Application for Australian Government financial assistance for individuals with Inborn Error of Metabolism *Conditions other than DHPR, Hyperphenylalaninemia and PKU Details of the person making the grant application (responsible person for purchasing the necessary dietary foods) Banking Institution: New Application Re-application Bank Account Name: Mr Ms Mrs Miss Other BSB (6 digits): Given Name: Surname: Account number: Address Line 1: PRIVACY AND YOUR PERSONAL INFORMATION Personal information is protected by law, including the Privacy Act 1988, and is being collected on this form by the Australian Government Department of Health for the purposes of determining the applicant’s eligibility to receive financial assistance under the Inborn Error of Metabolism (IEM) Programme and to assist the Department of Health to administer payments under the Programme. Address Line 2: Suburb or City: State/Territory: If you (the applicant, the person with IEM condition and the medical practitioner as applicable) do not provide the information requested on this form, the Department of Health may not be able to have the necessary information to: make a decision on the applicant’s eligibility for financial assistance under the Programme; and/or administer the payments of financial assistance under the Programme. Post Code: You can get more information about the way in which the Department of Health will manage your personal information, including our privacy policy at: Phone Number: (0 ) http://www.health.gov.au/internet/main/publishing.nsf/Content/Inborn+Error+of+Metabolism+Programme Mobile Number: CONSENT TO COLLECTION OF SENSITIVE INFORMATION Email Address: I consent to the Department of Health collecting my health information (or the health information of the person with the IEM condition where applicable) for the purpose of determining my eligibility to receive financial assistance under the IEM Programme and administer the payments for financial assistance. (Optional) Postal Address: (if different to residential address): Line 1: Applicant/Patient Declaration I confirm that I am a person with an IEM condition as stated in this form, or a parent / guardian / carer of such an individual, and hereby apply for Commonwealth financial assistance for individuals with these conditions. I undertake to inform the Department of Health: if the patient ceases the prescribed diet; if the patient relocates overseas; of any changes to the details provided on this form, including contact and bank account details; and of any changes to the patient’s custody / care arrangements (if applicable). Line 2: Suburb or City: I understand that: State/Territory: Post Code: Residency particulars: Australian citizen Permanent Australian Resident if the patient ceases the prescribed diet, all financial assistance to the patient will cease. To reapply patients must consult their metabolic specialist for assessment of their condition and provide supporting documentation advising the patient continues to have special dietary needs. changes in custody / care arrangements require redirection of financial assistance to the patient’s primary Parent / Guardian / Carer. A primary Parent / Guardian / Carer is a person / organisation who has majority custody / care of the patient. failure to notify the Department of Health of changes in circumstances may result in the Department suspending the financial assistance and pursuing repayment of any overpaid funds from the applicant. I declare that all information provided in this application is current and correct. Medicare number: _ _ _ _ / _ _ _ _ _ /_ _ Name: Relationship to person with IEM: (Person signing must be 18 years or older) Self (must be 18+) Parent: Mother Legal guardian Carer Father Signature: ____________________________________ Date: _____________________________________ Grant Services Division, MDP 205, GPO Box 9848 Canberra ACT 2601 Telephone: (02) 6289 8980 ABN 83 605 426 759 IEM/Form-B/V.June2014 *Conditions other than DHPR, Hyperphenylalaninemia and PKU Doctors Certification: (Doctor must be recognised as a metabolic specialist by the Department of Health): Medically prescribed diet required: (please tick as appropriate) Ongoing Details of the person with IEM condition requiring review: Preconception Pregnancy Period of Dietary prescription: First Name: Surname: MEDICAL PRACTITIONER DECLARATION Date of Birth: Gender: Male Doctors declaration: Female Diagnosis: (please tick patient’s IEM condition) Aminoacidopathies I certify that the above mentioned person has a diagnosed IEM and has a requirement for a special diet to manage their condition. I agree to the collection of my information for the purpose of determining the patient’s eligibility. HMG-CoA Lyase deficiency SELECT ONE: Homocystinuria, Not Pyridoxine responsive (cystathionine β synthase deficiency) I certify that the patient is compliant with diet, appointment and monitoring requirements. Lysinic Protein Intolerance (LPI) Maple Syrup Urine Disease (MSUD) OR Ornithine amino Transferase deficiency (Hyperornithinaemia, gyrate atrophy of the retina) I certify that concern about this patient’s compliance has been raised with them/their family. An action plan to address this has been put in place. Tyrosinaemia: Type I (Hepatorenal tyrosinaemia, fumarylacetoacetate hydrolase deficiency) Type II Type III OR I certify that I have no evidence that patient is currently on the PKU diet Organic acidemias: 3-methylcrotonyl-CoA carboxylase deficiency Cobalamin deficiencies: A B C D Glutaric aciduria Type I (Glutaryl CoA dehydrogenase deficiency) Name: Isovaleric Aciduria Methylmalonic acidaemia Signature: ____________________________________ Propionic acidaemia Urea cycle defects: Date: _______________________________________ Argininaemia (Arginase deficiency) Argininosuccinicaciduria (ASA lyase deficiency) Carbamyl phosphate synthase (CPS) Citrullinaemia (ASA synthase deficiency) N-Acetylglutamate synthase (NAGS) Ornithine transcarbamylase deficiency (OTC) Grant Services Division, MDP 205, GPO Box 9848 Canberra ACT 2601 Telephone: (02) 6289 8980 ABN 83 605 426 759 IEM/Form-B/V.June2014