July 19, 2011
Idaho Summit on Autism Spectrum Disorders
Action Plan
July 19, 2011
Submitted by Interagency Planning Group following February, 2011 Interagency Autism Planning Group Meeting
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July 19, 2011
Goal/Impact Statement
Idaho has a high quality, comprehensive, coordinated, family-centered, accessible, cost-effective system of supports for
children and youth with autism spectrum disorders (ASDs) by:
 Identifying children as early as possible;
 Providing effective, evidence-based services; and
 Provide supports to meet the needs of these children, their families, educators, and their communities in order for
each child to reach his or her potential.
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July 19, 2011
Interagency Action Plan
Area:
Diagnosis, Assessment, and Prevalence
Goal:
Children are correctly screened, assessed, diagnosed in all critical areas at the earliest possible age.
Outcome Measure:
Outcome Measure:
Outcome Measure:
Percentage of children identified corresponds to national prevalence data (NIH, IDEA, CDC etc.).
Percentage of Health Care Providers conducting ASD screening of all children by 18 months of age.
Percentage of IDEA Part C and Part B providers conducting developmental and ASD screening as a part child find
activities.
Resources:
AAP, Family Practitioners, Medicaid, Infant Toddler Programs, Developmental Disabilities, public schools, Autism
parent and advocacy groups, private providers, Center on Disabilities and Human Development (CDHD),
ISU/BSU/UofI, school nurses, WIC and Public Health, Idaho 211, Juvenile Justice, Idaho Telehealth at ISU/BSU,
Idaho P.L.A.Y Project
** Outcome measures added or revised, and activities required by Act Early State Systems Grant and National Professional Development Center in Autism
State Partnership Grant since April, 2010 have been added in italics
***Proposed changes based on feedback from February 2011 IAPG mtg. are in highlighted in yellow.
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July 19, 2011
Activity (what we will do to turn the curve)
1. Screening:
a. Update Idaho screening and
assessment document: Autism
Spectrum Disorders: A Guide to
Best Practice in Screening and
Assessment (linkage to use of
assessment information o design
of interventions)
i. Identify appropriate
screeners for various age
groups
b. Increase awareness of Act Early
initiative through public
awareness resources of the ACT
Early initiative (current Act Early
State Systems Grant), especially
to parents and other underserved
groups
c. Promote universal screening for
ASD in all children at 12, 18, and
24 months of age by physicians
(Idaho AAP and ID Assn of Family
Physicians), childcare providers,
early intervention, FACS, and
preschool personnel for both
developmental concerns and ASD
early red flags
i. Childcare Health
Consultants as next
target population for
training
a.
b.
c.
d.
e.
f.
g.
Timeline
(start & end)
Assessment document
by April 15, 2010
Through Act Early minigrant and state
systems grants
beginning April 2010
for planning training
for physicians on ASD
screening, and
November, 2010
respectively
See b, 4,
Webinar series on
assessment (screening,
diagnosis, assessment
for intervention, linking
assessment and
intervention) Fall,
2011, August 2011
webinar for special
education directors
and consulting
teachers on ASD
Project, webinars,
supports, critical need
for early identification
and intervention
appropriate to ASD
See b
See b
See b
Person/ Agency
Responsible
SDE
DHW
Public Health
Sherry Iverson/AAP
Dr. Leavell
Migrant Council
Tribal Health rep
Family Practitioners
Head Start
IdahoStars
Childcare Health
Consultants
Quality: How well are the activities working?
(Evaluation strategy)
Plan developed to provide Assessment
document and training using AAP and Act Early
Resource packets to primary medical care
providers.
Record of referral rates established and tracked
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July 19, 2011
d.
e.
f.
g.
h.
ii. Continue to seek funding
for regional screening
clinics
For school personnel ensure
training on screening, diagnosis,
linking to intervention especially
at preschool level
Promote universal screening for
ASD in all IDEA child find activities
for both developmental concerns
and ASD early red flags.
Provide training on early
screening (M-CHAT) 18, 24
months through Developmental
Milestones (ITP online
monitoring) OR physician practice
direct screening
i. 30 physician practices
statewide
ii. St. Lukes Grand Rounds
iii. 2 live webinars then
archived on Idaho
Training Clearinghouse
Ensure connections are made to
intervention offered by DHW,
SDE, etc.
Develop and provide family
roadmap, 100-day kit
h. To be determined, 100day Kit for families
being disseminated
through Act Early State
Systems Grant
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July 19, 2011
2. Assessment
a. Update Idaho screening and
assessment document: Autism
Spectrum Disorders: A Guide to
Best Practice in Screening and
Assessment (linkage to use of
assessment information o design
of interventions)
b. Provide training to all
Infant/toddler and school
personnel- See previous section
ensure training on screening,
diagnosis, linking to intervention
especially at preschool level
c. Assist partners (e.g. AAP Idaho,
DHW) in providing training to
primary medical care and other
health care providers who engage
in diagnosis
d. Align screening and assessment
with Medicaid redesign
requirements for assessment
required for eligibility.
3. Identify sources of surveillance and
prevalence data, compile annually and
report to public and all state agencies
such as;
a. American Academy of Pediatrics,
Center for Disease Control, NY
Times, NIH
a. April 15, 2010 revision
b. Webinar series on
assessment (screening,
diagnosis, assessment
for intervention, linking
assessment and
intervention) Fall,
2011, August 2011
webinar for special
education directors
and consulting
teachers on ASD
Project, webinars,
supports, critical need
for early identification
and intervention
appropriate to ASD
c.
SDE/Mary Bostick LEAD
CDHD/Julie Fodor
Invited participants:
Dr. Leavell
Dr. Whitney
Paul Norstag
Mary Bostick
Julie Fodor
Mary Jones
Betsy Wilson
Jaynetta Rasmussen,
Document adapted/developed, dissemination
plan developed for full Summit group approval
CDHD
Infant Toddler
DD
Medicaid
SDE
SDE gather National Prevalence Data to report
Annual Data Report beginning 2011-1012
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July 19, 2011
Interagency Action Plan
Area:
Effective Interventions
Goal:
Individuals with autism spectrum disorders and their families will receive evidence-based interventions by trained
interventionists that are of sufficient quality and quantity to meet their specific needs based on their age and
abilities and that result in measureable progress.
Outcome Measure:
Percentage of families that report they are satisfied with the services their child receives (e.g. receive the right
services, at the right time, in the right amount to achieve best outcome) using current IDEA Part C and B measures
Raise score on program quality indicators developed by the National Professional Development in Autism
monitoring in every 5 years.
Develop appropriate data to indicate delivery of appropriate, post-school outcomes (IDEA Part B Data), and parent
measures.
Outcome Measure:
Outcome Measure:
Activity (what we will do to turn the curve)
1. Program Assessment:
a. Adopt the NPDC on ASD Autism Program
Environment Rating Scale through the
NPDC State Partnership Grant for Program
Assessment at all levels (infant toddler,
elementary, secondary
b. Develop and implement a plan for
comprehensive data collection and analysis
regarding the program quality Indicators
from all constituents (families, direct
services personnel, etc.).
Timeline (start &
end)
a. July 2012ongoing with
yearly
training plan
submitted
and carried
out by
interagency
partners
b. As above
c. Beginning
2011
Person/Agency Responsible
SDE
DHW
ASD Planning Committee
Quality: How well are the activities working?
(Evaluation strategy)
Program assessment:
a. Adopted
b. Disseminated with training to
Infant/Toddler and school personnel
c. Annual increases in scores on Quality
Indicators reported to ASD Policy
Group
c. Align with Medicaid redesign measures:
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July 19, 2011
Activity (what we will do to turn the curve)
Timeline (start &
end)
Person/Agency Responsible
Quality: How well are the activities working?
(Evaluation strategy)
See above,
ongoing annual
plan
SDE
DHW
IHEs
 Training Provided
 Training evaluations positive and
reflected in monitoring of programs using
PDA Program Assessment
 Increase in Program Assessment and
competency-based intervention following
training
CDHD
SDE
DHW
IPUL
Data collected and reported to all agencies
encourage Medicaid to adopt family
indicators
2. Training on evidence-based practices:
a. Expand CDHD/SDE Autism Supports Project
to train school personnel in current
evidence-based treatment packages and
interventions (e.g. PDA evidence-based
practice briefs, Foundations in ASD, Autism
Internet Modules)
b. Expand cross-system coordination, and
family involvement
August, 2010
c. Develop and sign interagency agreements
for CDHD, SDE, Medicaid and DHW
d. Garner agency support for ongoing advisory
group
e. Align with Medicaid redesign
f.
CDHD liaison coordinates quarterly
conference calls among agencies
g. CDHD liaison coordinates bi-yearly web
conferences with ASD Advisory Group
h. Disseminate evidence-based ASD practices
widely through personnel preparation,
CDHD website, and public policy activities
(e.g. PDA Evidence-Based Practice Briefs)
3. Provide online course materials for
graduate level course on ASD supported by
the Teacher Certificate Project to all IHEs
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July 19, 2011
Activity (what we will do to turn the curve)
Timeline (start &
end)
Person/Agency Responsible
Quality: How well are the activities working?
(Evaluation strategy)
4. Provide ongoing short web-based training
opportunities
5. Short web courses (e.g. 3-4 webinar series,
2 hours per webinar)
6. Short just-in-time training opportunities
(e.g. 1 hr max)
7. Provide information on EBP to EC
Consortium
8. Access to services: establish a familyfocused and easily accessible system:
a. Develop and implement a plan to
evaluate access to services for children
and youth with ASD.
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July 19, 2011
Interagency Action Plan
Area:
Family Involvement
Goal:
Family members will have an increased opportunity and choice to partner in the design, delivery, and
implementation of plans for their child.
Outcome Measure:
Outcome Measure:
Percentage of families that report they are satisfied with the services their child receives (e.g. receive the right
services, at the right time, in the right amount to achieve best outcome) using current IDEA Part C and B measures
Increase percentage of parents report that they received information and/or training on evidence-based practices
and who report their training increased their skills to participate as an equal partner in the design, delivery and
implementation of the plans for their child.
Activity (what we will do to turn the curve)
1. Develop a statewide format for a
child/student Portfolio. This would
be used by the child/student and
family to communicate with new
programs/service providers/etc.
Timeline (start Person/Agency
& end)
Responsible
Quality: How well are the activities working? (Evaluation
strategy)
Committee
selected Nov.
2010?
Increase parent satisfaction.
Portfolio
developed
May 2011
DHW
SDE
Family subgroup
of ASD Task Group
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July 19, 2011
Activity (what we will do to turn the curve)
Timeline (start Person/Agency
& end)
Responsible
2. Develop a statewide orientation
packet for families that describes
the Idaho ASD model for service
delivery system.
a. Health care providers
b. Infant Toddler Program
c. Public schools
SDE
3. Develop or adopt a family
satisfaction survey to be completed
through web-based and hard copy
formats.
SDE
4. Use family surveys currently used by
IDEA Parts C and B
5. Include state ASD Parent, Advocacy,
and support groups in Advisory
Group to assist in guiding parent
training
Quality: How well are the activities working? (Evaluation
strategy)
Increase in parent satisfaction
DHW
IPUL
Increase in parent satisfaction
DHW
Reviewed at
ASD Advisory
Meeting
9/2010
IPUL
SDE
DHW
IPUL
Federation of
Families
TV Autism
Panhandle Autism
Surveys adopted and used
Increase in parent satisfaction
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July 19, 2011
Interagency Action Plan
Area:
Public Policy
Goal:
Children with autism and their families receive continuous coordinated services, supported by public
policy, from the time of initial diagnosis for as long as needed.
Outcome Measure:
Outcome Measure:
Percentage of families that report they are satisfied with the services their child receives (e.g. receive the right
services, at the right time, in the right amount to achieve best outcome) using current IDEA Part C and B measures
Development of an Interagency Agreement/MOU across agencies that deliver services to children and youth with
ASD.
Activity (what we will do to turn the curve)
1. Develop an ASD Needs Assessment to
identify gaps in service
Timeline
(start & end)
1. Sept.
2010
3. SDE
4. DHW
5. Medicaid
2. By May
2011
6. CDHD
a. ASD Advisory Group to provide
guidance on needs assessment
2. CDHD summarizes and reports findings to
Interagency group and ASD Advisory
Group
Person/Agency
Responsible
Quality: How well are the activities working?
(Evaluation strategy)
7. Needs Assessment summary created,
disseminated, summarized
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July 19, 2011
Timeline
(start & end)
August, 2010
and annually
Person/Agency
Responsible
CDHD
DHW
SDE
Quality: How well are the activities working?
(Evaluation strategy)
4. Reviews funding in Interagency MOU
annually and revise as needed/possible to
address gaps.
August, 2010
and annually
Funding proposals reviewed and adjusted in MOU
annually
5. Develop Interagency MOU: to include
protocol, policy and procedure guidance
for sharing data, mutual training, and
identification of resources to establish
effective practices in screening,
assessment, evidence-based
interventions.
a. Act Early and ASD Interagency
Agreement to be carried out
though coordination by ASD
Supports Project at CDHD
b. Develop a mechanism to ensure
local interagency planning and
agreements for service delivery.
August 2010
and annually
Annually
CDHD
DHW
SDE
Utah LEND
CDHD
SDE
DHW
Activity (what we will do to turn the curve)
3. Review and refine existing policies that
affect children and youth with ASD to
identify changes or additions to current
policies.
Policies, procedures changed through whatever
mechanism is needed (e.g. proposed rules,
memo/handbook changes, etc.)
State interagency MOU/agreements in place.
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July 19, 2011
Activity (what we will do to turn the curve)
6. Educate policy makers, legislators, and
local communities regarding evidencebased practices for children with ASD and
state resources.
Timeline
(start & end)
Legislative
sessions
Person/Agency
Responsible
ASD Advisory
Group
CDHD
DHW
SDE
Quality: How well are the activities working?
(Evaluation strategy)
Awareness level materials available on all state
websites (e.g. Idaho Training Clearinghouse,
Idaho Child, etc.) and disseminated to legislators,
hospitals, etc.
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July 19, 2011
Interagency Action Plan
Area:
Personnel Preparation
Goal:
All personnel who impact the delivery and provision of services to children and youth with ASD have adequate
knowledge, skills, and abilities to support increased success for children with ASD in home, school, and community.
Outcome Measure:
Outcome Measure:
Increased percentage of personnel meeting high quality personnel competency indicators.
Increased knowledge, skills, and ability from personnel development activities using pre-post data.
Activity (what we will do to turn the curve)
1. Disseminate low-incidence course
sequence to all IHEs: a personnel
development system that is based on
coordination/linking of existing efforts
(e.g. Autism Supports Project, Teacher
Certificate Project) and ensure that
training and consultation on evidencebased ASD practices is disseminated
statewide for public and private
providers, families, primary medical
providers, and IHEs.
Timeline
(start & end)
Person/Agency Responsible
SDE
DHW
DDAs (IADDA)
CDHD
BSU
ISU
U of Idaho
Quality: How well are the activities
working? (Evaluation strategy)
System developed
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July 19, 2011
Activity (what we will do to turn the curve)
Timeline
(start & end)
Person/Agency Responsible
Quality: How well are the activities
working? (Evaluation strategy)
2. Work toward reinstatement of an
endorsement on special education
certification based on 2009 CEC
advanced professional standards for
Developmental Disabilities and Autism
Spectrum Disorders
SDE
DHW
DDA Association (IADDA)
CDHD
BSU
ISU
U of Idaho
Personnel Competencies developed.
3. Develop and implement pre-post
measures of personnel competencies
for personnel based on 2009 CEC
advanced professional standards for
Developmental Disabilities and Autism
Spectrum Disorders.
CDHD- Lead
SDE
DHW
DDA Association (IADDA)
BSU
ISU
U of Idaho
Increase in assessed competencies.
4. Using adopted competencies for highly
qualified personnel, develop selfassessment tools to be used with staff
that impact delivery and provision of
services to ASD.
CDHD- Lead
SDE
DHW
DDA Association (IADDA)
BSU
ISU
U of Idaho
Self-Assessment finalized and disseminated
with training.
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July 19, 2011
Activity (what we will do to turn the curve)
Timeline
(start & end)
Person/Agency Responsible
Quality: How well are the activities
working? (Evaluation strategy)
6. Continue through the Autism Support
Project, to develop/disseminate
distance and face-to-face personnel
development activities (accessible
statewide) to meet competencies as
outlined on personnel development
plan.
Sept. 2007
CDHD- LEAD
SDE
DHW
DDA Association (IADDA)
BSU
ISU
U of Idaho
PDA Activities developed and disseminated
annually through websites.
7. Develop a state interagency agreement
on personnel development around
ASD.
Fall 2006
CDHD- LEAD
SDE
DHW
Agreement in place
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July 19, 2011
Interagency Action Plan
Area:
Research
Goal:
Create a research subcommittee of the Idaho Policy Council on ASD that ensures the Council recommends
implementation of evidence-based practices that will result in positive life outlooks for people with autism.
Outcome Measure:
Outcome Measure:
Outcome Measure:
Number of programs, providers and organizations implementing Best Practices recommendations.
Number of policy changes as a result of research activities.
Number of system changes in Personnel Preparation, Assessment/Diagnosis, Intervention, cross
systems coordination, organizational structures, family support, based on research outlines.
Activity (what we will do to turn the
curve)
1. Identify external resources to
address Idaho ASD research
agenda.
2. Use national sources of information
(e.g. OSEP, NIH) to compare Idaho
data to national data. Develop gap
analysis to drive research agenda.
Timeline
(start & end)
Person/Agency
Responsible
Quality: How well are the activities working? (Evaluation
strategy)
IHEs LEAD
ASD Policy Group
CDHD
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July 19, 2011
ATTACHMENT 1
ACRONYMS/ABBREVIATIONS USED IN THIS DOCUMENT
Definition
Acronym
Acronym
Definition
ASD
Autism Spectrum Disorder
MOA
Memorandum of Agreement
CEU’s
Continuing Education Units
OT
Occupational Therapy
DDA
The Developmental Disability Agency
PBS
Positive Behavior Supports
Developmental Disabilities Agencies
PDA
Personnel Development Activities
Developmental Disabilities – Children’s Mental Health
PT
Physical Therapy
DDA
DD-CMH
DHW
Department of Health and Welfare
PSRs
Psychosomatic Rehabilitation
SDE
State Department of Education
ESC
EPSDT Service Coordination
ESL
English as a Second Language
ST
HCP
Health Care Providers
SSI
Social Security Insurance
TSC
Targeted Service Coordination
UCLA
University of California Los Angeles
HQ
IARC
Highly Qualified
Idaho Research Consortium
IBI
Intensive Behavior Intervention
LEA
Local Education Agency
IATP
The Idaho Assistive Technology Project
MOA
Memorandum of Agreement
Individuals with Disabilities Education Act
OT
Occupational Therapy
Individual Education Program
PBS
Positive Behavior Supports
IDEA
IEP
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July 19, 2011
Acronym
Definition
Acronym
Definition
Federation of Families for Children’s Mental Health
PDA
Personnel Development Activities
IFSP
Individual Family Service Plan
PT
Physical Therapy
IHE
Idaho Higher Education
IFFCMH
PSRs
Psychosomatic Rehabilitation
SDE
State Department of Education
IPUL
Idaho Parents Unlimited, Inc.
LEA
Local Education Agency
SSI
Social Security Insurance
MOA
Memorandum of Agreement
TSC
Targeted Service Coordination
OT
Occupational Therapy
UCLA
University of California Los Angeles
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