchers to focus more on methodology than on relevance and possible impact of findings. ‘Slicing and dicing’ of research into increasingly narrow questions with findings written up in smaller ‘pieces’ to maximize publications takes researchers away from examining the big and complex questions. The academic imperatives draw researchers’ attentions away from research that might have a policy impact but does not readily attract the interests of high impact journals. Researchers who wish to have a policy impact need to understand better the policy drivers and context, including the policy cycle, processes for policy making and Details available at: http://aphcri.anu.edu.au/research-program/apt PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 25 implementation issues. Submissions noted that the policy environment is complex and even strong research evidence alone is not sufficient to ensure a good policy outcome. Building productive and trusted relationships over the long term between researchers and policy stakeholders is a key factor to support more relevant and timely evidence. Finally, there are some specific research skills that are in short supply across the system. These include research capacity in mining information from routinely collected data sets; linking data from various sources to build a more comprehensive picture of population behavior and needs; and the development of intervention research approaches and skills particularly to support the design of interventions related to socio-economic determinants. The development of evaluation capacity is also a high priority. Improvement of approaches to peer review in preventive health is also a priority. From the perspective of policy stakeholders’ capacities, key issues included: Policy stakeholders need to have a better understanding of research processes and the value of types of research to support robust decision making. There is also a need for clearer understanding of how research evidence can be taken on board alongside other policy drivers. Policy stakeholders need to become more sophisticated in understanding what research can offer as a basis for policy development and program design and its limits, so that their expectations of what certainty research evidence can provide are realistic. There needs to be a greater capacity for policy stakeholders to be able to articulate their policy and evidence ‘needs’ and to engage researchers as part of that process. Recognising the complexity of social, economic and other issues that affect the preventive health agenda, policy stakeholders need to acquire skills in operating outside their policy silos and collaborate in identifying priorities and engaging researchers in their needs and evince assessments at an early stage in the policy process. Policy stakeholders need to establish relations with researchers built on trust and mutual respect. Intersectoral, multidisciplinary and multijurisdictional partnerships and engagement can also be achieved by investing in professional development and training initiatives that allow people to work with and across various sectors and organisations – such experience facilitates an understanding of how the different organisations that influence health and the health research, promotion and policy process function and interact. Understanding this complex interplay is essential to effective translational efforts. (Greater Green Triangle University Department of Rural Health) In terms of those implementing strategies, a workforce development strategy that would embed a strategic but locally responsive approach to workforce capability development PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 26 should be considered. Intrinsic to this is the culture of reflective practice and notion of evolution of the of the Strategy components. It could include training: for multiple audiences including researchers, users, and peer reviewers to build research practice that is responsive to needs, relevant and incorporates multiple domains in collaborative and interdisciplinary research practice ( including research across domains and users of research) in approaches to designing and implementing translational research for non-academic researchers in community, service and other settings who could assist in the research process, such as the scheme established to build future academic capacity through development and implementation of post graduate level qualifications. Early career traineeships and career fellowships in policy-relevant research should be considered to help build capacity in preventive research. Some of the approaches that have proved successful in improving clinical research career opportunities (such as part-time fellowships that allow clinicians to maintain their clinical work alongside research activities) would have application in the preventive health research area. Building interest and participation in translational research is highly important to secure more involvement. Edwards17 found that more interactive processes such as ‘round tables, knowledge brokers, secondments, training and joint case studies were preferred by officials to enhance engagement between governments and researchers. To improve research capacity, master classes and round tables, knowledge brokers, secondments, training and joint case studies were preferred. These interactive approaches are important also in the development of relationships between researchers and decision makers as they share information, debate topics and reflect on issues. Suggestions to improve interaction and consequently relationships between researchers and users as part of the work process include: 17 commissioned research which creates opportunities to collaborate with users in the planning and implementation of research master classes involving researchers and users fostering networks and collaborations between evidence producers and users in particular topic areas supporting knowledge exchange activities such as work based seminars and workshops setting-based and practice-led evaluation joint user and researcher teams on rapid reviews of evidence. Edwards, op. cit. PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 27 Many respondents suggested that ANPHA sponsor symposia and round tables on priority issues. Much other activity should be opportunistic and supported by universities and the state and territory governments as part of normal practice. Culture to support the Strategy Existing research and decision maker cultures are a product of historical practice and systems built around silos with separate objectives, accountabilities and work. Current culture affects the research approaches, funding and incentives and what is published. It also affects beliefs about quality and expectations about impact. Many submissions noted that researchers and users have differing drivers and incentives and these can work strongly against building mutual respect and cooperation. Translational research, which focuses on building ongoing professional relationships and collaborative practice, requires a change in mindset and practice by all parties. It is likely that securing momentum in this area will require a purposeful approach by state and territory health (or government) departments and by research institutions. The Strategy should pay attention to these factors through the incentive structures, opportunities for combined learning, problem solving and debate. Preventive health research is focused on understanding social change and places importance on changing attitudes through changing behaviours, and creating new and positive narratives. Cultural change can be supported through developing opportunities for shared interaction, changing incentive structures and developing career opportunities. Strong leadership will be needed for change in mindset and practice, with accompanying changes to funding approaches and reward systems. It needs to be gradual, iterative and long-term and is likely to pose many challenges. Respondents sought strategic implementation of capability building strategies to support change. Relationship of each stakeholder category to the National Preventive Health Research Strategy There are a large number of stakeholders involved in preventive health research that could be involved in or influenced by this Strategy. Potential participants include those who have made submissions and participated in consultations as well as sectors that could have major influence such as the human services agencies that might participate and/or use research. Government departments and funded agencies Commonwealth, state and territory governments through the health system make large investments in research infrastructure such as the NHMRC, ARC, data collection and analysis agencies such as the Australian Bureau of Statistics (ABS) and Australian Institute of Health and Welfare (AIHW) and investments in research centres in universities. Funding relevant research to understand complex problems is a priority as is optimal utilisation of that research as part of their own responsibilities under the NPAPH. PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 28 Other agencies which have a strong influence on health though healthy public policy may not immediately see the relevance of the Strategy for their needs but are engaged in similar research and evaluation activity in their respective fields. For example, several longitudinal studies (including The Household, Income and Labour Dynamics in Australia (HILDA) Survey and The Longitudinal Study of Australian Children (LSAC)) important for preventive health research are sponsored by agencies such as FaHCSIA. This agency has policy and funding responsibilities in areas such as housing, welfare and Indigenous affairs that are key to many of the social determinants of health. Statistical, data and information services The ABS and the AIHW and the National Health Performance Authority influence data collection and development of the surveillance capacity that is a high priority in preventive health. These agencies are currently involved in improving or reorienting work around data collection and analysis and health system performance. NHMRC and ARC Under the national research priorities, both of these bodies have responsibilities to support research that will build and maintain a ‘healthy Australia’. Their processes of allocating research funding influence approaches to grant assessment and peer review. The NHMRC in particular has a formal role in funding research in public health and in translational research. The ARC supports much research in social, environmental, economic and public policy sciences that is relevant to preventive health. Universities and research centres Representatives of universities and research centres potentially have a strong role in the Strategy. They are funded by commonwealth, state and territory governments, and other sources, to conduct research in priority areas. Collaborations such as the Council of Public Health Institutions (CAPHIA) have a strong network of 24 universities and a tradition in public health education and research that is directly pertinent to the Strategy. The CAPHIA centres can contribute to research in the preventive health priority areas, support the development of new methods and approaches to translational research and participate in the development and conduct of education and training for researchers and users alike. CAPHIA centres have broad coverage of ANPHA’s priority areas of alcohol, nutrition and obesity and tobacco and many represent a focus on particular areas. Centres like the Sax Institute in NSW and the Centre of Excellence in Intervention and Prevention Science (CEIPS) in Victoria, are funded by state governments have a focus on evidence reviews and areas of specific interest to the Strategy. Professional associations, peak bodies, charities, statutory bodies and interest groups These groups form connections between governments, service providers and consumers on prevention issues. The advocacy role of organisations such as the cancer councils and Heart Foundation means that they already have strong relationships with many sectors. Each represents areas of priority need for the Strategy and has functions of importance to the Strategy. These include research, stakeholder information, the need for suitable evidence and a desire to foster change. Many of these organisations already support a number of PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 29 collaborations in research and evaluation and they could form supportive advisory, implementation and dissemination functions for the strategy. Other organisations, interest groups and individuals The organisations listed such as Healthy Soils Australia, the Climate Alliance bring additional perspectives to the Strategy. Evaluation of the Strategy Some stakeholders proposed that ANPHA commission an evaluation of the Strategy. Because the Strategy development and implementation processes are iterative, the NPAPH should consider employing developmental evaluation strategies that encourage ongoing reflection of progress and problems. This might be guided by developing a Theory of Change. The process should be ongoing and, like the Strategy, should recognise that the changes being proposed can be realised only in the long term and the evaluation should be focused on progress towards those ends. The approach to the evaluation should be designed early in the implementation of the Strategy so that data collection needs can be considered. Role of ANPHA There were a number of views on ANPHA’s role and the following were the most common. ANPHA should play a leadership and catalytic role in supporting the development of preventive health research field including: o Building capacity in preventive translational research by researchers and decision makers. o Being a catalyst for assessing and developing new or expanded research approaches to answer questions from a user perspective. o Acting as an advocate for existing research agencies to take a preventive research focus. o Brokering for changed funding approaches. o Providing leadership in a number of fields by stimulating thinking about policy relevant research. ANPHA should be an information broker, becoming a central source for information and advice for decision makers. While there are many bodies engaged in research in preventive health the needs for information and advice for decision makers remains high and the traditional gaps between what is produced and what is needed exist. There is currently no one body seen as a source of information and advice or a link to that advice. ANPHA has a role in the development of community health literacy and in supporting public relations strategies to ensure that important research findings are PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 30 publicised and debated. Respondents believe that policy and system change will follow public awareness of need. The role of ANPHA was endorsed as being a catalyst and mobiliser of action but respondents wanted clearer definitions of what that means. Many thought that ANPHA had or should develop a highly influential role and had the funds to support far-reaching changes. Many submissions conveyed the view that ANPHA had a role to assist funders, decision makers and researchers to clarify what is needed and stimulate action on systems, funding, capability building, culture change and promotion of demand. This is clearly beyond the capacity of ANPHA alone and all participants have a role in these functions. The role and contribution of the state and territory partners (NPAPH) should also be clarified. Issues for the Preventive Health Research Strategy Respondents (including some NPAPH partners), argued that a national strategy was of paramount importance if Australia is to achieve improvements in obesity and other areas. There was no submission that argued against a national approach. Clearly the thinking is consistent with the priorities espoused in the 2012 National Research Investment Plan that acknowledges the importance of research into health and well-being. Despite this strong support for the evolution of the 2011 interim Strategy, there are several challenges and issues to be considered in its development. Effective health promotion practice depends on the availability and use of robust and relevant information from research and evaluation, statistical sources and expert knowledge. Currently much information that is needed is not available, not relevant or not used for a range of reasons. One of the key purposes of a national strategy would be to create an ongoing narrative that serves to engage the interest of researchers, users—especially across government and NGOs—and the public in participating in preventive health research, design and evaluation of initiatives and debate. This interest should be created through the initiatives led by the Strategy, the findings of research and evaluation itself and publicising these initiatives. While the focus of the Strategy would be necessarily on major change over the long term, investment in current capacity and initiatives could provide early outputs, such as evidence reviews. There is much work happening nationally, some of it clearly would be part of this Strategy, which can also serve to promote interest in prevention. The key challenge for the Strategy is to harness and capitalise on fragmented effort and, because of resource constraints, to be selective in its approach The development of a plan with clear goals and strategies will be one mechanism to focus national effort. It would also provide clarity to stakeholders on their potential roles and responsibilities and unique contributions of various sectors, including governments, research, NGOs, industry and the community. To enable change the Strategy will also need to incorporate approaches to enhance the research system or preventive health research i.e. the policies, funding system and infrastructure that underpins the capacity to undertake effective translational and applied research. Important improvements include availability of funding for research that is PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 31 transactional, cannot necessarily be contained in a set timeframe and which may involve non-academic participants in the research team. The funding criteria need to be amended to better support preventive health research. Translational research approaches are still evolving. Researchers, evaluators and users at all levels need more exposure to the concepts and methods of effective collaborative enterprise. Development of evaluation capacity as part of the evidence production spectrum is also seen as important. It is suggested that a workforce Strategy be developed as part of the National Strategy as a systematic approach to building capacity. A major theme of many submissions and comments was that, while Australia has great strengths in preventive health research and delivery of effective programs (e.g. tobacco control), the fragmentation of research and policy efforts limits what might be achieved and does not encourage translational research practice. The Strategy could also encourage a more coherent approach to achieving capacity building and collaboration. The initiatives for capacity building could harness existing effort across sectors to create the conditions and the capacity by which preventive health research can flourish. It will provide opportunities to engage relevant parties in collaborative experiences through research – policy/implementation conversations, education and debate, symposia, round tables and other avenues. All these processes will foster the development of relationships that are essential for effective translational research. Differentiating the Strategy from other research strategies such as public health and primary care research is a challenge. If the term ‘preventive health’ is used it should be defined, as it is not self explanatory and may act as a deterrent to multidisciplinary research effort and multisectoral policy and decision maker effort. Expansion of the role of ANPHA within the research Strategy might need support from the NPAPH. The submissions suggest a role that is facilitative of coordinated national effort and a catalyst for innovation and improvement. Governance structures and protocols to support collaborative effort may also need to be set up, or at least need clarification so that key initiatives could be undertaken in collaboration with key stakeholders. A key component of ANPHA’s role would be evaluating progress over time and advising on the Strategy’s continuing development. ANPHA’s accountability would be within that framework and it would not be directly accountable for activities that are within the domains of other players. Stakeholders urge that ANPHA should consider strategies to support the prevention research field and also how to mobilise other parties and stakeholders (NPAPH, universities, NHMRC, ARC), and a broad range of sectors to participate in a more purposeful way in this effort. As part of developing the Strategy, ANPHA the NPAPH and other stakeholders should consider and agree their priorities relating to the spectrum of needs enunciated and the possibility of collaborative investment in research. The Strategy is an opportunity to provide a clear and strategic focus for all partners and pathways to long-term outcomes. Progress measures, including key outputs, should also be clearly identified. An evaluation framework would guide and support reflection the on Strategy progress so it can be refined over time to meet changing needs. PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 32 The Strategy should recognise that improving the health of Australians is a continuing process and does not have a defined end point. Measuring outcomes from the Strategy should recognise this and incorporate a mix of both medium and longer-term goals. Major outcomes in such areas as reducing obesity will not be achieved within one or two four-year budget cycles. Conclusion The outcomes of consultations clearly demonstrate support for a national preventive health research Strategy to support measures to improve healthy outcomes for Australians. The Strategy would need to address issues such as research priorities, research approaches, and funding and infrastructure for research. It should also focus on creating supportive research and policy cultures to enhance effectiveness of policies and programs through uptake of evidence in implementation. The views of stakeholders and other research evidence around preventive health research should inform the development of the Strategy. PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 33 Appendix A—A systems approach to change The McKinsey 7S framework was developed in the early 1980s by consultants working at the McKinsey & Company consulting firm. The basic premise of the framework is that there are seven internal aspects of an organisation that need to be aligned if it is to be successful. MacDonald Wells has modified the framework to apply it to the ANPHA National Preventive Health Research Strategy. Framing the thinking: a systems approach to change Na onal Preven ve Health Research Strategy Strategy Goals Audiences Role/Focus Scope Systems Capability Policies , funding mechanisms informa on sharing, coali ons, data Skills, a tudes, mentoring and support systems, communi es of prac ce Culture Changes to beliefs and pa erns of prac ce PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 34 Appendix B—Submission authors Alzheimer's Australia Australian Chronic Disease Prevention Alliance Australian Government Department of Health and Ageing Australian Health Promotion Association (Western Australia branch) Australian Physiotherapy Association Australian Women’s Health Network Bupa Cancer Council Victoria Cancer Institute New South Wales Catholic Health Australia Central Queensland University Centre for Research on Ageing, Health and Wellbeing, Australian National UniversityNU Climate and Health Alliance Commonwealth Scientific and Industrial Research Organisation (CSIRO) Consumers Health Forum of Australia Dairy Australia Deakin University’s Centre for Physical Activity and Nutrition Research Department of Health and Human Services, Tasmania Dietitians Association of Australia Dr. Alden, Health Broker Dr. Taylor, James Cook University Dr. Oliver Frank, Discipline of General Practice, The University of Adelaide DrinkWise Australia DrinkWise Australia Environmental Health Australia Freemasons Foundation Centre for Men's Health Andrology Australia_ Research Group Greater Green Triangle Department of Rural Health Deakin and Flinders Universities Healthy Ageing Healthy Soils Australia Heart Foundation Submission James Cook University Deakin University and The University of Sydney PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 35 Mental Health Council of Australia Menzies School of Health Research National Cannabis Prevention and Information Centre National Committee for Medicine (NCM), Australian Academy of Science National Drug Research Institute New South Wales Ministry of Health New South Wales Office of Preventive Health Pfizer Prevention Partnership Australia Prevention Research Collaboration University of Sydney Public Health Association of Australia Public Health Evidence and Knowledge Translation Research Group School of Public Health and Preventive Medicine, Monash University Sexual Health and Family Planning Australia SIDS and Kids Australia Sydney Playground Project Team, The University of Sydney The Council of Academic Public Health Institutions Australia VicHealth Victorian Aboriginal Community Controlled Health Organisation Victorian Alcohol & Drug Association Western Australia Department of Health Weight Management Council Australia Ltd Women's Health Victoria PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 36 Appendix C—Stakeholders and their potential involvement in the Preventive Health Research Strategy Stakeholder categories Government agencies Statistical, data and information services Organisational focus informing potential contribution to the Preventive Health Research Strategy Departments of Health, Commonwealth, NSW, Tas, Vic, NT, WA, Policies and programs in public health programs Knowledge purveyor Leaders in preventive health policy, research and evaluation across all domains of health. Governments preventive health interests include protecting and promoting health, preventing ill health and injury, reducing health inequity, managing risk and supporting safe and healthy environments. Funder of research to build workforce capacity and to support priority health policies and programs. Participant in translational research creation and use The NSW Office of Preventive Health – coordination of services to reduce lifestyle risk factors leading to chronic disease. The Chronic Disease Directorate, WA Department of Health Department of Families, Housing, Community Services and Indigenous Services Australian Government's principal source of advice on social policy. FaHCSIA works in partnership with other government and non-government organisations in the management of a diverse range of programs and services designed to support and improve the lives of Australians. Policies and programs to knowledge purveyor. Research funder. Researcher and user of research Leaders in Indigenous preventive health and social wellbeing policy and research. The Australian Bureau of Statistics The Australian Institute of Health and Welfare Knowledge purveyor, working to make research more useful in health and social policy domains Research translation approaches necessary for relevance in publications. Contribution to data policy. Academic public health peak national organisation Universities/research centres National Health Performance Authority Established under the Health Reform Act 2011 to provide locally relevant and nationally consistent information on the performance of health care organisations and health systems, based on 50 indicators agreed by COAG. The Council of Academic Public Health Institutions Heads of Schools and Discipline Leaders of public health education and research across Australia Research and education in disease prevention and health promotion. Collaborative research and translational research – national to local focus. Capacity building of researchers. National reach and sphere of influence. Sax Institute Knowledge purveyor especially promoting the use of evidence through evidence reviews. Leader in preventive health translation research and evaluation. Australian Primary Health Care Research Institute Research for policy and system development in primary care. Research broker to bring policy makers and researchers together. Contribution to system policy. Centre for Research on Ageing, Health and Wellbeing, ANU Research in assessment and better care for people with dementia Early detection and prevention issues affecting consumers and carers. Centre for Physical Activity and Nutrition Research, (CPAN), Deakin University Multidisciplinary research centre understanding the behavioural, social and environmental influences on nutrition and physical activity; epidemiology of overweight and obesity; and development and evaluation of obesity prevention strategies for children and adults. Research in nutrition in physical activity and sedentary behaviours and obesity Contribution to methods development and policy. Central Queensland University Large student footprint across Australia. Commonwealth Scientific and Industrial Research PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 38 Organisation. Research into preventive health and health and productive ageing including one of four major themes on obesity and metabolic health. Greater Green Triangle University Department of Rural Health, Flinders and Deakin Universities – Primary Health Care Research Evaluation and Development, Mental Health and Rural Health research programs. James Cook University, Deakin University, University of Sydney, A consortium with a particular interest in injury and injury prevention. Menzies School of Health Research Independent Medical and research institute Research into Indigenous health Health, education and research training. National Drug Research Institute Conducts and disseminates high quality research that contributes to the primary prevention of harmful drug use and the reduction of drug related harm in Australia. National Drug and Alcohol Research Centre and the National Centre for Education and Training on Addiction are the other two collaborating drug research centres. Prevention Research Collaboration, University of Sydney Expertise in public health nutrition, physical activity, obesity prevention, epidemiology and health promotion research as well as other aspects of primary prevention. School of Public Health and Prevention Medicine, Monash University. Focus on health promotion and prevention of disease, disability and chronic disease. Additional research centres of relevance to the Strategy that have not provided views. NSW Physical Activity, Nutrition and Obesity Research Group (PANORG) incorporating the former Centre for Overweight and Obesity. Improving research capability in overweight and obesity and contribute to the overall program of action. Social Policy Research Centre (University of New South Wales)- a specialist research centre of the Faculty of Arts and Social Sciences conducting research on all aspects of social policy, disseminates research findings, promotes research training and contributes to policy development and evaluation. Social Policy Evaluation, Analysis and Research (SPEAR) Centre, Australian National University. A joint initiative PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 39 of FaHCSIA and the Economics Group in the Research School of Social Sciences at the ANU. Has a focus on economic and social policy analysis Centre for Research and Action in Public Health (CeRAPH) University of Canberra. Undertakes research in partnership with a wide range of academic, government , non-profit and other partners to find solutions to real- world health problems. Core focus is healthy and sustainable communities and rural and remote mental health. Public Health Evidence and Knowledge Translation Research Group Sydney Playground Project Team – A multidisciplinary research team comprising Sydney University, Macquarie, Australia, Catholic University, UNSW, Canberra and the University of Adelaide. The team is committed to promoting the physical and mental health of children. Statutory body Professional associations/peak bodies/charities/interest groups National Committee for Medicine – Australian Academy of Science. Reports on public issues such as national research policy setting, including food quality, and climate change. Cancer Institute NSW – a range of functions to lessen the impact of cancer Knowledge purveyor. Translational research. Data producer and user. Education. Policy advocate. Alzheimer’s Australia – Peak body advocating for research in dementia prevention, early detection and care, services to people with dementia and their carers. Australian Chronic Disease Prevention Alliance (ACDPA). Alliance of 5 NGO’s working on primary prevention of chronic disease with a particular emphasis on shared risk factors of poor nutrition, physical activity, overweight and obesity. Australian Heart Foundation – Charitable organisation improves health by funding cardiovascular research, guidelines for health professionals, informing the public and assisting people with cardiovascular disease. Australian Physiotherapy Association – research relevant to obesity and mobility and prevention of PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 40 musculoskeletal diseases Australian Women’s Health Network – (AWHN) – Peak organisation for women’s health in Australia. Volunteer based NFP network to provide a voice for women’s health through advocacy and information sharing. Consumer Health Forum of Australia – Peak body representing the interests of healthcare consumers, working to achieve safe, quality, and timely health care for all Australians, supported by accessible health information and systems. Cancer Council Victoria - non-profit charitable organisation involved in cancer research, patient support, cancer prevention and advocacy. Focuses on research, prevention and advocacy programs which deliver better outcomes for people affected by cancer. Dairy Australia – participates actively in health promotion and associated food policy and regulation initiatives. Funds research into health benefits of dairy foods. Dietitians Association Australia – The Dietitians Association of Australia (DAA) is the national association of the dietetic profession with over 5000 members and branches in each state and territory. DAA is a leader in nutrition and advocates for better food, better health, and wellbeing for all. Environmental Health Australia – environmental health standards and professional interests of Environmental Health Practitioners Freemasons Foundation Centre for Men’s Health, (FFCMH) Andrology Australia Research Group. Takes a comprehensive approach to men’s health addressing both physical and psychological concerns across the lifespan. Through innovation and research the centre aims to understand and cure disease to enable men to live longer healthier lives. Mental Health Council Australia - (MHCA) The peak, national non-government organisation representing and promoting the interests of the Australian mental health sector. The membership of the MHCA includes national organisations of mental health services, consumers, PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 41 carers, special needs groups, clinical service providers, community and private mental health service providers, national research institutions and state/territory peak bodies. Public Health Association of Australia – PHAA is a national organisation comprising around 2000 individual members and representing over 40 professional groups concerned with the promotion of health at a population level. It works to promote the health and well- being of all Australians. Supports better population health outcomes based on prevention, the social determinants of health and equity principles. Sexual Health and Family Planning Australia – Clinical services, Education, professional training and research. SIDS and Kids – national community base organisation dedicated to saving the lives of babies, children during pregnancy, childbirth, infancy and childhood and to supporting bereaved parents. Victorian Drug and Alcohol Forum of Australia – peak body for alcohol and other drug (AOD) services in Victoria, providing advocacy, leadership, information and representation of AOD both within and beyond the AOD sector. Victorian Aboriginal Community Controlled Health Organisation – represents Aboriginal Health Service throughout Victoria, develop policies which promote Aboriginal health rights, community control and physical, spiritual and emotional wellbeing. Weight Management Council of Australia – administers the weight management code of practice and guides the accreditation and ongoing oversight of weight management practitioners. Women’s Health Victoria Not-for-profit organisation focused on improving the lives of Victorian Women. Undertakes health promotion and advocacy to improve women’s health and provide a number of direct services. All professional associations have a membership base and have research dissemination and use, policy advocacy and membership services. PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 42 Other organisations and interest groups. Many undertake or participate in, use and disseminate research. They have strong interest in improving Australia’s health and wellbeing through evidence informed interventions. They are potential advisors and collaborators in translational research and dissemination of information and advice to researchers and policy makers in their respective fields. Healthy Soils Australia – not for profit volunteer organisation concerned with the connection with healthy soil and human health. Climate and Health Alliance – not for profit organisation and a national alliance of organisations and people in the health sector working to raise awareness of the health risks of climate change and the health benefits of emission reductions. Prevention Partnership – a social enterprise focusing on the prevention of chronic disease and injuries. PPA exercise the principles of collective impact to bring together business, community and government organisations to accelerate positive outcomes on social issues that are impacting on our heath and wellbeing. Drinkwise Australia – not for profit company funded by the alcohol industry, established to effect a generational change in the way Australian’s drink by challenging social norms and the patterns of drinking that lead to alcohol related harms, and developing new positive norms that encourage the adoption of a healthier and safer drinking culture. Private Health Service Provider Industry Pets and Aged Care Steering Group – the health benefits of pets in aged care settings. Research users and research purveyors. Catholic Health Australia Large non-government provider of health community and aged care services in Australia. Represents Catholic health care sponsors, systems, facilities and related organisations and services. Research user. Potential research participant or partner. Bupa – Health Insurance Industry Bupa’s purpose to help people live longer, healthier and happier lives. Bupa operates several businesses in Australia, including Bupa Health Dialog (evidence based PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 43 wellness, prevention and chronic disease management services). Research funder and user. Individuals Pfizer – Pharmaceutical Industry, Researcher – Pharmacology Research funder, improve health and wellbeing at every stage in life. Research user. Healthy Ageing – Professors Collette Browning, Monash University and Hal Kendig, University of Sydney. Researching the roles and outcomes for communities of place in primary prevention – Dr Judy Taylor. Pets and Aged Care Steering Group – Jan Phillips, Chair. Health Broker – Dr Jennifer Alden General Practitioner - Dr Oliver Frank PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 44 Abbreviations ABS Australian Bureau of Statistics ACDPA Australian Chronic Disease Prevention Alliance AIHW Australian Institute of Health and Welfare ANPHA Australian National Preventive Health Agency ARC Australian Research Council AWHN Australian Women’s Health Network CALD Culturally and linguistically diverse CAPHIA Council of Academic Public Health Institutions Australia CCV Cancer Council Victoria CEIPS The Centre of Excellence in Intervention and Prevention Science CeRAPH Centre for Research and Action in Public Health C-PAN Centre for Physical Activity and Nutrition Research CSIRO Commonwealth Scientific and Industrial Research Organisation DAA Dietitians Association of Australia DHSS Department of Health and Human Services (Tasmania) DoHA: Department of Health and Ageing (Australian Government) ECR Expert Committee on Research (ANPHA) ERA Excellence in Research Australia FAHCSIA Department of Families, Housing, Community Services and Indigenous Affairs (Australian Government) FFCMH Freemasons Foundation Centre for Men’s Health MHCA Mental Health Council of Australia NHMRC National Health and Medical Research Council NHPA National Health Performance Authority NPAPH National Partnership Agreement on Preventive Health PANORG Physical Activity, Nutrition and Obesity Research Group PHAA: Public Health Association of Australia PPA Prevention Partnership Australia PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 45 SLA Statistical local area SPEAR Social Policy Evaluation, Analysis and Research Centre VACCHO Victorian Community Controlled Health Organisation VicHealth Victorian Health Promotion Foundation PREVENTIVE HEALTH RESEARCH STRATEGY: ANALYSIS OF STAKEHOLDER VIEWS 46