Paediatric Hearing Services Information Folder Derriford Hospital Derriford Road Plymouth PL6 8DH Tel: 0845 155 8155 www.plymouthhospitals.nhs.uk Your child was seen today in the Audiology Department and the results have indicated a permanent hearing loss. There are many reasons why this may have happened and lots of different levels of hearing loss. It is worth noting that for approximately ⅓ of children there is no clear diagnoses or reason why this has happened. The investigation into the cause of the hearing loss will be ongoing for some time and may include treatment with hearing aids. Please refer to the conclusions in the report you were given today for your own child’s management plan and if you have any questions at any time, please get in touch. This folder will introduce the people and services who will be working with you and your child in the coming months. It can also be used to keep all the letters, reports and information you are given about your child’s hearing loss to build up a detailed record of their care. It would be very helpful to bring this folder with you to all of your child’s appointments Audiology The Audiology Department sees patients of all ages who have hearing and balance disorders. The Department carries out a variety of different tests, depending on the age and ability of the patient and whether they have any specialist hearing problems, including hearing loss and tinnitus. Once the tests are completed the team can make recommendations and provide appropriate treatment. The Audiology service is based at two sites: Audiology Department Level 7 Outpatients Derriford Hospital Derriford Road Plymouth PL6 8DH Telephone 01752 431251 Email: plh-tr.PlymouthPaediatricAudiology@nhs.net Audiology Department Child Development Centre Scott Business Park Beacon Park Road Plymouth PL2 2PQ The Audiology team sees children from birth to adulthood living in Plymouth, West Devon and East Cornwall for detailed hearing assessments, advice and appropriate management of permanent hearing loss. This will include fitting hearing aids and other appropriate listening devices, together with specialist advice and information. We often work closely with colleagues in education as well as medical colleagues in Children’s Community Health Services (consultant paediatricians) and the Ear Nose and Throat Department (consultant ENT). Members of the Audiology Team Adam Beckman Head of Audiology Services Email: adam.beckman@nhs.net Hilary Winsor Lead Diagnostic Audiologist Email: hilarywinsor@nhs.net Stuart Harris Lead Paediatric Audiologist Email: stuart.harris1980@nhs.net Rowena Freeland Senior Paediatric Clinical Scientist Email: rowenafreeland@nhs.net Sarah Worrell Senior Paediatric Clinical Scientist Email: sarah.worrell@nhs.net Katy Cartwright Senior Paediatric Audiologist Email: katie.cartwright@nhs.net Sara Bilas Paediatric Audiologist E mail: sara.bilas@nhs.net Linda Hornsby Paediatric Associate Practitioner E mail: linda.hornsby@nhs.net Advisory Teams for Sensory Support The Advisory Teams for Sensory Support provide support for children and young adults and their families. This support is offered from birth through to the child leaving school. The support is given by Qualified Teachers of the Deaf (QTOD). All teachers are experienced mainstream teachers with additional specialist qualifications. Access and Inclusion Workers and Support staff complement the work of the teachers. Plymouth Advisory Team for Sensory Support (PATSS) Douglass House, Douglass Road, Plymouth PL3 6NP Tel: 01752 308738 Email: patss@plymouth.gov.uk www.plymouth.gov.uk Cornwall Hearing Support Team The Educational Audiology Centre, Priory Road, St. Austell PL25 5AB Tel: 01726 61004 East Devon – Babcock LDP Great Moor House, Bittern Road, Sowton, Exeter EX2 7NL Tel: 01392 384819 Email: Christopher.Grimes@babcockinternational.com www.babcock-education.co.uk North Devon – Babcock LDP The Civic Centre, North Walk, Barnstaple EX31 1EG Tel: 01271 388700 Email: Charlotte.Lynch@babcockinternational.com www.babcock-education.co.uk South Devon – Babcock LDP Windmill House, Ashburton Road, Totnes TQ9 5JT Tel: 01392 386880 Email: Sue.Carter@babcockinternational.comm www.babcock-education.co.uk Ear Nose and Throat (ENT) The Ear, Nose and Throat (ENT) Outpatient Department is located on level 7 of Derriford Hospital. In addition to providing a general ENT service the Department has a variety of special skills. The Department works closely with Audiology, Speech and Language Therapists and Hearing Therapists in order to offer the best possible service to its patients. Your child may see an ENT consultant to review test results or for an opinion on ear surgery. Mr Medcalf Consultant Otolaryngologist Email: mmedcalf@nhs.net Child Development Centre (CDC) Plymouth Child Development Centre is a multidisciplinary Specialist Child Development Centre which provides both initial outpatient assessment and continuing treatment and support for children. The centre offers help to children with developmental disorders that may result in physical, sensory, communication, emotional or learning difficulties. Your child’s medical management will be coordinated by a consultant paediatrician. Dr Vinthagen Consultant Paediatrician Email: dag.vinthagen@nhs.net Dr Marsh Consultant Paediatrician Email: benmarsh@nhs.net Child Development Centre Scott Business Park Beacon Park Road Plymouth PL2 2PQ Tel: 0845 155 8174 West of England Cochlear Implant Programme The West of England Cochlear Implant Programme (WECIP) provides cochlear implants for adults and children throughout the South-West. It was established as the Regional Centre in 1995 and now carries out around 100 operations a year. Cochlear implants are electronic devices that can help profoundly and severely deaf people to hear. There are different sorts of cochlear implant, but they all have internal parts, implanted surgically, and external parts, worn on the ear. Although they do not restore normal hearing they can provide an awareness and understanding of sound. The multi-disciplinary WECIP team includes ENT Consultant Surgeons, Audiological Scientists, Teachers of the Deaf, Speech and Language Therapists, Clinical Psychologists and a Paediatrician. Careful assessments are carried out to check whether a child referred to the team might benefit from an implant and information is shared to help families decide whether they want to go ahead. If the decision is taken to proceed, there’s an operation to implant a receiver and electrode array, followed a month later by fitting the external parts, the sound processor and transmitter. The external parts look rather like an ordinary hearing aid. After that there is careful follow-up, where families, local professionals and the WECIP team work closely together to help the child make best use of the implant and if possible learn to listen and talk. Teachers and therapists on the team carry out home and school visits, and families attend audiology clinics in Bristol, Taunton and Exeter. Early referral, assessment and implantation make a significant difference to how well children do with their implants. Research worldwide shows that a delay in implantation and a long period of deafness result in a poorer overall outcome. The WECIP team aims to offer implants to babies around their 1st birthday, or as soon as possible after loss of hearing. For more information, please see the WECIP website or contact the programme directly: Jenny Maddocks, Paediatric Co-ordinator, West of England Cochlear Implant Programme, Children's Hearing Centre, Level D, St Michael's Hospital, Bristol BS2 8EG Telephone: 0117 3421607 Email: Jennefer.Maddocks@UHBristol.nhs.uk Website: www.uhbristol.nhs.uk/wecip Speech & Language Therapist (SaLT) The Speech and Language Therapists work with parents, nursery and school assistants and teachers and other professionals. Therapy may be offered at a variety of settings. The Speech and Language therapist will usually aim to see a child from 2-2½ years onwards or earlier if requested by an Advisory Teacher of the Deaf working with the child. Joint visits may then be arranged. Families, teachers and the Speech and Language Therapist will work together and discuss how to help your child develop the best possible communication skills. If you have any concerns please talk to your Teacher of the Deaf. Speech and Language Therapists in your area Plymouth Jude Kelly Highly Specialist Speech and Language Therapist Estover Health Centre, Leypark Walk, Estover, Plymouth PL6 8UE Cornwall Rachel England Specialist Speech and Language Therapist Educational Audiology Centre, Priory Road St Austell PL21 5AB Devon Jo Anning Specialist Speech and Language Therapist Newton Abbot Hospital, West Golds Road Newton Abbot TQ12 2TS Children’s Disability Team, Plymouth The Children's Disability Team provide support and services to disabled children and their families across Plymouth. Social workers take the lead role in co-ordinating and carrying out assessments of the needs of disabled children and their families in accordance with government and local guidance for Children in Need, Looked After Children and Child Protection, ensuring the most cost-effective and beneficial support packages are established, delivered and monitored. The Children’s Disability Team accept referrals by the Advice and Assessment Service and The Single Point of Contact where the assessed needs are primarily in relation to permanent and/or significant disability. The team has close links with colleagues across the service and offer consultation, advice, information and joint assessment where needed. Children’s Disability Team Children’s Integrated Disability Service Plymouth City Council Plymouth PL1 2AA Tel: 01752 307264 Email: spoc@plymouth.gov.uk National Deaf Children’s Society The NDCS is the only charity solely dedicated to providing support, information and advice for deaf children and young people, their families and professionals working with them. The Freephone Helpline provides emotional and practical support where a trained team offers clear, balanced information on many issues relating to childhood deafness, including schooling and communication options. Freephone Helpline Number: 0808 800 8880 Available Monday to Thursday 9.30am to 9.30pm and Friday 9am to 5pm Email: helpline@ndcs.org.uk Plymouth & District Deaf Children’s Society The Plymouth and District Deaf Children’s Society is the local branch of the National Deaf Children’s Society. Our aims are to support families of hearing impaired children by providing a forum to talk about all the aspects of hearing loss and to promote social activities for families of hearing impaired children. We organise various events for all age groups including ski tubing nights, theatre trips, adventure days and parties, to name but a few. Yvette Beer, PDCS Chair Telephone: 01752 770257 Mobile: 07718 826887 Email: volunteerbeer@hotmail.co.uk Jo Samanovic, PDCS Secretary Telephone: 01752 209064 Mobile: 07952 327804 Email: s.jo@blueyonder.co.uk Cornwall Deaf Children’s Society Contact: Richard Margetts 41 St Stephens Road, Saltash PL12 4BQ Telephone: 01752 847044 Email: chairman@cornwalldcs.org.uk East & Mid-Devon Deaf Children’s Society Claire Molloy, Chairperson Telephone: 07761 941769 Email: emddcs@hotmail.co.uk Michelle Ford, Events Organiser and Fundraiser Telephone: 07876 372618 Email: fordjma@aol.comm Lucy Wilson, Events Organiser and Fundraiser Telephone: 07876 193438 Email: lucy.shaun@talktalk.net Children’s Hearing Services Working Group (CHSWG) Plymouth Children’s Hearing Services Working Group (CHSWG) is a group of professionals and parents working together to improve services for local deaf children and their families. A key role of the Group is to ensure that children’s hearing services remain high on the agenda of those responsible for planning and delivering services at a strategic level. It will offer advice, guidance and, where necessary, pressure, to ensure high quality services are available. The group meets 3 times a year to discuss services for deaf children. There is parent representation on the group but we would like to gather the views of more parents. This is your chance to help develop services. For further information on how to be involved or to raise any points, please contact: Nicola Brown, Chair Telephone: 07773 988628 Email: nicola.brown35@btinternet.com Yvette Beer, Chair of Plymouth and District Deaf Children’s Society Telephone: 07718 826887 Email: volunteerbeer@hotmail.co.uk Paediatric Audiology Team 01752 431251 This folder has been compiled and issued by the Paediatric Audiology Service, Level 7, Derriford Hospital, PLYMOUTH PL6 8DH Paediatric Audiology Team Telephone number: 01752 431251 (available Monday to Friday 9am to 5pm) or Text your contact details to 07749 308364 and somebody from the team will call you back (available Monday to Thursday 9am to 5pm) Date issued: July 2013 For review: July 2015 Ref: C-263/Audiology/ER/Paediatric Hearing Services