HMC Inpatient Palliative Care Consultation Rotation Learning Goals and Objectives OVERVIEW During this rotation, under the supervision of the palliative care team, interns and residents will provide inpatient palliative care consultation services to patients and families facing serious illness that will include: --Complex symptom management (pain, nausea/vomiting, constipation, anxiety, dyspnea etc.) --Understanding personal stories and how they relate to healthcare preferences and decision making --Cultivating prognostic awareness --Discussions regarding goals of care, resuscitation preferences and advance care planning --Religious/spiritual/cultural preferences and practices around serious illness and death --Assessment of decisional capacity --Emotional, psychological and bereavement support --Care of the imminently dying patient, including wishes for care before, after and at the time of death --Discharge planning, including long term care, outpatient palliative care, hospice eligibility and hospice referrals OBSERVATION AND FEEDBACK Communication is best learned through deliberate practice and this rotation provides unique opportunities for direct observation and feedback from supervising providers and your fellow trainees. All feedback should be timely, constructive and focused on key behaviors and skills. In general, if you are leading a visit, your supervising provider will do the following: 1. Set a Learning Goal: Before the encounter, they will help you identify the learning opportunity, outline a specific learning goal, and help frame the skill challenge associated with that goal (for example, identifying and responding to emotion). 2. Observe: Using active observation and real-time tracking they will collect data on the encounter. All trainees who are not leading the encounter will also write down their observations of the encounter. The supervising provider will also be there to guide the conversation when you are stuck. 3. Debrief: After the encounter, the group will briefly review the visit, focusing on the learning goal you identified and ask the following questions: a. What did you do well? b. Anything you would do differently next time? c. What is one thing you learned from this encounter that you want to use again? d. What do you want to work on during the next encounter? PALLITIVE CARE GOAL COMPETENCIES BY LEVEL OF TRAINING IN THE 5 CORE AREAS OF PALLITIVE CARE* Adaptive approach to full range of emotions COMMUNICATION Effective approach to strong emotion Basic approach to emotion Emotion Patient-Centered Communication Patient and Family’s Perspective Learner Demonstrate patient-centered communication (serious news, resuscitation preferences) Explore patient and family perspective on illness (concerns, values, preferences, goals) Student PAIN AND SYMPTOM MANAGEMENT Non-Pain Symptoms Anxiety, Depression, Delirium Assess and provide differential diagnosis, initial workup and treatment for non-pain symptoms Describe approach to diagnose anxiety, depression, delirium Describe key principles of opioids Opioids Pain Learner PALLIATIVE CARE PRINCIPLES AND PRACTICE Assess pain, distinguish nociceptive from neuropathic Student Effective patient-centered communication (prognosis, dying process) Explore patient and family perspective and align plan of care accordingly Adaptive patient-centered communication (uncertainty) Adapt plan of care to complex, competing and shifting priorities Resident Fellow Assess and manage common nonpain symptoms Use validated tools, employ a range of treatments, utilize the IDT, and manage toxicity for non-pain symptoms Treat pain using opioids, non-opioids and non-pharmacologic interventions Use validated tools, employ a range of treatments, utilize the IDT, and manage toxicity for anxiety, depression, delirium In depth knowledge of opioids, toxicity, use in substance abuse, legal and regulatory concerns Use validated tools, understand “whole pain”, employ a range of treatments, utilize the IDT and manage toxicity for pain Resident Fellow Assess, diagnose and provide initial treatment for anxiety, depression delirium, make appropriate referrals Apply key principles of opioids Lead the IDT Collaborate with members of the IDT Describe the roles of the IDT Interdisciplinary Team Prognostication Describe disease trajectory for common illnesses Palliative Care and Hospice Continuum Self-Care and Resiliency Learner Define palliative care and hospice continuum Reflect on personal experience of death and dying Student Estimate prognosis using evidence and knowledge for common illnesses Explain the palliative care and hospice continuum, make appropriate referrals Model self-reflection, acknowledge team distress Resident Estimate prognosis using multiple sources for common illnesses and some uncommon illnesses Educate patient, families and other providers about the palliative care and hospice continuum, follow patients across transitions Model self-care, lead team reflection, provide team and staff support Fellow PSYCHOSOCIAL, SPIRITUAL AND CULTURAL ASPECTS OF CARE Identify spiritual distress Spiritual Distress Provide initial support for spiritual distress, make appropriate referrals Integrate cultural concerns into the plan of care Identify cultural concerns Cultural Values, Beliefs and Practices Identify psychosocial distress Psychosocial Distress Learner Student TERMINAL CARE AND BEREAVEMENT Grief and Bereavement Tasks of Death Signs and Symptoms of Dying Ethics Learner Describe normal grief and risk factors for prolonged grief Describe tasks of death (pronouncement, family notification, autopsy) Identify common signs and symptoms of imminent death and describe initial treatment Describe principles of withdrawing or withholding life sustaining treatment and rationale for obtaining a surrogate Student Provide initial support for psychosocial distress, make appropriate referrals Resident Differentiate between normal grief and prolonged grief, make appropriate referrals Perform tasks of death Manage common signs and symptoms of imminent death Apply principles of withdrawing and withholding life sustaining treatment, evaluate decisional capacity, describe principles of physician assisted death Resident Screen for, and provide initial counseling for spiritual distress, utilize the IDT Anticipate and advocate for cultural concerns, connect patients and families to community resources Screen and provide initial counseling for psychosocial distress, utilize the IDT Fellow Assess and manage normal and prolonged grief utilizing the IDT, community resources and referrals when appropriate Support and counsel family through tasks of death, utilize the IDT Manage complex signs and symptoms of imminent death including terminal delirium, refractory pain and use of palliative sedation Understand and apply principles of palliative sedation, futility, use validated tools for decisional capacity, counsel patients requesting physician assisted death Fellow *These competencies are adapted from work by Kristen Schaefer and colleagues, published in Academic Medicine.[1] Schaefer et al. identified five content areas for palliative care: (1) Communication (2) Pain and Symptom Management (3) Palliative Care Principles and Practice (4) Psychosocial, Spiritual and Cultural Aspects of Care and (5) Terminal Care and Bereavement. Within these five content areas, they identified 18 different developmentally appropriate competencies and surveyed a national sample of palliative care education experts to rank the importance of these for medical students and residents. Though their project targeted physicians (medical students and residents), the vast majority of these competencies are relevant across disciplines. Additionally, we added the last column, for healthcare professionals specializing in palliative care, as an extension of these competencies and integrating the American Academy for Hospice and Palliative Medicine (AAHPM) fellowship competencies [2] and the quality standards introduced by the National Consensus Project for Quality Palliative Care [3]. CAPC MODULES https://www.capc.org/accounts/register/ https://www.capc.org/accounts/login/?next=/capc-central/login/ CAPC (Center to Advance Palliative Care) is an incredible national organization dedicated to increasing the availability of quality palliative care services for people facing serious illness. It provides tools, training and technical assistance necessary to start and sustain successful palliative care programs. This site if full of information, resources and updates on current events in palliative medicine. UW is a member and all employees of UW have access to their online resources. To register all you need is your UW email (go to the “register” link above) and then login to CAPC central where you can click on the CME/CE courses for pain management and communication. We recommend you complete these modules throughout your rotation. http://www.vitaltalk.org/ VitalTalk is a national non-profit started by our very own Anthony Back, MD, co-director of the palliative care center of excellence and his colleagues from across the country. Originally starting as OncoTalk, it was developed to help train oncologist better communication skills and has great expanded in to many other areas of medicine. There are great resources both for providers but also for educators. Under the providers tab, we recommend watching the family conference video for this rotation: http://www.vitaltalk.org/clinicians/family. REFERENCES [1] Schaefer KG, Chittenden EH, Sullivan AM, Periyakoil VS, Morrison LJ, Carey EC, Sanchez-Reilly S, Block SD. Raising the bar for the care of seriously ill patients: results of a national survey to define essential palliative care competencies for medical students and residents. Acad Med. 2014 Jul;89(7):1024-31. [2] American Board of Hospice and Palliative Medicine (ABHPM) Competencies Workgroup. Hospice and Palliative Medicine Core Competencies, Version 2.3. http://aahpm.org/uploads/education/competencies/Competencies%20v.%202.3.pdf. Accessed December 1, 2014. [3] Ferrell B, Connor SR, Cordes A, et al; National Consensus Project for Quality Palliative Care Task Force Members. The national agenda for quality palliative care: The National Consensus Project and the National Quality Forum. J Pain Symptom Manage. 2007;33:737–744. 29 National Consensus Project for Quality Palliative Care. Clinical Practice Guidelines for Quality Palliative Care. 3rd ed. 2013. http://www.nationalconsensusproject.org. Accessed December 1, 2014.