CHAPTER 17: LOSS, GRIEF, AND DEATH LOSS: As in any situation, either actual, potential, or perceived wherein a valued object or person is changed or is no longer accessible to the individual. Maturational loss: loss that occurs as a result of moving from one developmental stage to another (ie working after you complete school) TYPES OF LOSS: A LOSS CAN BE TANGLIBLE OR INTANGLIBLE Tangible loss- Income Intangible- Self-esteem ACTUAL LOSS: loss of someone or something (ie death of a loved one, theft of property.) ANTICIPATED LOSS: ie diabetic faced with losing foot(amputation) PERCEIVED LOSS: sense of loss felt by an individual but not tangible to others (loss of self-esteem because of rejection) PHYSICAL LOSS: loss of a part or aspect of the body (ie loss of extremity) PSYCHOLOGICAL LOSS: emotional loss (ie women feeling inadequate after menopause) SITUATIONAL LOSS: loss that takes place that a person has no control over (loss of a job when company goes bankrupt or the company transfers.) 4 CATEGORIES OF LOSS: 1. Loss of external object 2. Loss of familiar object 3 Loss of aspect of self 4 Loss of significant other GRIEF: A series of intense physical & psychological response that occurs following a loss. Mourning: The adaptive process that a person experiences after a loss, the period where grief is expressed. Bereavement: the period of grief following the death of a loved one. Erick Lindemann’s Theory of “Grief Work” describes the process experienced by the bereaved. The person experiences freedom from attachment to the deceased, becomes reoriented to the environment & establishes new relationships. Angle Theory: is that the grieving process occurs in stages: Stage 1: shock & disbelief Stage 2: developing awareness Stage 3: restitution & resolution TYPES OF GRIEF: UNCOMPLICATED “normal grief”: A grief reaction that normally follows a significant loss PHYSICAL REACTIONS: Loss of appetite Insomnia Fatigue Decreased Libido Restlessness PSYCOSOCIAL REACTIONS: Helplessness Hopelessness Denial Anger etc. (listed on page 311) DYSFUNCTIONAL GRIEF: these individuals do not progress through the steps of overwhelming emotions & fail to demonstrate any behaviors commonly associated with grief. They remain isolated & do not return to their normal lifestyle pattern. They continue to focus on the deceased & they usually need professional help. Several Forms of dysfunctional grief: Chronic- inability to conclude grieving Delayed- when grief does not take place at time of loss Exaggerated- when grief is experienced as overwhelming Masked-when grief is covered up by maladaptive behaviors ANTICIPATORY GRIEF: is the occurrence of grief BEFORE an expected loss usually occurs. DYSFUNCTIONAL GRIEF: grief that is not openly acknowledged, socially sanctional, or publicly shared (ie loss of a pet) FACTORS THAT AFFECT LOSS & GRIEF: Development Stage: grief is experienced differently depending on where the persons place is on the age/development continuum. CHILDHOOD: children who grieve need an explanation about death. infant/toddler not aware of what death is are aware of disruption of normal routine can react to families expression of grief PRESCHOOL: Views death as temporary separation Is able to react to the gravity of death in accordance with the reactions of parents & others. SCHOOL-AGE: Appreciates that death is final & inevitable Fantasizes about & tends to personify death (ie the boggie man) PREADOLESCANCE/ADOLESCANCE: Recognizes that death is final Understands that death is inevitable EARLY ADULTHOOD: Grief is usually precipitated by the loss of a role or status. MIDDLE ADULTHOOD: Potential for experiencing loss increases Death of a peer might threaten their own mortality LATE ADULTHOOD: Individuals recognize that death is inevitable FACTORS THAT INFLUENCE ONES PERCEPTION OF GRIEF INCLUDE: Religious & cultural beliefs (life after death etc.) Relationship with the lost object- the more intimate the relationship with the deceased the more intense the grief is expressed Loss of a child- is exceptionally painful, it interfers with natural order (parents usually die before their children) CAUSE OF DEATH: Unexpected- poses difficulty for the bereaved in achieving closure(death from MI, CVA etc) Traumatic death- survivors suffer emotions of greater intensity than those associate with normal grief(the bereaved re-live the terror of the incident or imagine the feelings of horror felt by the victim. Suicide- survivors suffer feelings of guilt. NURSING CARE OF GREIVING CLIENTS (read on own) DEATH: the last stage of life Health care providers must come to terms with their own mortality & feelings about death in order to care for the dying patients & they need to know the ethical issues involved. LEGAL CONSIDERATIONS: ADVANCED DIRECTIVES- (NOT WRITTEN IN STONE) any written instruction, including a living will or durable power of attorney for health care that is recognized under state law. (applies to hospital, LTCF, HH agencies, hospice programs, etc) LIVING WILL/DURABLE POA: does not preclude the need for resuscitation. The medical record MUST have DNR order from MD (missie dercole) if this is in agreement with the clients wishes & with the advanced directives. HEALTH CARE SURROGATE LAW: it provides a legal means for specific individuals to make decisions for the client when the client can no longer do so. the law has developed a hierarchy of individuals who would act in the interest of the client. Spouse first followed by children. ETHICAL CONSIDERSTIONS: ethical decision making is a complex issue. Most difficult dilemma is determining the difference between killing & allowing someone to die by withholding life sustaining measures. EUTHANASIA IS VIEWED AS UNETHICAL STAGES OF DYING: Elizabeth Kubler Ross identified 5 stages of dying. Clients experience these stages in varying degrees & for varying lengths of time. Not all moves sequentially through each stage DENIAL: this stage is primarily when individuals “dr shop” or insist that there was a mix-up or mistake (ie this cant be happening to me) ANGER: the client feels powerless & they have no control of the situation so they become very angry. Anger may be directed at GOD, themselves, or others. (ie why me? I go to church) BARGAINING: client attempts to postpone or reverse the inevitable & sometimes it is not uncommon for the client to live long enough for the event & then die shortly after (ie let me live long enough to see my grandchild graduate) DEPRESSION: when the client realizes that the loss can no longer be delayed. Friends/family begin to visit less & less & this will compound their feelings & hopelessness. ( ie go away I just want to lie here in bed whats the use!) ACCEPTANCE: not everyone reaches this stage. Reinforcement of the clients feelings & sense of personal worth are important during this stage. Client sleeps more, not to avoid reality but because of the physical & emotional need for sleep. (ie I feel ready, at least I am more at peace now) NURSING CARE OF THE DYING CLIENT: read on own Remember: terminally ill clients are given palliative care (does not alter the course of the disease) palliative care is symptomatic RELIGION AND DYING ISSUES RELIGION: JUDAISM: LIFE SUPPORT WITHDRAWL: allowed under right circumstances (ie when life support is used to impede death) DEATH: suicide is forbidden, buried within 24 hours, NO cremation ORGAN DONATION: permitted except Orthodox Jews, autopsy permitted ISLAM: LIFE SUPPORT WITHDRAWL: permitted only if only serving to prolong death DEATH: suicide forbidden ORGAN DONATION: permitted, autopsy permitted CATHOLICISM/ORTHODOXY: LIFE SUPPORT WITHDRAWL: controversial/permitted if clients condition is hopeless. DEATH: prayers are offered at time of death ORGAN DONATION: permitted, cremation, autopsy permitted PROTESTANISM: LIFE SUPPORT WITHDRAWL: permitted if clients condition is hopeless. DEATH: prayers are offered at time of death ORGAN DONATION: permitted but rejected by Baptists & Pentecostal, burial, cremation, & autopsy are all permitted. JEHOVAHS WITNESS: LIFE SUPPORT WITHDRAWL: permitted if serving only to prolong death or if quality of life is nonexistent. DEATH: suicide is not approved ORGAN DONATION: individuals choice, autopsy permitted only if legally necessary. MORMONS: LIFE SUPPORT WITHDRAWL: client or family decision DEATH: cremation is discouraged, autopsy is family decision ORGAN DONATION: family decision HOSPICE CARE: the goal is control symptoms of terminal patients: provide pain relief. Hospice focuses on quality of life over quanity. Type of care for terminally ill clients Allows clients to die with dignity No more aggressive medical treatments RESPITE CARE: provides rest & relief for family members caring for patient. IMPENDING DEATH: Clients may exhibit signs of impending death then rally for several days. Some clients need permission to die from a loved one PHYSICAL SIGNS INCLUDE: Cheyne-Stokes Respirations: breathing with periods of apnea altered with periods of dyspnea. “death rattle” is secretions in the respiratory tract. Skin is cool, possibly pale, cyanotic, jaundice, or mottled. Pulse is rapid, irregular, weak & thread Cold cyanotic extremities & irregular respirations indicate death within 1 to 2 hours Confusion & lethargy Pupils fixed & dilated Client may “talk” to dead loved ones Last sense to go is HEARING Heart stops beating & within a few minutes cerebral death occurs. IF PATIENT DIES AT HOME (page 326): IMPORTANT: DO NOT CALL AMBULANCE OR 911!!! CARE AFTER DEATH: POST-MORTEM CARE: Given immediately after death but before the body is moved Before the family comes: remove all IVs, Foleys, put on a clean gown & cover them to their neck. ALGOR MORTIS: Body temp decreases lack of skin elasticity LIVER MORTIS: Bluish-purple discoloration of skin usually at pressure points Elevate head to prevent discoloration associated with pooling of blood RIGOR MORTIS: (2-4 hours after death) Body stiffens because of contraction of muscles Close eyelids, close mouth (don’t put dentures in) Position body in natural position Get body to morgue as soon as possible AFTER FAMILY VIEWS BODY: Place I.D. tags on (toe, wrist, & shroud) Place body in the shroud Transport body to morgue according to agency policy until it is transported to mortuary. Nursing responsibility: return deceased possessions to family (clothing, hearing-aid, jewelry etc.) LEGAL ASPECTS: MD determines cause of death Autopsy: may be mandated where there is unusual death (family must give consent) ORGAN DONATION: organs used for transplantation: Kidney Lungs Heart Liver Pancreas Skin Corneas Bones When family consents time is of an essence, donor team should be notified CARE OF FAMILY: Provide support Be informative Help family & be sensitive to their needs NURSE’S SELF- CARE Take time to cry with family Don’t try to be “supernurse”