Tourette Syndrome Public Health National Education and Outreach Program A Community and Public Health Partnership The Tourette Association of America is working with the U.S. Centers for Disease Control and Prevention (CDC) to increase public awareness and provide information to people with Tourette Syndrome (TS) so they can receive needed health services, be more accepted by those around them, and succeed in school and work. The Tourette Association of America and CDC are working to: Improve the diagnosis and treatment of TS Providing authoritative, accurate and current informational programs for physicians, health care providers and educators will improve their ability to identify, diagnose, and make referrals for treatment. Increase the understanding of what it means to live with TS Educating friends and family, educators, coworkers, and the community about TS will help them understand the symptoms, reduce bullying, and decrease stress for people living with TS. Support people with TS Understanding that people who have TS cannot help having tics and are not being disruptive on purpose; information, support and understanding often help to diminish tic symptoms. Resources Developing and providing current and usable health information is an essential part of the Tourette Syndrome Public Health National Health Education and Outreach Program. Since the program’s launch, this partnership has produced a variety of learning resources and programs, available through in--‐person presentations, electronic, and print media. A hallmark of the Tourette Syndrome Public Health National Education and Outreach Program is bringing experts to the community through live education programs designed to meet the needs of physicians, educators, psychologists, and social workers. Additionally, resources have been developed for people living with TS and their families, as well as for the general public, to foster widespread awareness and knowledge of this complex disorder. Information for individuals and families. TOURETTE ASSOCIATION OF AMERICA offers resources and programs to help people living with TS and their families. Psychosocial Issues - (Articles on Social Functioning; Associated Physical Health Issues; Receiving a Diagnosis of Tourette Syndrome) http://tourette.org/Medical/medtrt_psychosocial.htm Webinar: Transitions to Independence http://tourette.org/aPeople/Youth/Webinar-Transitions022415.htm Webinar: Bullying Prevention http://tourette.org/aBullyingPrev/BullyingPrevTSWebinar102414.htm Webinar: Vocal Tics in the Classroom http://tourette.org/Education/VocalTicsWebinar051414.htm Webinar: TIC Managements 101 for Parents: A CBIT Perspective http://tourette.org/Medical/CBITParentsWebinar0814.htm Tourette Association of America 2014 National Conference Videos http://tourette.org/Z_TSA_video/2014ConfVideos.html Newly Diagnosed/Getting Started http://tourette.org/ZNewDg2012_1/GettingStarted_1.html (Also available on DVD*) Tourette Association of America website bullying prevention resources http://www.tourette.org/aBullyingPrev/bullyingprevention_main.html Tourette Association of America 2012 National Conference videos http://tourette.org/Z_TSA_video/2012ConfVideos.html Youth Ambassador Program http://tourette.org/aPeople/Youth/YouthAm.htm Living With TS http://tourette.org/aPeople/LivingWithTS/LivingTS.htm (continued) Tourette Syndrome Public Health National Education and Outreach Program (continued) CBIT (Comprehensive Behavioral Intervention for Tics) - pamphlet - English, Spanish, Chinese, or Korean CBIT (Comprehensive Behavioral Intervention for Tics) – Video http://tourette.org/Z_TSA_video/2012ConfVideos.html#CBIT (Also available on DVD*) Intervención Global de Comportamiento para Tics (CBIT, por sus siglas en inglés) Video (same as above with Spanish subtitles) http://tourette.org/ZCBIT_I_SubT/CBIT_I_SubTitled.html Outreach to the community. The Tourette Association of America works to raise public awareness and counter media stereotypes about TS. Mike Higgins: Overcoming The Odds http://tourette.org/Z_TSA_video/MikeHiggins/MikeHiggins.html (Also available on DVD*) Spanish language “mini--‐website” http://tourette.org/aTSA_Espanol/bienvenidos.html What is TS pamphlet http://tourette.org/aMedical/whatists_cov.html - What_is_TS_pamphlet (Also available as printed copy*) Tourette Association of America Speakers Bureau http://tourette.org/aChapters/2009ChpLd_SpeakersBureau.html Information for Health Care Professionals. The Tourette Association of America works to educate and identify physicians and health care professionals who work with children, families, and individuals living with TS. Guide to the Diagnosis and Treatment of Tourette Syndrome Booklet/DVD* Tourette Syndrome: A Compendium for Physicians and Allied Health Professionals CD/DVDs* Tourette Syndrome Overview for Social Workers http://tourette.org/ZBudWoo/content.html(Also available on DVD*) CBIT (Comprehensive Behavioral Intervention for Tics) http://tourette.org/Z_TSA_video/2012ConfVideos.html#CBIT (Also available on DVD*) Video Guide to the Diagnosis of Tourette Syndrome (DVD*) 5th Annual Tourette Association of America Internat’l Medical&Scientific Symposium http://tourette.org/Z_IntSciSymp5/IntlSciSymposTS5_contents.html Grand Rounds/Medical Presentations http://tourette.org/aProfessionals/tsamed/tmd.html Information for Education Professionals. Tourette Association of America provides information for educators and families to improve teaching strategies and the learning environment in order to end stigma and to support acceptance and inclusion of students with TS in school settings. Tourette Syndrome in the Classroom, School, and Community http://tsa‐usa.org/ZEdDVD/MainMenu.html (Also available on DVD*) Education Audio Presentations http://tourette.org/Education/audio_presentTSA.htm Tourette Association of America Education In‐service http://www.tourette.org/EducationInservice/Online.html (Also available on DVD*) Learning Resources for Education & Allied Professionals Booklet/DVD* For more information: Websites: http://tourette.org http://www.cdc.gov/tourette The above is a list of selected materials and programs and is not all‐inclusive. The websites offer in‐depth information on many aspects of TS not covered in the resources cited above. TSA offers many resources and referrals to help people with TS and their families cope with the problems that occur with TS. * To request materials indicated by an * above, please visit http://tourette.org/forms/tsacdc_order_form.html The Tourette Syndrome National Public Health Education and Outreach Program is supported by Cooperative Agreement number CDC-RFA-DD13-12302 from the U. S. Centers for Disease Control and Prevention. The contents of this brochure are the responsibility of the authors and do not represent the official views of the CDC or the Tourette Association of America Inc.