Ethics, Culture and Community-based Research in Wednesday, August 15

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8/14/2012
Summer Graduate Workshop – Readings, Agenda, Assignments
Ethics, Culture and Community-based Research in
Environmental Science, Engineering and Related Fields
SUNY College of Environmental Science and Forestry
Syracuse, NY, Aug. 15-17, 2012
Wednesday, August 15
(Baker Laboratory, Rm. 141)
Readings
Read prior to session:
1.
2.
3.
Appelbaum, P.S., C.W. Lidz, and R. Klitzman. 2009. "Voluntariness of Consent to Research: a Conceptual
Model," Hastings Center Report 39(1): 30-39.
Shrag, B. 2006. "Research with Groups, Group Consent and Collaborative Research," Science and Engineering
Ethics 12(3):511-521
Smith, L.S. 1998. "Concept Analysis: Cultural Competence," Journal of Cultural Diversity 5(1): 4-10.
Skim:
4.
National Commission for the Protection of Human Subjects. 1979. "The Belmont Report: Ethical Principles and
Guidelines for the Protection of Human Subjects of Research," April 18.
…………………………………………………………………………………………………………………………………………………………………………………..
Agenda
11:00 am – 1:00 pm
Review of Human Subjects Protections, IRB Requirements and Informed Consent Theory (lecture,
PowerPoint slides and discussion)
1:00 pm – 1:45 pm
Lunch (catered)
1:45 pm – 3:00 pm
Small Group Work on Readings/ Discussion of Research Protections/ Informed Consent (selected
cases with exercise questions)
3:00 pm – 3:15 pm
Break
3:15 pm – 4:30 pm
Cultural Competence Theory (PowerPoint slide presentation)
4:30 pm – 5:00 pm Individual Writing (carry over to evening)
Homework
Writing Assignment #1 – Write a two-page (double-spaced) review of human subjects research
protections and cultural competence approaches that you can identify in a selected case study. Case
studies can be chosen from Workshop Reader (Bengston et al, Gibbs, Marsh and Kenchington, Prokopy).
-2-
Thursday, August 16
(Baker Laboratory, Rm. 141)
Readings
Read prior to session:
1.
2.
3.
4.
Harding, A., B. Harper, D. Stone, et al. 2012. "Conducting Research with Tribal Communities:
Sovereignty, Ethics, and Data-Sharing Issues," Environmental Health Perspectives 120(1): 6-10.
Israel, B.A., et al. 1998. "Review of Community-Based Research: Assessing Partnership Approaches to
Improve Public Health," Annual Review of Public Health 19: 173-202.
Jones, J.H. 1992. "The Tuskegee Legacy: AIDS and the Black Community," Hastings Center Report
22(6): 38-40.
Gbadegesian, S., and D. Wendler. 2006. "Protecting Communities in Health Research from
Exploitation," Bioethics 20(5): 248-253.
See Workshop Reader for community-based participatory research (CBPR) cases in Fisheries, Environmental
Management, Civic Agriculture, Urban Design, Urban Planning, Urban Land management, Food Insecurity,
Community Gardening, Waste Disposal, Environmental Health Risk Assessment, Indigenous Knowledge and
Traditional Ecological Knowledge.
……………………………………………………………………………………………………………….
Agenda
8:30 am (Breakfast optional)
9:00 am – 11:00 am
Report-back on Student Reviews of Cases
11:00 am – 11:15 am
Break
10:00 am – 11:00 am
Community-based Theory (including communitarianism) and Group Protections (PowerPoint slides
and discussion)
11:15 am – 12:30 pm
Small Group/ Individual Review of CBPR cases (selected cases with exercise questions)
12:30 pm – 1:15 pm
Lunch
1:15 pm – 2:30 pm
Small Group report back
2:30 pm – 3:00 pm
Further Review of Community-based Studies with Perspectives on Ethical Approaches (Distributive
Justice, Liberal-Individualism, Ethics of Care, Virtue-based Theory, Communitarianism, Postmodern
Ethics). Preparation for Evening Review of Ethical Analysis of CBPR Cases
Homework
Writing Assignment #2 – Students will be directed to the “Ethical Theories” folder for PowerPoints (on
Blackboard site). Please choose one of these ethical theories: deontology/distributive justice, ethics of
care, communitarianism, virtue ethics and postmodern ethics. Students will choose a community-based or
field study from the Workshop Reader, Blackboard site or their own research, to analyze whether group
protections are promoted by CBPR. Also, did the ethical theory you selected offer any insights into the
ethical approaches of this study? Students will summarize results from their analysis in a 2pp. paper.
-3-
Friday, August 17
(Baker Laboratory, Rm. 141)
Readings
Read prior to session:
1. Flint, C.G., A.E. Luloff, and J.C. Finley. 2008. "Where Is 'Community' in Community-Based Forestry?"
Society and Natural Resources 21: 526-537.
2. Emmett, E.A., H. Zhang, F.S. Shofer, et al. 2009. "Development and Successful Application of a
'Community-first' Communication Model for Community-based Environmental Health Research,"
Journal of Occupational and Environmental Medicine 51(2):146-156.
3. Minkler, M., et al. 2008. "Promoting Environmental Justice Through Community-based Participatory
Research: the Role of Community and Partnership Capacity," Health Education & Behavior 35(1):
119-137.
…………………………………………………………………………………………………………………………………………………………………………………..
Agenda
8:30 am – Breakfast (optional)
9:00 am – 10:00 am
Student Report Back on Evening Papers
10:00 am – 10:15 am
Break
10:15 am – 12:15 pm
What is Community? Community Advisory Committees, Building Community Capacities,
(PowerPoint slides and discussions)
12:15 am – 12:30 pm
Evaluation
12:30 pm – 1:00 pm
Lunch (catered)
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