IEM Programme Application - Form B

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Application for Australian Government financial assistance
for individuals with Inborn Error of Metabolism *Conditions other than DHPR, Hyperphenylalaninemia and PKU
Details of the person making the grant application
(responsible person for purchasing the necessary
dietary foods)
Banking Institution:
New Application
Re-application
Bank Account Name:
Mr
Ms
Mrs
Miss
Other
BSB (6 digits):
Given Name:
Surname:
Account number:
Address
Line 1:
PRIVACY AND YOUR PERSONAL INFORMATION
Personal information is protected by law, including the Privacy Act 1988, and is being collected
on this form by the Australian Government Department of Health for the purposes of determining
the applicant’s eligibility to receive financial assistance under the Inborn Error of Metabolism
(IEM) Programme and to assist the Department of Health to administer payments under the
Programme.
Address
Line 2:
Suburb or
City:
State/Territory:
If you (the applicant, the person with IEM condition and the medical practitioner as applicable)
do not provide the information requested on this form, the Department of Health may not be able
to have the necessary information to:
 make a decision on the applicant’s eligibility for financial assistance under the Programme;
and/or
 administer the payments of financial assistance under the Programme.
Post Code:
You can get more information about the way in which the Department of Health will manage
your personal information, including our privacy policy at:
Phone Number: (0 )
http://www.health.gov.au/internet/main/publishing.nsf/Content/Inborn+Error+of+Metabolism+Programme
Mobile Number:
CONSENT TO COLLECTION OF SENSITIVE INFORMATION
Email Address:
I consent to the Department of Health collecting my health information (or the health information
of the person with the IEM condition where applicable) for the purpose of determining my
eligibility to receive financial assistance under the IEM Programme and administer the payments
for financial assistance.
(Optional)
Postal Address: (if different to residential address):
Line 1:
Applicant/Patient Declaration
I confirm that I am a person with an IEM condition as stated in this form, or a parent / guardian /
carer of such an individual, and hereby apply for Commonwealth financial assistance for
individuals with these conditions.
I undertake to inform the Department of Health:
 if the patient ceases the prescribed diet;
 if the patient relocates overseas;
 of any changes to the details provided on this form, including contact and bank account
details; and
 of any changes to the patient’s custody / care arrangements (if applicable).
Line 2:
Suburb or
City:
I understand that:
State/Territory:
Post Code:
Residency particulars:
Australian citizen
Permanent
Australian Resident
 if the patient ceases the prescribed diet, all financial assistance to the patient will cease. To
reapply patients must consult their metabolic specialist for assessment of their condition and
provide supporting documentation advising the patient continues to have special dietary
needs.
 changes in custody / care arrangements require redirection of financial assistance to the
patient’s primary Parent / Guardian / Carer. A primary Parent / Guardian / Carer is a person
/ organisation who has majority custody / care of the patient.
 failure to notify the Department of Health of changes in circumstances may result in the
Department suspending the financial assistance and pursuing repayment of any overpaid
funds from the applicant.
I declare that all information provided in this application is current and correct.
Medicare number:
_ _ _ _ / _ _ _ _ _ /_ _
Name:
Relationship to person with IEM:
(Person signing must be 18 years or older)
Self (must be 18+) Parent:
Mother
Legal guardian
Carer
Father
Signature: ____________________________________
Date:
_____________________________________
Grant Services Division, MDP 205, GPO Box 9848 Canberra ACT 2601
Telephone: (02) 6289 8980 ABN 83 605 426 759
IEM/Form-B/V.June2014
*Conditions other than DHPR, Hyperphenylalaninemia and PKU
Doctors Certification:
(Doctor must be recognised as a metabolic specialist
by the Department of Health):
Medically prescribed diet required:
(please tick as appropriate)
Ongoing
Details of the person with IEM condition requiring
review:
Preconception
Pregnancy
Period of Dietary prescription:
First Name:
Surname:
MEDICAL PRACTITIONER DECLARATION
Date of Birth:
Gender:
Male
Doctors declaration:
Female
Diagnosis: (please tick patient’s IEM condition)
Aminoacidopathies
I certify that the above mentioned person has a diagnosed
IEM and has a requirement for a special diet to manage
their condition. I agree to the collection of my information for
the purpose of determining the patient’s eligibility.
HMG-CoA Lyase deficiency
SELECT ONE:
Homocystinuria, Not Pyridoxine responsive
(cystathionine β synthase deficiency)
I certify that the patient is compliant with diet,
appointment and monitoring requirements.
Lysinic Protein Intolerance (LPI)
Maple Syrup Urine Disease (MSUD)
OR
Ornithine amino Transferase deficiency
(Hyperornithinaemia, gyrate atrophy of the retina)
I certify that concern about this patient’s compliance
has been raised with them/their family. An action plan
to address this has been put in place.
Tyrosinaemia:
Type I (Hepatorenal tyrosinaemia, fumarylacetoacetate
hydrolase deficiency)
Type II
Type III
OR
I certify that I have no evidence that patient is currently
on the PKU diet
Organic acidemias:
3-methylcrotonyl-CoA carboxylase deficiency
Cobalamin deficiencies: A
B
C
D
Glutaric aciduria Type I (Glutaryl CoA dehydrogenase
deficiency)
Name:
Isovaleric Aciduria
Methylmalonic acidaemia
Signature: ____________________________________
Propionic acidaemia
Urea cycle defects:
Date:
_______________________________________
Argininaemia (Arginase deficiency)
Argininosuccinicaciduria (ASA lyase deficiency)
Carbamyl phosphate synthase (CPS)
Citrullinaemia (ASA synthase deficiency)
N-Acetylglutamate synthase (NAGS)
Ornithine transcarbamylase deficiency (OTC)
Grant Services Division, MDP 205, GPO Box 9848 Canberra ACT 2601
Telephone: (02) 6289 8980 ABN 83 605 426 759
IEM/Form-B/V.June2014
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