Plymouth Dementia Action Alliance Meeting (PDAA) Tuesday 4th June 2013, 12:00-14:00 Windsor House, Plymouth, PL6 5UF. Present: Ian Sherriff (IS) (Vice Chair), Kayleigh Milden (KM), Keith Bucknall (KB); Heather Ogburn (HO), Ellie Imms (EI), Annemarie Nathan (AN), Kate Wells-McCulloch (KWM), Denise Gregson (DG), Karen Holmes (KH), Frances Marriot (FM), Colin Sturmer (CS), Helen Phillips (HP), Sam Buckthought (SB). Apologies: Mary Aspinall (Chair), Ruth Bishop, Russ Champion, Lana Helmore, Nicole Quinn, Karen Grimshaw, Teresa Barrett, Kathy Milosevic, Rachel Silcock Ian Sherriff takes Chair in absence of Mary Aspinall Topic Discussion Action Person(s) Responsible 1. Prime Minister’s Dementia Challenge IS announced the publication of the Prime Minister’s Challenge on Dementia Annual Report on Progress from the Dementia Challenge champion groups. (May 2013), which is available to download: https://www.gov.uk/government/publications /the-prime-ministers-challenge-on-dementiaannual-report-of-progress 2. G8 Summit IS announced that the Prime Minster is to promote a more international approach to dementia research at the next G8 Summit. 3. INTERREG IS reported that he expects a decision within the next three months regarding Plymouth University’s INTERREG bid of 1.4million. This will fund a major research project, in part, evaluating ‘dementia friendly communities’ in Plymouth, the Yealm Parishes, Devon and three Departments in France. The PDAA will be integral to this project. 4. Stoke Damerel IS reminded all about the Dementia Awareness Project celebration event at Stoke Damerel Community College on Wed. 26th June, 14:00-16:00, and encouraged all to attend. Please contact Lana Helmore at Stoke Damerel in the first instance to inform her that you intend to attend. 5. Dementia Strategic Leadership Workshop IS announced that a ‘Dementia Strategic Leadership Workshop’, is to take place from 12-13 June, at Bournemouth University. This is a joint initiative by Plymouth University and Bournemouth University, funded via the Department of Health. The programme of work has been designed to support strategic leaders in the South of England. Participants will be assigned a national dementia lead as a mentor. 6. Plymouth Pharmacies IS reported that David Bearman (Devon Local Pharmaceutical Committee) is working towards the aim of every chemist in Plymouth to become ‘Dementia Friendly’ and every member of staff to be a ‘Dementia Friend.’ 7. Arts & Minds IS reported that staff at Plymouth City Museum & Art Gallery are re-submitting the ‘Arts & Minds’ bid to the Arts Council shortly. He has been asked to write a letter of support. It is envisaged that a representative from the Museum team will be joining the PDAA within the next two months. 8. Plymouth City Council KM/IS reported on meeting with Rachel Silcock on 3/6/13. Over the next couple of months KM will be contacting organisations that have signed up to the Dementia Challenge at national level, and managers As in Discussion column KM within PCC, to arrange Dementia Awareness Sessions. KM reported that the PDAA page on the Dementia Action Alliance website is now live and affiliates’ action plans have been uploaded. IS reported it was discussed at the above meeting that it should be arranged for representatives from the PDAA to attend Council Ward Meetings and talk about Dementia and the work of the PDAA. This would help to promote the aims of Dementia Friendly Communities initiative across the city, as we should remember that Plymouth is made up of separate estate ‘communities’. 9. Dementia Friendly Community Awards New date for the event has been confirmed as Friday 2nd August 2013, 5pm, at the Reception Room, Council House. The event will be hosted by Cllr Tudor Evans. KM requested that she is informed of any updates to action plans by email. KM, RS to find out details of forthcoming council ward meetings. KM, RS and PDAA members as required IS will ask Angela Rippon if she is able to attend. IS IS requests that a least 50 window stickers are produced by PCC to give out at the event. 10. Letter from PM IS: reported that he received a letter of from the Prime Minister congratulating the City of Plymouth on progress its progress in KM and PDAA members as required RS, KM Dementia Awareness 11. PDAA Carers Group KB reported that he is setting up a PDAA Carers Group. The aims of the group will be making raising awareness of the issues at carers face and checking the actions/progress of the PDAA/PCC. IS raises point that the PDAA Carers Group also needs representation from people with dementia, and that KB needs to make contact with other carers groups in Plymouth to inform and include them. FM raises point that the PDAA Carers Group needs a contact within the CCGs/local GPs. She would see the PDAA Carers Group acting as a communication hub into the PDAA for other carers groups across the City. 12. Media coverage IS reported that the Plymouth Evening Herald is interested in running a regular column about the work of the PDAA. Suggests that one item could be about the PDAA Carers Group. 13. PAFCC HO reported on behalf of Plymouth Armed Forces Community Covenant (PAFCC) that she would be promoting Dementia Awareness and the PDAA (including PDAA Cares group) within SSAFA and Royal British Legion. HO will ask Cllr Murphy, (Chair of the PAFCC) if it is possible for a representative from the PDAA to speak at the next meeting of the PAFCC. IS will ask Mary Aspinall is she can attend. HO comments that Plymouth schools also provide a huge communication network to promote dementia awareness, including IS to speak with the Evening Herald Editor to arrange IS As in Discussion column HO, IS, MA parents’ groups. 14. Issues with Carers Assessment EI raised point that many spouses don’t see themselves as carers, but as wives or husbands; this means that Age UK often find it difficult to find carers representatives from older carers (over 60s). EI raises point that the system of Carers Assessments within Plymouth City Council Social Services are often not happening. She has received feedback that many carers are not comfortable with the system of having to make a ‘10 minute carers assessment phone call’ to PCC, as this would mean that they would have to discuss sensitive issues about care and health conditions in front of the person they are caring for. Ultimately this prevents many individuals from phoning the assessment number and they just carry on without any support. EI has also been told that some staff within the PCC Contact Centre who are not fully aware of the carers assessment system. 15. Road Map to Dementia Care HP suggested a flow chart to help carers with available services and what service feeds to what. This could be facilitated by PCC. DG commented that Age UK would welcome a carers flow chat as it would be a tool to help engage carers in the early stages of care. PCC need to look how the system of carers assessments can be improved. IS requests that EI could give Kayleigh some idea of the number of people that have complained about the carers assessment. KM to ask Rachel Silcock if money available within PCC to pay for the production of a carers road map. RS, MA, KM EI KM, RS KB, DG, EI to meet and explore how the road map should take shape. KB, DG, EI IS requests that PDAA members make use of this website to promote their services and activities. All PDAA members 16. Age UK befriending links DG reported that Age UK has received Lottery Funding to develop befriending links that will actively engage with isolated people in community. 17. Plympton activities AN reported on her volunteering work including her visit to the Carers Hub meeting at Harewood House, Plympton, and that all those present were keen to connect to other groups and events in the City. Announces the Memory Café/Drop In taking place at Plympton Library on Mon 10th June, 2-4pm, then on Mondays fortnightly. 18. Dementia Connect website IS announced that a website called ‘Dementia Connect’ will be launched around Oct/Nov 2013. This website will provide a nationwide directory of services relating to dementia. 19. PDAA work with care homes The PDAA aims to have Dementia Champion in each care home in Plymouth. Dementia Friends training could be run by IS, GG, KB and KM. KWM accepts KWM, KM and will attend IS suggests that KWM acts as a care homes the next care representative for the PDAA. home forum on 26th June and give a presentation with KM about the PDAA 20. Plymouth University Dementia Modules IS reported that Val Heath, (Associate Dean, Faculty of Health, Plymouth University) is currently writing modules on dementia care for the degree programmes in nursing and associated health professionals. 21. Wolferstans SB reported on behalf of Wolferstans. SB has enrolled for the Dementia Champions training course on 4th July. Wolferstans organised a dementia awareness tea party and raised over £200 for charity. Announced that Wolferstans are organising a Dementia Awareness outreach event which will take place on 8th August. The event is planned to take place at Plymouth Guildhall between 3-6.30pm, TBC. The event will be an opportunity for people to informally ask questions relating to the law, and will include contributions from Age UK, Dr Stephen Pearson and Prof George Giarchi. SB would welcome PDAA members to take part and there are opportunities to have information stands at the event. Wolferstans would like to repeat the event around every six months. Wolferstans will be running a ‘free will week’ whereby the individual will just be required to make a donation to the Alzheimer’s Society. SB reported that Wolferstans are happy to go out and talk to groups affiliated to the PDAA free of charge. Wolferstans are also launching a Bereavement Assistance Service, a fixed fee service that aims to relieve the stress of sorting out paperwork etc. after bereavement. 22. Media Coverage IS will contact BBC Radio Devon to request that the PDAA have a regular slot on the breakfast show at 7am. Members would have the opportunity to speak about their organisation’s role in the PDAA. 23. Forthcoming conference IS announced a conference will take place later on in 2013. Local organisations to talk about what they are doing for Dementia Friendly Communities. This conference will aim to span across disciplines and sectors. 24. Cann House Open Day KWM announced the Cann House Open Date, taking place on Saturday 29th June, and invited PDAA affiliates to attend. 25. Sunshine Care KH reports on behalf of Sunshine Care. Sunshine Care now has two Dementia Champions on their team. They are in the process of organising Dementia Friends sessions for their staff. Sessions will be starting at end on June and will be repeated regularly. Discussion about ‘this is me’ forms that give a history to a person, completed by friends and family, and is used in the process of review and assessment. Developing a specialist service which will attract new staff with an interest in supporting customers with dementia, as well as inviting interest from existing staff. Sunshine Care has spoken to the Alzheimer’s Society for advice on assigning care staff As in discussion column IS KM to attend to promote PDAA KM special dementia training. Sunshine Care is producing Dementia guidance notes to staff, with tips and techniques to help care for people with dementia. They will be Identifying carers who want to work with people with dementia. 26. Focus Oral Health CIC FM reports on behalf of Focus Oral Health CIC FM is through to second stage for a place on next Dartington 'School for Social Entrepreneurs' Programme. One aspect of her bid is the wish to develop Appointment Cards enabling easier access to healthcare for people with dementia. These cards will break down the details of a dental appointment in a format that everyone can understand. FM to email FM KM a paragraph explaining this. FM met with Andy Burnham (Shadow Health Secretary), to discuss issues relating to specialist care in the dental industry. Focus Oral Health is based in City Business Park, FM has talked to Sue Grant, Manager of the business park and Sue McCadie, from local Business Health Network, about the need to get dementia awareness sessions arranged within as many workplaces as possible. FM will raise dementia awareness at the next Plymdental CPD Group meeting on 22 June. FM is Co-ordinator of the group which is open to all the different dental team members. She will ask delegates to consider becoming Dementia Champions in their workplaces. Dementia IS, KB, GG, Friends FM announced next full day Plymdental CPD KM Information meeting is taking place on 5th Oct at Healthy Session to take Living Centre, Scott Hospital and requested place at this PDAA support for a Dementia Friends Information session from 13:30. FM welcomed event. kind offer from Wolferstans to attend. 27. Dartmoor Search and Rescue CS reported on behalf of Dartmoor Search and Rescue. Dementia awareness is at the heart of the organisation’s weekly training programme. Discuss that it would be useful to arrange a Dementia friend Session for DSRT. CS reported on SARMAN system, which is an IT programme that provides a profile of regular locations that a vulnerable person visits, so that they can hopefully be traced quicker if they go missing. IS suggests that DSR showcases SARMAN at the IT systems event he is organising at the House of Commons in Autumn 2013. 28. Plymouth University HP reported on Behalf of Plymouth University Dementia Research Team. Discussed ‘evaluation for community intervention’ research that will involve interviewing 10 people with a dementia and their carers. They will also be interviewing front line staff and managers involved in dementia care. This evidence will feed into a socio-economic audit relating to the sustainability of Dementia care/friendly communities. Reported on the first meeting of the Plymouth University Dementia Group on 28.5.13. 29. Dementia Friends IS requested that if any affiliates of the PDAA want to arrange a Dementia Friendly Information Session please contact KM. 30. International Alzheimer’s IS announced that his paper has been accepted for the International Alzheimer’s CS to email KM some possible dates to run DF information session. Society Conference Society Conference in Malta during October. Meeting ends at 14:10 Next Meeting: Tuesday 2nd July, 12:00-14:00, Windsor House