FINAL Project Scope Outcome Measures and Reference Packages for Psychosocial Disability Introduction The intent of this project is to determine appropriate psychosocial impairment severity indicators and/or functional assessments which could be used by the NDIA and assist in the development of reference packages for psychosocial disability. This project may also assist with arrangements for access for people with psychosocial disability by providing a better understanding of functional assessments/ outcome measures currently used assessing functional limitations for people with a psychosocial disability, and which measures may be most appropriate to inform the in the NDIA Access process. The Agency strategic plan sets out the goals of: a) People with disability are in control and have choices, based on the UN Convention on the Rights of Persons with Disabilities b) The National Disability Insurance Scheme (NDIS) is financially sustainable and governed using insurance principles c) The community has ownership, confidence and pride in the National Disability Insurance Scheme and the National Disability Insurance Agency. In order to meet these goals, the Agency is required to: • Collect data on the number of participants, the characteristics of these participants (to allow analysis of reference groups), the outcomes for these participants, and the cost of supports provided to participants. • Develop a detailed understanding of deviations between actual and expected experience and hence identification of cost drivers. • Identify drivers of good and bad outcomes – benefits to participants, their families and the community The Productivity Commission intended that people with psychosocial disability would be included in the Scheme. This included costings for an estimate of 57,000 people who would be eligible for individually funded packages of support, noting that a range of support packages was included in the costing from low through to high support needs. At full scheme, the NDIS is expected to cover 419,500 people across Australia, at a total cost of $14.7 billion (2013/14 figures). These 419,500 participants were split into cohorts based on age, health condition, and level of functional support need. Each cohort was assigned an average expected cost per year, known as the reference package. Reference packages provide an expected annual funding level for participants with similar support needs and characteristics. Reference packages mean that there is a link between resource allocation to individual participants and the overall funding envelope. Reference packages play a crucial role in scheme monitoring. Detailed analysis of actual experience compared with this expected experience provides management with the information required to identify potential cost pressures. While severity indicators, outcome measures and reference packages have been developed and implemented for a number of prevalent conditions within the NDIA, this work has yet not 1 been completed for people with psychosocial disability. It is important that this work is done in conjunction with key stakeholders in the mental health sector and captures and utilises the experience of the mental health sector and particularly the community managed mental health sector in the use of functional assessment, outcome measurement and lessons learned in implementation of these. It is also important that this work makes reference to the Mental Health Operational Access Review, the findings of the Identification of Supports Project and other projects of the mental health work plan as well as the work of the Scheme Actuary. Scope The scope of this project will be to: To determine the NDIA specifications for a psychosocial disability severity indicator/ functional assessment for use in reference packages. To identify functional assessments, outcome measures and/or severity indicators currently used in the mental health/ disability fields. This will include leveraging work undertaken by the Independent Hospital Pricing Authority (IHPA) on costing community mental health services where available. To review these assessments/ measures/ indicators for applicability and/or best fit within NDIA access processes and the development of reference packages. This may include determining assessments that provide short term solutions and/ or the need to develop new severity indicators and/ or functional assessment processes. To engage an expert panel to develop reference packages for people with psychosocial disability. to review key literature/ evidence and make recommendations to the Agency. To work with the mental health sector to arrive at a shared and clear understanding of the use of functional assessment, outcome measures, psychosocial disability severity indicators and the role of reference packages within the NDIA. Where they arise, identify further longer-term changes that may be required for the Scheme and ensure these issues are addressed in the NDIA mental health work plan. Where they arise, identify opportunities within the Mental Health sector for capacity building in order to address barriers to access and support needs for people with psychosocial disability, including the roles of their families, peers and other significant people in relation to the access, outcome measurement and planning processes and ensure these issues are addressed in the mental health work plan. Key Dates It is anticipated the project will run from March 2015 – December 2015. See attached project plan for deliverables, timeframes and key milestones dates. 2 Governance This project will be overseen by Eddie Bartnik -NDIA Strategic Advisor and Sarah Johnson NDIA Scheme Actuary. The Mental Health Sector Reference Group will also provide input and oversight for the project. In accordance with Agency arrangements and understandings of co-design, the project director will liaise with the Mental Health Sector Reference Group and key internal stakeholders for input into the design of the project. Proposed Work Plan – 2015 Task Date Comment Background research for project proposal/due diligence Draft documentation circulated to MH project team EMG signoff resources Brief Mental Health Sector Reference Group Select Project Director EMG signoff project brief Identify expert panel members Feb 2015 Complete Feb 2015 Feb 24 2015 March 4 2015 March 2015 March 3 2015 September 2015 Complete Complete Complete Complete Complete In process COB September Timetable meetings for working party and invite identified stakeholders. Research and review functional assessments, outcome measures and severity indicators and provide background summary for expert panel. Key actions and activities to be undertaken by expert panel with assistance of the project lead September 2015 October 2015 October December 2015 Develop recommendations from Working Party and October refer to Mental Health Sector Reference Group for December review 2015 NDIA Mental Health Sector Reference Group to December provide recommendations to EMG 2015 due 14 - - 3