OFFICIAL SENSITIVE ESCB Number Agency Report Form B - For Neonatal deaths only Please return the completed form by secure email to cdr@essex.gov.uk.cjsm.net If your email is insecure, please send to cdr@essex.gov.uk password protected. Alternatively you can fax it through on 01245 434715. Telephone Contact: 03330 139172 The security of any system for transferring the information on these forms must be clarified and agreed with the Caldicott guardian. Please complete this form based on the information you have. If you are in any doubt about what information to provide, please discuss with your manager. Completing the form: The form is sent to all agencies involved with a neonate/infant and family. Some information is collected in tick box or yes/no format to allow collation and comparison of data, but in each section there is space for more narrative/qualitative information which will help the Neonate/infant Death Review Panel to more fully understand the nature of each neonate/infant’s death. If you do not have information for any particular section, please either circle NK (Not Known) or NA (Not Applicable) this indicates to the CDR panel that you have considered the question but have no information. If this is the first time you have completed a Form B and you have any queries, please do not hesitate to contact us. All forms are available on our website http://www.escb.co.uk/ Purpose: Form B is designed to gather information about each neonate/infant’s death. Its primary purpose is to enable the local CDR panel to review all neonate/infantren’s deaths in their area in order to understand patterns and factors contributing to neonate/infantren’s deaths and ultimately to take steps to prevent future neonate/infant deaths. Confidentiality: The information requested on this form will be used for the purposes of neonate/infant death review as outlined in Chapter 5 of Working Together to Safeguard Neonate/infantren March 2015. All bereaved parents are informed of these processes. The nature of the information collected means it is likely that some of the information is personal/sensitive data and therefore CDR panels should be mindful of their obligations under the Data Protection Act (DPA) 1998 when processing that information. All cases will be anonymised prior to discussion by the CDR panel. All information gathered will be stored securely and only anonymised data will be collated at a regional or national level. OFFICIAL SENSITIVE 1 OFFICIAL SENSITIVE A Identifying and Reporting Details Name DOB NHS No. Date of death Address Postcode Agency Report Provided by Organisation Name Job Title Address Postcode Tel No Email Signature Date: B Summary of Case and Circumstances leading to the death This section provides information on the nature and manner of the neonate/infant’s death. Please complete any information which you hold on the case. The ‘Details of the Death’ section is to be completed by the treating doctor involved with the neonate/infant at the time of death – other professionals can complete this section if they have the information. Details of the death What is your understanding of the cause of death? What was the mode of death? Planned palliative care Witholding, withdrawal or limitation of lifesustaining treatment Brainstem death Failed Cardiopulmonary resuscitation Witnessed event OFFICIAL SENSITIVE 2 OFFICIAL SENSITIVE Found dead Not known Has a medical certificate of the cause of death been issued? Yes No N/K Was this death referred to the coroner? Yes No N/K N/A Was a post-mortem examination carried out? Date of PM if known Place of PM if known Yes No N/K N/A Has an inquest been held? Yes No N/K N/A Date of inquest (if known)? Verdict: Registered cause of death if known 1a 1b 1c II (a)Main diseases or conditions in neonate/infant (b)Other diseases or conditions affecting neonate/infant (c)Main maternal diseases or conditions affecting neonate/infant (d)Other maternal diseases or conditions affecting neonate/infant (e)Other relevant conditions All – please complete Where is the neonate/infant at the time of the event or condition which led to the death Acute Hospital Emergency Dept Paediatric Ward Neonatal Unit Paediatric Intensive Care Unit Labour Ward Other Home of normal residence Other private residence Foster Home Residential Care Public place Hospice Abroad Other (specify) OFFICIAL SENSITIVE 3 OFFICIAL SENSITIVE Not known Where was the neonate/infant when the death was confirmed? Acute Hospital Emergency Dept Paediatric Ward Neonatal Unit Paediatric Intensive Care Unit Labour Ward Other Home of normal residence Other private residence Foster Home Residential Care Public place Hospice Abroad Other (specify) Not known Were any of the following events known to have occurred? Neonatal Death Death of an neonate/infant with life limiting condition (to be completed by the lead clinician or designated member of the palliative care team) Complete B3 Sudden unexpected death in infancy (to be Complete B4 completed by the SUDI paediatrician or designated deputy, and will almost always be completed at or immediately after the local case review meeting. In those rare instances in which there is no local case review meeting the SUDI paediatrician or designated deputy should complete this form at the conclusion of the investigation) Provide information via the MBRRACE-UK on line reporting system Date Sent Send a copy of your MBRRACE-UK notification to the Child Death Review Manager, cdr@essex.gov.uk.cjsm.net Date Sent Send a copy of the Discharge Summary to the Child Death Review Manager, cdr@essex.gov.uk.cjsm.net Date Sent OFFICIAL SENSITIVE 4 OFFICIAL SENSITIVE Was the baby born in hospital? Yes No Had the baby left hospital after birth? Yes No Provide a narrative account of the circumstances leading to the death. This should include a chronology of significant events in the background history, and details of any important issues identified. Please also include antenatal information including antenatal care, booking, appointments attended, circumstances around birth and engagement with services. Consider: Events leading to death Early family history Pregnancy and birth Neonatal period C The Neonate/infant This section provides information about the neonate/infant and any known conditions or factors intrinsic to the neonate/infant that may have contributed to the death. Please complete any information which you hold on the case. Gender Age at death Male / / (yy / mm / dd) Indicate if estimated Age confirmed Female lbs Birth weight (gm or oz/lb) oz Last known height kgs cm Age estimated ft/in Date Last known weight Date Ethnic lbs kgs White oz Gestational age at birth (completed weeks) English/Welsh/Scottish/Northern Irish/British OFFICIAL SENSITIVE 5 OFFICIAL SENSITIVE group Irish Gypsy or Irish Traveller Any other White background (please specify ) Mixed/multiple ethnic groups White and Black Caribbean White and Black African White and Asian Any other mixed/multiple ethnic background (please specify ) Asian or Asian British Indian Pakistani Bangladeshi Chinese Any other Asian background (please specify Black/African/C aribbean/Black British ) Caribbean African Any other Black/African/Caribbean background (please specify Other ethnic group ) Arab Any other ethnic group Not known/not stated Religion (please state) Any known medical conditions at the time of death? Yes No N/K Yes No N/K Yes No N/K If yes, please provide details Any known medical condition in utero for mother/baby? If yes, please provide details Any known developmental impairment of disability at the time of death? OFFICIAL SENSITIVE 6 OFFICIAL SENSITIVE If yes, please provide details Any medication at the time of death? Yes No N/K If yes, please provide details Factors in the neonate/infant: Provide a narrative description of any relevant factors within the neonate/infant that have not already been covered. Include any known health needs; factors influencing health; growth parameters; development issues; behavioural issues; social attachment; any identified factors in the neonate/infant that may have contributed to the death. Include strengths, as well as difficulties D Family and Environment This section provides details of the neonate/infant’s family and close environment. Please complete with any information known to you. Full Name DOB Relationship Full Address Mother Age Smoker Occupation Yes No Living in primary household Any known: Disability including learning disability? Yes No If yes please provide details. OFFICIAL SENSITIVE 7 Yes No OFFICIAL SENSITIVE N/K N/A Yes No N/K N/A Yes No N/K N/A Yes No N/K N/A Known to police? Include driving offences Yes No N/K N/A Any known health problems during pregnancy with deceased neonate/infant Yes No N/K N/A Mental health issues Substance misuse? Alcohol misuse? If yes please provide details. If yes please provide details. If yes please provide details. Please provide details. Please provide details Father Age Smoker Occupation Yes No Living in primary household Any known: Disability including learning disability? Yes No N/K N/A Yes No N/K N/A Yes No N/K N/A Yes No N/K N/A Known to police? Include driving offences Yes No N/K N/A Any known health Yes No Mental health issues Substance misuse? Alcohol misuse? If yes please provide details. If yes please provide details. If yes please provide details. If yes please provide details. Please provide details. Please provide OFFICIAL SENSITIVE 8 Yes No OFFICIAL SENSITIVE problems during pregnancy with deceased neonate/infant details N/K N/A Other Significant Adult Age Smoker Occupation Yes No N/K N/A Living in primary household Relationship to neonate/infant Any known: Disability including learning disability? Mental health issues Substance misuse? Alcohol misuse? Known to police? Yes No N/K N/A Yes No N/K N/A Yes No N/K N/A Yes No N/K N/A Yes No N/K N/A If yes please provide details. If yes please provide details. If yes please provide details. If yes please provide details. Please provide details. *If the neonate/infant is living in more than one household, for example where the parents have separated, the primary household is where the neonate/infant spends most of his/her time; please provide any relevant details in the narrative section. Any known domestic violence in the household? Was the neonate/infant an asylum seeker? Yes No N/K N/A Yes No OFFICIAL SENSITIVE 9 Details OFFICIAL SENSITIVE Factors in the family and environment Please provide a description of any relevant factors known to you that have not been covered elsewhere. Consider: family structure and functioning; wider family relationships; housing; employment and income; social integration and support; community resources. Include strengths and difficulties E Parenting Capacity The purpose of this section is to understand factors in relation to the care of the neonate/infant that may have been of relevance in any way to the neonate/infant’s death, and also factors that may have contributed to support and nurture of the neonate/infant. Please complete any information known to you. Where was the neonate/infant Parental home living at the time of their death or Other relatives the event leading to their death? Foster carers Private fostering Residential unit Long stay hospital Hospice Other Who was directly looking after the neonate/infant at the time of their death or the event that led to their death? (please tick all that apply) Mother Father Other adults (please list and give adults relationships with the neonate/infant) Health care staff Others (please list below) Was the neonate/infant subject to a child protection plan? Category of most recent child protection plan: At the time of death Previously Not at all Physical abuse Neglect Emotional abuse Sexual abuse Not known OFFICIAL SENSITIVE 10 OFFICIAL SENSITIVE Was the neonate/infant subject to any statutory orders? Category of most recent statutory order: At the time of death Previously Not at all Police Powers of Protection Emergency Protection Order Interim Care Order Care Order Supervision Order Residence Order Section 20 (Neonate/infantren Act 1989) Antisocial behaviour order Other court order, please specify: Had the neonate/infant been assessed as a child in need under section 17 of the Children Act? At the time of death Previously Not at all Were any siblings subject to a child protection plan? At the time of death Previously Not at all Were any siblings subject to any statutory orders? At the time of death Previously Not at all Are mother and father related to each other (excluding marriage) Yes No N/K N/A Please provide details. Factors in the parenting capacity Include family structure and functioning; wider family relationships; housing; employment and income; social integration and support; community resources; include strengths and difficulties. OFFICIAL SENSITIVE 11 OFFICIAL SENSITIVE F Service Provision The purpose of this section is to obtain a profile of the services being offered to the neonate/infant and family; the effectiveness of those services in supporting the neonate/infant and family; and to identify any unmet needs or gaps in services. Please complete any information you are able to on your agency. Details of agency involvement Please indicate whether any of the services listed were involved with the neonate/infant, or in neonatal deaths, with the mother. Where any service was involved, please provide details in the narrative section below. Include dates of first and most recent contact with family; services offered/provided. Agency / professional Primary Health Care Involved at the time of death or in relation to the final illness* Yes No N/K N/A Details of involvement: Secondary/Tertiary Hospital Services Yes No N/K Yes No N/K N/A Yes No N/K N/A Yes No N/K N/A Yes No N/K N/A Yes No N/K N/A Yes No N/K N/A Yes No N/K N/A Details of involvement: N/A Details of involvement: Local Authority Children’s Services N/K Details of involvement: Details of involvement: Police No Details of involvement: Details of involvement: Hospice Services Yes Details of involvement: Details of involvement: Secondary/Tertiary Community Health Services Involved previously Yes No N/K N/A Details of involvement: N/A Details of involvement: OFFICIAL SENSITIVE 12 Yes No N/K Details of involvement: N/A OFFICIAL SENSITIVE Agency / professional Probation Involved at the time of death or in relation to the final illness* Yes No N/K N/A Details of involvement: Other – specify Yes No N/K Involved previously Yes No N/K N/A Details of involvement: N/A Details of involvement: Yes No N/K N/A Details of involvement: *Include all those providing services at the time of death or in relation to the final illness, even if not present at the time of the death; e.g. neonate/infant on school roll; planned out patient follow up; active social work case; palliative care. If no professionals involved, what was the last known contact of a professional from your agency? Professional Date of last known contact / / No known contact from this agency Not known Were there any identified unmet needs/gaps in services? (if yes, please provide details below) Yes No N/K N/A Were there any identified difficulties in family engagement with services? ( if yes, please provide details below) Yes No N/K N/A Factors in relation to service provision Please complete any information known to you in relation to service provision that has not been covered elsewhere. Consider any identified services both required and provided; the nature and timing of any services provided; any gaps between neonate/infant’s or family member’s needs and service provision; any issues in relation to service provision or uptake, positive/negative in relation to bereavement care. OFFICIAL SENSITIVE 13 OFFICIAL SENSITIVE Was there a formal Critical Incident investigation – if yes, please state which specific agency Yes No Any other internal agency investigation (please specify ) Is this neonate/infant death the subject of a serious case review No Yes N/K N/A N/K N/A Issues for discussion Include any action or learning to be taken as a result of the neonate/infant’s death; issues that require broader multi-agency discussion OFFICIAL SENSITIVE 14