Workforce Impact in Practice (WIP) – Capture Template Title of Workforce Project or Initiative Tele-Health: Implementing the FLORENCE text messaging service for patients who have Mild Cognitive Impairment and early stage dementia. Name of Lead organisation (and any partners) North Staffordshire Combined Healthcare Trust, Simple Tele-Health, Stoke CCG What was the workforce issue you were trying to address? One of the interventions offered by the Stoke early intervention in dementia team is to assess and assist patients in the self-management of their vascular risks. Uncontrolled vascular disease is now known to increase your chances of developing dementia (Bowler and Jorm 2002) and for patients already diagnosed with early dementia uncontrolled vascular risks may accelerate the progression of the disease (Mielke 2007). Mental ill health or stress is also identified as an important risk factor for vascular disease (Chen 1999). Every patient who is seen by the team is offered a personalised vascular risk management which is a patient held record called the “Take Heart” booklet. The service also provides psychological therapy to help with coexisting mood disorders with the inclusion of five ways to wellbeing guidelines as part of the interventions offered. As with the nature of mild cognitive impairment (MCI) and early dementia, cognition and short term memory are often compromised and patients were reporting that they had forgotten important information discussed in their clinical sessions. The team were looking for solutions in order to help support and provide reminders and prompts for patients to improve engagement of patients in their treatment plans. FLORENCE (Flo) provided by Simple Tele- Health and operated by Stoke CCG has been actively used within Stoke On Trent in primary care and has been found to be cost saving, effective and most importantly patient feedback has been positive . It has been designed to enable patients to dual manage their own conditions treatment or lifestyle. Flo text messaging service also collects, monitors and trigger alerts and collates patient responses about their experiences with targeted messages. It was postulated that this type of Tele-Health text messaging service could provide a useful platform to act as a gentle reminder, scaffold and prompt for patients who may struggle with memory difficulties and thus improve outcomes. How did you address this issue? The team held a number of meetings with the Simple Tele-Health lead to ascertain if the team objectives could be achieved using the Flo system. The team clinicians wrote and completed two protocols which included an interactive anxiety mood measurement tool and a vascular risk and wellbeing management plan. Focus group The team took the two protocols to a patient focus group. The proposed protocols were shared and feedback obtained. It was suggested that participants may be unhappy to receive all the health promotional messages written into the “Take Heart” protocol and would prefer them to be tailored to their particular needs as identified in their individualised management plan. From the groups perspective this would herald the best chance of engagement. They also suggested that due to poor memory and concentration difficulties reminders would be extremely useful and may prompt patients to use their management plans more frequently. Following the focus group a protocol review was held with the Simple Tele-Health team to ascertain if a more tailored protocol could be achieved and it was suggested by them to split the risk factors into different protocol sections 1,2,3,4,5 (see chart below). Diagram 1 Each patient would be allocated to the protocols that were pertinent to their individual vascular risks on registration. For example a patient who was struggling with smoking and sedentary lifestyle would be assigned to the smoking (1) and exercise (5) protocols only. All patients were allocated to the wellbeing messages (1). Following the re-draft and peer review by the Simple Tele-Health team the protocols were uploaded to the Flo system. Prerequisite for using Flo A random sample of ten patients were invited to participate in Flo. Eight patients verbally consented. All patients had a diagnosis of MCI or early symptoms of dementia and also had a co-existing anxiety disorder. The patients all received a number of clinical 1:1 sessions including a full assessment, agreed to a joint management plan and had a completed copy of this in their “Take Heart” booklet personal hand held record and management plan. Patients completed a written consent form and were reminded they will be receiving an interactive automated text messaging system and not interacting directly with a clinician. A leaflet was designed and provided for patients explaining what Flo is and how to respond to any text messages sent to them and what to do if they wished to withdraw consent and stop the message service. Protocols The patients were allocated to the protocols which reflected their individual clinical needs. Messages would be sent daily for a six week period. However patients could be reallocated to the protocols if this was requested by them and there was a clinical need. Patient received informational and / or interactive daily messages. They may receive more than once message a day depending on the number of protocols allocated. . The patient responds to the interactive text messages and the evaluation questions. Workforce / clinicians role Obtains patient’s signed agreement to respond to Flo. • Enrols patient on to Flo by using the patient’s current mobile phone number and NHS number. Evaluates the effectiveness of the Flo messaging system by monitoring patient feedback. A number of evaluation questions were asked via the Flo text messaging service including the friends and family test. The Warwick and Edinburgh Wellbeing Scale (WEMWBS) was also administered pre: enrolment to the protocols and post completion Optional question-Did you use any products or services to help you? What did you achieve? Development of two text messaging protocols: What was the project’s impact? What was the WIPS impact? “Simple Tele-Health” which uses the FLORENCE web based text messaging service. The NHS change model Interactive mood measures for anxiety patient are able to send in their daily anxiety ratings and receive a text message response with tailored advice dependant on their rating. This is now being used with patients receiving psychological therapies (CBT / ICP) within the service. A “Take Heart” Vascular risk and mental wellbeing management plan protocol providing health promotional and motivational information messages tailored to the individuals specific needs A full evaluation from CESU of the effectiveness of Flo including quantitative and qualitative data. Costs Set up costs £3,700 – factoring in staff time / administration. However once the protocols were complete and uploaded costs were minimal (based on 8p per text message sent) Workforce Clinical time (activity) was reduced as staff were spending less time in sessions on reminders, prompting, repeating information and revisiting areas within treatment and management plans as patients recall was improved due to the text messages. This was possibly increasing productivity by reducing the amount of activity spent on this particular interventions. Flo collated patient readings in “real time” and alerted staff when readings were high. Readings were shared with patients at the next clinical session. Increase in team cohesiveness and motivation as clinicians found Flo very easy to navigate and use and once protocols were loaded took surprisingly very limited clinical time. This project has provided an introduction to the use of Flo within the Trust which has raised other team’s interests in using this tool in their particular areas. Patients empowerment Increased understanding and knowledge about their current management plan Improved self- management of physical and psychological health Greater understand how to self- measure, rate and use interventions to manage and reduce their anxiety levels and vascular risks. Improved mental wellbeing WEMWBS scores increased in all but one of the participants ( see diagram 2) Diagram 2 Positive feedback was received from patients through structured interviews and the consensus was that they enjoyed receiving the messages with statement such as “it feels like someone cares about me even though I know it’s a computer.” All agreed that they would recommend the Flo protocols to a friend or family member. Two patients requested to be reallocated to the protocols following its completion. Service delivery Flo Tele-Health has become an enhancement to assessment and treatment as part of the current service pathway Quality Provides patients with additional treatment choices. Allows patients the opportunity to continue to engage with their management plan and treatments outside of clinical sessions. Introduces remote monitoring Hints and tips for others What will you use the prize for? Name and Contact details of person completing template Facilitate a focus group! This was immensely beneficial and potentially time and cost saving. Providing a fair critique of the protocols and providing valuable feedback prior to the completion and upload of the protocols. It also puts the patients at the heart of any service improvement. Use the NHS change model. It’s really useful for thinking about small scale changes too. Don’t be afraid to explore the use of Tele-Health in mental health services. Following this project the team in partnership with Simple Tele-Health were inspired to look towards using the Flo text messaging service in combination with another well researched telehealth technology that supports autobiographical memory recall in patients with MCI / early stages of dementia. As part of this patients would need to review information electronically on a frequent basis (at least 3-4 times weekly) It is proposed that the Android Tablets would be used with patients and the staff involved in this project for that purpose and as a communication tool possible accessing tele: conferencing. Name: Lisa Sharrock LisaA.sharrock@northstaffs.nhs.uk Title: CBT Therapist /RMN /Team Manager Organisation: North Staffordshire Combined Healthcare Trust Harpfields Road Stoke On Trent Staffordshire ST4 6RR In completing this template are you happy to share with the members of My Health Skills? Telephone: 01782 441600 (Ext 2067) Yes x No (Footnote: references available on request) Many thanks for completing this. Please return via email to myhealthskills@SkillsforHealth