Trafford’s Autism Partnership Board
20th June 2012
Present:
Darren Hayward (C)Future Visions Representative
Jane Forrest (C)
Autism Co-ordinator, Trafford Council
Gary Devine (M)
Project Support Officer, Trafford Council
Rachel Nutsey
Greater Manchester Police (Rachel.nutsey@gmp.police.co.uk)
G Thompson–Curran Team Manager, TES, Greater Manchester West
Sandy Bering
Commissioning Manager, NHS Trafford (Greater Manchester)
Paul King
Autistic Society Greater Manchester Area
Richard Morris
Access to Housing Manager, Trafford Council
Sam Sowerby
CWP, CLDT
Steve Hendy
Psychologist
Debra Smith
CAMHS debra.smith@trafford.nhs.uk
Caroline Drysdale Head of Service (CYPS) Complex and Additional Needs
Apologies:
Mari Saeki
Jenny Holt (C)
Lyn Bonser
Kelly Hunter
Nicola Walsh
Richard Roe
Pat Wilson
Ali Bishop
National Autistic Society
Interim Commissioning & Service Development Manager
Carer, Carers Centre
Carers Centre Manager
Commissioning Manager Trafford PCT
Housing Strategy Manager
Training Officer
United Response Development Manager United Response
1. Minutes of Last Meeting
-
Amendments noted and minutes of last meeting agreed as a correct record.
New format of agenda accepted
2. Matters Arising
Carers
- C/F - Kelly reported that there had not been much development in relation to CYPS.
AGREED Kelly to feedback on progress at next Autism Partnership Board meeting
-
Kelly has written a report relating to Children’s Services about carers assessments
focusing on outcomes for the service user.
AGREED GD to obtain and circulate to the group
Assessment & Diagnostic Pathways Report – Steve Hendy
TES will report in this at the meeting in September
AGREED TES will report on this at the meeting in September
AGREED C/F GD to liaise with Jenny Holt about the report Gaynor Burton wrote for
David Hanley
AGREED C/F Jenny Holt to request information on services that have been grant
funded for people with ASC.
Sub-Group Training Feedback:
Gary Devine circulated Carers newsletter and posters
3. Greater Manchester Update – Mari Saeki
In Mari’s absence, Jane Forest gave those present an update on progress in the Greater
Manchester area. To find out more, please visit www.autismgm.org.uk
Board members who attended the Convention gave their feedback on the event. The 3
main points that Trafford came away with are:
Lack of consistency in service transition between children and adults
Improving access to information about services that families received
Information sharing between adult and children services
Caroline Drysdale informed those present about the SEN Green Paper and agreed doa
presentation on ‘ SEN Green Paper and Trafford’s Role as a Pathfinder’
at the meeting on the agenda on the 19th of September.
AGREED Presentation to be set as an agenda item at the September meeting
Caroline Drysdale also informed those present about the project plan developed by the
Transition Board.
AGREED Transition Board Project to be brought to the September meeting
4. Sub-Group Training Feedback
Training - Pat Wilson/Jane Forrest
Gemma, Steve & Jane delivered the Introduction to Autism course to 70 members
of staff in Adult Social Care.
We are presently working with consultants and United Response to develop further
training. Pilot training day organised to take place on the 11th of July.
A ½-day autism awareness course will be delivered to Connexions in July.
Community Care Assessment training piloted in Oldham was a success and is now
ready to be delivered in Trafford. Sandy Bering asked if Jo Willmott had been
copied into emails about this training
AGREED Jane Forrest to send email to Jo Willmott and Sandy Bering regarding future
ASC training for Social Care Assessors.
AGREED Sandy Bering to circulate web address of Portsmouth online training
www.forms.portsmouth.gov.uk/autismawareness
http://www.autism.org.uk/training
AGREED Develop a useful links section for awareness and training
-
CLDT and Pat Wilson offering second level training following on from introductory
courses.
Carers - Kelly Hunter
An autism workshop delivered to carers during Carers Week.
Information – Jane Forrest
Met with Martin Kalwak and Darren Hayward about information sharing and storage
Meetings taken place with Warren Gates and Ali Bishop re-website. Ali Bishop has
prepared a draft bid to be submitted to the Future Visions Bequest Funds
AGREED Jane Forrest to invite Jenny Holt and Ali Bishop to meet to discuss further
-
Sandy Bering informed the board that a similar project was taking place within
children’s services in Trafford and thought it would be beneficial to bring the
workstreams closer together
AGREED Jane Forrest to contact Gill Renshaw and Alison Milne
5. Trafford Extended Service Update Report – Geraldine Thompson–Curran
Diagnostic Pathway:
26 people fully assessed until May
59 referrals received, with 8 awaiting assessment and 7 under assessment
Review of service due to be presented and will be feedback at next meeting
ADOS – 3 people trained and 2 more people to be trained in September.
We are continuing to explore the development of a coping skills group, a social skills
group, and a post-diagnostic group that will be inclusive to people who are not
FACS Eligible.
- Concerns were raised about people requiring support, who are not FACS
Eligible and how this can be addressed and how it could be funded for postdiagnostic support.
- Trafford Council provide support to people with autism, but an exact figure of
how many people within Trafford have autism is unknown. More work required.
- CYPS and Adult Social Care provide a brokerage service to help support
requirements via Personal Budgets.
- Geraldine circulated 2 case studies on people receiving post-diagnostic
support
AGREED Circulate copies with minutes of the meeting (
6. Children Service Update - Caroline Drysdale
Pathways Update:
68 cases through, with 6 completed, 7 awaiting further information or assessment
and 8 outstanding.
Audit review should be complete d by the end of July
Various models of post-diagnostic support are being explored to determine which
meets our requirements best. Pathway needs to link to existing work and strengthen
governance and information sharing.
Debra Smith is gathering information on the services available, developing links
within the network, and identifying the needs at different ages with Transition.
7. Housing Update – Richard Morris
-
Housing Broker role will be filled within the next 2 months and will be funded for 2
years
Autism is to be included in the Learning Disability, Mental Health and Autism
Accommodation & Support Forum Terms of Reference.
AGREED Circulate copies of Terms of Reference with minutes of the meeting
-
Concerns about private landlords not meeting LD and MH accommodation
specifications, as developers are not required to build these in to their standards
were discussed. Caroline Drysdale informed the board that Jane Hobson has written
a report on Welfare Reform.
AGREED Caroline Drysdale to determine if report can be circulated
-
A question about the mapping of accommodation provision within Trafford was
raised. Richard Morris informed the board that we are looking at developing flexible
housing.
8. Autism Champions – Jane Forrest
-
An update was circulated in the meeting and will be sent out with the minutes of
the meeting.
AGREED Circulate with minutes of meeting
9. Trafford’s Draft Autism Strategy – Jenny Holt
-
The Board was made aware of the draft strategy and were asked to read and
feedback before the next meeting.
AGREED A copy of the draft is to be circulated to Board for comment. All comments
to be received before meeting in September.
10. Autism Data Collection Terminology - Jane Forrest
-
Autism category to be added to Liquid Logic.
Number of people with autism in Trafford unknown as CYPS are still collating
AGREED Jane Forrest to contact Andy Phoenix
-
GPs would have figures that could help develop a profile of Trafford. Any ideas
welcome and should be sent to Jane Forrest.
Autism data subcategories to include Autistic Spectrum Conditions and Aspergers
and Autism with Learning disabilities
11. Police Update – Rachel Nutsey
-
GMP Partnership team is looking to get involved in disability groups within Trafford
and increase awareness about autism within the Police.
Mari has supported and information is being communicated to officers.
Steve Hendy asked Rachel to contact him if support is required with regard to
learning disabilities.
Rachel will invite neighbourhood team to any events or activities recommended
Rachel will circulate the information about the Autism Champions and invite officers
to nominate themselves.
12. Jargon Buster
-
SH to provide information on the following jargon – DISCO, ADI, ADOS, ADIR and AQ
AGREED People are at Board meetings are encouraged to ask what jargon means
during meetings so everyone gets a better understanding of the terms used.
The Jargon Buster will be included in the notes from this meeting
13. AOB
None
14. Date and Time of Next Meeting
DATE:
TIME:
VENUE:
19th September 2012
10am – 12pm
Sale Waterside, Meeting Room 4
Jargon Buster
1. DISCO
this stands for diagnostic interview for social and communication disorders
2. ADI
this stands for autism diagnostic interview
3. ADOS
this stands for Autism Diagnostic Observation Schedule
4. ADI-R
this stands for autism diagnostic interview – revised
5. AQ
this stands for Autism Spectrum Quotient
6. ADHD
this stands for Attention Deficit Hyperactivity Disorder
7. ASD
this stands for Autism Spectrum Disorder
8. ASC
this stands for Autistic Spectrum Condition
9. GP
this stands for General Practitioner
10. TES
this stands for Trafford Extended Service
11. SALT
this stands for Speech and Language Therapist
12. ASGMA
this stands for the Autistic Society Greater Manchester Area
13. Transient
this is a description for when a person has hallucinations and hear voices
Psychosis
14. NAS
this stands for National Autism Society
15. CLDT
this stands for Community Learning Disability Team
16. RSL
this stands for Registered Social Landlord
17. CAMHS
this stands for Child & Adolescent Mental Health Service
18. IAPS
this stands for Improving Access to Psychological Services