THE METROPOLITAN CHICAGO NAVIGATION INITIATIVE Portes Foundation-Institute of Medicine Chicago Grant Application Anne Marie Murphy, PhD David Ansell, MD, MPH The Metropolitan Chicago Navigation Initiative Proposal to Portes Foundation-Institute of Medicine Chicago CONTENTS Executive Summary .......................................................................................................................................................3 Grant Narrative ..............................................................................................................................................................5 Background and Rationale .........................................................................................................................................5 Purpose of the Study ...............................................................................................................................................10 Metropolitan Chicago Navigation Initiative .............................................................................................................11 Research Design .......................................................................................................................................................12 Outcomes and Outputs............................................................................................................................................13 Evaluation Methodology .........................................................................................................................................14 Data collection .........................................................................................................................................................17 Work Plan ................................................................................................................................................................18 Pre-funding Preparation ..........................................................................................................................................18 Budget .........................................................................................................................................................................18 Biographical Sketches ..................................................................................................................................................21 Task Force Advisory Boards and Committees ..............................................................................................................30 2|P a g e The Metropolitan Chicago Navigation Initiative Proposal to Portes Foundation-Institute of Medicine Chicago EXECUTIVE SUMMARY We propose to conduct a study whose primary purpose is to evaluate the efficacy of the Metropolitan Chicago Navigation Initiative in improving health care resource utilization; improving access to quality breast health services; and addressing cultural beliefs contributing to the disparity in breast cancer mortality for Black and underserved women in Chicago. Secondary aims of this study include development of policy recommendations to improve access to and quality of breast health care; development of replicable evaluation methodology for navigation programs; and development of an evidence-based model for navigation that may be replicated for other health disparities whose causes include system barriers, uneven geographic resource allocation and cultural beliefs that act as barriers to care utilization among adversely affected patient populations. Lastly, we seek to identify further areas of improvement for this initiative. Across the United States, black women have a lower incidence rate of breast cancer but poorer survival compared to white women.1 In 2007, published research demonstrated that breast cancer mortality in black women was 62% higher than white women in Chicago.2 Local studies have highlighted the complexity and multifaceted nature of this problem in Chicago.3 Access to quality breast health care and timely intervention has proven to increase early detection and survival from breast cancer. In Chicago, studies have demonstrated that Black and uninsured women are less likely to access quality breast health care in a timely manner provided by specialized practitioners.4 Since its inception in 2008, the Metropolitan Chicago Breast Cancer Task Force (Task Force) has conducted rigorous analyses that have evidenced numerous policy and health system barriers that contribute to disparate outcomes for Black and underserved women. The Task Force has established best practice guidelines in breast cancer mortality prevention efforts. Recently, two client navigation programs were piloted to address access to care and health system fragmentation for minority and underserved women. These programs significantly increased mammography utilization for uninsured and publicly insured women, and identified opportunities for quality improvement for health care facilities. Evaluation and further development of this work will advance scientific knowledge of the benefits of a comprehensive navigation approach that includes targeted outreach and education in addressing interpersonal barriers. This work is particularly timely with the roll out of the Affordable Care Act and the 1 Smigal C, Jemal A, Ward E, et al: Trends in breast cancer by race and ethnicity: Update 2006. CA Cancer J Clin 56: 168-183, 2006 2 Metropolitan Chicago Breast Cancer Task Force Annual Report Back to the Community, 2010. 3 Ansell D, Grabler P, Whitman S, Ferrans C, Burgess-Bishop J, Murray LR, Rao R, Marcus E. A community effort to reduce the black/white breast cancer mortality disparity in Chicago. Cancer Causes Control. 2009; 20(9): 16811688. 4 Allgood K, Rauscher G, Whitman S. Screening Mammography Need, Utilization and Capacity in Chicago: Can We Fulfill Our Mission and Our Promises? In N. Uchiyama & M. Zanchetta do Nascimento (Eds.), Mammography Recent Advances. Rijeka, Croatia: InTech. 2012 3|P a g e The Metropolitan Chicago Navigation Initiative Proposal to Portes Foundation-Institute of Medicine Chicago increase in enrollment in Illinois Medicaid, which historically has had the lowest screening rates for mammography among insured populations.5 We are requesting $35,000 to conduct a formal evaluation of the two pilot navigation programs that will be managed internally as a single Navigation Initiative. The Task Force has additional resources to support implementation of the Initiative. To date, sixteen facilities have committed to donating over 2500 mammograms to increase access to quality screening for uninsured and under-insured women. In addition, the Task Force has expert leadership in developing successful interventions for underserved communities (see expert advisory board members page 20). Overall, we expect that the Navigation Initiative will reach the women who are most impacted by the disparity; change health seeking behavior (get screened and become routine screeners); and improve breast health knowledge, ultimately leading to improved mammography utilization, earlier detection of disease, and timely follow-up and treatment when necessary at a comprehensive breast center where a multidisciplinary team coordinates care. 5 Data presented at an Illinois Breast Cancer Screening and Treatment Quality Initiative Board meeting. 4|P a g e The Metropolitan Chicago Navigation Initiative Proposal to Portes Foundation-Institute of Medicine Chicago GRANT NARRATIVE BACKGROUND AND RATIONALE Despite all of the technological advances in breast cancer screening, diagnosis and treatment, mortality rates for Black women in Chicago have remained relatively constant over the past twenty-five years. This stands in stark contrast to the significant decline in breast cancer mortality rates for non-Hispanic White women.6 In 2007, the breast cancer mortality rate for Black women was 62% higher than the rate for their white counterparts, as shown in Figure 1.7 Annually in Chicago, there are 70 excess deaths in Black women due this disparity. This inequality represents one of the highest racial disparities in breast cancer mortality in the United States. 8 A recent study of the twenty-five largest metropolitan cities in the US demonstrates that Chicago has the fifth highest racial disparity in breast cancer mortality – 61% – compared to New York at 24% and San Francisco with no disparity.9 This extreme geographic variability in breast cancer mortality between numerous racially/ethnically diverse cities across the United States suggests that differential biology is not the driving force behind this problem. Though one study identified a small subset of African women to have a predisposition for more aggressive tumors, this still does not explain the current Black:White breast cancer disparity in the United States. The difference in mortality rates far between New York, Baltimore, and San Francisco as compared to Chicago suggests that the health system in these cities supports better health outcomes.10 6 Hirschman J, Whitman S, Ansell D. The black:white disparity in breast cancer mortality: the example of Chicago. Cancer Causes Control 2007;18(3):323–333 7 Metropolitan Chicago Breast Cancer Task Force, Op Cit. 8 Whitman S, Orsi J, Hurlbert M. The racial disparity in breast cancer mortality in the 25 largest cities in the United States Cancer Epidemiology 36 (2012) e147–e151. 9 Ibid. 10 Dezheng Huo, Francis Ikpatt, Andrey Khramtsov, Jean-Marie Dangou, Rita Nanda, James Dignam, Bifeng Zhang, Tatyana Grushko, Chunling Zhang, Olayiwola Oluwasola, David Malaka, Sani Malami, Abayomi Odetunde, Adewumi O. Adeoye, Festus Iyare, Adeyinka Falusi, Charles M. Perou, Olifunmi Olopade. Population Differences in Breast Cancer: Survey in Indigenous African Women Reveals Over-Representation of Triple-Negative Breast Cancer. Journal of Cancer Oncology (2009) 27, No. 27, 4515-4521. 5|P a g e The Metropolitan Chicago Navigation Initiative Proposal to Portes Foundation-Institute of Medicine Chicago 62% Figure 1. Black:White Aggregate Age Adjusted Mortality, Chicago 1981-2007 Although the debate is ongoing, a number of factors contributing to this disparity have been identified including health system and intrapersonal barriers. Specifically, differences in access to care, quality of mammography, and utilization of breast health services have been identified as significant contributing factors to this problem.11, 12 In Chicago, access to and quality of care are functions of capacity and geography. A local study of mammography capacity in Chicago demonstrated a considerable unmet need in screening mammography services.13 The city does not have adequate screening mammography capacity defined by the number of machines to adequately screen every age-eligible resident annually. In addition, there is a shortage in fellowship-trained radiologists and specialized radiology technologists. These specialized providers equate to quality care, which is concentrated in high volume and/or academic facilities in the Chicago metro area. The study also found that high volume facilities were less likely to serve patient populations who were majority Black or Hispanic.14 To further exacerbate the problem of access, Chicago’s only public hospital stopped providing screening mammograms, eliminating 10,000 screening exams that were previously provided annually to predominately underserved women.15 The Chicago Department of Public Health clinics have also decreased in the volume of mammograms they provide and have recently lost state funding for mammography services due to alleged poor quality. In addition, the statewide screening program for uninsured women is underfunded. In the last two years, the statewide program has run out of funds for screening mammograms within the first 3 or 4 11 Ansell et al., Op Cit. Rauscher G., Murphy A.M., Orsi J.M., Dupuy D.M., Grabler P.M, Weldon, C.B. “Beyond MQSA: Measuring the quality of breast cancer screening programs” American Journal of Roentology – in press. 13 Allgood K, Rauscher G, Whitman S. Screening Mammography Need, Utilization and Capacity in Chicago: Can We Fulfill Our Mission and Our Promises? In N. Uchiyama & M. Zanchetta do Nascimento (Eds.), Mammography Recent Advances. Rijeka, Croatia: InTech. 2012 14 Ibid. 15 Ibid. 12 6|P a g e The Metropolitan Chicago Navigation Initiative Proposal to Portes Foundation-Institute of Medicine Chicago months of the state fiscal year. Insufficient capacity and uneven geographic distribution of mammography screening resources are among the major contributing factors to these disparities. As a result, Black women in Chicago are less likely to have breast cancer detected through screening mammography.16 In addition, Black women are less likely to have their mammograms read by breast imaging specialists; more likely to present with later stage breast cancer; and more likely to experience delays in diagnosis and treatment compared to White women.17,18,19 A report by the Dartmouth Institute for Health Policy and Clinical Practice in September 2010 showed that among all Medicare recipients, Chicago has the lowest mammogram screening rates in the nation, with even lower rates for Black women served by Medicare.20. A recent study by the University of Illinois at Chicago showed that more Black women held cultural beliefs about breast cancer that caused them to delay seeking care for suspicious breast symptoms. No such relationship was found for Caucasian women.21,22,23 These studies suggest that the disparity in mortality may be exacerbated by lack of effective breast cancer education, in addition to systemic barriers to access timely, quality mammography screening and treatment. Since its inception in 2008, the Metropolitan Chicago Breast Cancer Task Force (Task Force) has initiated projects that have established best practice guidelines in breast cancer mortality prevention efforts. In particular, the Task Force established a healthcare collaborative project known as the Chicago Breast Cancer Quality Consortium (Consortium) – the nation’s first federally designated Patient Safety Organization dedicated exclusively to breast health and the elimination of racial breast health disparities. Through the Consortium, the Task Force has created a mammography and a breast cancer treatment quality surveillance system. With passage of Public Laws 95-1045 and 97-0638, the mammography component has been incorporated into the Illinois Medicaid program and this year has gone statewide. Under this new initiative, Illinois becomes the first state in the nation to have a mammography quality surveillance system that is more rigorous than the federal Mammography Quality Standards 16 Ansell, Op Cit. Ibid 18 Rauscher GH, Allgood KL, Whitman S, Conant E. Disparities in Screening Mammography Services by Race/Ethnicity and Health Insurance Journal of Women's Health, 2012; 21(2): 154-160 19 Rauscher GH, Ferrans CE, Kaiser KK, Campbell RT, Calhoun E, Warnecke RB. Misconceptions about breast lumps and delayed medical presentation in urban breast cancer patients. Cancer Epidemiology, Biomarkers and Prevention 2010;19(3):640-7. PMCID: PMC3625394. 20 Fisher ES, Goodman DC, Chandra A. Disparities in Health and Health Care among Medicare Beneficiaries. A Brief Report of the Dartmouth Atlas Project. By Dartmouth Institute for Health Policy and Clinical Practice in September 2010 21 Rauscher et al., Misconceptions about breast lumps and delayed medical presentation in urban breast cancer patients. Op Cit. 22 Peek ME, Sayad JV, Markwardt R. Fear, Fatalism and Breast Cancer Screening in Low-income African American Women: The Role of Clinicians and the Health Care System. Journal of General Internal Medicine. 2008 23(11):184753 23 Kaiser K, Cameron KA, Curry G, Stolley M. Black Women’s Awareness of Breast Cancer Disparity and Perceptions of the Causes of Disparity. Journal of Community Health. 2013 38:766-772. 17 7|P a g e The Metropolitan Chicago Navigation Initiative Proposal to Portes Foundation-Institute of Medicine Chicago Act. We currently have participation by 160 academic and community institutions in the mammography surveillance system statewide and have 28 hospitals participating in our treatment quality project. In addition, the Task Force has engaged in care process analysis at 26 institutions across Metropolitan Chicago to better understand the pathway that women follow when accessing breast health services. Findings from the care process analysis indicated considerable variation in processes of care across mammography facilities. It was identified that many lower resource facilities did not have sufficient capacity to track patients, resulting in a higher rate of women not obtaining their mammogram results or, more importantly, not returning for additional imaging after an abnormality was found.24 In the literature, patient navigation interventions have demonstrated considerable success in mitigating some of the barriers to breast health care identified above.25, 26 The National Cancer Institute Patient Navigation Research Program was found to reduce time to diagnostic resolution, time to treatment initiation and patient satisfaction. 27 While promising, the literature notes several limitations to existing navigation programs and community based interventions. Specifically, there is considerable variation in the defined roles and responsibilities of the navigator. While there is a breadth of navigation programs, few of these programs intervene at the point of screening initiation. Perplexingly, there are a number of community-based and clinic/hospital based programs involved in breast cancer screening and navigation across Metropolitan Chicago. However, the organizations use widely diverse methods in their work with varying levels of success. Notably, these disparate approaches have had limited impact on reducing the disparity in breast cancer mortality rates for Black women in the city. One of the factors contributing to the limited impact for most health promotion initiatives is the lack of resources allocated to program evaluation. The need for sound if not rigorous evaluation remains essential to all public health programs, especially those at the community level. 28 , 29 Without sufficient evaluation, the effectiveness of an intervention cannot be assessed. Currently, community based interventions are typically not included in systematic 24 Weldon C., Trosman J., Dupuy D., Roggenkamp B., Schink J., Orsi J., Murphy A.M. “Do patient tracking, followup, and referral practices contribute to breast cancer disparities in a large urban area?” abstract accepted for presentation ASCO 2012 25 Nguyen TUN, Kagawa-Singer M. Overcoming Barriers to Cancer Care through Health Navigation Programs. Seminars in Oncology Nursing 2008. 24(4). 270-8. 26 Carroll JK, Humiston SG, Meldrum SC, Salamone CM, Jean-Pierre P, Epstein RM, Fiscella K. Patient Experiences with Patient Navigation for Cancer Care. Patient Education and Counseling. 2010 80. 241-7 27 Freund KM, Battaglia TA, Calhoun E, Dudley DJ, Fiscella K, Pasket E, Raich PC, Roetzheim RG. National Cancer Institute Patient Navigation Research Program Methods, Protocol and Measures. Cancer. 2008, 113(12), 33913399. 28 Pettman TL, Armstrong R, Doyle J, Burford B, Anderson LM, Hillgrove T, Honey N, Waters E. Strengthening Evaluation to Capture the Breadth of Public Health Practice: Ideal vs. Real. Journal of Public Health. 2012. 34(1), 151-5. 29 Whitney W, Duthcer GA, Keselman A. Evaluation of Health Information Outreach: Theory, Practice, and Future Direction. Journal of Medical Library Association. 2013. 101(2). 138-46. 8|P a g e The Metropolitan Chicago Navigation Initiative Proposal to Portes Foundation-Institute of Medicine Chicago reviews as are experimental studies. Improving the quality of evaluation of non-experimental and/or community based interventions will lead to inclusion of such interventions in the broader conversation in the literature, which will in turn promote a culture of practice-based evidence informing future public health practice30. Informed by our previous efforts including quality data collection and care process analysis, the Task Force piloted two breast cancer prevention initiatives over the past year. Screen to Live (STL) is a community-based outreach and navigation program for uninsured and publicly insured women who live in Englewood and West Englewood. These are predominately Black community areas with two of the highest breast cancer mortality rates in the city. To date the women navigated through STL have been 70% uninsured, 23% publicly insured and 7% privately insured. The second program, Beyond October (BYO), is a Metro wide navigation program for self-referring uninsured women. BYO was promoted via the media and community partners all across Metro Chicago and generally women initiated contact with the Task Force themselves to request a mammogram. Several collaborating health facilities including academic and safety net hospitals donated free mammograms to benefit underserved women. As a result of partnerships developed by the Task Force, these pilot programs increased mammography capacity and access to quality care for uninsured and under-insured women. In the last year, over 1,100 women received navigation services, and 906 women completed a mammogram and obtained their results through these two programs. These pilot programs highlighted successful strategies to reach marginalized women and increase mammography utilization. These programs patch a fragmented system and help identify gaps in care processes that increase the time between screening and diagnostic care and the number of women who are lost to follow up. The Task Force plans to continue work piloted in STL and BYO. Moving forward and for the purposes of this study, internally the pilot programs Screen to Live and Beyond October will be consolidated into the Metropolitan Chicago Navigation Initiative (Navigation Initiative). The novelty of the Navigation Initiative lies in that the Task Force has created a comprehensive navigation program responding to the individual needs of the women serviced. Task Force staff members navigate women across the breast cancer care spectrum utilizing in-kind resources from a wide variety of facilities across the city, each with their own policies and procedures. Our initiatives address many of the areas of concern raised by the studies cited above. 30 Ibid. 9|P a g e The Metropolitan Chicago Navigation Initiative Proposal to Portes Foundation-Institute of Medicine Chicago In summary, the racial disparity in breast cancer mortality is a complex ecological phenomenon, illustrated in Figure 2. To eliminate this disparity, a multifaceted approach is imperative to address all the contributing factors. Interventions also need to include a comprehensive evaluation component to measure efficacy and impact. Public Policy •Insufficient funding for state screening programs for underserved women Health system Barriers •Variation in access to & quality of breast health resources Community Barriers •Social Norms Mistrust of health care system Intrapersonal Barriers •Insufficient Health Seeking Behavior •Fear and mistrust •Lack of knowledge Figure 2. Ecological Model of the complexity of the factors contributing to racial disparity in breast cancer mortality in Chicago. PURPOSE OF THE STUDY The primary purpose of this study is to evaluate the efficacy of the Metropolitan Chicago Navigation Initiative in improving health care resource utilization; access to quality breast health services; health seeking behavior and addressing cultural beliefs contributing to the disparity in breast cancer mortality for Black and underserved women in Chicago. Secondary aims of this study include the development of policy recommendations to improve access to and quality of breast health care; the development of a replicable evaluation methodology for 10 | P a g e The Metropolitan Chicago Navigation Initiative Proposal to Portes Foundation-Institute of Medicine Chicago other navigation programs; and the development of an evidence-based model for navigation that may be replicated for disparities impacting other health outcomes. Lastly, we seek to identify further areas of improvement for this initiative. METROPOLITAN CHICAGO NAVIGATION INITIATIVE Since 2012, eighteen medical facilities have donated over 2500 free mammograms to support our efforts to increase access to quality care for underserved women. Over the past year, the efforts of the pilot programs were enhanced. The intervention strategies of the Navigation Initiative consist of outreach, education and navigation efforts to address community and interpersonal barriers contributing to the disparate breast outcomes for minority and underserved women. Typical methods (i.e. medical facilities mailings or phone calls) to reach most marginalized populations are insufficient. Use of peer educators or community navigators working in the community; as well as use of outreach strategies in unconventional locations such as on the street, bus, or laundromats has been successful in reaching marginalized populations. In the Navigation Initiative, navigators will attend community events such health fairs and community meetings. Specialized strategies such as street outreach will be conducted in communities with the highest breast cancer mortality rates. In addition, the initiative will be promoted via media and community partners throughout Metro Chicago. Following outreach, the second component of this intervention is education. Increased knowledge and improved attitude regarding breast health have been shown to improve interpersonal barriers to mammography utilization. However, health behavior change is as complex as the problem to be addressed. Two health behavior models facilitate understanding the factors impacting healthcare decision-making. According to the Theory of Planned Behavior, behavior is a function of one’s intent, which is determined by a person’s attitude toward the behavior, social norms (what do other people believe the person should do) and lastly, the individual’s perception of their ability to perform the behavior (self-efficacy).31,32,33 The Transtheoretical (Stages of Change) Model explains behavior change as a process of six stages: Pre-contemplation, Contemplation, Preparation, Action, Maintenance and Termination.34 The Pre-contemplative stage typically represents women who lack health seeking behavior and who do not intend to get a mammogram. Breast health awareness is critical to encourage women to begin contemplating getting screened and transitioning to the next stage. Once in the contemplative stage, an individual intends to make the behavior change within six months. Women who self-refer into our program 31 Ajzen, I. (1991). The Theory of Planned Behavior. Organizational Behavior and Human Decision Processes, 50, 179–211. 32 Armitage, C., & Conner, M. (2001). Efficacy of the theory of planned behavior: A meta-analytic review. British Journal of Social Psychology, 40, 471–499. 33 Grizzell, J. (2007, 1/27/2007). Behavior Change Theories and Models. Retrieved January 28, 2007, from http://www.csupomona.edu/~jvgrizzell/best_practices/bctheory.html. 34 Prochaska, J., Johnson, S., & Lee, P. (1998). The transtheoretical model of behavior change. In S. Schumaker, E. Schron, J. Ockene & W. McBee (Eds.), The Handbook of Health Behavior Change, 2nd ed. New York, NY: Springer. 11 | P a g e The Metropolitan Chicago Navigation Initiative Proposal to Portes Foundation-Institute of Medicine Chicago and request a mammogram represent individuals in the preparation stage; they are in the process of developing an action plan to get screened. Once a woman has completed her mammogram, she has transitioned to the Action stage. Non routine screeners represent women in the maintenance stage; while individuals who reach the termination stage are routine screeners who are fully aware and empowered to maintain their breast health. The Model posits that an individual will cycle through the early stages repeatedly, unless there is a targeted intervention. Financial barriers and lapses in insurance are possible factors contributing to relapses in the later stage between routine and non-routine screening. These two models provide a foundation to conceptualize barriers to mammography utilization as well as strategies to facilitate behavior change based on the individual stage of the client. To successfully meet the individual needs of each client in the Navigation Initiative, an educational curriculum has been developed based on these theoretical models. Messages will be tailored for each client based on their current stage of change to facilitate progression to the final stage of desired behavior. Once a client has decided to get a mammogram, navigation services will be provided to her throughout the breast health continuum. Our navigation services include assisting clients in obtaining an order for a screening, scheduling the exam, completion of the exam, obtaining exam results and prior films for comparison, and, if needed, scheduling and completion of diagnostics. Navigators act as a liaison between the patient and the medical facility and contact both parties throughout the process to ensure that the client has successfully completed the breast health process, accessed all necessary services, and is knowledgeable of the next step of care (i.e. annual screening or short-term follow up). RESEARCH DESIGN A non-experimental pretest–posttest design will be used to assess the efficacy of the intervention strategies employed by the Navigation Initiative. The targeted population for this intervention is women 40 and older who are uninsured, underinsured or publicly insured through Medicaid. However, assistance will be provided to any woman seeking information and/or support in obtaining breast health care. Outreach efforts will be focused in the following Chicago Southside communities who have the highest breast cancer mortality rates in the city Englewood, West Englewood, Roseland, Chatham, and Auburn Gresham. Attendance at other community events such as health fairs and church events will be provided upon request from a community stakeholder. All participants will be assessed using a pretest questionnaire to establish a baseline level of knowledge, attitudes and behaviors related to breast cancer and health resource utilization,. The client will choose which level of services she wishes to receive. Women seeking breast health education only will represent the comparison group, and those choosing to receive education and navigation services will comprise the intervention group. This is discussed further in the Evaluation section of this proposal. 12 | P a g e The Metropolitan Chicago Navigation Initiative Proposal to Portes Foundation-Institute of Medicine Chicago We anticipate that women who receive education and navigation will show an increase in breast health knowledge, decrease in fears and fatalistic attitudes related to breast cancer and mammography and improvement in their stage of behavior change when compared to women who receive education only. This project will be submitted for approval to the Rush University Medical Center Institutional Review Board. OUTCOMES AND OUTPUTS The targeted outcomes and expected deliverables for the Navigation Initiative are presented below in Table 1 respective to the specific intervention strategy. Table 1. Program deliverables and evaluation outcomes respective to related intervention strategy Intervention Strategy Outputs Outreach Outreach Form Community Navigator Training Curriculum Process Outcomes Impact Reach 2000 women through outreach and self-referral Train 7 Navigators Education Breast Health Education Curriculum Educate 1,000 women Increase intensity/dose of services provided Assess integrity of service to planned design Increase intensity/ dose of services provided and received Navigation Protocol Client Tracking Tool Navigation Community Resource Guide Increase patient knowledge of the benefits of mammography and early detection Decrease fatalistic attitudes regarding breast cancer Decrease fear of screening Increase mammography utilization Increase mammography utilization Increase access to quality breast health services Increase number of women who become routine screeners Increase timely follow up for diagnostic imaging Decrease the rate of patients who are lost to follow up 13 | P a g e The Metropolitan Chicago Navigation Initiative Proposal to Portes Foundation-Institute of Medicine Chicago EVALUATION METHODOLOGY Currently, the local and national landscape of health care is changing dramatically. In Chicago, breast health services can be described as non-existent, inaccessible and under-utilized. It is this context that necessitates the Navigation Initiative and the rigorous evaluation of this work. The Navigation Initiative is in the implementation stage of development. After one year of piloting, barriers and facilitators to the process and impact outcomes have been identified. These findings have informed the enhancement of the Task Force’s navigation efforts, and have led to the development of theory-based interventions for the Navigation Initiative. The current study will evaluate the efficacy the Navigation Initiative in increasing mammography utilization and improve knowledge, attitudes and behaviors related to breast cancer awareness. Expected process and impact outcomes have been established and, in tandem to implementation, an evaluative study will be conducted to assess the fidelity of implementation and success of accomplishing expected outcomes. The Evaluation Framework developed by the Centers for Disease Control and Prevention has been utilized to develop the evaluation plan of the Navigation Initiative. As stated previously, a non-experimental pretest–posttest design will be used to assess the efficacy of the intervention strategies employed by the Navigation Initiative. The target population for this intervention is minority women, particularly African American age 40 and older who are uninsured or under-insured. Outreach activities will be accessible to all women in this target group. Women recruited and or contacted through outreach will have an option to receive education only, or education and navigation. For purposes of the evaluation, receipt of education-only refers to the comparison group; while receipt of both education and navigation refers to the intervention group. Those in the intervention group will receive more intensive support and education that we anticipate will favorably impact the clients’ attitudes toward mammography utilization and their self-efficacy to become routine screeners. The more intervention and navigation services a woman obtains, the more likely that individual woman will acquire sustainable favorable health behavior change which, if taken collectively, may improve breast health outcomes for Chicago’s most vulnerable women. This concept can also be explained as behaving in a dose response manner, an increase in services provided leading to an increase in desired study outcomes. Outcomes will be stratified by point of entry into the program (outreach vs. self-referral); services received; services completed; and pre and post stage of change. A navigation index will be created based on the volume and duration of each point of contact with a given client. The following navigation actions will serve as critical points of navigator-client contact during the study: Completion of intake process Appointment reminder call and preparation Notification of results If diagnostic services are required, scheduling and follow-up as needed 14 | P a g e The Metropolitan Chicago Navigation Initiative Proposal to Portes Foundation-Institute of Medicine Chicago The index will assess the dose/response within the intervention group based on the intensity of the navigation process. One hypothesis is that, women who self-refer may be at a higher stage of change and therefore will require less intense navigation to complete their mammogram. Throughout the navigation process, identification of critical personal/social barriers that undermine positive health behaviors will be documented using the navigation tool and pre-post questionnaires. Overall, we hope to identify which strategies are most successful to reach underserved women; which education messages are best to promote women becoming routine screeners; which navigation strategies increase mammogram completion and reduce delays in the care process. The indicators that will be measured in the evaluation are listed in Table 2. 15 | P a g e The Metropolitan Chicago Navigation Initiative Proposal to Portes Foundation-Institute of Medicine Chicago Table 2. Expected Outcomes, shown with respective indicators and data collection method. Outcomes Integrity of service to planned design Indicators Were the outreach, education and navigation activities implemented as planned? Y/N If, N description of the variance. Number, type and duration of outreach events, educational sessions and navigation services provided Impact Process Intensity/dose of services provided and Number, type and duration for received services received Reach into the target population Increase patient knowledge of the benefits of mammography and early detection Decrease fatalistic attitudes regarding breast cancer Decrease fear of screening Increase mammography utilization Increase number of women who become routine screeners Increase timely follow up for diagnostic imaging Decrease the rate of women who are lost to follow up Time to complete the navigation process Number and type of recruitment strategies Number and type of women receiving services Knowledge of breast health facts before and after receipt of education Data Collection Forms Outreach Tracking Form Navigation Tool Outreach Tracking Form Pre/post questionnaire Intake Form Navigation Tool Outreach Tracking Form Pre/post questionnaire Intake Form Navigation Tool Navigation Tool Outreach Tracking Form Pre/post questionnaire Intake Form Pre/post questionnaire Patient knowledge, attitude and behavior regarding use of breast Pre/post questionnaire care services Patient knowledge, attitude and Pre/post questionnaire behavior regarding screening Number of completed mammograms Navigation Tool Number of women who indicate last mammogram was within the last 2 years on intake. Pre/post questionnaire Intake Form Percent of women with abnormal screening who get diagnostic follow-up within 30 days Navigation Tool Number of women who complete navigation process from screening to receipt of results Navigation Tool 16 | P a g e The Metropolitan Chicago Navigation Initiative Proposal to Portes Foundation-Institute of Medicine Chicago DATA COLLECTION A mixed methodology will be utilized to collect data for this evaluation. Secondary data will come from the mammography quality surveillance and care process analyses described above and vital statistics. A variety of tools will be used to collect primary data for the project. An intake form is used to collect client demographic and mammography utilization information. A pre/post questionnaire will be created to assess changes in clients’ knowledge and attitudes related to screening and breast cancer. At the point of contact, all women will complete a pre-test questionnaire related to current breast health knowledge, attitudes and beliefs regarding breast cancer and stage of intent related to health seeking behavior. A follow up post-test questionnaire related to the aforementioned items will be administered at 5 months and 10 months. Women in the comparison group will also be asked to complete a brief education survey at 5 and 10 months to assess the information retained from the education session. An outreach tracking tool has been created to document the type, frequency of use and number of women reached at each venue. The form is completed by each staff person who performs any outreach and/or education activity. A navigation form is used to document the details of the navigation process for each client. Specifically, the number of contacts made with the client and health care provider throughout the screening process is documented, counted and categorized. Bi-weekly staff meetings will be held to discuss facilitators and barriers to implementing project activities. The meeting minutes will provide qualitative data for process outcome. A Microsoft Access database was created to maintain project data and facilitate client tracking. Individual level data collected from the outreach tracking form, intake, and navigation forms will be linked to the outreach event where the client was recruited. Each data source will provide an integral piece of information that will be used collectively to document the women’s breast health journey through this project. Statistical analysis will be conducted using SAS and GIS. The process evaluation will run concurrently with implementation of the project activities. The process measures will be assessed monthly, and the findings will be used to assess the fidelity of implementation and reach into the target population, as well as identify areas for improvement. At six and twelve months of implementation, the data representing participants who have completed navigation and/or education services will be analyzed to evaluate achievement of projected outcomes specified above. If additional mammograms are still available after 12 months, the intervention will continue until all screenings are used and every participant has received navigation and/or education. The complete process and impact evaluation will conclude at the time all data has been received. Following each phase of the evaluation, the findings will be synthesized and assessed for appropriate next steps. After the 17 | P a g e The Metropolitan Chicago Navigation Initiative Proposal to Portes Foundation-Institute of Medicine Chicago completion of this study, refinements to the intervention and outputs will be completed as needed. The outputs will be finalized and staff will be developing related manuscripts to document the scientific contribution of the work. Support from the IOMC-Portes Foundation will be referred to in publications and presentations related to this study. The Task Force will also seek resources to support sustainability for the evaluation component of this initiative. WORK PLAN PRE-FUNDING PREPARATION The Task Force currently has funding for the general operations of its navigation program and is seeking funding from IOMC-Portes Foundation to add a rigorous evaluation and analysis component to the work so as to improve its efficacy and broaden its utility to other organizations and other disease states. The following activities will be completed using existing funding prior to the commencement of IOMC-Portes Foundation funding. This project is on track to obtain approval from the Rush University Medical Center Institutional Review Board (RUMC IRB) by December 1, 2014. First Quarter (January – March) Initiate Study – Pre/post data collection Second Quarter (April – June) Full Implementation Process Evaluation 5 month Post-test implementation – May 2015 6 month Impact Evaluation – June 2015 Third Quarter (July – September) Full Implementation Program updates per process evaluation outcomes. Process Evaluation Begin planning for program and evaluation sustainability Fourth Quarter (October – December) Full Implementation Process Evaluation 10 month Post-test implementation – October 2015 12 month Impact Evaluation – December 2015 Conclusion of Study Data Analysis Interpretation of Findings Revisions to Intervention and outputs Dissemination of Findings BUDGET The Task Force is requesting $35,000 in funding to support this project. Salary Support Requested: $22989 18 | P a g e The Metropolitan Chicago Navigation Initiative Proposal to Portes Foundation-Institute of Medicine Chicago This would consist of funding for 5% effort by Dr. Anne Marie Murphy (Annual salary $139,790 over term of grant) who is the Executive Director of the Metropolitan Chicago Breast Cancer Task Force and Director of the Chicago Breast Cancer Quality Consortium and a faculty member at the Department of Health Systems Management at Rush University Medical Center (RUMC). Dr. Murphy is the state’s former Medicaid Director (2003-2007) and has been with the Task Force since 2009. Dr. Murphy has over 15 years of health policy experience and has extensive relationships with healthcare providers and knowledge of the overall Illinois and Chicago health care systems. Her career has spanned health policy practice, healthcare operations and research with a particular emphasis on improving the healthcare delivery system for vulnerable populations. Biosketch is provided. Dr. Murphy will supervise this project and will be responsible for the scientific content, review, abstract and publication generation. The other principal investigator, Dr. David Ansell will contribute 5% effort and his time will be donated by Rush University Medical Center. Dr. Ansell has an extensive history of involvement in disparities research generally and in breast cancer disparities research more specifically over the past decade. Details of his publications in this area are available on his accompanying biosketch. Dr. Ansell was an original founder of the Task Force and is a key member of the Chicago Breast Cancer Quality Consortium steering committee. He is also the Vice President for Clinical Affairs for Rush University Medical Center where he oversees many aspects of clinical care including patient safety and quality improvement. This grant will also support 20% effort by Ms. Teena L. Francois, MPH, who is the Associate Director of Community Health Initiatives and Research (Annual salary $80,310 over term of grant). Ms. Francois will be responsible for the day to day work of this project. She received her Masters of Public Health in Epidemiology and Health Education from Tulane University in 2003. Her career focus has been on maternal and child health (MCH) related issues particularly for vulnerable populations including underserved communities and children with special needs (CSN). She comes to the Task Force with extensive experience and knowledge in breast cancer epidemiology, disparities research and evaluation of breast and cervical cancer prevention, screening, diagnostic and treatment initiatives. Prior to joining the Task Force, Teena was an epidemiologist with the Sinai Urban Health Institute (SUHI) from 2005 to 2010. During that time she was a Breast Health Supervisor for the Helping Her Live Breast Cancer Prevention program and Evaluator for the Stand Against Cancer program. She was also a member of the coordinating committee for the Task Force. In addition to her work in breast cancer epidemiology, Teena was a contracted evaluator for the National Center of Immunization and Respiratory Diseases Assessment Branch in improving the national assessment of kindergarten vaccination coverage. She also supported the Georgia Department of Public Health MCH program, the Early Intervention Institute and the Louisiana 19 | P a g e The Metropolitan Chicago Navigation Initiative Proposal to Portes Foundation-Institute of Medicine Chicago Department of Public Health in the development, implementation and evaluation of state initiatives for children and youth with special health care needs. Fringe Benefits: $6897 Task Force employees are leased RUMC employees and as such enjoy RUMC employee benefits at a charge to the Task Force of 30% of salary. Occupancy: $4800 The salary support requested in this grant represents 6% of Task Force total salary and contractual salaries for the term of the grant. The Task Force employs a uniform cost allocation methodology across all grants. Total occupancy costs for Task Force over this time period is expected to be $80,000 (rent, utilities and phone for staff working on the project). Therefore, 6% of this total is $4,800. Travel: $300 Travel for staff to present this work at any of the relevant national scientific meetings will be considerably more than the $1,000 allowable in this grant. The Task Force will therefore cross subsidize this grant with an additional $1,000-$1,500 to allow either Dr. Murphy or Ms. Teena Francois MPH to present this work nationally. Indirects: $7,000 – cross subsidized by Task Force from other funds. Task Force indirects for administration of grants, audits, accounting, supplies and other costs associated with overseeing its various projects run at approximately 12-14%. The Task Force will utilize public support through fundraising to support this aspect of this grant. 20 | P a g e The Metropolitan Chicago Navigation Initiative Proposal to Portes Foundation-Institute of Medicine Chicago BIOGRAPHICAL SKETCHES NAME POSITION TITLE Anne Marie Murphy Director Chicago Breast Cancer Quality Consortium, Assistant Professor Department of Health Management Systems, RUMC eRA COMMONS USER NAME AnneMurphy EDUCATION/TRAINING DEGREE (if applicable) YEAR(s) Trinity College Dublin, Ireland B.A. 1988 The Johns Hopkins University, Baltimore Ph.D. 1996 INSTITUTION AND LOCATION FIELD OF STUDY Natural Science (Genetics) Biology (Molecular Genetics) Personal Statement I am the founding Director of the Chicago Breast Cancer Quality Consortium, the nation’s first federally designated Patient Safety Organization dedicated exclusively to breast health and elimination of racial health disparities. As such, I have a proven track record of bringing healthcare institutions and providers together to build consensus on how to voluntarily improve our healthcare system. A testament to the success of this effort is the fact that over 80% of hospital based mammography in Metropolitan Chicago now participate in and contribute data to our Breast Cancer Quality Consortium project. With the passage of Public Law 95-1045 and Public Law 97-638, our mammography quality surveillance project is now going statewide for Medicaid providers. In addition, we receive treatment quality data from institutions that treat more than half of breast cancer patients across Metropolitan Chicago (Cook and the collar counties). Last year, in response to a crisis in funding for uninsured women’s mammography due to state budget cuts, the Metropolitan Chicago Breast Cancer Task Force launched our Beyond October program, with a successful appeal to area hospitals to donate free mammograms. 800 free mammograms were secured and we successfully navigated close to 700 women to these free mammograms. This navigation project took place on the heels of our launch of Screen to Live Englewood, a community based breast care navigation project that was launched in June of 2012. Therefore, within 12 months of our initiation of navigation, we had navigated close to 1000 women to breast cancer screens and had navigated those in need of follow up onward. As the state’s former Medicaid Director, the former State Director of Health Programs at the Illinois Department of Public Health, the Governors health policy advisor, and a congressional health policy advisor for Senators Kennedy, Simon and Durbin, I have a deep understanding of Illinois’ health delivery system and have a long history of health system reform and quality improvement. As the Governor’s health policy advisor, I was responsible for operationalizing the expansion of the Illinois Breast and Cervical Cancer Program to cover all uninsured women. Illinois is the only state in the nation to cover all uninsured women in this program and does so 21 | P a g e The Metropolitan Chicago Navigation Initiative Proposal to Portes Foundation-Institute of Medicine Chicago with both federal and state funds. In 2009, I transitioned from my role as a health policy practitioner to a new role as a health researcher focusing on breast cancer disparities at the Chicago Breast Cancer Quality Consortium. Under my leadership, the Chicago Breast Cancer Quality Consortium became the first federally designated Patient Safety Organization dedicated exclusively to breast health and has developed a data collection system for breast cancer quality metrics. Our publication on the inadequacies of the current federal Mammography Quality Standards Act will be published in the American Journal of Roentology in the next few months. I have presented our research extensively over the past 3 years at academic conferences with the abstracts listed below. Thus, my expertise in the health delivery system in Illinois, relationship and experience with the State’s Medicaid program, experience with racial disparities in breast cancer care, and leadership skills within the Task Force will facilitate the collaborations necessary to successfully implement this research project on the eve of launching of the Affordable Care Act, which will have significant effects on the nation’s healthcare delivery system. Positions and Employment 1995-1996 Committee Staff Member for the Health, Education, Labor and Pension Committee, U.S. Senate (Senator Edward M Kennedy) 1996-1997 American Association for the Advancement of Science Congressional Fellowship Spent in the offices of Senator Paul Simon and Richard J. Durbin, U.S. Senate 1997-2003 Senior Healthcare Policy Advisor, Senator Richard J. Durbin, U.S. Senate 2003-2006 Illinois Medicaid Director, Department of Healthcare and Family Services 2007-March 2009 Illinois Director of State Healthcare Programs April 2009-present Director, Chicago Breast Cancer Quality Consortium April 2010-present Executive Director Metropolitan Chicago Breast Cancer Task Force 2011 – present Assistant Professor Department of Health Systems Management, RUMC Honors American Association for the Advancement of Science Congressional Fellowship 1996 Loretta Lacey Award, 2005 – Illinois Maternal and Child Health Coalition 22 | P a g e The Metropolitan Chicago Navigation Initiative Proposal to Portes Foundation-Institute of Medicine Chicago Excellence in Government Administration, 2005 – Illinois Primary Health Care Association Richard J. Phelan Profile in Courage Award, 2007 – Planned Parenthood Illinois State Award for Excellence, 2007 – American Academy of Nurse Practitioners White House Champion for Change in the Fight Against Breast Cancer 2010 – nominated by Susan G. Komen for the Cure Publications and Abstracts 1. Rauscher G., Murphy A.M., Orsi J.M., Dupuy D.M., Grabler P.M, Weldon, C.B. “Beyond MQSA: Measuring the quality of breast cancer screening programs” American Journal of Roentology – in press 2. Murphy A. M, Dupuy D. M, Ferrans C., Ansell D.A. “Creation of a Statewide Mammography Program to Improve Mammography Quality” Oncology Nurses Society book on Cancer Health Policy – in press 3. Trosman J., Weldon C., Dupuy D., Roggenkamp B., Ganschow P., Schink J., Murphy A.M. 4. “Why do breast cancer programs fail to refer patients to genetic counseling upon obtaining family history?” abstract accepted for presentation ASCO (2012) 5. Weldon C., Trosman J., Dupuy D., Roggenkamp B., Schink J., Orsi J., Murphy A.M. 6. “Do patient tracking, follow-up, and referral practices contribute to breast cancer disparities in a large urban area?” abstract accepted for presentation ASCO 2012 7. Knightly E., Weldon C., Trosman J., Dupuy D., Murphy A.M. “Breast cancer care improvement – overcoming common barriers” abstract accepted for presentation at NCBC (2012) 8. Dupuy D., Knightly E., Weldon C., Trosman J., Murphy A.M “Examining Variation in Mammography Quality: the case of Chicago, Illinois” abstract accepted for presentation at NCBC (2012) 9. Murphy AM., Dupuy D., et al. “Quality Improvement as a tool to reduce disparities”. American Association for Cancer Research (AACR)- Cancer Disparities Conference – 2011 10. Gardner A.J., Miller S.C., Dupuy D., Murphy A.M., “Evaluation and Outcomes of a CMECertified Symposium Addressing the Breast Cancer Mortality in Chicago” CE Measure (2011) Vol 5, #1 11. Murphy A.M., Rauscher G., Dupuy D., Alvarez R., Macarol T., Knightly E., Ansell D., Grabler P., Robinson P., Marcus E. “Are Breast Cancer Quality Metrics being Met?” J Clin Oncol 29: 2011 (abstract 6051) ASCO 2011 23 | P a g e The Metropolitan Chicago Navigation Initiative Proposal to Portes Foundation-Institute of Medicine Chicago 12. Weldon C., Trosman J., Dupuy D., Alvarez R., Murphy A.M. “Breast Cancer Care Improvements in an Urban Environment” Abstract accepted for Academy Health 2011 13. Weldon C., Trosman J., Dupuy D., Alvarez R., Marcus E., Schink J., Murphy A.M. “Facilitators of Quality Breast Cancer Screening and Diagnosis in an Urban Environment” . J Clin Oncol 29: 2011 (suppl; abstr e16584) 14. Murphy A.M., Dupuy D., Rauscher G., Alvarez R. “Lifting all Boats: Quality Improvement as a means to Reducing Racial Health Disparities” Poster presented at APHA Annual Meeting, Nov 2010 15. Murphy, AM and Montell, DJ “Cell Type specific roles for Cdc42, Rac, and RhoL in Drosophila Oogenesis, J. Cell Biol. (1996) vol 133, 617-630 16. Murphy, A.M., T. Lee, C.M Andrews, B.Z. Shilo, and D.J. Montell “The Breathless FGF receptor homolog, a downstream target of Drosophila C/EBP in the developmental control of cell migration (1995) Development (1995) 121: 2255-2263 17. Wojcik, E., Murphy A. M., Fares H., Dang-Vu Khoi, and Tsubota, S “Enhancer of rudimentaryp1, e(r)p1, a highly conserved enhancer of the rudimentary gene (1994) Genetics 138:1163-1170 Ongoing Research and Community Education Support September 2011- August 2016 NIH grant to Breast Cancer Surveillance Consortium – Group Health Seattle to support “Risk Based breast cancer screening in community settings.” We have a subcontract through the University of Illinois on this grant to assist in creating a Chicago mammography registry for this project so as to expand participation in the project of African American women. Role: Site PI on the subcontract July 2013 – June 2015 Avon Foundation for Women - $400,000 to support the general operations of the Metropolitan Chicago Breast Cancer Task Force and its project the Chicago Breast Cancer Quality Consortium. Role: Principal Investigator Anne Marie Murphy, Ph.D. February 2013 – January 2014 Chicago Community Trust - $150,000 to support research into facilitators and barriers to mammography receipt within the primary care environment. Role: Principal Investigator 24 | P a g e The Metropolitan Chicago Navigation Initiative Proposal to Portes Foundation-Institute of Medicine Chicago October 2011- March 2014 Susan G. Komen for the Cure Foundation - $600,000 to staff the projects in grant below and to pilot a mammography and treatment quality surveillance system so as to better understand Chicago’s racial health disparities Role: Principal Investigator Anne Marie Murphy, Ph.D. July 2010 – November 2013 Susan G. Komen for the Cure Foundation - $500k to build high quality breast cancer care capacity in Chicago through piloting quality improvement interventions. Goals: Perform a comprehensive environmental scan at 20 Chicago area institutions so as to better understand variation in business practice across the continuum of care with a view to identifying best practices and areas for improvement Creation of 3 Rapid Cycle Improvement teams in the areas of Mammography Quality Improvement, Treatment Adherence Improvement and Business Processes Improvement Role: Principal Investigator Anne Marie Murphy, Ph.D. April 2012 - 2014 State of Illinois, Dept. of Healthcare and Family Services Grant to assist the state in establishing a mammography quality surveillance system statewide. Under this grant, the Chicago Breast Cancer Quality Consortium will outreach to providers to let them know about the project, assist them in enrolling with the Department of Healthcare and Family Services, train providers statewide on how to collect data for the project, will provide technical assistance on data collection, analyze the data and provide each facility/radiologist with an annual report comparing their metrics to those collected for the state as a whole. Role: Principal Investigator Anne Marie Murphy, Ph.D. Completed Support March 2008 – June 2013 Avon Foundation for Women - $1.5 million to support the establishment of the Metropolitan Chicago Breast Cancer Task Force and its project the Chicago Breast Cancer Quality Consortium and to fund community based programs in breast cancer outreach and navigation. 25 | P a g e The Metropolitan Chicago Navigation Initiative Proposal to Portes Foundation-Institute of Medicine Chicago NAME POSITION TITLE David A. Ansell Senior Vice President for Clinical Affairs, Chief Medical Officer, Professor, Department of Internal Medicine eRA COMMONS USER NAME EDUCATION/TRAINING INSTITUTION AND LOCATION Franklin and Marshall College, Lancaster, PA Health Science Center at Syracuse, Syracuse, NY University of Illinois, School of Public Health, Chicago, IL DEGREE (if applicable) YEAR(s) B.A. M.D. MPH 1974 1978 1991 FIELD OF STUDY Biology Medicine Epidemiology Positions and Employment 1989-1993 Director, Ambulatory Screening Clinic, Division of General Medicine/Primary Care, Cook County Hospital, Chicago, IL 1993-1995 Chairman, Division of General Medicine/Primary Care, Cook County Hospital, Chicago, IL 1995-2005 Chairman, Department of Medicine, Mount Sinai Hospital Medical Center, Chicago, IL 2001-2005 Executive Vice Chairman, Department of Internal Medicine, Chicago Medical School, North Chicago, IL 2005-present Professor, Department of Internal Medicine, Rush University Medical Center, Chicago, IL 2005-present Chief Medical Officer, Associate Dean for Hospital Affairs and Vice President, Hospital Affairs Rush University Medical Center, Chicago, IL Other Experience and Professional Memberships 1995-2005 Member, Resident Recruitment Committee, Mount Sinai Hospital Medical Center, Chicago, IL Honors Selected Peer-Reviewed Publications 26 | P a g e The Metropolitan Chicago Navigation Initiative Proposal to Portes Foundation-Institute of Medicine Chicago 1. Grabler P., Dupuy D., Rai J., Bernstein S., Ansell D. “Regular screening mammography before the diagnosis of breast cancer reduces black: white breast cancer differences and modifies negative biological prognostic factors”. Breast Cancer Research and Treatment. (2012). (DOI) 10.1007/s10549-012-2193 2. Ansell, D, Grabler, P, Whitman S, Ferrans C, Burgess-Bishop J, Murray LR, Rao, R, Marcus, E. A community effort to reduce the Black:White breast cancer mortality disparity in Chicago. Cancer Causes and Control, Vol pp, 2009 3. Hirschman, J, Whitman, S, Ansell, D. The black:white disparity in breast cancer mortality: the example of Chicago. Cancer Causes and Control, Vol. 18, pp. 323-333, 2007. 4. Whitman, S, Shah, A. Silva, A, Ansell D. Mammography screening in six diverse communities in Chicago – a population study. Cancer Detection and Prevention, 31:2, 2007. 5. Levine M, Iliescu M, Margellos H, Estarziau M, Ansell D. The effects of cocaine and heroin use on intubation rates and hospital utilization in patients with acute asthma exacerbations. Chest, Oct. 2005, 128: 1951-1957. 6. Dell J, Whitman S, Shah A, Silva A, Ansell D. The Smoking Experience in Six Diverse Chicago Communities - A Population Study. American Journal of Public Health. June 2005, Vol. 95:6, pp. 1036-1042. 7. Whitman S, Silva A, Shah A, Ansell D. Diversity and Disparity: GIS and Small-Area Analysis in Six Chicago Neighborhoods. Journal of Medical Systems 2004;28(4):397-411. 8. Whitman S, Ansell D, Lacey L, Chen EH, Ebie N, Dell J, Phillips CW. Patterns of breast and cervical cancer screening at three public health centers in an inner-city urban area. Am J Public Health 1991; 81(12):1651-3. 9. Whitman S, Lacey L, Ansell D, Chen EH, Dell J, Phillips CW. Do chart reviews and interviews provide the same information about breast and cervical cancer screening? Int J Epidemiol 1993; 22(3):393-7. 10. Lacey L, Whitfield J, DeWhite W, Ansell D, Whitman S, Chen E, Phillips C. Referral adherence in an inner city breast and cervical cancer screening program. Cancer 1993; 72(3):950-5. 11. Ansell D, Whitman S, Lipton R, Cooper R. Race, income, and survival from breast cancer at two public hospitals. Cancer 1993; 72(10):2974-8. 12. Bressler J, Ansell D, Parker J, Dillard J, Whitman S. Breast cancer screening in an urban public hospital. Five-year results. Cancer 1993; 72(12):3636-40. 27 | P a g e The Metropolitan Chicago Navigation Initiative Proposal to Portes Foundation-Institute of Medicine Chicago 13. Whitman S, Lacey L, Ansell D, et al. An intervention to increase breast and cervical cancer screening in low income, African - American women. Fam Community Health 1994; 12:56-63. 14. Ansell D, Lacey L, Whitman S, Chen E, Phillips C. A nurse-delivered intervention to reduce barriers to breast and cervical cancer screening in Chicago inner city clinics. Public Health Rep 1994; 1 09(1):104-11. 15. Ansell DA, Hu TC, Straus M, Cohen M, Sherer R. HIV and syphilis seroprevalence among clients with sexually transmitted diseases attending a walk-in clinic at Cook County Hospital. Sex Transm Dis 1994; 21(2):93-6. Review. 16. Schiff RL, Ansell D. Federal anti-patient-dumping provisions: the first decade. Ann Emerg Med 1996; 28(1):77-9. 17. Ansell D, Schiff G, Dick S, Cwiak C, Wright K. Voting with their feet: public hospitals, health reform, and patient choices. Am J Public Health 1998; 88(3):439-41. 18. Schiff RL, Ansell D, Goldberg D, Dick S, Peterson C. Access to primary care for patients with diabetes at an urban public hospital walk-in clinic. J Health Care Poor Underserved 1998; 9(2):170-83. 19. Silva A, Whitman S, Margellos H, Ansell D. Evaluating Chicago's success in reaching the Healthy People 2000 goal of reducing health disparities. Public Health Rep 2001; 116(5):48494. 20. Ansell D, Schiff R, Goldberg D, Furumoto-Dawson A, Dick S, Peterson C. Primary care access decreases nonurgent hospital visits for indigent diabetics. J Health Care Poor Underserved 2002; 13(2):171-83. Completed Research Support January 1999 - July 2005 Susan Komen Foundation Free Mammography Program Goals: The Komen Foundation’s Woman to Woman (WtoW) grant provides community education and screening mammograms to uninsured women in low-income areas of the city. WtoW particularly serves the communities of East and West Garfield Park, North and South 28 | P a g e The Metropolitan Chicago Navigation Initiative Proposal to Portes Foundation-Institute of Medicine Chicago Lawndale, and the Pilsen area, though it offers services to low-income women throughout Chicago. Role: Principal Investigator: David Ansell, MD, MPH Grant #1D58HP00373-01 July 2003 – June 2006 HRSA Residency Training in General Internal Medicine Goals: To train residents to become good physicians in the urban environment. To this end, they are being educated in four activities to learn about: Evidence Based Medicine Social Epidemiology and Research Geriatric Care Cultural Competency Role: Principal Investigator: David Ansell, MD, MPH 29 | P a g e The Metropolitan Chicago Navigation Initiative Proposal to Portes Foundation-Institute of Medicine Chicago TASK FORCE ADVISORY BOARDS AND COMMITTEES Chicago Breast Cancer Consortium Full Steering Committee Name Robert Maganini Terry Macarol , RT, (R) (M) (QM) CBPN-I Eileen Knightly, RN, BSN, MHA Barbara Akpan, RN, MS David Ansell, MD Barbara Fisher Pat Merryweather Patricia Robinson, MD Elizabeth Marcus, MD Pam Ganschow, MD Clarissa Moholick, MHSA, CCRP, CTR Babs Waldman, MD Garth Rauscher, Ph.D. Affiliation Alexian Brothers Medical Center Advocate Healthcare System Mercy Hospital and Medical Center Black Nurses Association/Community Rush University Medical Center IDPH Telligen Loyola University Medical Center John H. Stroger Hospital John H. Stroger Hospital Adventist Healthcare System Community Health University of Illinois at Chicago Mammography Advisory Board Name Charlene Sennet, MD Terry Macarol , RT, (R) (M) (QM) CBPN-I Eileen Knightly, RN, BSN, MHA Barbara Akpan, RN, MS Kristi Allgood, MPH Gregory Moss, MD Gene Solmos, MD Elizabeth Holland, MD Affiliation University of Chicago Advocate Mercy Black Nurses Association/Community Mt. Sinai Resurrection Health Care Rush University Medical Center Advocate Christ Breast Center Treatment Advisory Board Name Elizabeth Marcus, MD Pamela Ganschow, MD Patricia Robinson, MD Clarissa Moholick, MHSA, CCRP, CTR Nina Bickell, MD, MPH Funmi Olopade, MD Tricia Moo-Young, MD Karen Snitchler Seema Khan Ruta Rao Affiliation John H. Stroger Hospital John H. Stroger Hospital Loyola University Medical Center Adventist Health System Mount Sinai (NYC) University of Chicago North Shore University Health System Northwestern Memorial Mercy Hospital and Medical Center Northwestern Memorial Rush University Medical Center 30 | P a g e The Metropolitan Chicago Navigation Initiative Proposal to Portes Foundation-Institute of Medicine Chicago Primary Care Advisory Board Name Pamela Ganschow, MD Patricia Robinson, MD Zakiya Moton, MPH Susan Hong, MD Melissa Simon, MD, MPH Norm Ryan, MD Erin Kaleba, MPH Ashlesha Patel, MD Tanu Pandey, MD, MPH Wendy Conners (RN), (BSN), (CCM) Susan B. Cahn, MA, MHS Julie Darnell , PhD, MHSA Thomas O’Connell Kathleen Guerro Affiliation John H. Stroger Loyola University Medical Center University of Chicago University of Chicago Northwestern Memorial Hospital Rush University Medical Center Alliance John H. Stroger John H. Stroger Resurrection Health Care University of Illinois at Chicago University of Illinois at Chicago Lawndale Christian Health Center Access Community Health Network Outreach and Education Task Force Committee Name Barbara Akpan, RN, MS Zakiya Moton, MPH Angela Walker Babs Waldman, MD Monica Peek, MD Carol Ferrans, PhD, RN, FAAN Latehesha Fitch Janis Sayer, MSW Pamela Guzman Affiliation Black Nurses Association – Chicago Chapter /Community University of Chicago Loretto Hospital Community Health Sisters Working it Out University of Illinois at Chicago advocate Chicago Department of Public Health Access Community Health Network 31 | P a g e