Commissioning and funding innovative
research, while providing support and
information for patients, carers
and healthcare professionals
Queen Anne House • Gonville Place • Cambridge CB1 1ND
01223 324359 • www.melanomafocus.com • 07867 808889
Mucosal Melanoma Guidelines – Invitation for Expressions of Interest
Melanoma Focus has begun preparatory work to set up a Guideline Development Group
(GDG) to develop guidelines for mucosal melanoma. The first guideline will address anouro-genital melanoma; subsequently a guideline on sino-nasal melanoma will be
developed.
Given the disease’s rarity, no randomised controlled trials have been identified for
mucosal melanoma, but there is a large body of information relating treatments to
outcomes. The challenge is to identify the relevance of the published data to current
clinical practice and produce agreed recommendations to guide healthcare professionals.
The GDG will be led by Dr Jerry Marsden, with project management and methodological
support and funding by Melanoma Focus. It will comprise approximately 12 members
from appropriate specialisations and interests:
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Gynaecological surgical oncologist
Urological surgical oncologist
Colorectal surgical oncologist
Medical oncologist with an interest in melanoma (and, if possible, in
gynaecological, urological or colorectal oncology)
Clinical oncologist with an interest in gynaecological oncology, urological oncology
or colorectal oncology
Surgeon with a major interest in melanoma
Pathologist with expertise in melanoma and gynaecological, urological or colorectal
oncology
Radiologist with expertise in melanoma and gynaecological, urological or colorectal
oncology
Specialist nurse with expertise in managing patients with gynaecological, urological
or colorectal oncology
Patient advocates/representatives
Trustees: Dr Paul Lorigan (Chairman) • Dr Katharine Acland • Mrs Deborah Beirne
Professor Martin Cook • Dr Pippa Corrie • Professor Richard Marais
Dr Jerry Marsden • Dr Paul Nathan • Mr Howard Peach • Professor Barry Powell
The Melanoma Research Foundation Limited operating as Melanoma Focus • Registered Charity No. 1124716
We expect the process to take 18 to 24 months, involving 9 to 12 one-day meetings in all,
which will be held in London. No fees will be paid but travel expenses may be claimed.
We hope to call the first meeting of the GDG during Q1 2016.
This initiative follows the charity’s support for a group that successfully developed
guidelines for uveal melanoma, receiving NICE accreditation in January 2015 (see
http://melanomafocus.com/activities-2/um-guidelines-project/ for further information). An
application will be made for the mucosal melanoma guidelines also to be granted NICE
accreditation; this means we must ensure compliance with NICE GDG requirements from
the outset.
We now invite expressions of interest in being involved in the first guideline (ano-urogenital melanoma) from those with requisite experience. It should be noted that GDG
members will be expected to give this work the highest priority and attend all the group’s
meetings; only those who are able to make this commitment should apply.
If you are interested in being considered as a member of the GDG please email Simon
Rodwell, CEO, Melanoma Focus at rodwell@melanomafocus.com in the first instance. We
will send you an application form to record your professional details and the reasons for
your interest.
Please contact Jerry Marsden (jerry.marsden@btinternet.com) or Simon Rodwell if you
have any queries.
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Trustees: Dr Paul Lorigan (Chairman) • Dr Katharine Acland • Mrs Deborah Beirne
Professor Martin Cook • Dr Pippa Corrie • Professor Richard Marais
Dr Jerry Marsden • Dr Paul Nathan • Mr Howard Peach • Professor Barry Powell
The Melanoma Research Foundation Limited operating as Melanoma Focus • Registered Charity No. 1124716