Buckinghamshire Assistive Technology (AT) Strategic Vision 2014-17 (Telecare and Telehealth) Buckinghamshire County Council Adults and Family Wellbeing & Children and Young People Chiltern Clinical Commissioning Group Aylesbury Vale Clinical Commissioning Group Buckinghamshire Healthcare Trust Bucks New University Centre of Excellence for Telehealth and Assisted Living Author: Adam Willison, Joint Commissioning Manager, Assistive Technology Contributors: Amy Moore, Joint Commissioning Manager, Transitions Dr. Tom Davis, GP Clinical Advisor Oliver Stykuc-Dean, Telecare Project Officer, Buckinghamshire County Council Adrian Timon, Telehealth Project Officer, Buckinghamshire County Council Firas Sarhan, Director of CETAL, Bucks New University Jo Fairley, Director, Healthwatch Bucks Graham Softley, Director of Information Technology and Digital Innovation, Buckinghamshire Healthcare Trust 1. Strategic vision for Buckinghamshire To deliver a broader, integrated and equitable AT offer for 10,000 social care, health and private retail users by 2017. There will be more emphasis placed on ensuring that the patient/service user and carers are at the heart of AT development, breaking down barriers to achieve greater equity of service. There will also be a greater drive to ensure barriers such as age, condition specifics and inter-agency working do not limit the ambition of achieving the desired co-creation, choice and relevance for the residents of Buckinghamshire. Despite ambitious aspirations, there is practical acceptance that provision will need to be long term and sustainable, whilst maintaining Buckinghamshire as a pioneer site for AT development. 2. Introduction We know that technology has the potential to enable people to live independent lives, by supporting them in managing their own care needs more effectively. We also know that technology can provide health and social care professionals with information that helps them understand changes in condition or welfare and when an intervention may be required. There is clear and well documented need to change the way social and healthcare demand is managed and although technology alone does not provide the answer, there is an opportunity now to embed it as part of whole system redesign. The real challenge is how do we ensure that the key stakeholder, the service user/patient, are at the heart of our AT commissioning decisions? The UK Government has created several initiatives in recent years to stimulate growth and required culture change in order to adopt AT e.g. Whole System Demonstrator trials, 3 Million Lives campaign (now known as TECS – Technology Enbaled Care Services), Digitalising the NHS, Telecare in England, Delivering Assisted Living Lifestyles At Scale (DALLAS). However, as has been discovered across several of these initiatives, no amount of money and targets can resolve the issues facing health and social care in the 21 st century. Nor can it detract from the repeated mistake of trying to make technology the focal point, as opposed to the service user/patient. The NHS and local government are large, complex organisations, where change will not readily occur and AT needs to be seen as part of a long term development plan to modernise services. We already use technology in many aspects of our everyday lives, for example, internet shopping or banking, so the next 3 years will be an important period for AT as developments strive to become equally mainstream. This is particularly challenging against a back drop of barriers in organisational culture, budgetary restrictions, significant legislative change, increased public expectation and how the demands of an ageing population with complex needs can be met. At the same time health and social care providers are facing increasing expectation to reduce costs, whilst maintaining or improving the quality of care. This had led to an active search for different ways of delivering care that do not compromise quality and dignity, but help to prevent ill health, promote healthy lifestyle choices and can be financially sustainable. The AT market continually develops and innovates at a rapid pace. This is seen as one of the limiting factors of some academic research that has investigated the efficacy of AT interventions. Whilst evidence based practice is important in supporting commissioning decisions, by the time research papers are published, the relevance of these results can be questionable due to time that has elapsed. Strategy in Buckinghamshire will need to continue to focus on local area need, innovating and trialing new AT as it comes to market. This will help to ensure that the county remains at the cutting edge of technology development for the benefit of its residents. The commissioning challenge with this approach is to ensure that AT is trialed and developed, with adoption becoming ‘business as usual’ in increasingly shorter periods of time and at reduced cost. With a firm foundation now in place to significantly grow AT in Buckinghamshire, this is our prime opportunity to ensure that it forms a core part of the continued integration of health and social care and meets the requirements of major legislative change, such as that laid out in the new Care Bill. 3. Background AT (encompassing terms such as Telecare, Telehealth, Digital Innovation, Telemedicine, Environmental Control Solutions and Stand Alone Technology) is the overarching definition which is applied to the use of technologies that assist people in their daily life. People are generally familiar with Telecare as pendant alarms which social care have traditionally provided and Telehealth as vital signs monitoring equipment which has traditionally been delivered by health. AT has seen considerable growth in Buckinghamshire over the last 5 years. The current, county wide programme, managed within Joint Commissioning, is delivered via an integrated and diverse network of partnership and contract arrangements that span public, private and voluntary sectors. The Telecare element is a fully operational service within Buckinghamshire County Council (BCC), with Telehealth a developing programme within Aylesbury Vale and Chiltern Clinical Commissioning Group areas (AVCCG and CCCG). The programme of work to date has involved close collaboration between partners, with the new 3 year vision having been developed further to both BCC and NHS Commissioning Board recommendations around AT Strategy: Should focus on the traditional spectrum of AT, but include greater emphasis on high volume, low cost systems and mobile phone technology. With cross cutting themes, AT should link to relevant Programme Boards and Operational Plans to ensure accountability with respective areas e.g. Mental Health and Learning Disability. Should have clear link into Information Management & Technology (IM&T) and Service Re-design strategies. Consider evaluation of pilot studies, with outcome measures inserted in relevant contracts in order to give clear indication of the benefits (e.g. reduction of admissions to A&E). 4. National and international drivers People with health and social care needs are on the increase, with demographics changing and people living longer. For example, patients with long term conditions are high users of health services, accounting for 55% of all GP and 68% of all outpatient and A&E appointments in the UK.1 The current approach to the delivery of care to people with social and health care need is widely recognised as unsustainable both in terms of cost and quality of care. For example, the NHS already spends 70% of its budget on the 15 million people who have one or more long term condition. With an ageing population, patient numbers are expected to grow by 23% over the next 20 years. 2 A 2013 report from the House of Lords Public Service and Demographic Change Committee identified increasing use of technology and eHealth as a potential way of reducing pressure on the UK health and social care systems. AT should be an important element of any strategic initiative to improve and encourage the management and self-care of users and patients in their own homes. Carefully and appropriately deployed, AT can support people with social and health care needs, in order to improve their independence and quality of life; 1 Healthcare without walls – A framework for delivering healthcare at scale. John Cruickshank November 2010 – 2020Health.org Healthcare without walls – A framework for delivering healthcare at scale. John Cruickshank November 2010 – 2020Health.org 2 enable self-management and targeted intervention by the appropriate practitioner; reduce emergency hospital admissions and A&E attendances; and focus on educating and empowering patients, reducing short, medium and longterm demands for care. 3 The aim of any AT programme should be “to embrace the use of informatics, disease management/care co-ordination, and home ‘tele’ technologies to enhance access to care and improve the health of designated individuals and populations – with the specific intent of providing the right care, in the right place, at the right time.” 4 With a population of just over 500,000, Buckinghamshire is similar in size to Gloucestershire, where around 1% of the population have a long-term condition such as heart failure, chronic obstructive pulmonary disease, diabetes or coronary heart disease. Only 5% of the population account for half of all stays in hospital and in 2010/11 the above four primary diagnoses generated 4,386 emergency admissions, a 4% increase on 2009/10. These admissions cost approximately £13.7m in 2010/11, an increase from £12.8m in 2009/10. In Gloucestershire the cost of emergency admissions for these individuals is around 35% more than it was for the same period last year.5 Patient/service user benefits of using AT include: Enhanced quality of life (for users and their carers); empowerment to self-manage their condition with less anxiety; and better clinical outcomes: mortality, symptom management and medication titration. 6 Health and social care economy benefits include: Reduction in unplanned hospital admissions; fewer A&E visits and ambulance call-outs; less outpatient attendances; reduced need for traditional homecare, increased case management potential; savings associated with a reduction in the use of services in the acute sector and operational efficiencies in community care.7 AT in health must be clinically driven and in social care, practitioner driven. Constructive clinical and practitioner engagement should not be underestimated, in terms of spending time with professionals and patients to both design the intervention and implement the service. AT should, where possible, be 3 Healthcare without walls – A framework for delivering healthcare at scale. John Cruickshank November 2010 – 2020Health.org 4 Telehealth- What can the NHS learn from the US Veterans Health Administration? John Cruickshank January 2012 – 2020Health.org 5 Managing long term conditions with telehealth – Patient survey results June 2012 – NHS Gloucestershire 6 The NHS Gloucestershire telehealth programme – the largest GP referring service in the UK – NHS Gloucestershire / Tunstall 7 The NHS Gloucestershire telehealth programme – the largest GP referring service in the UK – NHS Gloucestershire / Tunstall embedded within existing care pathways and is not just about equipment in isolation, but how AT augments into an integrated, long-term condition and case management strategy. AT and its ‘wrap around’ services, bring the rest of the health and social care system together for the patient, acting as a hub that can enable swifter flow of communication and data, in order to aid effective decision making. The Veterans Healthcare Administration (VHA) in the United States can be equated in particular to the NHS. To achieve the staffing and logistical efficiencies seen in the VHA (between 20% – 56% reductions in patient utilisation, depending on disease group), the NHS needs to find ways to deliver a step-change increase in the scale of AT implementation.8 The VHA data can be extrapolated to demonstrate the potential decrease in resource utilisation through the use of scalable AT, as demonstrated in the table below: VHA has demonstrated that those who manage the delivery of AT, need not be local to the patient or user, but do need to interact closely with the responsible community care professional. As part of an overall redesign of care, AT represents a vital element in the shift towards more preventive care, reducing the imbalance between hospital and community care spend and making better use of scarce resources. 9 A technology-enabled care service needs considerable investment and time to generate results. It also needs substantial change to the organisational Healthcare without walls – A framework for delivering healthcare at scale. John Cruickshank November 2010 – 2020Health.org 9 Healthcare without walls – A framework for delivering healthcare at scale. John Cruickshank November 2010 – 2020Health.org 8 infrastructure, particularly around training and competencies and performance management systems. To provide the confidence required for large scale referrals into an AT service, clinical and practitioner engagement is essential, based around clear evidence of benefit to specific patient and disease groups.10 5. Local achievements Buckinghamshire is recognised nationally as one of the leading local government and health authority areas for AT development and innovation, providing national benchmarking advice to the Cabinet Office, NHS England, Local Government Association and internationally, to organisations such as Veteran’s Healthcare Administration in the USA. First Telecare strategy (2008) and delivery plan (2009-13). First Telehealth strategy and associated work programme (2011). Over £4 million investment by BCC and NHS in AT development since 2008. Over 4,000 users supported with AT across Buckinghamshire. AT eco-system fully established (2011) linking assessment, installation and maintenance, 24/7 monitoring and 24/7 community response with technology enabled service providers and excellent links with partners and key stakeholders. Partnership Board (2008) and Overview and Advisory Group (2011) established to inform and drive the strategic direction of AT and exploit development and economic opportunities across a community of academia, industry, third sector and health, housing and care. National level evidence also confirms that the strategic commissioning approach for AT taken by Buckinghamshire since 2008 has been sound. These can be summarised as follows: Patient/service user age being a barrier to adoption of AT is a myth. When supported by a robust assessment and ancillary services, people can very quickly adapt to various AT interventions. There are significant cultural barriers around acceptance of AT as a means of clinical delivery. This has been highlighted through a lack of delivery of appropriate training and change management. Healthcare without walls – A framework for delivering healthcare at scale. John Cruickshank November 2010 – 2020Health.org 10 AT is moving rapidly towards cloud based data and mobile technology solutions, with over 8 in 10 adults going online and 6 in 10 adults using a smart phone. Integration and interoperability of systems has highlighted limitations of AT deployment across health and social care and the importance of having open-protocols. 6. What is patient/service user engagement? One key point that has never been fully addressed in AT commissioning is ‘who is the primary customer? the healthcare professional? the patient? the service user?’ Because the patient/service user has historically been seen as a passive recipient, with decisions and budget resting elsewhere, commissioners and industry have continued to evade this question. We have predominantly delivered a technology driven, halfway house of initiatives. Take medication concordance, where we trialed a system to remind patients to take their medication. Not only did we not sufficiently engage with the patient, we did not take the time to fully understand which AT intervention, if any, was required. For example, what would be more appropriate for the recipient? A complicated dispenser, or a simple text message reminder? The drive for better engagement is one of the recent government initiatives aimed at putting the patient at the centre of health and social care development. But if industry has struggled to make this logical step, why do we expect the public sector, charged with delivering against tough patient/service user engagement targets to do any better? There are 3 important questions that need to be addressed: 1. Do we understand what consumer/patient focus actually means? 2. What personal and organisational barriers are there to making this change? 3. Even if we remove these barriers, what active steps do we then need to take? Rather than answering these questions in general terms, it would be preferable to get straight to the role AT has in not only addressing the direct issues of service delivery, but also in helping both social care and health become positively patient focused, with subsequent gains in outcome and returns against effort and spend. The two main challenges are around how to re-focus what has already started and how to start with a new focus. And all this with the baggage of our old habits, no particular training and a system set up to deliver ‘to’ the patient, rather than ‘with’. Strategic recommendations: 1. Use AT as a reason to start understanding the complete patient pathway and acknowledge that the current system is poor in delivering patient centric actions. 2. AT provides an opportunity for entirely new ways of thinking, allowing us to take a fresh approach and to challenge old habits. 3. AT goes well beyond purely service delivery, with the process being less important than the objective, experience and result for patients e.g. how can we motivate someone to take better care of themselves? 4. There needs to be a realisation that patients hugely impact on the value of AT outcomes. 5. Ask the right question of patients and do not reinvent the wheel – work closer with organisations established to support this. We should not ask vague, open ended questions like ‘what do you need?’ or ‘how could this be improved?’, but rather ‘what’s stopping your service from being brilliant?’ and ‘what aspect is not working as well as it could?’ It is easier to provide solutions to practical negatives, than futuristic positive. It is also important to remember that patient groups are on catch up as well, with their voices needing more training and support to give strategically valuable insights. 6. Accept that although a small part of the Health and Wellbeing journey, our input can have wide-ranging positive impacts. Promote this fact. 7. Sell the opportunity, but do not suggest AT can ‘replace’ face to face contact with a professional, but rather that it can dramatically improve the quality of partnership before the contact, during the contact and after. The distinct possibility of no longer needing the contact is best seen as a pleasant result, rather than a key objective. If we focus on these recommendations, we will become great at asking the right questions and from this, we can discover the right answers are there waiting to be given by patients and also by ourselves. 7. Achieving the strategic vision for AT A strategic delivery plan (see Appendix A) has been developed setting out the objectives and actions to achieve the strategic vision for AT over the next 3 years. At the moment the plan focuses on 2014-2015 but it will continually be updated as the AT work programme progresses. 8. Conclusion This is an exciting time in the delivery of AT in Buckinghamshire; to have adapted the service from infancy to a fully functional system has been a significant achievement. However, the greatest test will now be to ensure that this service continues to deliver the best outcomes for our residents and that they are assured the support received from us is of an outstanding quality. If the goals set out in this document can be driven by our service and gain support from our organisation, there is no reason why we cannot create a financially selfsustaining AT service that continues to pioneer and innovate within the field of care delivery. Further reading http://www.carersuk.org/news/press-releases/carers-missing-out-ontransformative-telecare Carers UK overview of Telecare access for carers and service users http://www.telecarelin.org.uk/_library/Resources/Telecare/Telecare_advice/Newsl etter/Telecare_LIN_eNewsletter_April_2014_Supplement_BCF_Final.pdf Assisted Living Innovation Platform overview of Telecare health and social care integration through Better Care Fund (BCF) http://www.scotland.gov.uk/Resource/0041/00411586.pdf Scottish Government Telecare and Telehealth Vision 2012-15 http://www.england.nhs.uk/2013/11/15/new-tech-imprv-hlt-serv/ NHS England and Department for Communities and Local Government Technology Enabled Care Services (TECS) forthcoming 3 year Vision. http://www.insidecommissioning.co.uk/article/1286743/ccgs-commissionsuccessful-telehealth-services Inside Commissioning, Tackling Telehealth – How CCG’s can commission successful Telehealth Services http://www.kingsfund.org.uk/topics/telecare-and-telehealth/what-impact-doestelehealth-have-long-term-conditions-management Kings Fund – What impact does Telehealth have on long term conditions management? http://www.rsm.ac.uk/academ/downloads/telemedicine.pdf Royal Society of Medicine eHealth and Telemedicine Section Overview http://www.telecare.org.uk/standards/telecare-code-of-practice Telecare Services Association (TSA) Integrated Code of Practice