Quote Application Form January 30, 2015 Health Data Nova Scotia (HDNS) Dalhousie University 5790 University Avenue, Rm. 113 Halifax, Nova Scotia B3H 1V7 902- 494-2408 email: HDNS@dal.ca HDNS.medicine.dal.ca 1 Quote Application Form HDNS Researchers requiring a quote must complete the HDNS Quote Application form and submit along with your research protocol to HDNS@dal.ca. Contained in this document, in summarized format, is a listing of the datasets available at HDNS along with the broad types of information and variables that are included in those datasets. HDNS has seven frequently used datasets that are utilized by researchers, three are healthcare utilization related and the other four are population based. HDNS also has the capacity to link projects using data from the Reproductive Care Program of Nova Scotia, Cardiovascular Health Nova Scotia, Diabetes Care Program of Nova Scotia, Maritime Heart Centre Database, Cancer Care Nova Scotia, the provincial Brain Trauma database and other sources. Applicants are encouraged to contact Dr. Leslie Anne Campbell at (902) 494-2408 or leslie.campbell@cdha.nshealth.ca should they have questions pertaining to this quote application. 2 Health Data Nova Scotia 2015-July-13 Quote Application Form HDNS Provincial Healthcare Utilization Databases HDNS has three healthcare utilization databases. Summaries of types of data variables in datasets MSI Physician Billings CIHI Hospital Discharge Abstract Database • Contains administrative records for each health service rendered by a physician and paid for by the provincial government. • Utilizes ICD-9 diagnostic and procedure coding (see side note on following page). • Includes approximately 35 variables • Contains information on each hospital admission recorded in a Nova Scotia hospital. • Includes day services and surgery data • Includes diagnoses and procedures performed, types of services, service transfers, specialty services and complexity of service. • utilizes ICD-9 coding prior to March 31st, 2001 and utilizes ICD-10 coding from April 1st, 2001 onward, for diagnoses and procedures. • Includes approximately 601 variables • Encrypted Patient MSI numbers and Physician identifier numbers • Date of Service • Patient and Provider County • Hospital Treatment Unit (e.g. Detox, Emergency, Intensive Care, Inpatient, Neonatal ICU etc.) • Specialty of Provider (e.g. Anatomical, Pathology, Cardiology, Cardiovascular/Thoracic Surgery etc.) • Amount paid and amount approved to be billed by the physician for the service rendered. • Types of proceduresperformed by the physician (e.g. Bone Grafts, Casts and Splints, Complete Care, Consultation, Intensive/Critical Care, Minor Surgery etc). • Health diagnoses (1st, 2nd and 3rd), coded using ICD-9 coding, of patient given by physicians. • Encrypted Patient MSI numbers and Physician identifier numbers • Date of admission/ separation • Patient and Provider County • Types of procedures (1 to 20), coded using ICD-9 or 10 coding, performed by the physician (e.g. Bone Grafts, Casts and Splints, Complete Care, Consultation, Intensive/Critical Care, Minor Surgery etc). • Discharge diagnoses (1-20), coded using ICD-9 or 10 coding, of patient given by physicians. • Institution or hospital • Length of hospital stay • Institution type • Transfers to and from Pharmacare Prescriptions • Contains information on prescriptions paid through provincial prescription drug programming (Seniors Pharmacare, Community Services Pharmacare, Diabetic Assistance etc.) • Utilizes the WHO, Anotomical Therapeutic Chemical (ATC) classification system and the Drug Identification Number to actogorize drugs. • Quantity of drug dispensed (dosage) • Includes approximately 35 variables • Encrypted Patient MSI numbers, Physician identifier numbers, Pharmacy and Provincial Medical Board Numbers • Drugs by Anatomic Therapeutic Class and Drug Identification Number (DIN). • Prescription Date • Drug Costs, amounts claimed, approved, paid and dispensing fees. • Quantity of drug dispensed • Provider type (e.g. Dentist, Nurse Practitioner, Optometrist, Physician Out of province) 3 Health Data Nova Scotia 2015-July-13 Quote Application Form HDNS HDNS has four population based databases. Insured Patient Registry Summary of types of data variables in datasets • Contains longitudinal information about every individual registered as a benificiary of MSI in Nova Scotia • Includes approximately 14 variables • Encrypted patient MSI numbers • Date of birth of residents • Residence postal code • Gender • Eligibility status • Eligibility start/end date • Program • Termination status (death, out of province, ineligible etc.) Patient Geography • Provides Statistics Canada Census Information • Can be used to analyze patient information based with Postal Code Conversion File+. • Includes approximately 46 variables Urban/rural status Average household income Economic region District health authority Licensed Provider Registry Vital Statistics • Contains demographic information on prescriberswho are registered and licensed to practice in Nova Scotia • Includes approximately 9 variables • Contains information on date and cause of death of Nova Scotia citizens. • utilizes ICD-9 diagnostic coding to identify causes of death prior to December 31st, 1999 and utilizes ICD 10 coding from January 1st 2000 and onward • Includes approximately 41 variables • Encrypted physician numbers • Provider type • Geographic region of practice • Educational background (University, specializations, year of graduation, date of birth, sex, etc.) • Encrypted patient MSI numbers and physician identifier numbers • Date of death • Underlying causes of death by ICD 9 or 10 codes. • Birth province • County where death occurred • County of residence * Note on healthcare coding: The diagnosis codes for ailments and injuries in the CIHI-DAD, MSI Physician Billings, Mental Health Outpatient Information System and the causes of death for Vital statistics are coded through the international coding standard set by the World Health Organization. The International Classification of Diseases (ICD) is the international standard diagnostic classification system used to identify diseases, illnesses and injuries. It is used to classify diseases and other health problems recorded on many types of health and vital records including death certificates and health records. It enables the storage and retrieval of diagnostic and procedural information for clinical, epidemiological and quality purposes. Most administrative databases provincially utilize or have utilized the ICD 9 coding practices or the revised set of codes known as ICD 10. Procedure coding are also classified according to ICD coding. Pharmacare datasets utilize the World Health Organizations, Anatomical Therapeutic Chemical (ATC) classification system and the average dose of drugs (a.k.a. Drug Identification Number DIN) classification system to categorize drugs. Researchers are not expected to have a listing of codes for this application. However it is advised that they familiarize themselves with health diagnosis and procedure coding by visiting the following links: http://www.who.int/classifications/icd/en/ http://icd9cm.chrisendres.com/ http://www.whocc.no/atcddd/ 4 Health Data Nova Scotia 2015-July-13 Quote Application Form HDNS Quote Application Form for Data and Information Management Expertise (*Please note there is a separate application for the Data Access Committee application process) Date of Quote Application:________________________ Contact Information Principal Investigator Name(s): Position(Please state if student) Organization Co-investigator (s) Position(Please state if student) Organization Main Mailing Address: Main Telephone Contact: Main Fax Contact: Main E-mail contact: Full Project Title: Note: Please email the research summary and protocol along with this completed form to HDNS@dal.ca. Questions may be directed to Dr. Leslie 5 Health Data Nova Scotia 2015-July-13 Quote Application Form HDNS Anne Campbell at 902-494-2408 or leslie.campbell@cdha.nshealth.ca Research Requirements 1) Please provide HDNS with an overall ‘purpose statement’ for this project. In other words, in as brief and concise terms as possible, why is this study being undertaken? 2) Briefly, what is your study design? (e.g., cohort, case-control, or nested case-control.) 3) What is your study population? (e.g., patients undergoing a specified procedure, with a specific diagnosis, or residing in a specific geographic area.) If yes please mark X if there is a single or multiple study population(s) of interest: ‘X’ YES [ ] NO [ ] Single Multiple [] [] How many? 4) Please provide in a few words a brief description of your study population(s). Please number each population description if there are multiple. Please identify any case definitions and/or inclusion or exclusion criteria used to create the population(s) (e.g. age, previous diagnoses, days or months following hospitalization, etc.). 5) Will there be any need to create a control group or groups for your study population(s)? If yes please state how that control group or groups will be created (e.g., matching YES [ ] NO [ ] criteria, random sample, size etc.)? 6 Health Data Nova Scotia 2015-July-13 Quote Application Form HDNS 6) Does the project involve linkage of any HDNS datasets with external data (e.g., survey, research or clinical dataset, data from other provincial healthcare programs or government services, and/or other sources)? If yes please state where the external data comes from and explain how it could be linked to any of HDNS datasets (e.g., through encrypted MSI patient numbers): YES [ ] NO [ ] 7) Please mark X in the right hand column if the research will draw data from the following datasets and identify the time span(s) of interest : HDNS Datasets ‘X’ Start End Day/Month/Year Example: 01/01/1999 Day/Month/Year Example: 31/12/2005 [] [] [] [] [] [] [] [] MSI Physician Billings CIHI DAD Pharmacare Prescriptions Insured Patient Registry Patient Geography Licensed Provider Registry Vital Statistics Other Please State: 8) Will the research examine specific diseases, illnesses or injuries? 7 Health Data Nova Scotia 2015-July-13 Quote Application Form HDNS If yes, please identify what disease(s) (e.g., breast cancer, motor vehicle collisions etc.) will be required to: YES [ ] NO [ ] create the study population(s) examine co morbidities of the study population conduct other analyses 9) Will the research be examining specific procedures performed by physicians in hospital or in another environment? If yes please list these procedures (e.g., low cervical cesarean section, amputation of finger or thumb, etc.): YES [ ] NO [ ] 10) Please mark X in the right hand column if the proposed research would incorporate any of the following types of research: Research Type Longitudinal research- (e.g. research that will study a population group over a set period of time, normally to track the effect of some variable) Cross sectional research- (e.g. a provincial prevalence study on a disease with descriptive statistics at a single point in time) Other ‘X’ [] [] [] 11) Will the research project require data to create a ‘denominator’? In other words, does the research require additional data to calculate descriptive statistics (e.g., provincial rate of breast cancer) or to do comparative analysis between your study population(s)? If yes identify which: YES [ ] NO [ ] 12) Please mark X if you require HDNS to provide any of the following deliverables: 8 Health Data Nova Scotia 2015-July-13 Quote Application Form Services Person level de-identified to be studied by researcher at secure HDNS terminal Aggregate data tables to be extracted by HDNS to be analyzed by the researcher The calculation of statistics by HDNS to be incorporated into the overall research project Designed graphs and charts by HDNS to be incorporated into the overall research project A written report with analysis provided by HDNS HDNS ‘X’ [] [] Descriptive [ ] Inferential [] [] [] 13) Please describe any types of statistics, if any, which HDNS would be expected to conduct during the course of this project. 14) Please list the deliverables/services/outcomes required from HDNS to successfully complete this project (preferable in point form). 15) Are there any other issues that HDNS staff should be aware of pertaining to this study? 9 Health Data Nova Scotia 2015-July-13