American Cancer Society Cancer Action Network American Congress of Obstetricians and Gynecologists, District II Central New York Affiliate of Susan G. Komen Density Education National Survivors' Effort Family Planning Advocates of New York State Greater New York City Affiliate of Susan G. Komen League of Women Voters of New York State Medical Society of the State of New York New York Chapter of the American College of Surgeons New York Public Interest Research Group New York State Academy of Family Physicians New York State Public Health Association Northeastern New York Affiliate of Susan G. Komen Roswell Park Cancer Institute Twin Tiers Affiliate of Susan G. Komen Western New York Affiliate of Susan G. Komen December 19, 2013 Governor Andrew M. Cuomo Executive Chamber Capitol Building Albany, NY 12224 Re: Recommend funding support for the New York State Cancer Services Program Dear Governor Cuomo: On behalf of New Yorkers concerned about cancer, our organizations urge you to ensure that the state’s Cancer Services Program (CSP) is adequately funded at its current level in your upcoming executive budget. In recent fiscal years, the CSP received as much as $29 million to conduct outreach and screenings for cancer. Combined cuts to the CSP have reduced overall spending for this lifesaving screening to $25.3 million in FY 2013-14, of which about $19 million directly supports the screening services. Although we understand that these are difficult economic times, the need for CSP is critically important to the nearly 2.5 million uninsured New Yorkers.1 The CSP has worked diligently in every community across the state to provide screening and early detection of breast, cervical and colorectal cancer to women and men who are under- and uninsured for more than twenty years. Operating through 36 Partnerships—a network of thousands of hospitals, clinics and doctors' offices – they provide crucial cancer screening, diagnostic services and case management for New Yorkers with little or no insurance in every county of New York State. And while the program has screened tens of thousands of people, at current funding levels for example, the 1 United State Census Bureau, see: http://www.census.gov/hhes/www/hlthins/data/historical/HIB_tables.html, accessed 11/12/12, Table HIB-4, “Health Insurance coverage Status & Type of Coverage by State All People: 1999 to 2011. 1 New York State Cancer Services Program is able to help fewer than 20% of the women who don't have insurance and can't afford a mammogram.2 Cancer screening saves lives. Detecting cancer early increases the chances of successful treatment, improves survival rates, and saves New York in overall medical costs. For example, research shows that the earlier breast cancer is detected and treated, the better the survival rate. When breast cancer is diagnosed when the tumor is localized and has not metastaticized, the 5-year survival rate is 99%.3 Yet, uninsured patients are less likely to get recommended cancer screenings and are more likely to be diagnosed with cancer at later stages.4 For example, uninsured women diagnosed with breast cancer are 2.5 times more likely to have a late stage diagnosis than women enrolled in private health insurance.5 Published research on the success of the National Breast and Cervical Cancer Early Detection Program, which partially funds and guides the state screening program, demonstrates a substantial impact on reducing mortality from breast cancer in medically uninsured, low income women.6 These evidence-based findings justify the state’s investment in the early detection of breast cancer. In 2009, the State Department of Health estimated that the cost of the Cancer Services Program was offset by $46 million in savings due to early detection. We applaud the state’s successful roll-out of the NY State of Health, the Official Health Plan Marketplace, which showed robust enrollment numbers early on. But even with the implementation of the Affordable Care Act, we will not reach everyone. An estimated 10% of men and women ages 50-64 will continue to remain uninsured in New York State. Twenty years of CSP experience has developed a robust infrastructure, capacity and expertise that is essential because insurance is not the only barrier to receiving cancer screening especially, for low income families. It is therefore critical that this program is adequately funded as the demand for these services remains high. In addition, there are many program aspects that continue to be necessary in order for New Yorkers to benefit from critical, potentially life-saving cancer screening services: Recruitment, public and provider education, quality assurance, and data collection. Patient navigation and coordination of care. Language and cultural barriers, transportation barriers, knowledge and attitude barriers to preventive medicine will continue to exist and, even with insurance, men and women will need assistance to fully access these services. Lastly, the CSP provides a direct entry to Medicaid for those diagnosed thanks to the Medicaid Cancer Treatment Program. This federal law allows New Yorkers diagnosed through the program to receive immediate Medicaid coverage. It behooves the Medicaid program to simultaneously consider the important role this program plays in optimizing federal dollars to care for New Yorkers diagnosed with New York State Department of Health, “Breast and Cervical Cancer Early Detection Program Report,” Program Year 2008-2009, see: http://www.health.ny.gov/diseases/cancer/cervical/resources/docs/20082009_early_detection_report.pdf. 3 American Cancer Society, “Cancer Treatment and Survivorship: Fact and Figures, 2012-2013,” p. 4. 4 Halpern MT, Bian J, Ward EM, Schrag NM, Chen AY. “Insurance status and stage of cancer at diagnosis among women with breast cancer.” Cancer 2007; 110: 403-11. 5 Kaiser Commission on Medicaid and the Uninsured. “The Uninsured: A Primer. Key Facts About Americans Without Health Insurance,” January 2006. 6 Hoerger, Thomas J., PhD, et al. Estimated Effects of the National Breast and Cervical Cancer Early Detection Program on Breast Cancer Mortality. Am J Prev Med 2011;40(4):397– 404. 2 2 cancer. Those who continue to fall through the cracks are not only diagnosed with later-stage cancers, they often come into the Medicaid Program through a more traditional door, relying on state funding to finance their care. We respectfully request that the CSP funding be returned to $29 million so that local programs can adequately serve their existing clients and outreach to the eligible population to the extent possible. Your support, through the budgetary process, can mean the difference between life and death for New Yorkers impacted by cancer. If we can be of further assistance, please contact Michael Burgess at the American Cancer Society Cancer Action Network at michael.burgess@cancer.org. Sincerely, Michael Burgess NYS Advocacy Director American Cancer Society Cancer Action Network Donna Montalto, MPP Executive Director American Congress of Obstetricians and Gynecologists, District II Kate Flannery Executive Director Central New York Affiliate of Susan G. Komen Joann Pushkin Founder Density Education National Survivors' Effort M. Tracey Brooks President and CEO Family Planning Advocates of New York State Anita McFarlane Director of Grants and Public Policy Greater New York City Affiliate of Susan G. Komen Sally Robinson President League of Women Voters of New York State Sam L. Unterricht, MD President Medical Society of the State of New York David W. Wormuth, MD, FACS President New York Chapter of the American College of Surgeons 3 Raymond Ebarb, MD President New York State Academy of Family Physicians Blair Horner Legislative Director New York Public Interest Research Group Michael Seserman, MPH, RD President and Policy Chair New York State Public Health Association Lynette Stark Executive Director Northeastern New York Affiliate of Susan G. Komen Dr. Donald Trump, FACO, MD President and CEO Roswell Park Cancer Institute Patricia Nozell Executive Director Twin Tiers Affiliate of Susan G. Komen Juliana Janson Executive Director Western New York Affiliate of Susan G. Komen CC: Robert Megna, Director of the Division of the Budget Nirav Shah, Commissioner of the State Department of Health Courtney Burke, Deputy Secretary for Health Hon. Kemp Hannon Hon. Richard N. Gottfried 4