Disability Services Commission Contemporary Practices in Disability Services- A Discussion Paper August 2012 Over many years, the many voices in the disability sector, people with disability and across government have been saying people with disability need more choice and control over services and supports. Successive consultations have found people have better outcomes when they can exercise genuine control over their lives and when services deliver quality outcomes. Good governance and service providers with the capacity and capability to meet the needs of consumers are essential. This document provides an overview of what people say are attributes of contemporary practice in disability supports and services. It will be used to provide guidance when considering State Government investment in quality supports and services and quality. The information in it has been drawn from a number of existing information sources including a workshop with the Disability Services Commission leadership team. The themes included throughout this paper are consistent with a breadth of sources that include Count Me In4and the National Disability Strategy1. It will be important as the sector moves forward that there is a shared understanding between funders, providers and consumers about what a contemporary service is and what it is not. This paper is intended as a starting point for that shared journey. Informing the definition of contemporary services Sector Health check 2007 Economic audit Committee discussion paper 2009 Shut Out 2009 Count Me In 2009 Productivity Commission Report (NDIS) 2011 Disability Professional Services Review (2011). National Disability Strategy 2010 Quality Management Framework consultation (2012). and many more While we are considering what a contemporary service is and the critical success factors, the Commission is reviewing procurement, service funding and delivery in line with the State Government’s ‘Delivering Community Services in Partnership Policy’. The policy promotes flexibility, innovation and community responsiveness in the funding or contracting of services to better meet individual and community needs. A contemporary approach will be essential for effective procurement reform. The Commission acknowledges that collaboration with providers and consumers within the disability sector and other agencies is a critical success factor to ensuring better outcomes for people with disability. This paper is provided as part of the ongoing dialogue that will contribute to better outcomes and we welcome your views and input. If you have any comments or additional information for this overview please email your comments to sectordevelopment@dsc.wa.gov.au. Key features of quality supports and services designed and directed by the person and/or family (self-directed) protect and promote human rights optimise and promote social inclusion promote learning, growth and development are flexible and responsive so that change with a person’s needs are based on needs identified through effective planning combines coordinated formal and informal supports individualised, identify a person’s strengths and builds on these. Features of a disability system focused on quality services Choice should be a key feature in funding and service delivery so people have control of their lives and the services that support them1, 3, and 4. For individual to make informed choices they must be provided with information about options and advocacy support, while sector organisations will need management structures that facilitate choice, consent and decision making5. There would be an investment in and support of the development of informal networks and community. The increased involvement of people with disability, families and carers in decision-making, including policies and programs, should be evident. There is a focus on achieving positive results, effectiveness and outcomes but with clear standards against which performance is managed. Policy and services need to be innovative, effective and informed by robust evidence and research and developed and implemented by a skilled workforce6. This could be demonstrated through: flexible employment models access to learning and development deep understanding of needs of people with disability contemporary practice ability to assist people with identifying goals flexibility and adaptable on changing needs. Outcomes and flexibility are very much the focus and there is a greater scope regarding how funding is spent. It is an approach that would ensure social relationships are not dependent on disability service organisations and regular reviews should be conducted5. What might this look like in practice? Supports and services that are as close to community norms as possible Services that do not interfere in the person having an ordinary and healthy life. Services should be culturally appropriate: o What is typical for people of the same age and cultural background? o What is the lifestyle of people in the community? What are the norms and trends? Services should have good links or partnerships with community-based services, other Government departments and other stakeholders. Supports and services that give people genuine choice The individual should be at the centre of service design. Services should not be one size fits all. Supports and services should be designed so people live how they want, where they want. Choice should relate to the person’s life and be meaningful to them. Services should be aspirational and grow opportunities for individuals. Information should be provided so people can make informed choices/decisions. There should be a balance between duty of care and dignity of risk: understanding what choice is reasonable balancing choice and what is considered contemporary approaches consideration should be given to the risks associated with choices Services should be sensitive to family needs. Supports and services are provided by values based organisations that support human rights and comply with legal frameworks. Services and supports assist people to be in and ‘of’ the community in a meaningful way Services should encourage and support social inclusion and citizenship. tools and equipment should support people to be part of regular community community development initiatives should be explored supports should assist people to participate in sports and recreation. Supports and services that promote and support the person to develop and maintain connections, networks and relationships (i.e. the person belongs) informal and unpaid relationships are important and should be recognised. there should be recognition that the person has people who care about them. Supports and services that provide the person with opportunities for life-long learning and development supports and services assist people to transition effectively. services assist people to develop skills (e.g. transportation, networking, social media) services are developmentally-focused rather than maintenance focused. services and supports reduce the impact of disability on the person’s life. Supports and services that are evidence based Evidence is required to show supports and services work. Understanding of worldwide trends and research needs to be demonstrated. Understanding or thinking about the unintended consequences is necessary. Services and supports need to be located within established infrastructures. Models of support and services that are innovative Innovation needs to have safeguards. Supports and services that provide value for money Services are demand driven and financially accountable. We welcome your views and input. If you have any comments or additional information for this overview please email your comments to sectordevelopment@dsc.wa.gov.au Changing perspectives in disability service provision8 Era Institutional Person of concern Typical setting the patient Model custodial/medical Services structure in facilities institution Deinstitutionalisation Community membership the client the citizen group living special school or classroom developmental/ behavioural in a continuum of services delivery options ordinary places, with ordinary people individual support through a unique array of supports tailored to the individual, focused on being of service supports Services care Description programs Services planning through a care plan through an individualised plan Planning context Controls and decisionmaking Priorities standards of practice a professional team consensus basic needs Objective control or cure skills development and self-determination behaviour and relationship management to change behaviour to change the environment and attitudes an interdisciplinary team through personcentred planning (a personally meaningful future) circles of support/ networks of support the person with advocacy support if required References 1. Commonwealth of Australia (2011) National Disability Strategy 2. Dempsey, I. & Nankervis, K. (2006). Community Disability Services. An evidence based approach to practice. Sydney, NSW: UNSW Press. 3. Department of Families, Housing, Community Services and Indigenous Affairs. (2012). Inclusive Employment 2012–2022. A vision for supported employment. Retrieved from www.fahcsia.gov.au/sa/disability/pubs/policy/Pages/disability_employment.aspx 4. Disability Services Commission (2009) Count Me In Disability Future Direction 5. Fisher, K. R., Gleeson, R., Edwards, R., Purcal, C., Sitek, T., Dinning, B., Laragy, C., D’Aegher, L., & Thompson, D. (2007). Occasional Paper no. 29. Effectiveness of individual funding approaches for disability support. Canberra, ACT: Department of Families, Housing, Community Services and Indigenous Affairs. Retrieved from www.fahcsia.gov.au/about/publicationsarticles/research/occasional/Documents/op29/o p29.PDF 6. KPMG. (2009). The Contemporary Disability Service System. Final Report. Victoria, Australia: Victorian Department of Human Services. Retrieved from www.dprwg.gov.au/research-development/publications/contemporary-disabilityservice-system-summary-report 7. Mansell, J., Beadle-Brown, J., & The Special Interest Research Group on Comparative Policy and Practice. (2010). Deinstitutionalisation and community living: position statement of the Comparative Policy and Practice Special Interest Group of the International Association for the Scientific Study of Intellectual Disability. Journal of Intellectual Disability, 54(2), 104-112. 8. National Advisory Committee on Health and Disability. (2003). To have an ‘ordinary’ life. Kia whai oranga ‘noa’. Wellington, NZ: National Advisory Committee on Health and Disability. Retrieved from www.nhc.health.govt.nz/resources/publications/haveordinary-life-kia-whai-oranga-noa