Questionnaire The aim of this consultation is to obtain views from interested stakeholders and the Trust would be most grateful if you would respond by completing this questionnaire. Please answer each question by writing (preferably typed) your comments in the space provided. The closing date for this consultation is 5pm on Friday 8th May 2015 and we need to receive your completed questionnaire on or before that date. You can respond to the consultation in writing to the following address: Chief Executive Belfast Health and Social Care Trust c/o Corporate Communications Communications Department 1st Floor, Nore Villa Knockbracken Healthcare Park Saintfield Road Belfast BT8 8BH You can email your response to: stakeholdercomms@belfasttrust.hscni.net Text Phone: 07827 974240 Before you submit your response, please read Appendix 4 at the end of this questionnaire regarding the Freedom of Information Act 2000 and the confidentiality of responses to public consultation exercises. So that we can acknowledge receipt of your comments please fill in your name and address or that of your organisation if relevant. You may withhold this information if you wish but we will not then be able to acknowledge receipt of your comments. 1 SECTION 1: ABOUT YOU Consultee Details Question 1(a): I am responding as... (Please tick one option only) [ ] A Service User [ ] A Carer [ ] A Care Worker [ ] On behalf of a Provider Organisation [ √ ] Other: Trade union and professional organisation [ ] I want my response to be treated as anonymous. Question 1(b): Please enter your details below: Name Dr John Knape Job Title: (if applicable) Head of Communications, Policy and Marketing Organisation: (if applicable) Royal College of Nursing Address: 17 Windsor Avenue City/Town: Belfast Postcode: BT9 6EE Email Address: john.knape@rcn.org.uk 2 SECTION 2: THE REASONS AND NEED FOR CHANGE The reasons and the need for change is outlined in section 5 of the document informed by the following: EU Procurement Directives & Legislative Compliance Feedback from Service Users and Carers Strategic context and requirements of Transforming Your Care Feedback from Service Providers Question 2: Do you agree with the reasons and the need for change in the document? (Please tick one option only). [ ] Yes [ √ ] No If no, please explain why. The RCN does not necessarily dispute the need for change in the outline procurement model for domiciliary care services by reference to the factors outlined at section 5 of the consultation paper on pages 12 and 13. However, the RCN is unable to support the proposed reform model and supporting rationale because of our fundamental disagreement with the definition of domiciliary care set out in the foreword to the consultation document (page 5), at paragraph 1.1 on page 9 of the consultation document and elaborated upon at paragraph 2.2 on the same page. Firstly, the foreword states that domiciliary care services include: “… the Trust Programmes of Care for Older People, Physical and Sensory Disability, Mental Health, Learning Disability and Children”. Paragraph 1.1 provides a formal definition of domiciliary care but does not state by whom, with whom, or by what rationale this definition has been determined or agreed. Paragraph 2.2 states that domiciliary care services include inter alia assisting with “a service user’s health needs (eg managing medication)” and “facilitating the provision of food and nutrition”. Paragraph 2.3 includes palliative care within the scope of domiciliary care services. Paragraph 7.2.2 on page 15, sub-titled Specialist care, refers to “more complex packages, requiring clinical intervention”. If a service user 3 requires “specialist care” and “clinical intervention”, by definition this extends beyond the remit of domiciliary care and into the field of community nursing care, delivered by, or under the direct supervision of, a registered health care professional, most prominently specialist community nurses such as district nurses, community children’s nurses or community mental health nurses. These are not, in the judgement of the RCN, areas of practice that fall within the scope of domiciliary care. To suggest that they are is disingenuous and potentially dangerous. Paragraph 5.3 states that: “The future model will focus on the changing needs of service users providing the right level of care and support within the widest context of community care”. However, this statement does not appropriately delineate the type of care that is to be provided. Patients and clients with complex care needs being cared for at home may require support to meet their personal care needs. Domiciliary care workers are, of course, well-placed to meet these personal care needs. However, when it comes to meeting the health needs of patients and clients, they require skilled, professional nursing care directed, supervised or provided by a registered nurse who has been trained to provide that care and is accountable for the quality of care provided and the experience of the patient or client. We must never lose sight of the fact that people with personal care needs require personal care but patients and clients must be appropriately assessed and a prescribed plan of care developed to meet any identified health needs. That plan of care must be provided directly by, or implemented under the direction and supervision of, an appropriate health care professional. Where a patient or client has identified nursing needs, then care must be provided within a nursing context. The glossary at appendix one defines “care” as “where a care worker performs a task for the service user that they cannot do for themselves. This definition is imprecise. Is it intended that it embraces any “task”, including those related to a service user’s health needs? The RCN is unable to endorse the proposed outline procurement model for domiciliary care services because we fundamentally dispute the Belfast Health and Social Care Trust’s definition of domiciliary care and its conception of which professional groups should be delivering that care. We wish formally to record our concerns at this definition, which are further elaborated upon in response to question six below, and request an urgent meeting with the Belfast Health and Social Care Trust in order to address these issues. 4 SECTION 3: SERVICE PRINCIPLES Question 3: Do you agree with the service principles outlined in section 6 of the document? (Please tick one option only) [ ] Yes [ √ ] No If no, please explain why and / or let us know how you think these could be improved. It would be impossible to disagree with the criteria listed at paragraph 6.2 in respect of the delivery of any service. However, the key issue is that the RCN is unable to endorse the proposed model for purchasing domiciliary care services because, as noted in response to question two above, we fundamentally disagree with the Belfast Health and Social Care Trust’s definition of what constitutes domiciliary care. Paragraph 6.2.1 refers to “a range of social care provision” but does not specify how and to what extent this “range” will encompass the statutory, private/independent and voluntary sectors. Paragraph 6.2.3 proposes “no significant alteration to the proportionate split between statutory and nonstatutory services” but does not state how the Belfast Health and Social Care Trust defines “significant” in this respect. Paragraph 7.2.1 states that the Belfast Health and Social Care Trust will not “operate geographical zones within the trust area as part of its procurement model”, which could lead to concerns about inequity of service provision within and across the trust area. Paragraph 7.2.2 and paragraph 12.2 refer to a regional procurement process for meeting complex needs involving a combination of personal care services and nursing care services. The inclusion of nursing care services by definition takes this procurement process beyond the appropriate remit of domiciliary care. The RCN requests further details of this “regional procurement process” and by whom it is being conducted. Paragraph 7.4 refers to a service specification document that will be made available as part of the tender process. The RCN believes that this important document should be the subject of consultation and we are concerned that it has been omitted from the current consultation process. 5 SECTION 5: EQUALITY SCREENING SECTION 4: PROPOSED PROCUREMENT MODEL Question 5: This proposal has been equality screened as an ongoing screening. Do you agree with this outcome? The model for purchasing services from non-statutory providers is outlined in [section ] Yes9 of the document. [ √ ] No If no, please Question 4: let us know why. Do you agree with the Trust’s proposed model for purchasing services from nonstatutory providers? (Please tick one option only) [ ] Yes The RCN is unable to endorse any equality screening process associated with [ √ ]proposed the No model for purchasing domiciliary care services because, as noted throughout this consultation response, we fundamentally disagree with If no,Belfast pleaseHealth explainand whySocial and letCare us know howdefinition you think this couldconstitutes be improved. the Trust’s of what domiciliary care. We believe that the proposal to deliver aspects of nursing and health care within a domiciliary care model has significant equality and human rights implications. As noted previously, RCN is unable endorsetothe proposed model for More specifically, thethe RCN requests the to evidence support the conclusion purchasing domiciliary care because weproposal”. fundamentally disagree with (page 31) that “trust staff areservices not affected by this In relation to the the Belfast Health and Social Care Trust’s definition of what constitutes reference to TUPE arrangements (paragraph 7.4), the RCN does not accept the domiciliary care. this Thiscommentary is explained and in response tobelieve question two above and rationale behind nor do we that the explanation at elaborated upon in response to question six below. More specifically, section 13 provides any clear evidence of how the adverse effect upon service paragraph 9.1mitigated. refers (fourth bullet point) toand the Social allocation up toneeds 20% ofto be users will be The Belfast Health CareofTrust volume using “a flexiblein spot purchase framework”. What, precisely does this much more transparent its intentions in this respect. entail, what types of case are encompassed within its remit, in what sense is this arrangement “flexible”, and does this simply refer to the allocation of the residue of otherwise unallocated cases? The RCN believes it would be helpful if the Belfast Health and Social Care Trust could provide further information about these issues. Paragraph 10.2 refers to “the required standards and service users’ needs”. It is important to specify what these standards are, by whom they will be monitored, and which key performance indicators will be used to measure progress and audit compliance. 6 Freedom of Information Act (2000) – Confidentiality of Consultations Belfast Trust will publish an anonymised summary of responses following completion of the consultation process; however your response, and all other responses to the consultation, may be disclosed on request. We can only refuse to disclose information in limited circumstances. Before you submit your response, please read the paragraphs below on the confidentiality of consultations and they will give you guidance on the legal position about any information given by you in response to this consultation. The Freedom of Information Act gives the public a general right of access to any information held by a public authority, namely, Belfast Trust in this case. This right of access to information includes information provided in response to a consultation. We cannot automatically consider information supplied to us in response to a consultation as information that can be withheld from disclosure. However, we do have the responsibility to decide whether any information provided by you in response to this consultation, including information about your identity, should be made public or withheld. Any information provided by you in response to this consultation is, if requested, likely to be released. Only in particular circumstances would information of this type be withheld. 7 SECTION 6: FURTHER COMMENTS Question 6: Do you have any further comments you would like to make regarding the Trust’s proposal for the procurement model for domiciliary care services? [ √ ] Yes [ ] No If yes, please let us know what you think. Paragraph 11.2 refers to the introduction of an electronic call monitoring system that will inter alia facilitate communication and assist with the protection of lone workers. The RCN would be interested to know if the Belfast Health and Social Care Trust plans to make this system available to community nursing staff such as district nurses, who also face welldocumented difficulties in both these respects. The objective of “accurately recording the time spent by care workers in the home” should not be used as a means to impose arbitrary limits upon home visits that do not take into account the specific care needs of the individual service user. This consultation raises fundamental issues about the relationship between nursing care and domiciliary care and how this relationship is to be managed in the best interests of patient and clients. The DHSSPS Central Nursing and Midwifery Advisory Group [CNMAC], of which the RCN is in membership, has already been made aware of particular concerns within the HSC over the increasing extent of tasks and procedures being undertaken by direct payments staff, particularly within the practice areas of child health, adult physical and sensory care, and learning disability. The RCN is aware that individuals working in these roles within a domiciliary care framework are undertaking procedures such as insulin administration, tracheostomy care, catheterisation, enteral feeding and a range of other forms of care and intervention. The RCN has also been made aware of confusion over governance and liability around delegation in these circumstances. 8 For domiciliary care workers, residential care staff, and staff in supported living, it would appear that their roles and responsibilities have evolved, rather than been formally delegated, to the extent that they are undertaking tasks such as enteral feeding, stoma care, emergency rescue medication (for epilepsy), transcribing medication, minor dressings and catheter care. Also reported in this context are issues such as complex skin care management, complex care planning around bowel management and palliative care and the administration of medication (oral, liquid, creams, eye/ear drops) to individuals in their own homes. In summary and by way of a conclusion, the RCN reiterates that we are unable to endorse the proposed outline procurement model for domiciliary care services because we fundamentally dispute the Belfast Health and Social Care Trust’s definition of domiciliary care and its conception of which professional groups should be delivering that care. The RCN believes that this definition, alongside the issues outlined above, has significant implications for patient and client safety, quality and experience. We wish once again formally to raise our concerns over this proposed outline procurement model and its underlying assumptions. 9