March/April 2014 Volume 40 Issue 4 METRO MARYLAND OSTOMY ASSOCIATION, INC. Celebrating 40 Years of working for Ostomates How to contact us: Phone: 301-946-6661 Fax: 800-543-5870 E-Mail: info@MarylandOstomy.org Web: www.MarylandOstomy.org Message from our President In this Issue Dear Friends: I am not sure about you, but I am ready to say good-bye to winter and welcome in spring, or at least some warmer weather. The snow, ice, and frigid temperatures seem to have taken its toll on many of us. 40th Celebration Brunch Program……………………………2 10 Reasons to be there!…….......3 Maryland Senate Bill 671…….…4 There is no better way to welcome warmer weather, than with a party, and I cannot think of anything better to celebrate than the 40th Anniversary of Metro Maryland Ostomy Association. Do you remember your first introduction to MMOA, or the way you felt when you first learned you needed ostomy surgery? I do, and I also remember how much better I felt after receiving a visitor and coming to a MMOA meeting and talking to other ostomates. These are some of the many things we will be celebrating on Sunday, March 9th at our 40th Anniversary Brunch. I hope you will make every effort to join us. REMINDER: March 9th is when we “spring forward” to Daylight Saving Time. Stoma Dermatitis – Part II.…......5 Your Invitation to the 40th……...6 What the Doctor Ordered – Horace Saunders..……………..7-8 ***In case of bad weather, listen to WTOP News Radio 1500 AM or 107.7 FM or WTOPNEWS.com for Cancellation news of our meeting. *** Metro Maryland Ostomy Association, Inc. is a registered 501(c) (3) tax-exempt, non-profit organization dedicated to the education, rehabilitation, and Assistance of those living with an Ostomy. THRIVE – Metro Maryland Ostomy Association, Inc. March/April 2014 40th Anniversary Brunch Program 11:00 – 11:45 Registration Silent Auction and Product Fair Open 11:45 – 12:00 Guests seated in Ballroom Invitation to Buffet 12:15 – 12:30 Welcome Invocation by Rev. Dr. Wayne Schwandt 12:30 – 12:45 Thank you and Special Recognitions 12:45 – 1:20 Brenda Elsagher, Guest speaker 1:20 – 1:40 40 Years of MMOA 1:30 - Silent Auction & Product Fair Closing 1:40 – 1:55 Award Presentations 1:55 – 2:00 Closing Remarks and Silent Auction Winners Announcement 2 THRIVE – Metro Maryland Ostomy Association, Inc. Top 10 Reasons you need to be there: March/April 2014 Missed a Meeting? 1. Visit with Horace and Vi Saunders. 2. Honor our Founder’s Award Recipients: a. Liz O’Connor, WOCN b. Carol Pettis, WOCN c. Joyce Newmyer, President, Washington Adventist Hospital 3. Visit the vendors at the Product Fair: a. Coloplast b. ConvaTec c. Hollister d. New Hampshire Pharmacy e. Ostomy Secrets 4. Show your support for MMOA in celebrating this milestone Anniversary and all those we have helped in our first 40 years. 5. Enjoy an afternoon of laughs and entertainment as we look back and remember our first 40 years. 6. See friends and visitors you have lost touch with. 7. Great Silent Auction Items and Door Prizes. 8. Enjoy an outstanding Brunch Buffet. 9. Laugh with Author, Comedian and fellow Ostomate Brenda Elsagher. 10. You just never know what surprises await! 3 February Meeting – Presentation by Linda Adelson, CWOCN on the different types of ostomies and stoma care. January Meeting – Presentation by Gwenn Herman from Pain Connection. November Meeting - Presentation by Alison Ehrlich, MD MHS and Research Fellows, Jack short, MD and Samah Hajjar, MD (Dermatology) of George Washington University. We have printed herein the presentation Part II – “Stoma Dermatitis” October Meeting – Presentation by Marie Warner, Montgomery County Fire and Rescue Services, “Fire Safety in the Home and Emergency Medical Services.” Congratulations to the Winners of January Raffle 1st Prize: i-PAD – Charles Trevathan of Columbia NC 2nd Prize: $250 Gift Card – Patricia White of Montgomery Village MD 3rd Prize: $50 Cash - Janice Israel of Mt. Rainier, MD THRIVE – Metro Maryland Ostomy Association, Inc. March/April 2014 Advocating for You in Annapolis SB 671 set for Committee hearing on March 5th Once again this year, MMOA is hard at work advocating for ostomates in Annapolis. As you might remember, last year we worked for passage of legislation that expanded the availability of “employee only” restroom facilities for ostomates and those with Crohn’s, Ulcerative Colitis, and other forms of IBD. This year, we are working with Senators Astle and Benson to secure the passage of SB 671which requires insurance companies and HMO’s in Maryland to provide coverage for Ostomy Equipment on ALL policies. The hearing before the Finance Committee of the Maryland Senate is scheduled to take place on Wednesday, March 5, 2014 at 1:00 pm What can I do to help? • Contact your State Senator and ask for their support of SB 671. o Find out your State Senators information utilizing the following link: http://mgaleg.maryland.gov/webmga/frmmain.aspx?pid=legisrpage&tab=subject6&poptype=find&p opid= o Contact members of the Senate Finance Committee prior to March 5, and ask for their support. o A call as simple as this is all that is needed. Hello, I am _________________, and I have an Ostomy. I know Senator _____________ is a member of the Finance Committee and I am calling to ask for his/her support of Senate Bill (SB) 671. Committee Members: Middleton, Thomas M. (Chair) 301-858-3677 Astle, John C. (Vice Chair) 301-858-3578 Brinkley, David R. 301-858-3704 Glassman, Barry 301-858-3603 Feldman, Brian J. 301-858-3069 Kelley, Delores G. 301-858-3606 Kittleman, Allan H. 301-858-3671 Klausmeier, Katherine 301-858-3620 Mathias, James N., Jr. 301-858-3645 Pugh, Catherine E. 301-858-3656 Ramirez, Victor R. 301-858-3745 4 THRIVE – Metro Maryland Ostomy Association, Inc. Pyoderma Gangrenosum Treatment - Pyoderma Gangrenosum (PG) is a condition that causes tissue to become necrotic (form of cell injury that results in the premature death of cells in living tissue).PG is an uncommon inflammatory and ulcerative skin disorder characterized by the accumulation of neutrophils in the skin. The most common presentation of PG is the rapid development of one or more painful, purulent ulcer with undermined borders on sites of normal or traumatized skin. When they occur, they can lead to chronic wounds. The common conditions associated with pyoderma gangrenosum are Inflammatory Bowel diseases. The treatment for PG: • Topical and injectable corticosteroids • Systemic immunosuppressants may be necessary • Stoma relocation is associated with new ulceration and should be avoided. Prevention - Some prevention methods should include athletic activity consideration (water sports), diet, empting practices, and equipment removal practices and wear time. Patient education about normal vs. abnormal dermatologic reactions after ostomy surgery is necessary. Establishing a regular ostomy nurse visit will reduce complications and costs. Consulting with an ostomy surgery is necessary. Consulting with a WOCN could help to make a schedule for an individual’s stoma dermatitis. Cost Savings- Significant cost savings can be realized through preventative care and proper appliance fitting. A UK study by Martins et al estimated cost savings of 38% over the initial 8 weeks with regular stoma nurse visits and use of a double-layer adhesive ostomy appliance. UK cost savings were estimated at 28M GBP, considering a UK population of 100,000 living with stomas. Conclusion - Peristomal skin complications are quite common among ostomy patients, and both prevention and proper management of these dermatologic issues are important to the patient's well-being. Preventing cases of peristomal dermatitis can make postoperative recovery and the subsequent lifestyle more bearable for the patient. Fewer peristomal skin problems ultimately create a better surface for the ostomy equipment to bind to, which helps prevent complications due to leakage. Further research on the potential allergens in ostomy equipment and products is also necessary to create more options for patients. Proper postoperative follow-ups are needed to address any complications that do arise. It is also important to educate patients about the types of dermatologic issues that are normal with an ostomy as well as those that are abnormal. The much needed communication and cooperation among surgeons, wound care nurses and dermatologists would mean ostomy patients’ recovery and quality of life will be greatly improved. Stoma Dermatitis: Part II - by Allison Ehrlich, MD MHS and Research Fellows, Jack Short, MD and Samah Hajjar, MD of George Washington University gave this presentation at the MMOA meeting on November 10, 2013. (Part I was in the January/February 2014 issue. Part II will deal with Allergic Contact Dermatitis.) March/April 2014 Allergic Contact Dermatitis - Symptoms may be clinically indistinguishable, especially in the occluded (closed or stopped up) ostomy setting. Fecal or urine irritation is far more common overall than allergic contact dermatitis. Patch testing should be considered for all cases in which dermatitis is not clearly associated with fecal/urine irritant, physical irritant, infection, or primary skin disorder. Those with Allergic Contact Dermatitis (ACD) can substantially benefit from avoidance of culprit products. Immunologic or Peristomal (ACD) causes are common allergens in: √ Cleansers whose ingredients include propylene glycol, Isopropyl alcohol, Methylchloroisothiazole (a biocide commonly found in wet wipes), and bronopol. √ Deodorants are Cinnamal, oak moss absolute, and fragrances. Emerging Allergens are found in the ingredients in adhesives and tapes and topical adhesives. Peristomal ACD can be caused by the following stoma equipment. Most frequently reported are epoxy resins found in: √ Sealing Ring • Rubber in sealing ring • Karaya sealing ring - Natural resin often mixed with glycerin and parabenzoin to improve adhesion • Diaminodiphenylmethane - Rubber antioxidant, epoxy resin hardener • Polyisobutylene - Also used in rubber, hydrocolloids - Patients may be sensitive to certain additives/impurities √ Ostomy Bag • Epoxy resins in ostomy bag - Bisphenol Type A • 2-benzotriazol (Tinuvin P) - Substance migration from core of equipment to surface - Reaction may occur after prolonged exposure Wear time is important in substance migration reactions. Patch Testing is recommended for all cases of dermatitis that is not clearly associated with an irritant or infection or primary skin disorder. Recommend testing includes the following: Standard Series Plastic, glues Cosmetics Fragrances Supplements such as • Caines (mix consists of benzocaine, tetracaine, dibucaine), Epoxy resins (BPA), Karaya, Balsam of Peru, Diaminodiphenylmethane, Polyisobutylene • Patient specific - Ostomy equipment - Stoma accessories “Women hold up half the sky.” — Chinese proverb March is Women’s History Month April is National Women’s Health Week 5 THRIVE – Metro Maryland Ostomy Association, Inc. March/April 2014 Remember to RSVP and buy your Brunch tickets in Advance Celebrate with Us! Metro Maryland Ostomy Association, Inc. 40th Anniversary Brunch and Inaugural Founders Award Celebration Sunday, March 09, 2014 11:00 – 2:00 PM Sheraton Silver Spring Hotel Cypress Ballroom (4th Floor) 8777 Georgia Avenue Silver Spring, MD 20910 Tickets: $40 per person (Members) $50 per person (Non-Members) $60 per person at the Door RSVP by March 5, 2014 info@MarylandOstomy.org (301) 946-6661 6 THRIVE – Metro Maryland Ostomy Association, Inc. Remembering times within our 40 years… 7 March/April 2014 THRIVE – Metro Maryland Ostomy Association, Inc. 8 March/April 2014 THRIVE – Metro Maryland Ostomy Association, Inc. March/April 2014 Please Support Our Advertisers The ‘big picture’ in home health care is bigger than you think. MEDICAL EQUIPMENT • SUPPLIES • PRESCRIPTIONS It’s all about total peace of mind. All the supplies you’re looking for. And More. Services that focus on accessing your benefits. Visit our new showroom today. 202.726.3100 5001 New Hampshire Ave, NW Washington, DC www.nhmedsupply.com fax: 202.291.5259 hours: Mon-Fri 9-6 • Sat 9-3 9 THRIVE – Metro Maryland Ostomy Association, Inc. March/April 2014 MMOA Uses Social Media to Reach You We appreciate and depend on your support for Metro Maryland. We have only one fund raiser each year; our annual raffle. But this year we are celebrating the 40th Anniversary! Join us on March 9, 2014 from 11 to 2:00 pm at Sheraton in Silver Spring. Help Metro Maryland celebrate and continue to support ostomates on their journey… for many more years! We recognized it was time to make our small corner of the world more available through social media to those who are in need of our assistance or know someone who is. We continue to be there for ostomates either by telephone or in person. At MMOA’s meetings we have experienced the generosity of our members sharing themselves and their experiences with ostomates, not only to gain confidence in ourselves, but to reach out to new ostomates who just need a little word of encouragement. MMOA wants to continue to be there for ostomates… for YOU. Please visit us on Facebook and follow us on twitter@MarylandOstomy. MMOA, Inc. 12320 Parklawn Drive, Suite 241 Rockville, MD 20852