Lymphoedema Network
Northern Ireland
PROJECT TEAM: NOTES OF MEETING HELD ON: 2nd November 2009 AT: 2pm IN: Jane Rankin’s Office
Present:
 Attended
 Apology received
 Ms Gillian McCollum
 Ms Lynne Whiteside
 Ms Debbie Schofield
 Ms Pippa McCabe
 Ms Elaine Stowe
 Ms Jane Rankin
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ISSUE
CORE POINTS FROM DISCUSSION
1.
Agree previous minutes and
actions
Agreed
2.
Matters Arising
2.1 Western Trust Recruitment
Western Trust Post not appointed.
Discussion took place re options on how best to offer support and assistance
to Western Trust. It was agreed that the Northern and Southern Trust Leads
would hold clinics for review patients - suitable locations and dates to be
arranged.
Meeting also to be arranged with potential applicants to explain the role of the
Clinical Lead and the Network.
2.2 Electronic referral roll out
New format working effectively. No problems reported.
2.3 PFA
Await outcome of submission
ACTION
ES & LW
JR & P McC
Lymphoedema Network
Northern Ireland
3.
Trusts’ Contact Groups
3.1 Agree dates for Jane to
visit Trust teams
3.2 Trust consultation re noncancer at risk leaflets
Jane to attend SET meeting on 24th Feb 09 and BCT meeting on 7th Jan 09
Unable to attend NT meeting on 12th Jan 09. ES to email group re possibility
of alternative date.
ES
Comment from dermatology BCH re guidance on direction of application of
creams and emollients otherwise consensus of opinions very positive.
Jane to add work on leaflet to AHA award submission.
JR
Discussion re children’s at risk booklet. Jane suggested having a small
number which could be shared across all Trusts where required.
4.
Complex Clinic
No reviews required
Patients discussed from Belfast, SE and N Trust – Leads to confirm
Nabla McClune unable to attend next clinic. ES to speak to Nabla re
nominating an alternative to attend in her absence
GMcC, PMcC,& ES
ES
Lymphoedema Network
Northern Ireland
5.
Education Strategy –
outstanding issues
5.1 new training dates
5.2 Plans for succession
planning
5.3 UU undergrad programme
6.
7
Trust awareness session plans
6.1 Individual trust agreed
programme
Kinesiotaping course -23rd Nov 09
Dermatology lecture – confirmed 18th Feb 09 – leads to encourage
applications
Casley Smith Training – 4 applications so far for 1st module – leads
encouraged to continue to promote and circulate information widely targeting
appropriate HPCs
Date arranged for 14th Dec at 10 am to film short video clips approx 2 mins
long. These to include MLD, MLLB, donning/doffing aids. Leads to try to
recruit patients willing to be involved.
Discussed possibility of using some video footage from LSN DVD. Lynne to
send a copy of this to Jane
Leads
Leads
Leads
LW
Leads updated team on individual trust work plans
Discussed difficulties encountered due to current emphasis on swine flu and
mandatory training
6.2 Pre/post session
questonnaire
Leads to forward results to Jane
Leads
6.3 Photographs
Leads encouraged to share any useful photographs taken
Leads
September Training – Beeches
CPD Centre updates
Report to be finalized and distributed.
JR
Leads encouraged to share and discuss this at team meetings and with
managers.
Leads
Lymphoedema Network
Northern Ireland
8.
9.
Patient and Public Involvement
Plan
8.1 Update re development of
intra-trust PPI groups
.
This will be a formal stakeholder event to allow patients to be actively
involved in the development of local trust services
Leads to invite patients to attend, advertise widely and plan to hold this event
by Feb 2010.
PR work plan
9.1 Journal of Lymphoedema
Due to be published April 2010 (ILF)
9.2 Belfast Telegraph
Article to be in tomorrow’s edition
9.3 Engage Award
Submitted – awaiting outcome
9.4 AHA Award
Submission reviewed - due to be submitted 6th Nov
9.5 Mike Philpot
Jane to contact Mike re Lymphoedema article
JR
Lymphoedema Network
Northern Ireland
10.
AOB
10.1 New W Trust patient
Elaine agreed to see this patient and will contact Angela Garvey directly re
patient details
10.2 UCF Talks
Laura from SE Trust and Lynne from S Trust have agreed to take these
sessions
10.3 GP Awareness
Discussed the production of a poster/flyer for GPs to include concise
information on Trust Lymphoedema services, referral pathway and treatment
of Lymphoedema
ES
Discussion re protocol to be developed for the management of obese
patients prior to referral to the lymphoedema service. Suggestions were
made that clinical psychology, dietetics and obesity clinics would need to be
included. Outcomes from the complex clinic should support this.
11
Next Meeting
Pippa to circulate advice leaflet developed by SET re donning/doffing
garments
PMcC
Gillian to circulate clinical decision making tool for prescribing Lymphoedema
garments.
GMcC
Monday 14th December @ 10.00am in Jane’s office. This will also include
filming of short video clips