8/14/2012 Summer Graduate Workshop – Readings, Agenda, Assignments Ethics, Culture and Community-based Research in Environmental Science, Engineering and Related Fields SUNY College of Environmental Science and Forestry Syracuse, NY, Aug. 15-17, 2012 Wednesday, August 15 (Baker Laboratory, Rm. 141) Readings Read prior to session: 1. 2. 3. Appelbaum, P.S., C.W. Lidz, and R. Klitzman. 2009. "Voluntariness of Consent to Research: a Conceptual Model," Hastings Center Report 39(1): 30-39. Shrag, B. 2006. "Research with Groups, Group Consent and Collaborative Research," Science and Engineering Ethics 12(3):511-521 Smith, L.S. 1998. "Concept Analysis: Cultural Competence," Journal of Cultural Diversity 5(1): 4-10. Skim: 4. National Commission for the Protection of Human Subjects. 1979. "The Belmont Report: Ethical Principles and Guidelines for the Protection of Human Subjects of Research," April 18. ………………………………………………………………………………………………………………………………………………………………………………….. Agenda 11:00 am – 1:00 pm Review of Human Subjects Protections, IRB Requirements and Informed Consent Theory (lecture, PowerPoint slides and discussion) 1:00 pm – 1:45 pm Lunch (catered) 1:45 pm – 3:00 pm Small Group Work on Readings/ Discussion of Research Protections/ Informed Consent (selected cases with exercise questions) 3:00 pm – 3:15 pm Break 3:15 pm – 4:30 pm Cultural Competence Theory (PowerPoint slide presentation) 4:30 pm – 5:00 pm Individual Writing (carry over to evening) Homework Writing Assignment #1 – Write a two-page (double-spaced) review of human subjects research protections and cultural competence approaches that you can identify in a selected case study. Case studies can be chosen from Workshop Reader (Bengston et al, Gibbs, Marsh and Kenchington, Prokopy). -2- Thursday, August 16 (Baker Laboratory, Rm. 141) Readings Read prior to session: 1. 2. 3. 4. Harding, A., B. Harper, D. Stone, et al. 2012. "Conducting Research with Tribal Communities: Sovereignty, Ethics, and Data-Sharing Issues," Environmental Health Perspectives 120(1): 6-10. Israel, B.A., et al. 1998. "Review of Community-Based Research: Assessing Partnership Approaches to Improve Public Health," Annual Review of Public Health 19: 173-202. Jones, J.H. 1992. "The Tuskegee Legacy: AIDS and the Black Community," Hastings Center Report 22(6): 38-40. Gbadegesian, S., and D. Wendler. 2006. "Protecting Communities in Health Research from Exploitation," Bioethics 20(5): 248-253. See Workshop Reader for community-based participatory research (CBPR) cases in Fisheries, Environmental Management, Civic Agriculture, Urban Design, Urban Planning, Urban Land management, Food Insecurity, Community Gardening, Waste Disposal, Environmental Health Risk Assessment, Indigenous Knowledge and Traditional Ecological Knowledge. ………………………………………………………………………………………………………………. Agenda 8:30 am (Breakfast optional) 9:00 am – 11:00 am Report-back on Student Reviews of Cases 11:00 am – 11:15 am Break 10:00 am – 11:00 am Community-based Theory (including communitarianism) and Group Protections (PowerPoint slides and discussion) 11:15 am – 12:30 pm Small Group/ Individual Review of CBPR cases (selected cases with exercise questions) 12:30 pm – 1:15 pm Lunch 1:15 pm – 2:30 pm Small Group report back 2:30 pm – 3:00 pm Further Review of Community-based Studies with Perspectives on Ethical Approaches (Distributive Justice, Liberal-Individualism, Ethics of Care, Virtue-based Theory, Communitarianism, Postmodern Ethics). Preparation for Evening Review of Ethical Analysis of CBPR Cases Homework Writing Assignment #2 – Students will be directed to the “Ethical Theories” folder for PowerPoints (on Blackboard site). Please choose one of these ethical theories: deontology/distributive justice, ethics of care, communitarianism, virtue ethics and postmodern ethics. Students will choose a community-based or field study from the Workshop Reader, Blackboard site or their own research, to analyze whether group protections are promoted by CBPR. Also, did the ethical theory you selected offer any insights into the ethical approaches of this study? Students will summarize results from their analysis in a 2pp. paper. -3- Friday, August 17 (Baker Laboratory, Rm. 141) Readings Read prior to session: 1. Flint, C.G., A.E. Luloff, and J.C. Finley. 2008. "Where Is 'Community' in Community-Based Forestry?" Society and Natural Resources 21: 526-537. 2. Emmett, E.A., H. Zhang, F.S. Shofer, et al. 2009. "Development and Successful Application of a 'Community-first' Communication Model for Community-based Environmental Health Research," Journal of Occupational and Environmental Medicine 51(2):146-156. 3. Minkler, M., et al. 2008. "Promoting Environmental Justice Through Community-based Participatory Research: the Role of Community and Partnership Capacity," Health Education & Behavior 35(1): 119-137. ………………………………………………………………………………………………………………………………………………………………………………….. Agenda 8:30 am – Breakfast (optional) 9:00 am – 10:00 am Student Report Back on Evening Papers 10:00 am – 10:15 am Break 10:15 am – 12:15 pm What is Community? Community Advisory Committees, Building Community Capacities, (PowerPoint slides and discussions) 12:15 am – 12:30 pm Evaluation 12:30 pm – 1:00 pm Lunch (catered)