Report to the Cabinet Member for Adult Community Services Report submitted by: Executive Director of Adult Services, Health and Wellbeing Date: 10 March 2014 Part I Electoral Division affected: All in Lancaster (and Fylde and Wyre secondary) The Future of the North Lancashire Intermediate Residential Dementia Care Unit Contact for further information: Sarah Coulson, 07775221221, Adult Services, Health and Wellbeing Directorate sarah.coulson@lancashire.gov.uk Executive Summary The North Lancashire Intermediate Residential Dementia Care pilot has supported adults with dementia from across North Lancashire to recover from a bout of illness in a safe and appropriate environment and has facilitated a safe return home, thus easing the pressures of inappropriate placements on mainstream hospital and residential care services. The service is delivered by an integrated health and social care staff team. As demonstrated in this report, the service has performed very well against the projected outcomes however has not, to date, been able to demonstrate the necessary cost efficiency to the County Council's domiciliary and residential care budgets. Recommendation The Cabinet Member for Adult and Community Services is recommended to approve an extension to the pilot of 12 months, at a cost of £300,040, in order to carry out further detailed analysis of the outcomes and cost efficiencies to the domiciliary and residential care budgets to inform the long term viability of the service. Background and Advice Approval to a pilot for a North Lancashire Intermediate Residential Dementia Care Unit was given in April 2012, after it was agreed that specialist dementia intermediate care provision was needed in the area. The pilot is utilising ten existing beds within the Dolphinlee residential home in Lancaster and has been refurbished to provide a safe and appropriate environment for adults with dementia. It mixes traditional rehabilitation staff with a team of physical therapists (one occupational therapist, one physiotherapist and one technical instructor) to support physical and mobility needs, all of whom are trained in the provision of specialist care for people with dementia. The Unit also has access to GP and district nursing care to address any non-urgent or threatening medical needs, as well as more intensive mental health support through the Intermediate Support Team (IST); meaning that a host of support can be given to health and social rehabilitative needs to ensure the best possible chance of maintaining independence following discharge. The pilot is also incorporating new, partnership initiatives to provide a holistic, innovative service: work has been on-going to embed the use of the Portrait system in the Unit, as well as implementing a volunteer "befriending" service provided by Age UK to support people on discharge home. In line with the agreed staged approach to implementation, the unit started taking referrals on 1 August 2012 and was running up to its 10-bed capacity by 1 October of that year. Since that time there have been 89 admissions to the unit (who would otherwise have gone to residential care) and of the 79 discharges, only 17 (21.5%) were discharged into residential care. Indeed, it was expected that, in line with similar services, the Unit would discharge 67% of people into community-based settings; in this period, the Unit has exceeded this target, with 78.5% of people (62) being discharged into environments other than residential care. The majority of these people (49 people, 61% of all discharges) were discharged to their home with a package of care, whilst 1 person was discharged home without any formalised support at all. Ten of the 79 discharges were back to hospital, with only 17 (21.5%) being discharged to residential care. From the outset, it was estimated that the Unit would see a 77% utilisation rate: during this period, it has averaged 68% utilisation, though usage had picked up to over 80% in the latter two months. Lasting impact In order to fully examine the lasting impact and sustainability of the independence gained through the pilot, a shorter period of admissions and discharges between 1 November 2012 and 30 June 2013 was analysed. A 12-week evaluation period followed each discharge so that an analysis of the sustainability of the independent living arrangements following discharge could be carried out. During that period, 53 people went through the unit, of which; 29 people (58%) were discharged directly home (1 with no package of care); 5 people (9%) required an additional period of rehabilitation either before being allowed home or very soon after being discharged home; 26 people (49%) were still at home after 2 weeks; 23 people (43%) were still at home after 6 weeks; and 21 people (40%) were still at home after 12 weeks. Of those people discharged home but no longer there at the end of the 12-week evaluation period: 1 person's health deteriorated and was admitted to hospital; 4 people were admitted to residential care; and 2 people had died. Financial impact The actual cost incurred to the Directorate during the analysis period was £359,472.01: £225,030.00 on the unit itself and £134,442.01 on follow-up care and support. Based on the assumption asserted in the original business case that the people accessing the service would, without this provision, have gone directly to permanent residential care, the cost of that support over the same period would have been £280,547.52. This equates to an additional cost to the Directorate, over the analysis period, of £78,924.49. Throughout this pilot, North Lancashire Clinical Commissioning Group (CCG) has contributed to cover the costs of the therapy staff on the unit. Without this contribution, the additional cost to the Directorate over the evaluation period would have been £177,322.99. Performance against outcomes Anticipated outcome Timely discharge from hospital Delayed or reduced admissions to long term care Performance 81% of referrals from hospital discharge teams 89 admissions to the unit (who would have gone to residential care) Of the 79 discharges, only 17 (21.5%) were discharged into residential care. Effective rehabilitation and improved levels of functioning/quality of life for the person with dementia and their carer Increased independence, with the person being able to remain living in their own home in the community for longer 49 people (61% of all discharges) were discharged home Of the 53 people included in the detailed analysis, 31 (58.5%) were not able to maintain independent living at home. Of the 34 people (67%) discharged home1 during the detailed analysis period, 21 (61.8%) of them were still at home after 12 weeks 49 people (61% of discharges) were discharged home; Of the 34 people (67%) discharged home2 during the detailed analysis period, 21 (61.8%) of them were still at home after 12 weeks 29 people discharged directly home, 5 people requiring an additional period of rehabilitation before being discharged home. 2 29 people discharged directly home, 5 people requiring an additional period of rehabilitation before being discharged home. 1 Cost efficiencies for the County Council on domiciliary and residential care for people with dementia Reduced avoidable hospital admission Of the 53 people included in the detailed analysis, 21 (40%) were maintaining independence at home after 12 weeks Over the analysis period, the costs incurred to the County Council exceeded the savings to domiciliary and residential care by £78,924.49 3 Four referrals were received into the unit directly from GPs 10 of 79 (12.7%) people discharged from the unit were discharged to hospital Only 1 person discharged home was subsequently admitted to hospital. Cost efficiencies for the Health economy on acute hospital admissions and lengths of stay 81% of referrals were from hospital discharge teams 56% of people were assessed within 2 days of referral, 82% within 5 days. The pilot is due to come to an end on 31 March 2014. From the table above, it is evident that there have been some positive outcomes, as well as some questions raised concerning the financial viability of the service. It is therefore proposed that the pilot be extended for 12 months, to enable further analysis to be conducted on: The situations of those people accessing the unit since the analysis period; The situations of those people not included in the analysis but who have now had long enough at home to be appropriately analysed, including the scale and longevity of cost benefits; The circumstances that have caused people who were discharged home to be readmitted to a residential or acute hospital setting; and A comparison of performance against similar provision in other parts of the County. This will ensure that the reasons behind the loss of independence in those people not successfully living at home following a period of support at Dolphinlee are understood. The pathway model can then be fully evaluated to see whether any changes can be made to increase the number of people successfully maintaining independence after a stay at Dolphinlee. A twelve-month extension to the pilot will allow sufficient time to carry out the analysis, as well as a period of service redesign or decommissioning if necessary. It will also retain the capacity in the unit over the critical winter period, which could be lost in a shorter extension. The cost of this extension to the pilot will be £431,238. North Lancashire CCG has confirmed that it will make available £131,198 from its budgets to support this, with 3 Would have been £177,322.99 without North Lancashire CCG covering the costs associated with the therapy staff for the duration of the pilot. the County Council therefore needing to fund £300,040 for the 12 month pilot extension. Consultations North Lancashire CCG Commissioners and Personal Social Care value the service as an important part of the Transitional Care Pathway and are supportive of this proposal. Implications: This item has the following implications, as indicated Financial The Council's contribution of £300,040 to allow the pilot to be extended for a 12 month period will be funded from uncommitted balances available to the Directorate. Continuation of the service after this period will be dependent on the outcome of the detailed analysis to be undertaken, as detailed in the body of the report, with ultimately a recurrent funding source needing to be identified based on the cost benefits for both adult social care and health services. Risk management With an extension to the pilot rather than a full-term contract, it is possible that there will be some loss of staff due to them seeking permanent roles. In order to mitigate this risk, it is essential that the proposal to prolong the pilot is communicated to teams as soon as possible. List of Background Papers Paper Date Contact/Directorate/Tel Report to the Cabinet Member for Adult and Community Services – 'Proposals for a Pilot Project to Establish a Specialist Residential Rehabilitation Service for Older People with Dementia in North Lancashire' 12 April 2012 Dave Gorman, Office of the Chief Executive, (01772) 534261 Reason for inclusion in Part II, if appropriate N/A