Patient Experience Report “Developing a better understanding of what matters most to patients, families and carers.” Quarter 2 July – September 2015 Author: Sarah Balchin Head of Patient Experience October 2015 1 Contents Page Patient, Relative and Carer Feedback 3 Friends and Family Test 3 National Surveys 11 Patient Experience Feedback Project 13 Patient and Public Engagement 13 Improving the Experience of Carers 14 Improving the Experience of Discharge 15 Improving the Experience of People at the End of Life 16 Improving the Care of Adults with Specialist Mental Health Needs 16 Voluntary Services 18 Conclusion 19 Recommendations 19 2 1. Patient, relative and carer feedback Friends and Family Test (FFT) – partially achieved Targets: Early implementation of FFT into outpatient and day case departments in line with national guidance. Increased or maintained response rates in in-patient areas and ED. Improving positive responses to the FFT question in ED, in-patient areas and maternity. The Friends and Family Test provides patients with the opportunity to provide feedback about their recent hospital experience, the aim being to better understand what matters most to them. During 2015 the programme has been extended to include people who have had a day case procedure and out-patients. This has increased the number of patients who have the opportunity to provide feedback which they may do by post card, the Trust web site or directly to the survey provider. Every month about 5000 patients now tell the Trust how satisfied they were with their care and treatment, and many provide written comments which are used to identify areas for improvement and areas of best practice to share. Early implementation of FFT into outpatient (OPD) and day case departments Over 2000 Out-patients have taken the opportunity to provide feedback in Q2. The overall satisfaction was 94.1% with consistently positive feedback about the attitude of staff and the management of the waiting times. Out-patient areas Response rates Responses Out-patient areas Response rates Month – Responses Apr-15 716 Jul-15 810 May-15 753 Aug-15 737 Jun-15 620 Sep-15 827 Total 2,089 Total 2374 Quarter 2 Quarter 1 Month – People who have undergone day case procedures are now eligible to participate in the in- patient FFT survey. This has been successfully implemented with a significant associated increase in the number of respondents in quarter 2. 3 Increased or maintained response rates in in-patient areas and Emergency Department (ED) In-patient areas A 26.5% response rate was achieved in quarter 2, an increase from 22.6%% in quarter 1 Total response rate Responses / eligible pts. Apr-15 21.00% 1410 / 6714 May-15 24.80% 1782 / 7194 Jun-15 22.00% 1725 / 7843 Total 22.60% n/a Month Quarter 1 In-patient areas – Response rates Total response rate Responses / eligible pts. Jul-15 27.70% 2232 / 8068 Aug-15 27.80% 1971 / 7095 Sep-15 24.1% 1963 / 8161 Total 26.5% n/a Month Quarter 2 In-patient areas – Response rates During analysis of July data, Information Services identified an error in the calculation of the number of patients eligible to complete the survey. The error was caused by a failure of the system to access all of the base data due to the significant increase in number of patients (day case) eligible to participate. This affected the number of patients since April 2015, when the inclusion of day case patients was introduced by NHS England. It should be noted that overall there has been an increase in the total number of responses provided by patients. The response rate does not reflect this increase as the number of patients eligible to participate in the feedback opportunity has also increased. There is recognition that there is variation in response rates from wards and departments. A review of those areas who consistently achieve a higher response rate was undertaken to identify what enabled them to do so. It was identified that successful ward and departmental teams benefited from very timely feedback. This enabled teams to have an up to date understanding of how patients and their families were reporting their experience. 4 To share this learning the following actions have been taken: Training for ward teams and leaders in the use of the information system which provides real time feedback, both satisfaction scores and narrative. Weekly and monthly reports from the Patient Experience Team. System of escalation of areas who have nil returns (noting that in the main these are areas with very limited discharges) to allow for early follow up. Emergency Department (ED) The Trust achieved a 17.4% response rate for quarter 2, in comparison to 18.5% at the end of Q1. Department Response Total response rate Responses / eligible pts. Apr-15 17.50% 1228 / 7032 May-15 14.60% 1066 / 7288 Jun-15 22.70% 1676 / 7391 Total 18.20% n/a Month Quarter 1 – Emergency Department – Response rates Total response rate Responses / eligible pts. Jul-15 17.50% 1383 / 7898 Aug-15 13.60% 1283 / 9444 Sep-15 21% 1956 / 9329 Total 17.4% n/a Month Quarter 2 Emergency rates There continues to be a challenge to achieving a sustained adequate response rate which has been compounded by the major operational challenges facing the department. Support continues to be provided to the ED team to develop and implement sustainable changes in practice to ensure that patients are afforded the opportunity to provide feedback. There was a significant improvement in September since the implementation of a new local recovery plan. Daily monitoring and support is now in place. Trust wide satisfaction There has been a small decrease in overall satisfaction rate from 95.6% to 95.1% in quarter 2. It is a recognised phenomenon that with a significant increase in responses the satisfaction rate often reduces but this does ensure a robust indicator of experience. Trust wide actions The role and activity of the FFT Project group have been reviewed in response to feedback from staff using the feedback method. The emphasis will be on reducing variation by the sharing of best practice and review of the comments provided by patients. 5 Weekly and monthly monitoring reports continue to ensure teams are aware of the number of responses received against the target. Greater transparency for patients, relatives and carers with the clinical area satisfaction scores now displayed on the Clinical Dashboard alongside ‘You said / we did’ changes made as a direct result from the feedback received New Patient Experience FFT page internet which enables public access to all FFT results, including a live feed of three most recent comments. Improving positive responses to the FFT question in ED, in-patient areas Emergency Department Total no. Likely very likely & Compliance Month Likely & very likely Total no. responses Compliance Apr-15 1184 1288 96.40% Jul-15 1298 1383 93.90% May15 1011 1066 94.80% Aug-15 1196 1283 93.20% Jun-15 1532 1676 91.40% Sep-15 1829 1963 93.5% Total compliance average Quarter 2 Quarter 1 Month Total no. Total no. responses 94.20% Total compliance average 93.5% There has been a small variation of satisfaction over Q2 with the average satisfaction 93.5% against a national average of 88% (August figures). This is a positive indication of the quality of experience patients at times of exceptional demand on the service. 6 In-patient areas Total no. Likely & very likely Total no. responses* Compliance Month Likely very likely & Total no. responses* Compliance April ‘15 989 1020 97% Jul-15 2153 2232 96.50% May ‘15 1735 1782 97.40% Aug-15 1903 1971 96.50% June ‘15 1666 1725 96.60% Sep-15 1881 1963 95.8% Total compliance average Quarter 2 Quarter 1 Month Total no. 97% Total compliance average 96.3% The average percentage of patients who were satisfied with the services they received while an inpatient has remained consistently high. The national average reported in August was 96%. Patient Narratives With about 5000 responses a month the challenge is to analyse and understand the written feedback provided by patients. To do this and to communicate effectively and in a timely way the system allows for the development of a “Wordle”. This visual representation reports the most frequently used words in responses, both positive and negative. It is now widely accessed by managers and staff and used in public areas to showcase what the patients’ experiences of care are. Response themes from the Friends and Family Test (FFT) In-patient and ED Key themes identified: Waiting Waiting continues to be a key theme from FFT feedback. This is however a multifaceted issue. Waiting for medications at night makes it difficult to settle 7 Waiting for hospital transport to and from out patient appointments extends the appointment considerably. Waiting for medication for discharge. Communication Communication is reported as a key theme for improvement, reflecting other sources of feedback and the national trend. Specific issues raised include: Poor communication between medical and nursing staff leading to patients being unsure as to what is happening. Poor communication between other staff such as porters and pharmacy means an increase in delays. Patients and relatives being told conflicting information from staff CSCs which have identified these issues as an area of concern have included in their local quality improvement plan. These will be monitored and reported via quality reports to the Governance and Quality Committee. Improving positive responses in maternity Target: Improve positive responses in maternity Improving positive responses MATERNITY Month Total number likely and very likely Total number responses Overall compliance (including ‘don’t know’) Sept 2015 680 692 98.2% Aug 2015 538 556 96.7% July 2015 556 562 98.9% There has been an overall increase in the number of patients who are likely or very likely to recommend the Trust to a friend or family member. There are a number of responses in September which reflect increased activity. The Q2 average of 98% compares favourably with the national average of 95% (August data). Maternity services response rates and themes Target: reporting only Women are asked to complete an FFT form at four points of contact. Question 1. During the 36th week of pregnancy. 8 Asking women’s experience to date about care received in their pregnancy. This question cannot be asked by the named midwife who has provided care. Question 2. Following birth. Asking for feedback about the labour experience; again the question cannot be asked by the midwife who has provided care in labour. Question 3. Post birth experience. Asking for feedback about care on the postnatal ward prior to discharge home. Question 4. Community postnatal care experience. Asking for feedback about care in the community setting. This care will have been received at home or in a postnatal clinic (depending on individual needs) and is asked when care is transferred to the health visiting team. This occurs between days 14-28 depending on individual needs. Question July 2015 Aug 2015 Sept 2015 1. 9% 6.8% 6.3% 2. 36.3% 35.3% 39% 3. 43.6% 42.4% 54% 4. 33.8 32.3% 32.8% Rate 29.3% 28.8% 34.3% There continue to be challenges to improving response rates for question 1 as many antenatal clinics are based in Children Centres and named midwives cannot ask the women to complete the forms. There is no nationally available data against which to benchmark local response rates. The trust is committed to securing benchmarking data in Q3 via the providers of the FFT surveys to assist in the identification of Trusts who have a significantly better response rate, to learn from their experiences. Response themes Overall, the responses from women in their feedback continue to remain very positive and staff continually recognised individually on the feedback forms. 9 Positive comments The midwife who delivered my baby was professional and caring and made me feel safe comfortable at all times. and Clean tidy environment, very helpful staff and responsive too. The care we received was excellent. Midwives were attentive kind and supportive. Very encouraging and always ready to support my breastfeeding issues. All midwives Drs and maternity support workers were very understanding. All the midwives students and doctors were friendly helpful and supportive explaining everything that was happening and helped me feel relaxed. Negative comments and examples of change Times of home visits could have been more accurate as I felt I was hanging around Action: Women are now encouraged to attend postnatal clinic appointments if they are well, as home visit times can not be guaranteed due to the needs of the wider service. The clinic appointments have been very successful. Improvement being able to sleep as noisy. Action: The staff have all been made aware of issues about noise particularly at night. Staff have been made aware of how noise travels which can disturb sleep and to ensure patient confidentiality. Wearing appropriate footwear. Keeping doors closed etc. to minimise noise. Staff seem to be struggling with broken resources Action: All staff have been informed that all clinical equipment can be replaced if broken. There is also an Assistant Technical Officer in post who regularly checks and ensures that equipment is maintained and functioning. 10 Staff FFT Target: Provide response rates and outcomes During August 2015, staff were asked to complete the quarter 2 friends and family test alongside other key questions. This quarter saw an increase in response rate. There was however, a slight decline in staff recommendation of the place to work and receive treatment as well as staff feeling able to put forward ideas for improvement. Further analysis will take place to understand the cause of this decline. The full results and associated actions are reported in the Integrated Performance Report: Workforce and Organisational Development. 2. National Surveys – achieved Target: 6 monthly update Emergency Department All actions from plan reported to Board in March 2015 have been completed and on time. The department has continued to face significant operational challenges with a sustained increase in the number for people attending the department. Work is in progress to improve the FFT response rates to ensure a contemporary understanding of the patient experience in ED (See section 1). Cancer 11 The Cancer Service Team has made significant improvements based on the key themes identified from the survey. These improvements are detailed in an accessible report written for patients – “You said – we did”. Key changes include: 1 to 1 appointments for patients starting chemotherapy who are unable to attend the scheduled “Demystifying Chemo” Programme Improved information about the services provided by the MacMillan Centre for financial advice. Provision of mobile phones for Clinical Nurse Specialists to improve patients’ ability to contact them in a timely way. Adult In-patient The 2015 Adult In-patient Survey has commenced. Data will be requested from 1250 patients, an increase from a sample size of 850 in 2014. The initial results will be made available in February 2016. Children and young people The Children and Young Peoples (C&YP) Survey asked children, young people and parents for feedback about their inpatient or day case experience. People reported a positive experience of care and said that they felt safe whilst in hospital. Key issues for improvement identified included: Young people adolescents said there were not enough activities for them Actions in Q2 : A landscaper is looking at improving our outside area and there will be a separate area for young people with appropriate age related facilities Young people also fed back out with the survey that they wanted bigger Gym and someone to support them with exercise for better respiratory health. The team created more useable gym space, are looking at better gym kit and are about to advertise for a physio tech whose role will include improving respiratory health through fitness Food quality, timing and nutritional value Action in Q2: Children and young people gave feedback that they were unhappy with food choices. In September we invited parents to taste food. They had food from the adult menu and provided 12 positive feedback. C&YP will now also be offered food from adult menu in addition to the child menu. The implementation of the action plan will continue to be monitored via the Paediatric Standards Committee. 3. Patient Experience Feedback Project Target: Nil- for information only Working in partnership with the University of Portsmouth a 6 week project was commissioned to review all available sources of feedback from patients and their families during a 3 month period May – July 2015. The objectives of the project were to: 1. Identify the feedback opportunities that patients and their families used to tell us about their experience 2. Establish which methods were most frequently used and to consider why 3. Triangulate the feedback themes from the identified sources 4. Make recommendations to improve the accessibility of feedback opportunities to the broader community. All of the objectives were met and the full report provided to the Patient Experience Steering Group members. 4. Patient Engagement - achieved Target: review the current arrangements for engaging with service users, their families and carers and develop a patient engagement strategy. The Trust Patient Engagement Strategy – Participation for Improvement has been developed with the local community, patients, families and carers and ratified by the Trust Board. The strategy is based on the principles of: Outreach – that is working with already established patient and community groups to consult, advise and communicate key issues to and from the Trust. Inclusivity: promoting equal access to all involvement and engagement opportunities including meetings, workshops and feedback methods. Solution development: the process for working with patients and community representatives to design solutions to area identified as requiring improvement. To help us achieve this we have started some new projects: 13 A patient/student buddy system is being piloted for pre-nursing students. This helps people wanting to go on to nurse training understand what is important to patients and their families. We are recruiting new Patient Engagement Volunteers to help us secure more feedback in a variety of ways from patients, families and carers. Implementation of the strategy is being led by patients and carers, and monitored by the Patient Experience Steering Group. The trust is sharing this development with Solent NHS Trust to reflect the fact that our local community are often patients of both trusts and we should endeavour to make their journey as simple as possible. A patient commented in the local press about his experience of involvement. The week’s highlight, though, was being invited to consult on plans to modify the alternate (nonrotating) doors at the southern main reception at Queen Alexandra Hospital. Shocking, because as a disabled person I was treated as a professional, and I’d not even complained about the doors! Eighteen months ago, I decided to be the first, and to that point, only person to complain about how badly disabled visitors and patients are treated even before they enter the hospital, ranging from long distances, poor signage and other concerns…….. I was most pleased to join a forum of user group reps earlier this year which met to prioritise which, of 10 high-level groups of problems found, should be fixed first. This is a major leap forwards, at least on a larger scale, because the NHS, and major hospitals, have a somewhat mixed track record in treating disabled people…….To be invited to consult, and be treated as a peer, not a patient, is a huge leap forwards. It is one thing being a professional trained architect, but nothing beats experience. 5. Improving the experience of carers - achieved Target: Improve communication between staff, carers and those cared for In Q1 it was noted that carers advised they are unable to commit providing feedback using surveys due to time constraints. As requested by carers, the Trust has sought feedback from a) local group meetings and b) via the Portsmouth City Executive Board. Key areas for improvement have been identified as: Early identification of carers – both those new to the role and experienced carers Recognition of the expertise of carers, and active involvement in communication and decisions related to care and treatment of the person they care for. Provision of information about support service available to them and the person they care for. To address these concerns the Trust continues to work in partnership with Portsmouth City Council to deliver the on-site carers service. A total of 181 Carers were identified in QA Hospital between 14 1st July - 30th September. 128 of these were new Portsmouth Carers. 14 of these were Hampshire Carers who received information/advice and signposting to services in the local area. 39 of these were known Portsmouth carers who went onto receive further information/advice, accessed the break fund or had a new Sitting Service put in place. Only 13 carers identified declined all carers support evidencing the need for this valuable support service. 6. Improving patient and carer experience of the discharge process - achieved Target: Outline of outcomes of experience and changes made - Reporting only The results of the Q1 volunteer led survey were reported to the Discharge Team and the key themes included in the Discharge Planning Road Show held in September 2015. In Q2 a further sample of 50 patients who had been discharged over a one week period were contacted by volunteers and invited to participate; all responded. There were significant improvements in patients being involved in decisions about their discharge, a reduction in delays at the point of discharge and improvement in the services provided to support discharge. There was an increase in the number of patients who reported a delay, in medication provision being the cause of the delay. An opportunity for additional comments with an open ended question was provided to allow for a broader feedback opportunity. The full results have been reported to the Discharge Team and will be used to inform further service changes. Question Did you feel involved in decisions about your discharge from hospital? Were you given enough notice about when you were going to be discharged Response Yes definitely Yes to some extent No Did not want to be involved Yes definitely Q1 48% 28% 18% Q2 58% 22% 20% 6% 0% Yes, to some extent 24% 20% No 20% 22% 56% 58% On the day you left hospital, was your discharge Yes delayed for any reason? No 42% 32% What was the main reason for the delay? Medicines 29% 50% How long was the delay? 19% 6.25% Waiting to see Dr Waiting for 19% 12.5% ambulance 33% 31.25% Something else 27% 27% Up to 1 hour 58% 68% Between 1 and 2 13% 18.75% hours 15 Question Response Q1 Between 2 and 4 20% hours Longer than 4 hours 40% Were other services required to support your Yes 62% discharge? 38% No Were there any problems with these services? 16% Yes Q2 25% 18.75% 36% 64% 8% 48% 34% No I did not need any 36% 46% services To supplement this feedback a review of FFT data during this period which referred to admissions, discharge and transfers was completed. This identified 97 examples of feedback which included reference to discharge. Whilst there were no negative reviews there was reference to some delays in receiving medication and waiting for transport to go home. 7. Improving care for end of life patients and their relatives – partially achieved Target: Evaluation of 2nd pilot and finalisation of required amendments, undertake relatives survey reporting only The second phase of the launch of the Adult Priorities of Care (APOC) document included all wards in the Medicine for Older People, Rehabilitation and Stroke and the Renal Department. Education training and awareness events were provided for staff to prepare them for the implementation. Changes were made to the documentation in response to feedback. Members of a local community engagement committee provided advice on the development of a letter which is to be provided to families of patients at the end of life. On the 14th September the PoC documentation was launched across all clinical inpatient areas. Data will emerge regarding use, over the coming months. The Hospital Palliative Care Team continues to support and promote the use of this important plan of care for patients who may be at the end of life. There has been a delay in the planned testing and implementation of the survey. A remedial plan is being developed to ensure delivery in Q3. 8. Improving quality of care for adults with specialist mental health needs - achieved Target: Assurance report on progress of 2 priority issues, staff training and KPIs- reporting only Training Sixty-two (62) members of staff have attended mental health awareness training provided by specialist mental health practitioners. The programme aimed to improve staff understanding of the issues facing and needs of people with specialist mental health needs. The programme was 16 developed based on areas identified as requiring improvement during the quality review 2014/15. The evaluation was very positive with participants reporting significant progress and improved capability in working with people with specialist mental health needs. “It was a very informative snap shot of mental health, it has improved my understanding greatly”. “Good to explore opportunities for joint working”. “I learned a lot from this course which I was unsure of”. “Excellent course content, enjoyable day, everybody got involved”. Further training has been commissioned from an external provider commencing December 2015. A total of 11 sessions are scheduled and evaluation will inform the development of a programme for 2016/17. Key Performance Indicators (KPIs) The Trust continues to work with the commissioners to develop of a set of KPIs which will help determine how effective our internal improvement initiatives are. Mental Health Service User Engagement The Patient Engagement Strategy – Participation for Improvement is based on a principle of inclusivity and a key aim is to further develop opportunities for people to provide feedback about their hospital experience. It is recognised that the current feedback processes can make some people feel vulnerable and therefore using outreach to well established community based groups of mental health service users has been agreed. Commencing November 2015, the trust will be working with the SHIFT group in Portsmouth. Using a workshop approach the aim is to identify the key issues that matter most too mental service users when accessing general hospital services locally. 17 9. Mixed Sex Accommodation (National target and Contract) – Achieved There were no mixed sex breaches in this quarter. 10. Voluntary Services Target: Nil – for information only From helping our patients navigating our hospital buildings, to delivering information leaflets and helping feed patients, our volunteers provide support to patients, families and carers and visitors to the Trust. Currently we have 800 active volunteers and are recruiting 35 – 40 people each month, of all ages and backgrounds. We are actively seeking volunteers who represent the whole local community and will ensure that any reasonable adjustment be made to support a person with a disability join the team. Dementia Volunteers Being in hospital can be disorientating, confusing and distressing for any patient. For those with dementia who may not remember or fully understand where they are, or why, it can have a devastating effect. With demographic changes we are seeing an ever increasing number of patients with dementia and more of these will be living alone at a distance from family support. The Trust is establishing a group of Dementia Volunteers after a successful pilot led by one of our volunteers, John. Dementia volunteers are trained and supported to provide the person with dementia with individual attention purely focussed on meeting their social needs. Taking the time to get to know each patient the volunteers will be focussed on providing companionship and conversation, joining in with and encouraging activities and providing assistance at mealtimes to make them pleasant and sociable. Dementia volunteers will undertake specific dementia related training in addition to the standard training provided to all trust volunteers. This will clarify the nature and boundaries of the role and will include information about Dementia and delirium, communication skills, managing behaviour that challenges and supporting patients to eat and drink. We are aiming high, with a hope to have up to 300 dementia volunteers in the future. The first group of 15 will start training this month. 18 11. Conclusion Over 10,000 patients gave us valuable feedback using the Friends and Family Test (FFT) between July and September. About 95% told us that they were happy with their care and would recommend the Trust to others. We acknowledge that we need to continue to improve the number of people who respond to our request for feedback and have plans in place to do this. We have looked at those responses that said they would not recommend the hospital to try and understand why. Communication and waiting are the key things people have told us we need to improve. We now have a better understanding of what matter most to our patients, their families and carers and are working to make small but significant changes to improve their experience. We have actively involved people in service changes and developments, including the new way finding system, the design of ward information boards and the development of an event to raise staff awareness of the needs of carers. New and innovative approaches to patient and public involvement support our aim of ensuring patients and their families are at the centre of everything we do. Our work with partners from mental health services will enable us to provide a more positive experience of care for people with specialist mental health needs. We will continue to explore how we can encourage people to feed back about their experience. As a Trust we have faced major challenges in the both the number of patients requiring care and treatment and the seriousness of their illnesses. It is increasingly important that at these times, we understand the experience of the people using our services. The following recommendations will ensure that there continues to be a focus on the collection of feedback and prompt action to improve aspects of care and treatment that matter most to patients, their families and carers. 12. Recommendations 1. Clinical Service Centers will develop and implement plans to deliver an improved response rate for Friends and Family Test to ensure that there is a robust measurement of patient experience. 2. The Patient Experience Steering Group will use the outcomes of the review, FFT and complaints and PALS to identify priorities for the remainder of 2015/16. 19