ETHICAL DILEMMAS IN SURGERY AND UTILIZATION OF HOSPITAL ETHICS CONSULTATION SERVICE: A SURVEY Jennifer A.T. Schwartz, M.D. Post-doctoral Fellow NIH Dept of Bioethics Eric A. Singer, M.D., M.A. Clinical Fellow Urologic Oncology Branch, NCI Mentor: Marion Danis, M.D Background: “Ethical problems routinely arise in the hospital and outpatient practice setting, and ethics consultation services have become commonplace in health care institutions to assist staff and patients in resolving ethical dilemmas or disputes. Indeed, hospitals in the United States are mandated to maintain some mechanism to resolve ethics issues, and the scholarly literature has largely encouraged development of these resources. Furthermore, criteria for educating and training consultants and for standardizing the process of consultations have been published. Despite this endorsement of ethics consultation, little empiric evidence exists about the use of ethics consultation or its perceived effectiveness. Studies evaluating consultation services indicate to date that persons who request consultation are reasonably satisfied, and 2 controlled studies in the intensive care setting suggest that automatic ethics consults for patients at great risk of dying provide some benefit to patients and clinicians, and may optimize resource use. However, all these studies are restricted to single institutions. There has been little systematic study of the kinds of ethical dilemmas {[surgeons]} confront, the kinds of dilemmas referred for consultation, the effectiveness of ethics consultation, barriers to the use of ethics consultation, and {[surgeons]} satisfaction with the resolution of ethical dilemmas. Accordingly, a… survey of U.S. {[surgeons]} {[will be]} conducted to address these questions.” (DuVal, Clarridge, Gensler, Danis) Objective: 1. To identify the frequency of ethical dilemmas that surgeons have encountered in their practices in the past year. 2. To characterize the utilization of hospital ethics consultation service by surgeons 3. To recognize barriers to surgeons’ use of ethics consultation services Methods: Design: 32 item questionnaire Setting: Online Survey Participants: Surgeons contacted through the ACS e-mail distribution list Population: 72,600 Sample Size: 1052 (95% CI; +/- 3% margin of error) Estimated Response Rate: 34% Sample Size (with compensation for estimated RR): 3156 Incentive: 1 CME credit upon completion of survey Hypothesis: Respondents who report encountering a greater number of ethical dilemmas will report a greater number of ethics consultations (if service is available to them). QUESTIONNAIRE Your answers are completely confidential. The information from this study shall not be presented or published in any way that would permit identification of any individual. Your answers will be combined with other answers for statistical analysis. Your participation in this interview is entirely voluntary and you may withdraw at any time. If you would like to participate in this study, please sign below. ____________________________ Signature ______________________ Date Demographic Information: A1. How many total years have you been a practicing surgeon (include time spent in residency and fellowship training)? __________________ A2. Please select one of the following: □ Male □ Female A3. Have you had sub-specialty fellowship training? YES, (field)__________________ NO A4. Are you board certified? YES, (field)__________________ NO A5. Which of the following best describes your current surgical practice? a. Solo private practice b. Group private practice c. Employed by hospital d. Employed by health system e. Employed by government 2 f. Other_____________________ A6. Where do you perform the majority of your operations? a. Community hospital b. Government hospital c. Academic medical center d. Ambulatory surgical center e. Other_________________________ Ethical Dilemmas: For Items B1 - B17 please answer the following: In the past year many times have you been in a situation in which... B1. Rules for third party payment prevented you from proceeding with your preferred course of treatment? a. 0 b. 1-2 c. 3-4 d. 5 or more B2. A patient requested a costly intervention (which you believe will have very little benefit)? a. 0 b. 1-2 c. 3-4 d. 5 or more B3. You felt pressure to misrepresent a patient’s condition in order to help the patient gain medical interventions not otherwise covered by the patient’s health plan? a. 0 b. 1-2 c. 3-4 d. 5 or more B4. A pharmaceutical company or device manufacturer has offered you a generous gift (or other incentive) that you were concerned could cause a conflict of interest? a. 0 b. 1-2 c. 3-4 d. 5 or more B5. You had a concern about a colleague being impaired from fatigue, drug or alcohol use, illness, personal crisis, or other issue? a. 0 b. 1-2 c. 3-4 d. 5 or more 3 B6. You experienced competing commitments between a family or personal obligation and a professional obligation such that you had to choose one to the exclusion of the other? a. 0 b. 1-2 c. 3-4 d. 5 or more B7. You felt uncertain about the validity of the informed consent obtained from a surgical patient? a. 0 b. 1-2 c. 3-4 d. 5 or more B8. A patient's cultural or religious views conflicted with your proposed course of treatment? a. 0 b. 1-2 c. 3-4 d. 5 or more B9. You felt unsure of the best course of action when the duty to maintain confidentiality of patient information conflicted with another duty (such as mandatory reporting or protection of another party or public welfare)? a. 0 b. 1-2 c. 3-4 d. 5 or more B10. You were involved in the decision to limit or withdraw life sustaining treatment of a terminally ill patient? a. 0 b. 1-2 c. 3-4 d. 5 or more B11. An adult patient’s capacity for decision-making with respect to their own health was uncertain or impaired? a. 0 b. 1-2 c. 3-4 d. 5 or more B12. There was significant disagreement among family members/caregivers on the proper course of treatment for the patient? a. 0 b. 1-2 c. 3-4 d. 5 or more B13. Your preferred course of treatment conflicted with institutional policies, federal regulations, or other laws? a. 0 b. 1-2 c. 3-4 d. 5 or more B14. You were asked by a patient how many times you have performed a specific operation and felt pressure to exaggerate your experience? 4 a. 0 b. 1-2 c. 3-4 d. 5 or more B15. You were concerned that a colleague or trainee was planning to perform or did perform a procedure for which he/she was not appropriately credentialed? a. 0 b. 1-2 c. 3-4 d. 5 or more B16. You were asked to exclude trainees (fellows/residents/medical students) from participating in the intraoperative care of a patient at a teaching hospital at a patient’s or a family’s request? a. 0 b. 1-2 c. 3-4 d. 5 or more B17. You felt that a surgeon’s innovative operative technique would be better described as “experimental” rather than “standard of practice”? a. 0 b. 1-2 c. 3-4 d. 5 or more B18. Please describe an ethical dilemma that you experienced in the past year, how you solved it, and the outcome: Ethics Consultation: C1. Is there a process for requesting an ethics consultation at your primary practice site? YES DON’T KNOW NO C2. How many ethics consultations were you involved in over the past year (initiated by you or another member of your primary team)? If “NONE” go to Item C4. NONE #_________ C3. On a scale from 0 to 10 (where 0 is not useful at all and 10 is extremely useful), how would you rate the usefulness of the most recent ethics consultation you requested? 0 1 2 3 4 5 6 7 8 9 10 5 C4. If you have not requested an ethics consult in the past year, what prevented you from doing so? Please select all that apply. a. I was unsure if it would have been appropriate to request an ethics consult. b. I don’t know how to request an ethics consult. c. I believe an ethics consult would have created more problems than it would have solved. d. I didn’t needed guidance from an ethics consultant concerning patient care. e. I didn’t have time to wait for an ethics consultation when I was making decisions for patient care. f. Ethics consultants don’t have enough practical clinical experience for their recommendations to be useful. g. I didn’t have access to an ethics consult service h. Other_______________________________________________________ C5. Which of the following would make it more likely that you would request an ethics consultation in the future? (Please select all that apply). a. If I had access to an ethics consultation service. b. If the consultation process were faster. c. If ethics consultants could offer more specific/useful recommendations. d. If the ethics service did a better job of advertising its available services. e. If the ethics consultation team were more experienced in regard to ethical issues that often arise in surgery. f. If the ethics consultation team had more clinical experience and knowledge regarding surgical patients. g. Nothing would increase my likelihood of requesting an ethics consultation. h. Other_______________________________________________________ Comments regarding this survey: 6 References: A National Survey of U.S. Internists’ Experiences with Ethical Dilemmas and Ethics Consultation. G DuVal, B Clarridge, G Gensler, M Danis. Journal Gen Int Med. March 2004. Vol 19. Pp 253-9. Fast Facts on US Hospitals. American Hospital Association. www.aha.org Ethical Issues in Clinical Surgery. MH McGrath, DA Risucci, A Schwab. American College of Surgeons. 2007. Physician Characteristics and Distribution in the US. DR Smart. Pp 1-5. 2010. Physician Specialty Data: A Chart Book. AAMC Center for Workforce Studies. August 2006. 7