Prevalence studies - information on methods for data collection
Study and
country
Type of
study
Type of
populatio
n
General
Method of data
collection
How dementia/CI
defined/assessed?
Barnett
2012
UK
(Scotland)
Bruce 2003
Australia
Crosssectional
Electronic medical
records
Read code ever recorded
Read code ever
recorded
Longitudin
al cross
sectional
DM
Face to face
interview, clinical
examination
Clinical & biochemical
assessment
Doraiswamy
2002
Crosssectional
Dementia
Face to face
interview and
medical records
MMSE (<24/30), IQCODE
(>3.61), Cambridge exam
for mental disorders of
the elderly
+ diagnostic exam
Diagnostic criteria for
probable AD (NINADSADRDA)
Feil 2003
USA
Longitudin
al cross
sectional
CI
Face to face
interview
Feil 2009
USA
Longitudin
al crosssectional
Crosssectional
Restrospe
ctive case
control
DM
Face to face
interview
DM
Medical records
Dementia
Retrospective
data from clinical
records
Feil 2011b
USA
Heun 2013
UK
Modified version of
Pfeiffers short portable
mental status
questionnaire (SPMSQ)
Cognitive Abilities
Screening Instrument
(CASI)
ICD codes
ICD-10 diagnostic
category
How diabetes
defined/ recorded?
How stroke
defined/
recorded?
Read code ever
recorded
How VI
defined/recorde
d?
NA
Other
The Cumulative
illness rating
scale-geriatric
(CIRS-G)
NA
NA
NA
Self-reported
Self-reported
NA
Diagnosis confirmed
by physician & patient
NA
NA
2 or more DM specific
ICD codes (ICD9-CM)
Registered diagnosis in
medical records
NA
NA
Registered
diagnosis in
medical notes
Registered
diagnosis in
medical notes
Study and
country
Hewitt 2010
UK
Type of
study
Questionn
aire
Type of
populatio
n
DM (CI)
Method of data
collection
Face to face
interview and
medical records
How dementia
defined/assessed?
MMSE (≤23)
How diabetes
defined/ recorded?
Self-report, glucose
lowering medication
or diagnosis in GP
computerised records
How stroke
defined/recorded?
NA
Jara 2011
UK
Retrospect
ive cohort
Dementia
Electronic medical
records
Not specified
Löppönen
2004
Finland
Crosssectional
Dementia
Face to face
interview and
clinical exam
Diagnostic criteria for
probable AD (NINADSADRDA)
DSM-IV – clinical exam
Lyketsos
2005
USA
Casecontrol
Dementia/
CI
Face to face
interview and
clinical exam
Modified MMSE (3MS)
or IQCODE (cognitive
decline in elderly).
Dementia questionnaire
+ clinical examination
Self or informant
response
Diagnosis in
medical records
and/or treatment
with antidiabetic
agents, and/or
fasting plasma
glucose level ≥ 7.0
mmol/l
Self or informant
response
McCormick
1994
USA
Casecontrol
Dementia/
CI
Clinical exam and
Medical records
Diagnosis in medical
records
Diagnosis in
medical records
Rait 2010
UK
Cohort
Dementia
Electronic medical
records
Diagnostic criteria for
probable AD (NINADSADRDA)
DSM-III-R (clinical exam)
Read codes
Read codes
Read codes
Sakurai 2010
Japan
Cross
sectional
Dementia
Face to face
interview and
clinical exam
Diagnostic criteria for
probable AD (NINADSADRDA) – clinical exam
Receiving diabetes
therapy or over 5.9%
in haemoglobin A1c or
diagnosis (ADA
guidelines)
NA
Diagnosis in medical
records and/or history
of stroke verified by
clinical exam
How VI
defined/recorde
d?
NA
Other
Cataract related
surgical/diagnos
tic codes
NA
Diagnosis in
medical records
NA
Charleston
comorbidity
index
Study and
country
Type of
study
Type of
populatio
n
Stroke &
dementia
Method of data
collection
How dementia
defined/assessed?
Saposnik
2012
Canada
Retrospect
ive cohort
study
Schubert
2006
USA
Stephan
2011
UK
Uhlmann
1991
USA
Medical records
and clinical exam
Any type of dementia
recorded in notes
Crosssectional
Dementia
Medical records
and clinical exam
ICD-10 - clinical exam
Coded ICD diagnosis
Crosssectional
MCI
Face to face
interview
Mayo clinic criteria for
MCI
Self or information
response
Self or information
response
Case
control
Dementia
Medical records
Diagnostic criteria for
probable AD (NINADSADRDA)
NA
NA
Snellen &
Rosenbaum
methods
Whitson
2010
USA
Yochim 2012
Crosssectional
VI
(macular
disease)
VI
(glaucoma
)
Clinical
examination
NA
NA
Diagnosis in
medical records
Zamrini
2004
USA
Case
control
Dementia
Medical records
TICS-m
WMS-R
Letter fluency (FAS)
California verbal
Learning Test (CVLT-II
Short Form, Verbal
Fluency test (D-KEFS)
Diagnostic criteria for
probable AD (NINADSADRDA)
Case
series
Data collection
face to face or via
telephone
How diabetes
defined/ recorded?
NA
How stroke
defined/recorded?
Validated Canadian
Neurological Scale
(CNS) – clinical
exam
Coded ICD
diagnosis
How VI
defined/recorde
d?
NA
Other
NA
Chronic
disease Score
Diagnosis in
medical records
Diagnosis in medical
records
Diagnosis in
medical records
Diagnosis in
medical records
Study and
country
Zekry 2008
Switzerland
Zhang 2010
Australia
Type of
study
Cohort
Retrospect
ive cohort
study
Type of
populatio
n
Dementia
Method of data
collection
DM
Medical claims
database
Clinical exam and
medical records
How dementia
defined/assessed?
MMSE & short cognitive
evaluation, diagnosis
based on clinical criteria
(clinical exam)
Database information on
whether medication for
dementia was
dispensed.
How diabetes
defined/ recorded?
Diagnosis in medical
records
ICD codes
How stroke
defined/recorded?
Diagnosis in
medical records
How VI
defined/recorde
d?
Diagnosis in
medical records
Other
Charleston
comorbidity
index