Summer Graduate Workshop
Research Ethics and Cultural Competence in
Environmental Science, Engineering and Related Fields
SUNY College of Environmental Science and Forestry
Syracuse, NY, Aug. 17 - 19, 2011
Wednesday, August 17
(Baker Laboratory, Rm. 141)
Readings Assigned for August 17, 2011 (Please read before class.)
1.
Appelbaum, Paul S., Charles W. Lidz, and Robert Klitzman. 2009. "Voluntariness of Consent to Research: A
Conceptual Model," Hastings Center Report 39(1): 30-39.
2. Smith, Linda S. 1998. "Concept Analysis: Cultural Competence," Journal of Cultural Diversity 5(1): 4-10.
Skim These:
3. Matthew, Dayna B. 2008. "Race, Religion, and Informed Consent: Lessons from Social Science," Journal of
Law, Medicine & Ethics 36(1): 150-173.
4. National Commission for the Protection of Human Subjects. 1979. "The Belmont Report: Ethical Principles and
Guidelines for the Protection of Human Subjects of Research," April 18.
…………………………………………………………………………………………………………………………………………………………………………………..
11:00 am – 1:00 pm
Review of Human Subjects Protections, IRB Requirements and Informed Consent Theory
(Slides and discussion)
1:00 pm – 1:45 pm
Lunch (catered)
1:45 pm – 3:00 pm
Small Group Work on Readings/ Discussion of Research Protections/ Informed Consent
(Selected cases with exercise questions)
3:00 pm – 3:15 pm
Break
3:15 pm – 4:00 pm
Cultural Competence Theory (Slide presentation)
4:00 pm – 5:00 pm Individual Writing (carry over to evening)
Writing Assignment – Please write a 2 – page review of human subjects research protections and
cultural competence approaches that you can identify in a selected case study. Case studies can be
chosen from handouts or Course Reader.
Thursday, August 18
(Baker Laboratory, Rm. 408)
Readings Assigned for Thursday, August 18:
1.
2.
3.
Davis, Sally M., and Raymond Reid. 1999. "Practicing Participatory Research in American Indian
Communities," American Journal of Clinical Nutrition 69(suppl):755S-9S.
Israel, Barbara A., et al. 1998. "Review of Community-Based research: Assessing Partnership
Approaches to Improve Public Health," Annual Review of Public Health 19: 173-202.
Jones, James H. 1992. "The Tuskegee Legacy: AIDS and the Black Community," Hastings Center
Report 22(6): 38-40.
……………………………………………………………………………………………………………….
8:30 am (Breakfast optional)
9:00 am – 10:00 am
Report-back on Student Reviews of Cases
10:00 am – 11:00 am
Community-based Theory (including communitarianism) and Group Protections (slides and discussion)
11:00 am – 11:15 am
Break
11:15 am – 12:30 pm
Small Group/ Individual Review of CBPR cases (Selected cases with exercise questions)
12:30 pm – 1:15 pm
Lunch
1:15 pm – 2:30 pm
Guest Speaker for Culturally-Appropriate Research
2:30 pm – 3:00 pm
Preparation for Evening Review of Ethical Theories and Cases
Writing Assignment: Students will be handed out PowerPoint hard copies of three ethical theories:
distributive justice, ethics of care and postmodern ethics and then they will choose a field study from
the Course Reader or handouts to analyze how one of the theories is in the research design/practice.
Students will need to summarize their analysis in a two-page paper to hand in.
Friday, August 19
(Baker Laboratory, Rm. 408)
Readings Assigned for August 19.
1. Flint, Courtney G., A.E. Luloff, and James C. Finley. 2008. "Where Is 'Community' in
Community-Based Forestry?" Society and Natural Resources 21: 526-537.
Choose One of These:
2. Davenport, Mae A., et al. 2007. "Building Trust in Natural Resource Management within
Local Communities: A Case Study of the Midewin National Tallgrass Prarie," Environmental
Management 39: 353-368. .
3 Coburn, Jason. 2002. "Combining Community-Based Research and Local Knowledge to
Confront Asthma and subsistence-Fishing Hazards in Greenpoint/ Williamsburg, Brooklyn,
New York," Environmental Health Perspectives 110(suppl 2): 241-248.
……………………………………………………………………………………………………
8:30 am – Breakfast (Optional)
9:00 am – 10:00 am
Student Report Back on Evening Papers
10:00 am – 10:15 am
Break
10:15 am – 11:45 am
What is Community?, Community Advisory Committees, Building Community Capacities ,
Virtue-based approaches with communities and cultural groups
(Slides and Discussions)
11:45 am – 12:00 noon
Evaluation
*******Please see Course Reader Studies on Page Three.
Course Reader Contents
I. Cultural Competence Theory and Human Subjects Protections
4. National Commission for the Protection of Human Subjects. 1979. "The Belmont Report:
Ethical Principles and Guidelines for the Protection of Human Subjects of Research," April 18.
5. Schrag, Brian. 2006. "Research with Groups: Group Rights, Group Consent, and Collaborative
Research," Science and Engineering Ethics 12(3): 511-521.
6. Matthew, Dayna B. 2008. "Race, Religion, and Informed Consent: Lessons from Social
Science," Journal of Law, Medicine & Ethics 36(1): 150-173.
7. Appelbaum, Paul S., Charles W. Lidz, and Robert Klitzman. 2009. "Voluntariness of Consent
to Research: A Concept Model," Hastings Center Report 39(1): 30-39.
8. Smith, Linda S. 1998. "Concept Analysis: Cultural Competence," Journal of Cultural
Diversity 5(1): 4-10.
II. Cultural Reflexivity and the Belmont Principles
9. Davis, Sally M., and Raymond Reid. 1999. "Practicing Participatory Research in American
Indian Communities," American Journal of Clinical Nutrition 69(suppl):755S-9S.
10. King, Patricia A. 1992. "The Dangers of Difference," Hastings Center Report 22(6): 35-38.
11. Minkler, Meredith. 2004. "Ethical Challenges for the 'Outside' Researcher in CommunityBased Participatory Research," Health Education & Behavior 31(6): 684-697.
12. Panikkar, Bindu, and Doug Brugge. 2007. "The Ethical Issues in Uranium Mining Research in
the Navajo Nation," Accountability in Research 14: 121-153.
13. Gbadegesin, Segun, and David Wendler. 2006. "Protecting Communities in Health Research
from Exploitation," Bioethics 20(5): 248-253.
14. Israel, Barbara A., et al. 1998. "Review of Community-Based research: Assessing Partnership
Approaches to Improve Public Health," Annual Review of Public Health 19: 173-202.
15. Jones, James H. 1992. "The Tuskegee Legacy: AIDS and the Black Community," Hastings
Center Report 22(6): 38-40.
III. Cultural Knowledge and Skills for Ethical Research Engagement
16. Kimmerer, Robin W. 2000. "Native Knowledge for Native Ecosystems," Journal of Forestry
98(8): 4-9.
17. Gibbs, Meredith. 2001. "Toward a Strategy for Undertaking Cross-Cultural Collaborative
Research," Society and Natural Resources 14: 673-687.
18. Menzie, Charles R., and Caroline Butler. 2006. "Introduction: Understanding Ecological
Knowledge." Pp. 1-17 in Traditional Ecological Knowledge and Natural Resource
Management, ed. Charles R. Menzies. Lincoln, NB: University of Nebraska Press.
19. Zerbe, Noah. 2005. "Biodiversity, Ownership, and Indigenous Knowledge: Exploring Legal
Frameworks for Community, Farmers, and Intellectual Property Rights in Africa," Ecological
Economics 53:493-506.
20. Arquette, Mary, et al. 2002. "Holistic Risk-Based Environmental Decision Making: A Native
Perspective," Environmental Health Perspectives 110(suppl 2): 259-264.
21. Charles, Jennifer C., and Charles A. Menzie. 1998. "Identifying South-east Asian Immigrant
Populations in Massachusetts at Risk from Eating Contaminated Shellfish," Journal of
Environmental Management 52: 161-171.
22. Saldivar-Tanaka, Laura, and Marianne E. Krasny. 2004. "Culturing Community Development,
Neighborhood Open Space, and Civic Agriculture: The Case of Latino Community Gardens in
New York City," Agriculture and Human Values 21:399-412.
23. Coburn, Jason. 2002. "Combining Community-Based Research and Local Knowledge to
Confront Asthma and subsistence-Fishing Hazards in Greenpoint/ Williamsburg, Brooklyn,
New York," Environmental Health Perspectives 110(suppl 2): 241-248.
24. Quigley, Dianne. 2006. "Perspective: A Review of Improved Ethical Practices in
Environmental and Public Health Research: Case Examples from Native Communities,"
Health Education & Behavior 33(2): 130-147.
25. Sharp, Richard R., and Morris W. Foster. 2002. "Community Involvement in the Ethical
Review of Genetic Research: lessons from American Indian and Alaska Native Populations,"
Environmental Health Perspectives 110(suppl 2): 145-148.
26. Sze, Julie. 2004. "Asian American Activism for Environmental Justice," Peace Review 16(2):
149-156.
27. Flint, Courtney G., A.E. Luloff, and James C. Finley. 2008. "Where Is 'Community' in
Community-Based Forestry?" Society and Natural Resources 21: 526-537.
IV. Cultural Desire/ Humility and Virtue-based Ethics
28. Macintyre, Alasdair. 1984. "The Nature of the Virtues." Ch. 14 in After Virtue: A Study in
Moral Theory, 2nd ed. Notre Dame, IN: University of Notre Dame Press.
29. Davenport, Mae A., et al. 2007. "Building Trust in Natural Resource Management within
Local Communities: A Case Study of the Midewin National Tallgrass Prarie," Environmental
Management 39: 353-368.
30. Foster, Jennifer. 2009. "Cultural Humility and the Importance of Long-Term Relationships in
International Partnerships," Journal of Obstetric, Gynecologic & Neonatal Nursing 38: 100107.
Selected Case Studies also will be available as handouts in class!