17 Finkle Street, Kendal Cumbria, LA9 4AB Helpline 01539 728180 Organ & Tissue Donor Fact Sheet Transplants transform lives Organ and tissue transplants are one of the most miraculous achievements of modern medicine. They are the best possible treatment for most people with organ failure. A transplant involves the donation of organs from one person to another and enables about 2,700 people to take on a new lease of life in the UK every year. The increasing effectiveness of transplantation means that many more patients can be considered for treatment in this way. But there is a serious shortage of donors. For some people this means waiting, sometime for years, and undergoing difficult and stressful treatment. For all too many it means they will die before a suitable organ becomes available. Organ Donation Facts What is the NHS Organ Donor Register? The NHS Organ Donor Register is, quite literally a life-saver. It is a confidential, computerised database which holds the wishes of more than 16 million people who have decided that, after their death, they want to leave a legacy of life for others. The register is used to help establish whether a person wanted to donate and, if so, what. Who can join the NHS Organ Donor Register? Everyone irrespective of age or health and who is considered legally competent can join the NHS Organ Donor Register. Your entry in the Register provides legal consent for the donation of your organs. Can I be a donor if I have an existing medical condition? Yes, in most circumstances. Having a medical condition does not necessarily prevent a person from becoming an organ or tissue donor. The decision about whether some or all organs or tissue are suitable for transplant is made by a healthcare professional, taking into account your medical history. Registered Charity Number 1141415 19 June 2015 Can I agree to donate some organs or tissue and not others? Yes. You can specify which organs you would wish to donate. Simply tick the appropriate boxes on the NHS Organ Donor Register form or on the donor card, and let those close to you know what you have decided. My relative wants to be a donor. What do I need to do when they die? Inform the healthcare professionals who are involved either with your relative's care or are helping you in the immediate period following their death that they wanted to donate. Do I need to discuss my wishes with my close family and friends? Yes, they need to know what you would like to happen after your death so they can confirm your wishes to NHS staff. If you register your wishes without telling the people closest to you, it may come as a surprise at a time when they are trying to deal with their loss. What will happen if my relatives object? We know that in most cases families will agree to donation if they knew that was their loved one's wish. If the family or those closest to the person who has died, object to the donation when the person who has died has given their explicit permission, healthcare professionals will discuss the matter sensitively with them. They will be encouraged to accept the dead person's wishes and it will be made clear that they do not have the legal right to veto or overrule those wishes. There may, nevertheless, be cases where it would be inappropriate for donation to go ahead. Does donation leave the body disfigured? Organs and tissue are always removed with the greatest of care and respect. This takes place in a normal operating theatre under sterile conditions by specialist doctors. Afterwards the surgical incision is carefully closed and covered by a dressing in the normal way. The operation is carried out by specialist healthcare professionals who always ensure that the donor is treated with the utmost respect and dignity. Only those organs and tissue specified by the donor or their family will be removed. Does being a donor cause delays to funeral arrangements? No. The donation operation is performed as soon as possible after death. How do I check and/or update my details? To check your current details on the Register please call 0300 123 2323 or write to the NHS Blood and Transplant department, address given at the end of this sheet. Will my details be given to other organisations? No. Can I change my mind? Yes. You can ring 0300 123 2323 or visit www.organdonation.nhs.uk/register and fill in the form asking for your name to be removed. Alternatively, write to the NHS Blood and Transplant department, address given at the end of this sheet. Would a donor's family ever know who the recipient was? Confidentiality is always maintained, except in the case of living donors who usually already know each other. If the family wish, they will be given some brief details such as the age and sex of the person or persons who have benefited from the donation. Patients who receive organs can obtain similar details about their donors. Those involved may want to exchange anonymous letters of thanks or good wishes through the transplant co-ordinators. Registered Charity Number 1141415 19 June 2015 Key Partners DVLA The Driver and Vehicle Licensing Agency (DVLA) – You can add your name to the Organ Donor Register through a tick box on the DVLA driving license application form. Since 1993 the scheme has been used by almost 10 million people to make their wishes known. Boots Anyone applying for a Boots Advantage Card can also join the Organ Donor Register by ticking a box on the application form. Since the scheme started in 2000 nearly 1.4 million people have applied to join the register through the scheme. Facebook Facebook users can share their decision to become an organ donor using the Timeline feature on their profile. Adding a Facebook 'Life Event' to your Timeline doesn't register you to the NHS Organ Donor Register but it is a great way of letting your friends and family know your decision. Family Doctors The form that patients complete when they register with a new doctor or GP surgery includes a tick box giving people the opportunity to join the NHS Organ Donor Register. The scheme has been running since April 1995 - and more than 4.5 million people have registered their wishes in this way. Passport Agency The UK Passport Agency sends an organ donation leaflet with every new passport. More than 300,000 people have chosen to leave a legacy of life in this way since the scheme was introduced in 1996. EHIC The Department of Health have been including organ donation registration forms with their mailing of European Insurance Health Cards (EHIC) since they began this scheme in July 2005. Over 110,000 people have joined the register through this route. Registered Charity Number 1141415 19 June 2015 How get on the Organ Donor Register Go to www.organdonation.nhs.uk to register online Pick up a registration form from your GP or hospital Call the free NHS Donor Line on 0300 123 23 23 Texting SAVE to 62323 Write to: NHS Blood and Transplant Organ Donation and Transplantation Directorate Fox Den Road Stoke Gifford BRISTOL BS34 8RR Registered Charity Number 1141415 19 June 2015