Contributing lives, thriving communities Report of the National Review of Mental Health Programmes and Services Volume 1 Strategic Directions Practical Solutions 1–2 years About this Review ............. The Commission has considered the Terms of Reference in the context of the Contributing Life framework: the right of all Australians to lead a full, contributing life, to flourish and to participate in their community. This includes population groups with a greater burden of mental ill-health and disadvantage and which, as a result, need specific attention: Aboriginal and Torres Strait Islander people; people living in rural and remote regions; those who are marginalised due to their sexuality, gender, cultural background or their job; people who have difficulties with alcohol or other drugs; and people living with an intellectual disability. (Page 17) Rates and impacts of mental illness and suicide ................ Our work has identified that many people with mental ill-health face compounding disadvantage— particularly Aboriginal and Torres Strait Islander people, people living in rural and remote regions, those who are marginalised due to their sexuality, gender, cultural background or their job, people who have difficulties with alcohol or other drugs, people living with an intellectual disability and people who experienced childhood trauma. (p19) Gaps .............. There also are gaps in the provision of specialised supports or programmes for other at-risk population groups, including Aboriginal and Torres Strait Islander people, people in rural and remote areas, people who identify as lesbian, gay, bisexual, transgender or intersex, and people who endure discrimination or are marginalised and suffer poor mental health as a result. This includes people from culturally and linguistically diverse (CALD) communities as well as people who have particular mental health needs, such as people with intellectual disability, people with childhood experience of trauma or people caught in the criminal justice system. These gaps were highlighted in submissions to the Review. (p34) Recommendation 17: Use evidence, evaluation and incentives to reduce stigma, build capacity and respond to the diversity of needs of different population groups. How this will be achieved 10. PMHNs and LHNs should work together to identify local clinicians to champion a multidisciplinary team approach to coexisting intellectual disability and mental health. (p106) JS note – Primary and Mental Health Networks are a recommended renaming and extension of the roles of the Government’s Primary Health Networks (formerly Medicare Locals). Focusing on the needs of different population groups requires a person-centred approach where programmes and services are: - personalised: people can access support which is tailored to their preferences and their whole-of-life needs - consistent: people can access a consistent professional or team of supports they feel they can build trusting relationships with over time, and who have the skills, knowledge and approach that match the person’s needs - respectful: people can access a professional or support team that demonstrates genuine care, listens without judgement and is willing to work alongside them to achieve their hopes and aspirations - capacity building: people can access sufficient affordable support to enable them to cope sustainably over the long term - integrated: people can access non-clinical supports and clinical supports as part of a spectrum of services which collaborate around a person and their family to address mental health and social or economic circumstances at the same time. People in all circumstances in life have a right to expect a just and fair approach which reflects these principles. There are differences in need and experience between different population groups; for example, men and women face different risks to their mental wellbeing. Emphasis needs to be applied to the needs of population groups where there are particular gaps and barriers to achieving a contributing life. These issues are covered in more detail in Volume 2 (Chapter 3). The various groups include (but are not limited to): Intellectual disability and mental health Intellectual disability (ID) often co-occurs with mental health problems,77 but the two are usually treated in isolation. Often the mental health needs of a person with ID go unrecognised and there are a limited number of professionals with knowledge of how mental health problems can manifest in this group. Specialist intellectual disability services and professionals are lacking across Australia, but the Commission received evidence of promising approaches being used on a limited scale. In South Eastern Sydney and Illawarra Local Health District, for example, multidisciplinary teams with expertise in all areas of ID health, including mental health, have been established and driven by local clinicians with an interest in ID. (p107) Other areas for action: ................. Interrelated needs: explore opportunities for joint care planning between mental health and intellectual disability services, and between mental health and substance use services, to provide a truly ‘no wrong door’ holistic response to people with concurrent needs. (p108) Recommendation 22: Improve education and training of the mental health and associated workforce to deploy evidencebased treatment. How this will be achieved 1. Include in core curricula for those who will come into contact with people with a mental health problem education on how to better identify and understand mental health and trauma informed care: adopt person and family-inclusive practice and manage all the person’s health needs—mental health, physical health and coexisting disorders or conditions including drug and alcohol difficulties, or intellectual and developmental disability. (p121) Attachment C: Strategic Plan Years 1 and 2 Immediate Priorities Recommendation 17 Use evidence, evaluation and incentives to reduce stigma, build capacity and respond to the diversity of needs of different population groups. Develop a framework for the local response to population specific issues, to ensure integrated care pathways, recognition of the inadequacy of existing pathways and a person-centred response. Health Dept Dec 2015 Governance committees PMHNs and LHNs National agreements with PMHNs and LHNs to reinforce their responsibility to: -work together to identify local clinicians to champion a multidisciplinary team approach to coexisting intellectual disability and mental health -........... Volume 2 Every service is a gateway Three dimensions of a person-centred approach ................ The Commission has found that there are three key dimensions of effective person-centred programmes and services. .......... The third dimension of effective person-centred programmes and services is ensuring that their design and delivery is underpinned by the principle that each person seeking help brings with them their own circumstances and experiences, some of which may present specific mental health challenges (including stage of life, gender, sexuality and cultural background) or may be associated with increased mental health risk (such as intellectual disability, chronic illness and substance abuse). To be truly person-centred, services and programmes must be individually tailored to different life experiences and circumstances. A one-size-fits-all approach is the direct opposite of the principle of person-centeredness. (p38) Tailoring support to each person’s life circumstances and needs ........... This final section illustrates the importance of tailoring person-centred support to a person’s individual life experiences and circumstances. We know that certain social, economic and other life circumstances are associated with particular mental health challenges or support requirements. We know that a person’s age, family situation, cultural background, gender and sexuality can affect their experience of mental wellbeing and mental illness, as well as the types of support they may find helpful and appropriate We also know that particular life experiences have considerable impact on—and can be impacted by—a person’s mental health, and therefore need to be considered at the same time. These include intellectual disability, substance misuse and chronic physical illness or disability (p50) People with interrelated needs Some life experiences and non-psychiatric health difficulties are closely associated with increased likelihood of developing mental illness. This section uses a selection of these to show how our current mental health policies and supports often fail to address commonly interrelated needs in a holistic way. ......... Intellectual disability and mental health Intellectual disability often co-occurs with mental health problems,41 but the two usually are treated in isolation. Often the mental health needs of a person with an intellectual disability go unrecognised. There are a limited number of professionals with knowledge of how mental health problems can manifest in this group of people. An Australian study which followed people with an intellectual disability for 14 years found that during the entire period, only ten per cent of those who also had a mental illness received access to an intervention for that illness.42 Addressing problems in isolation in this manner does not improve overall quality of life because the difficulties posed by other problems continue. ‘Communication between the mental health and disability sector is often very poor … generic mental health services are reluctant to become involved with a person with [intellectual disability and mental health problems]. The conclusion drawn by these services … is that “it’s not mental health, it’s behavioural.” Consequently, services advocate that this group is not their concern, despite evidence to the contrary.’ Submission from Queensland Centre for Intellectual and Developmental Disability (QCIDD) Multiple research groups dedicated to intellectual disability research, as well as several professional peak bodies, submitted recommendations to the Review for improved service responses to these co-occurring needs. These included a cross-agency agreement for collaborative working—including a shared care plan—between disability and mental health services; a national network of medical and allied health professionals who have expertise in intellectual disability and mental health to act as a consultancy to ‘mainstream’ mental health services; mandatory basic training in intellectual disability for frontline health workers and mental health professionals; measures within mental health organisations to address inequity of access for people with an intellectual disability; improved epidemiological data collection and linkage; and greater research into the experiences and needs of people with co-occurring intellectual disability and mental illness. Specialist intellectual disability services and professionals are lacking across Australia, but we have received evidence of promising approaches being used on a limited scale. In South Eastern Sydney and Illawarra Local Health District, for example, multi-disciplinary teams with expertise in all areas of intellectual disability health, including mental health, have been established and driven by local clinicians with an interest in intellectual disability. Such comprehensive integrated approaches to intellectual disability health need to be recognised and encouraged at a national level. (p61) Actions Interrelated needs: explore opportunities for joint care planning between mental health and intellectual disability services, and between mental health and substance use services, to provide a truly ‘no wrong door’ holistic response to people with concurrent needs. (p63) Gaps in programmes and services While duplication was identified in the evidence submitted to the Review, gaps in service provision were more commonly cited. .......... The major ones are a lack of: service provision which effectively addresses interrelated health needs concurrently. (Particular examples commonly cited were intellectual disability with mental health problems, and substance misuse with mental health problems.) (p159) Volume 3 What people told us – analysis of submissions to the review Executive summary People with interrelated and complex difficulties which include a mental health problem (including those with substance misuse, history of trauma and abuse, or intellectual disability) are also poorly served by a lack of collaboration across agency or disciplinary boundaries—each of their intertwined problems is viewed and treated in isolation. (p5) Lack of appropriate services for interrelated needs Many submissions referred to the seeming inadequacy of current support arrangements in addressing interrelated needs in a way that ensures the needs of the whole person are met. Respondents told us that this is especially the case where mental illness occurs at the same time as other social, health and economic problems, or in the context of particular life experiences. For example, people who experience a substance abuse issue or a physical or intellectual disability as well as their mental health problem may find that the mutually influencing nature of these difficulties is not recognised and that different problems are either not addressed or are addressed in piecemeal fashion. There is also the risk that the person will be considered as another agency’s business and fall through the gaps between services. (p83)