117 South Saint Asaph Street, Alexandria, VA 22314 Phone: 703-535-8045, Fax: 703-535-8049, http://www.jointcouncil.org Post-Placement Guidelines and Tools for Adoption Professionals 2005 Revised Edition For use by Joint Council Member Adoption Agencies, Social Workers, and Other Professionals Providing Post-Placement Services to Adoptive Families © Joint Council on International Children’s Services 117 South Saint Asaph Street Alexandria, VA 22314 703-535-8045 Fax : 703-535-8049 http://www.jcics.org The Joint Council on International Children’s Services from North America is an association of licensed, not-for-profit child welfare agencies that serve children through intercountry adoption and relief efforts. The Joint Council advocates for homeless children around the world, provides a forum for sharing information enabling children to be served more effectively, promotes legislation and procedures that better meet the needs of children, disseminates information related to children’s issues and establishes guidelines and standards of practice that protect the rights of children, birth parents, and adoptive parents. JCICS has prepared the PostPlacement Guidelines and Tools for Adoption Professionals as an educational tool for its member organizations, signifying the importance we place on quality postplacement services. POST-PLACEMENT GUIDELINES AND TOOLS FOR ADOPTION PROFESSIONALS Section One Purpose and Use of These Guidelines 4-6 Section Two Interagency Working Agreements and Post-Arrival Reporting 7-19 Section Three Assessing a Child’s Development 20-42 Section Four Citizenship Information 43-45 Section Five Forever Family Certificates and LifeBooks 46-51 Section Six Adoption Resources 52-63 As a group of adoptive parents and adoption professionals, we are excited by the possibilities for making all post-placement contacts truly helpful to adoptive families, and we hope that you will be, too. The Committee thanks Lynn Balzer-Martin, Ph.D., OTR, who gave permission to reprint the Balzer-Martin Screening Program. We also gratefully acknowledge the assistance of Jerri Ann Jenista, M.D., Boris Gindid, Ph.D., Gregory Keck, Ph.D. and Carol Kranowitz, MA. The JCICS Education Committee for Spring 2005 Chairperson: Donna Clauss, MA, LMSW Sonia Baxter, BA Maureen Evans, MA Sidne Goodwin, BA Laura Hofer, MSSW, LCSW Betty Laning, BA Deborah McCurdy, MSW, LICSW Deborah Riley, MFT Pamela Thomas, BA Rainbow House International Rainbow House International Joint Council on International Children’s Services North Bay Adoptions Holt International Children’s Services, Inc. Open Door Society of MA Beacon Adoption Center Center for Adoption Support and Education Adoption Resource Center at Brightside 117 South Saint Asaph Street Alexandria, VA 22314 703-535-8045 Fax : 703-535-8049 http://www.jcics.org The Joint Council on International Children’s Services from North America is an association of licensed, not-for-profit child welfare agencies that serve children through intercountry adoption and relief efforts. The Joint Council advocates for homeless children around the world, provides a forum for sharing information enabling children to be served more effectively, promotes legislation and procedures that better meet the needs of children, disseminates information related to children’s issues and establishes guidelines and standards of practice that protect the rights of children, birth parents, and adoptive parents. JCICS has prepared the PostPlacement Guidelines and Tools for Adoption Professionals as an educational tool for its member organizations, signifying the importance we place on quality post-placement services. POST-PLACEMENT GUIDELINES AND TOOLS FOR ADOPTION PROFESSIONALS Section One 1. The Importance of Our Agencies Providing PostPlacement Services 2. How These Concise Guidelines and Tools May be Used 1. THE IMPORTANCE OF AGENCIES PROVIDING POSTPLACEMENT SERVICES All newly placed infants and older children, who are unable to express their needs clearly, need our agencies to intervene on their behalf while they are adjusting to their new homes. They need us to know and understand them, to empathize with their most painful feelings and challenging behaviors, and to interpret those feelings and behaviors sympathetically to their inexperienced adoptive parents. Without our professional intervention in the fragile new parent-child relationship, the families are at risk of a poor initial adjustment that may lead to disruption or dissolution of the adoption – or to long-term unresolved painful feelings that may be even worse for the family. All adoptive parents need our agencies’ services for at least the six-totwelve month adjustment period following placement, even though some may resist our continued involvement, either as a reflection on their skills as parents or as a needless expense. They need us to make sense of their child’s feelings and behavior, to reassure them when appropriate, and to guide them toward the most helpful discipline and parental support for their child. Embattled parents can benefit greatly when we interpret their child’s withdrawn, demanding or rebellious behavior in the light of the child’s feelings of grief and rage over perceived abandonment in the past and his fear that future abandonment will follow if he allows himself to love his new parents. Such “reframing” of the child’s feelings and behavior by an adoption professional, over a period of time, enables the parents to rise above their battle fatigue and to develop more understanding and empathy for the child. If the family is in need of a referral to resources for ongoing counseling, early intervention or assessments of any kind, their social worker – armed with the materials which follow in this packet, and whatever other knowledge she can contribute – is in a critical position to help at this vulnerable stage. The countries of origin need our agencies to demonstrate to them – through our continuing contact with the family and several reports with photographs – that their children are treasured, well cared for and developing optimally in their new homes. Without our reassuring reports and pictures, the inter-country adoption system in the children’s birth countries may break down in the face of unfounded rumors and misconceptions about what adoptive parents are like. 2. HOW THESE CONCISE GUIDELINES AND TOOLS MAY BE USED For purposes of clarifying our agencies’ responsibilities, we are defining the postplacement period as the six-to-twelve month adjustment period following a child’s arrival in his new home, whether or not the child has been legally adopted overseas. The brief guidelines and tools in our post-placement packet represent a minimum standard for adoption professionals, and they are intended as a springboard for future learning about the many issues that are covered in the one-page and two-page summaries that follow. These summaries (which include helpful descriptions of attachment issues, fetal alcohol syndrome, developmental delays, speech and language problems, sensory integration dysfunction, learning disabilities and other challenges of adoption) may prompt us to refer certain children for early evaluation and treatment. Please note that these guidelines have been written with the intent that they will be read and utilized by professionals. The purpose is to make professionals familiar with the symptoms of various issues so that if during a postplacement assessment it becomes apparent that a child may be experiencing difficulty in one of the areas, the social worker can be a source of encouragement to the family to seek further evaluation by a specialist or professional and take advantage of early intervention services. The summaries are not intended to be distributed to parents. However, there are some forms and materials that should be shared with parents. These include a post-placement progress questionnaire, a checklist for medical tests, a life book outline, and “forever family” certificates – in addition to instructions for obtaining citizenship, tracing or replacing a missing Alien Registration Card, readopting or reconfirming an adoption and obtaining a social security number for the child. Other sections of the packet include guidelines for an interagency working agreement – an essential tool for clarifying the respective responsibilities of any cooperating international placement agency and direct service agency and federal forms, as well as guidelines for post-placement reports and a list of resources. (Parents should order their own forms, as forms may become outdated.) 1403 King Street, Suite 101 Alexandria, VA 22314 703-535-8045 Fax : 703-535-8049 http://www.jcics.org The Joint Council on International Children’s Services from North America is an association of licensed, not-for-profit child welfare agencies that serve children through intercountry adoption and relief efforts. The Joint Council advocates for homeless children around the world, provides a forum for sharing information enabling children to be served more effectively, promotes legislation and procedures that better meet the needs of children, disseminates information related to children’s issues and establishes guidelines and standards of practice that protect the rights of children, birth parents, and adoptive parents. JCICS has prepared the PostPlacement Guidelines and Tools for Adoption Professionals as an educational tool for its member organizations, signifying the importance we place on quality post-placement services. POST-PLACEMENT GUIDELINES AND TOOLS FOR ADOPTION PROFESSIONALS Section Two 1. Components of a Good Interagency Working Agreement 2. Guidelines for Post-Placement Reports 3. Parents’ Post-Placement Questionnaire 1. COMPONENTS OF A GOOD INTERAGENCY WORKING AGREEMENT It is important for cooperating agencies to have a mutually acceptable Interagency Working Agreement in place well before the first child is placed. Such an agreement clarifies the respective responsibilities of the “direct service agency” (which is the local agency providing the home study and postplacement services) and the “international placing agency” (whose chief responsibilities are establishing programs in the foreign country, identifying children available for placement, obtaining information on the children and referring the children for placement). Fortunately, there is a traditional division of labor that is acceptable to nearly all agencies, and our suggestions for a generic agreement are based on this understanding. (The parties to an agreement are free to modify the standard agreement of either agency if they so choose, but in practice this rarely happens.) The most important thing is for each agency to be clear as to its own responsibilities and those of the other agency. Some agencies prefer to have a separate agreement signed for each child placed, but others have a provision that the first agreement signed will serve for future placements unless it is modified later. As we have indicated below, it is necessary for each agency to keep the other informed of any developments that might affect a child’s or family’s readiness for adoption or that could jeopardize a placement. Responsibilities of the direct service agency typically include: Home study assessment of the adoptive family, usually based on at least three interviews Home study report written according to USCIS guidelines and any birth country requirements Preparing and educating the family on adoption issues, cross-cultural adoption and risks of intercountry adoption Assistance to the family with filing Form I-600A and other local USCIS procedures Pre-adoption and post-adoption counseling to the adoptive family, as needed Post-placement visits and support as required by the international placing agency and birth country Sending the international placing agency the required post-placement reports suitable for the child’s country (specify the exact number) Keeping the international placing agency fully informed of significant issues or new developments in the family Referring the child for appropriate evaluations and early intervention when indicated Obtaining copies of the child’s preadoption documents for the family and the direct service agency Cooperating with the international placing agency’s plan for the child in the event of disruption or dissolution Informing parents and the direct service agency of the progress of the pre-adoption process, delays and setbacks Assisting the parents with legal adoption in their state, and readoption Advising parents in writing as to documents they will need in child’s country for USCIS/Embassy filing Providing instructions to the family regarding citizenship filing for the child at their local USCIS office Arranging for placement of the child in US or assisting parents with arrangements for overseas travel Post-finalization counseling of family as needed and/or referral to other resources as appropriate Providing in-country support and assistance to parents through a representative, insofar as possible Furnishing full set of certified documents on the child for obtaining visa, re-adoption and citizenship Making ongoing orphanage contacts, including translation and mailing of post-placement reports Willingness to take planning responsibility for the child, including interim foster care, if re-placement is needed and in accordance with applicable laws Exchanging copies of current licenses with the direct service agency. Responsibilities of the international placing agency (or its overseas representatives) include: Communicating with the child’s birth country and compliance with all relevant laws Providing child’s available medical and social history and exam results to the parents and the direct service agency and attempting to obtain additional information when requested Referring a child that matches the type of child requested by the family and consulting with the direct service agency for clarifications 2. GUIDELINES FOR POST-PLACEMENT REPORTS Following are two models for completing a The abstract version is often used to written post-placement report. The first and prepare the written report, which is sent to longer version is for use by the social the foreign country. Often the foreign worker in preparing a complete report. A country does not require long, extensive complete post-placement report is generally reports. Long reports are costly to translate prepared by the direct service agency and a and are often ignored by the foreign country signed copy is forwarded to the cooperating if they are too expensive. international placement agency, if there is A model for obtaining family input is one. These reports are also often forwarded also included. The family questionnaires to interstate compact offices and remain on include instructions to the family to provide file with the direct service agency. State multiple photos of the child and family. licensing authorities generally review these reports. ______________________________________________________________________________ Identifying Information Family Name Family Address Family Telephone Child’s Arrival Date Child’s Original Name Child’s Present Name Child’s Date of Birth Name and Credentials of Social Worker Date of Report Contacts This includes dates of contacts, type of contacts (office visit, home visit, cultural event, etc.), duration of contacts, and who was present. Description of Child Describe the child’s personality, provide a physical description of child and indicate the child’s favorite activities, toys or interests. Comment on the child’s behavior and indicate if there are unusual or problematic behaviors. Initial Adjustment (For first report only) Describe any grieving or loss behaviors the child has shown since placement (extended periods of crying or being extremely stoical, sleep disturbances or wanting to sleep all the time, tantrums, hoarding, avoidance of being comforted, preoccupation with eating or refusal to eat, etc.) Describe initial adjustments, which have been necessary for the parent, child or siblings. What are the sleep patterns? Has the child had any difficulty eating or issues with the food? Have routines emerged, and are they established? What are the family’s methods of coping with the new responsibility and changing roles? Describe any behavioral problems that are difficult for the family, and state how the family is handling the problem(s). Does the child test limits or show resistance to rules? Do the parents feel the child is manageable? What has the language adjustment been like? How does the family feel things are going? Describe the relationship between parent and child. Does the child enjoy hugs and closeness from the parents? Has discipline been necessary, and if so, what type of discipline has been used, and is it effective? Is the family experiencing any problems, and if so, how are they managing them? What is the language communication like for the child, and do the parents feel they are able to communicate effectively with the child? How do the parents like the child and the child the parents? Is there evidence that bonding is emerging? Does the child look to the parents for help or reassurance? Family and Child Interaction (in subsequent reports this section replaces initial adjustment) Describe the parent, child and sibling relationships and the dynamics of the interactions. What is the adjustment like at this time? Describe eating and sleeping habits. Is there a routine? How is the child’s emotional, physical, language and social development? What developmental and emotional gains has the child made since the last visit? Has the child acquired any new skills? How does each parent feel about this child? Does the child have any annoying behaviors? Is the child manageable? Has discipline been necessary, and if so, what has been used? Do the parents enjoy this child, and what are their feelings about the child’s personality? Do the parents feel this child fits into the family? What has the adjustment been to siblings, if there are siblings? Do the parents have any concerns? Do the parents feel attached or have a growing attachment to the child? Do they feel the child is attaching to each of them? Has there been any crisis, or has the family experienced any unusual changes since the last visit? What has been the most difficult part of placement? What has been the most enjoyable part of placement? Are there arrangements for daycare, and if so, what are they? What is the child’s reaction to the daycare arrangements? Health and Development of Child Report the findings of the post-arrival medical report. Indicate the child’s height, weight and head circumference. How does this compare to the child’s measurements at arrival? Is the child teething, or has he/she gained or lost any new teeth? What is the condition of his or her teeth? Is the child up to date on immunizations? Are there any medical problems that have been identified, and if so, how is the family coping? Has the child had any illnesses, and if so, indicate the recommended treatment, and whether or not the problems are resolved. Has the family experienced any problems because of racial or cultural differences? What is the level of the child’s development with respect to fine motor skills, gross motor skills and language (both expressive and receptive)? Does the child show symptoms indicative of problems with sensory integration? Does the child show any signs of processing difficulties or other symptoms, which might be indicative of a learning disability? Have any recommendations been made to the family to seek further evaluations or early intervention programs? What is the child’s emotional and social development like? Community and Extended Family Has this child been accepted by the community? What has the response been to the child by the extended family and friends of the family? Has the family experienced any cultural difficulties or prejudice? Legal Process Has the family filed a petition with the court for adoption or re-adoption if necessary? What is the timetable? Evaluation and Recommendations Summarize the family’s adjustment, including social, emotional and financial areas. Is attachment and bonding occurring? How is the family coping and adjusting to the placement? Indicate what adjustment seems likely for the future. What recommendations have been made, and how does the social worker feel about the placement? If this is the final report, is there a recommendation for finalization and/or any request for Consent or Agreement to Adoption? _________________________ Social Worker _________________________ Placement Supervisor _________________________ Date Post-Placement Report Number _________ Family Name: ____________________________________________________________ Child’s Original Name: ____________________________________________________ Child’s Date of Birth: ______________________________________________________ Date of Contact: __________________________________________________________ Report Completed by: _____________________________________________________ Agency Name: ___________________________________________________________ Agency Address: _________________________________________________________ Description of Child and Personality of Child: Overall Condition of Child: Emotional Adjustment: Happy Doing Well Is Difficult Bonding between family and child is occurring Intervention services being utilized ______ Speech ______ Occupational ______ Physical Other difficulties: (speech, fine or gross motor, physical, emotional, etc.) Specific Improvements: ______ Other Skills that have improved, with examples, and child’s health: Fine Motor Skills Gross Motor Skills Social Skills _______________________________________________________ Language Skills ____________________________________________________ Emotional Skills ____________________________________________________ Pediatrician is satisfied with child’s progress _____________________________ Diseases child has had since placement __________________________________ Surgeries _________________________________________________________ Child’s Daily Routine: Family Interactions: Additional Comments: Social Worker: __________________________________ Date ___________________ Name Printed: ___________________________________ Subscribed and sworn to before me this ____________ day of ______________ 20____. _______________________ Notary Public My commission expires: ___________________ Parents’ Post-Placement Questionnaire Family and Child Data Family Name: ____________________________________________________________ Address: ________________________________________________________________ Child’s Original Name: ____________________________________________________ Child’s Present Name: _____________________________________________________ Child’s Date of Birth: ______________________________________________________ Date of Arrival: __________________________________________________________ Date of Report: ___________________________________________________________ Child’s Alien Registration Number: __________________________________________ Child’s Adjustment Health and Development What adjustment problems are the child and family experiencing? ______________________________________________________________________________ ______________________________________________________________________________ How does the child relate to family members and others? parents/siblings.) (Describe adjustments to ______________________________________________________________________________ ______________________________________________________________________________ What are your child’s favorite foods, and are there any problems with food or eating? ______________________________________________________________________________ ______________________________________________________________________________ What are your child’s strengths? ______________________________________________________________________________ ______________________________________________________________________________ What developmental milestones has your child reached since placement or since the last visit? ______________________________________________________________________________ ______________________________________________________________________________ What are your child’s favorite activities at present? ______________________________________________________________________________ ______________________________________________________________________________ What is difficult for your child? (Please indicate social, developmental, language and emotional difficulties.) ______________________________________________________________________________ ______________________________________________________________________________ How does your child show that he/she is attached to the family? ______________________________________________________________________________ ______________________________________________________________________________ Does your child smile and have eye contact with parents, siblings, extended family or others? ______________________________________________________________________________ ______________________________________________________________________________ What is the child’s daily routine? ______________________________________________________________________________ ______________________________________________________________________________ Describe your child’s appearance (height, weight, hair, skin, etc.). ______________________________________________________________________________ ______________________________________________________________________________ Describe your child’s personality, disposition, habits and behavior. ______________________________________________________________________________ ______________________________________________________________________________ What are your impressions of your child’s health? ______________________________________________________________________________ ______________________________________________________________________________ Do you feel that your child has any developmental delays? ______________________________________________________________________________ ______________________________________________________________________________ How well is your child acquiring language skills? ______________________________________________________________________________ ______________________________________________________________________________ Is your child’s receptive language good? ______________________________________________________________________________ ______________________________________________________________________________ How is your child comforted? ______________________________________________________________________________ ______________________________________________________________________________ Has your child shown any signs of grieving or loss? Explain extended periods of crying, sleep disturbances, sleeping all the time, tantrums, clinging to parents, etc. ______________________________________________________________________________ ______________________________________________________________________________ Describe any behavior problems your child has. ______________________________________________________________________________ ______________________________________________________________________________ Does your child test limits or rules? ______________________________________________________________________________ ______________________________________________________________________________ Describe any illnesses your child has had since arrival or since the last report. ______________________________________________________________________________ ______________________________________________________________________________ Is your child up-to-date with immunizations? ______________________________________________________________________________ ______________________________________________________________________________ Have you taken your child to the doctor for a post-arrival medical checkup? If so, did the doctor have any concerns? ______________________________________________________________________________ ______________________________________________________________________________ Are you using a daycare or child sitter? If so, what has the child’s reaction been? ______________________________________________________________________________ ______________________________________________________________________________ For School Age Children Have you had any difficulty enrolling the child in an appropriate class? ______________________________________________________________________________ ______________________________________________________________________________ How well does your child get along with peers? ______________________________________________________________________________ ______________________________________________________________________________ Is your child in English as Second Language (ESL) or does he/she have an Individual Education Plan (IEP)? ______________________________________________________________________________ ______________________________________________________________________________ Describe any problems or special achievements related to school. ______________________________________________________________________________ ______________________________________________________________________________ Family Adjustment How does it feel to be a parent of this child? ______________________________________________________________________________ ______________________________________________________________________________ What has been the most difficult part? ______________________________________________________________________________ ______________________________________________________________________________ What has been the best part? ______________________________________________________________________________ ______________________________________________________________________________ Describe the special qualities of this child. ______________________________________________________________________________ ______________________________________________________________________________ What are special activities or favorite moments you spend with your child? ______________________________________________________________________________ ______________________________________________________________________________ How have your sleep patterns been affected by this placement? ______________________________________________________________________________ ______________________________________________________________________________ Does the child seem equally attached to each parent? ______________________________________________________________________________ ______________________________________________________________________________ How has this placement affected other family members? ______________________________________________________________________________ ______________________________________________________________________________ Is the family considering any important changes, such as a move, job change or one parent returning to work? ______________________________________________________________________________ ______________________________________________________________________________ Have you had to use discipline? If so, please describe the type of discipline and the behavioral problem. ______________________________________________________________________________ ______________________________________________________________________________ What resources might be helpful during the remainder of your post-placement period? Check all that apply. Support Group __________ Learning Disability Resource __________ Adoptive Family Resource __________ Speech/Language Resource __________ Sensory Integration Therapist __________ Parenting Education __________ Educational Resources __________ Attachment Resource __________ Family Therapist __________ 1403 King Street, Suite 101 Alexandria, VA 22314 703-535-8045 Fax : 703-535-8049 http://www.jcics.org The Joint Council on International Children’s Services from North America is an association of licensed, not-for-profit child welfare agencies that serve children through intercountry adoption and relief efforts. The Joint Council advocates for homeless children around the world, provides a forum for sharing information enabling children to be served more effectively, promotes legislation and procedures that better meet the needs of children, disseminates information related to children’s issues and establishes guidelines and standards of practice that protect the rights of children, birth parents, and adoptive parents. JCICS has prepared the PostPlacement Guidelines and Tools for Adoption Professionals as an educational tool for its member organizations, signifying the importance we place on quality postplacement services. POST-PLACEMENT GUIDELINES AND TOOLS FOR ADOPTION PROFESSIONALS Section Three 1. Assessing An Adopted Child’s Receptive and Expressive Language 2. What is Attachment Disorder? 3. Symptoms of Attachment Disorder 4. Signs of Fetal Alcohol Syndrome or Alcohol Related Birth Defects 5. Learning Disabilities in Adopted Children 6. Special Education and Help for Children With Delays 7. Post-Arrival Medical Report Form for Adopted Children from Overseas 8. Problems in Adopted Children Related to Sensory Integration 9. The Balzer-Martin Preschool Screening Program 10. Balzer-Martin Preschool Screening – Teacher Checklist 11. The Balzer-Martin Preschool Screening Program Content 1. ASSESSING AN ADOPTED CHILD’S RECEPTIVE AND EXPRESSIVE LANGUAGE An important tool in assessing the level of a child’s receptive and expressive language involves teaming up with a native speaker of the child’s language as soon after placement as possible. The earlier this evaluation is done, the more accurate the assessment will be because children start to lose their native language soon after arrival in a new country. Someone proficient in the child’s native language needs to hear the child speak and to be able to comment about his or her syntax, pronunciation, correctness of vocabulary and level of both receptive and expressive language. It is important for the adoptive parents to be aware of their child’s proficiency base. Children who have established proficiency in their first language and who are under ten years of age learn a second language much more easily than those who have not established a first language base. By the age of one year, a child already has the circuits in place that represent the sounds that form words. The baby is then primed to turn sounds into words. The more words a child is exposed to, the larger the vocabulary will be by age two. As the sounds of words build neural circuitry, they can then absorb more words. Conversely, the child who has had limited exposure and experience with language has already been thwarted in establishing basic circuitry for language to emerge. An institution is not the optimal environment for a child to acquire a well-developed language base. Children coming from orphanages are often delayed in their speech and language development due to deprivation or limited language exposure. A good first step, in the case of infants and preschool children, is for parents to contact the nearest early intervention (EI) program for a developmental assessment that includes language skills. In the case of school-age children who have recently arrived, it may be helpful to have comprehensive interviews with the adoptive family, a teacher, a psychologist and a native speaker-interpreter. It is also helpful to utilize behavior scales such as the ABS, Vineland and CARS. The Bilingual Verbal Ability Test is recommended for determining language proficiency. The Universal Nonverbal Intelligence Test and the Lieter-R Test are considered the most informative nonverbal tests for cognitive assessment. The Brigance Inventory for Early Development is a good tool for measuring the orphanage child’s functioning in relation to the skills of other children his age. When there are clearly observable delays in the child’s speech and language development, it is imperative that the family initiate speech and language evaluations, administered by professionals, as soon as possible. Early intervention optimizes the outcome. Because communication is the key to interacting in society, a child with limited ability to communicate is essentially locked out of the world around him. It is helpful for social workers to ask adoptive families whether they are in possession of any videos that were made of their child prior to placement. If the family has such a video of their child, it is best to have the video evaluated for speech development/understanding by someone proficient in the native language. 2. WHAT IS ATTACHMENT DISORDER? When children are not able to form a trusting bond in infancy and early childhood, for a number of reasons, attachment disorder (or less severe attachment issues) can develop. A bond of trust is essential for a child’s personality and conscience to continue developing. When there is a lack of trust, it generates pervasive anger, a need for control and feelings of aloneness. Children with attachment disorder have constant control issues and are extremely effective at distancing their parents and other adults by either physical or emotional withdrawal. The more the parents attempt to become close, the greater the resistance is from the child. Over time, the child becomes more disruptive and the parents become more frustrated and angry. Children with attachment issues often are indiscriminately affectionate, have a poorly developed sense of cause and effect thinking and may have difficulty with abstract thinking. There seems to be an inappropriate balance between dependency and autonomy. Attachment is a process that occurs over time. Attachment is the process of attaching to a caregiver and a caregiver attaching to the child. This generally happens as a child has needs, expresses them and receives a response to his needs. This understanding forms a bond of trust between the caregiver and the child. Attachment is dependent upon a meaningful, consistent relationship, so it is often difficult to determine how secure or ambivalent an attachment relationship is, or whether there is a reactive attachment disorder. Reactive disorder occurs when a child reacts to events in their early life that have caused a lack of trust to form. Newly placed children and those in the adjustment phase of placement may exhibit many of the symptoms of attachment disorder. However, some symptoms disappear or are mitigated as trust develops and the child feels secure in the placement. Multiple symptoms that persist long after an adjustment and transition period may need to be evaluated by a therapist specializing in attachment disorder problems. 3. Symptoms of Attachment Disorder Symptoms of Attachment Disorder (or symptoms of more transient attachment issues or delays) occur in six areas: behavioral, cognitive, affective, social, physical and moral/spiritual. An unattached child may exhibit some but not all symptoms. Conversely, multiple symptoms are not necessarily indicative of entrenched attachment issues that will persist long after a child is placed. Behavioral Self-destructive (head banging, picking, cutting or burning themselves) Destroy property of themselves or others Lack of impulse control Aggression toward others Physically violent Passive-aggressive and manipulative Exaggerated lying Stealing Cruelty to animals Preoccupation with fire, blood and gore Hoarding and gorging Controlling Sleep disturbances Enuresis and ecopresis Demanding and clingy Consistently irresponsible Inappropriate sexual conduct Frequently defiant/oppositional Incessant chatter and/or persistent nonsensical questions Difficulty with novelty and change Cognitive Lack of cause and effect thinking Learning disorders Perceives self as victim Grandiose sense of self-importance Affective Not affectionate on parent’s terms Intense displays of anger Inappropriate emotional responses Frequently sad, depressed or helpless Marked mood changes Social behaviors Superficially engaging and charming Lack of eye contact for closeness Indiscriminately affectionate with strangers Lack of or unstable peer relationships Cannot tolerate limits and external control Blames others for own mistakes and problems Lacks trust in others Victimizes or is victimized Manipulative, controlling and bossy Physical Poor hygiene Chronic body tension Being accident prone High pain tolerance/overreaction to minor injury Tactilely defensive Moral/Spiritual Lack of meaning and purpose Lack of compassion and remorse 4. SIGNS OF FETAL ALCOHOL SYNDROME OR ALCOHOL RELATED BIRTH DEFECTS/ALCOHOL RELATED NEURODEVELOPMENTAL DEFECTS Fetal alcohol syndrome, alcohol related neurological defects and alcohol related birth defects (FAS, ARND, ARBD) are characterized by a cluster of birth defects that occur as the result of prenatal exposure to alcohol. There are no biochemical or pathological tests that can be administered to establish these diagnoses. A child with a cluster of symptoms in one or more of the following areas should be evaluated by a professional with experience in fetal alcohol syndrome and prenatal alcohol effect, to confirm or rule out a diagnosis of FAS, ARND, ARBD or alcohol exposure. Growth Retardation Before or After Birth May Include: Weight below the tenth percentile (in relation to other children of the same age and sex) Height below the tenth percentile Head circumference below the tenth percentile Facial Features May Include: Central Nervous System Anomalies and Other Problems May Include: Microcephaly (head circumference below third percentile of children of same age and sex) Cognitive impairment Behavioral problems Poor coordination Speech and language dysfunction Feeding dysfunction Sensory hypersensitivity Developmental delays (walking, toilet training, etc.) Failure to thrive Non-specific brain anomalies Cerebral Palsy Flattened maxillary area Seizures Flat philtrum (the two vertical lines under the nose) Vision and other eye abnormalities Thin upper lip or upper lip thinner than the lower lip Short palpebral fissures/short opening from the inside corner to the outside corner of the eyes Ptosis or drooping of eyelids Posterior rotation of ears or low-set ears Upturned or scooped-appearing nose Wider than usual distance between the nose and the upper lip, despite normal variations In addition, prenatal alcohol exposure may result in other birth defects such as heart disease, heart murmur, abnormal palmar creases, skeletal changes, prematurity and so on. There must be a known maternal history of gestational alcohol use or abuse to confirm the diagnosis of FAS. Children having symptoms in each of the three areas described above, plus a known history of gestational alcohol exposure, may have fetal alcohol syndrome and should be referred for evaluation. Children who have symptoms in one or two of the areas but not all three, and have suspected history of gestational alcohol exposure, may have other alcohol related birth defects. Early evaluation and resource support services are recommended for any child with suspected problems of prenatal alcohol exposure. 5. LEARNING DISABILITIES IN ADOPTED CHILDREN Learning disabilities are differences in learning styles and perceptions and differences in processing information from the learning styles of most people. Children and adults with learning disabilities have difficulty taking in, processing, storing, retrieving and expressing information. (Types of information include: listening, thinking, speaking, reading, writing, spelling and/or math.) They have perceptual inefficiency. The general public often has a misconception that having a learning disability means having inferior intelligence or an intellectual defect rather than a different approach to processing information. The term “learning disability” does not include individuals who have learning problems that are primarily the result of visual, hearing or motor disabilities, mental retardation, emotional disturbance or environmental, cultural or economic disadvantages. One way to think of learning disabilities is to compare them to the use of technology. If the majority of the world were to save their computer data with Microsoft Word, and then one individual using HTTP wished to send an attachment to the majority of the world uses, there would be a processing difficulty that would have nothing to do with the quality (intelligence) of information the sender was trying to send. One of the greatest obstacles to a child’s diagnosis of a learning disability is the stigma associated with the diagnosis. The most common learning disabilities relate to language, reading, writing and spelling. Another group of learning disorders revolves around difficulties in learning to compute or reason mathematically. Children with learning disabilities typically display underdeveloped learning strategies, time concepts and physical abilities, attention disorders and/or an inability to follow directions compared to their peers. They may also have difficulty with memory. The specific causes of learning disabilities are still unclear. In general, they are believed to be caused by abnormalities or malfunctioning of the brain. Heredity, prenatal and perinatal circumstances are all thought to be contributing factors to learning disabilities, as are circumstances such as low birth weight, prematurity, prenatal exposure to alcohol or other drugs and complications that occurred at birth. Some of the common learning disabilities are defined on the next page. One of the most prevalent learning disabilities is Attention Deficit Hyperactivity Disorder (ADHD). This disability is estimated to occur in 3 to 5% of the general population. Adopted Child, January 1990 Newsletter stated, “Among adoptees, the incidence is estimated to be at 20 to 40 percent.” In recently placed children, what appears to be ADD or ADHD may be what Claudia Jewett calls “newness panic” and may soon disappear. As Mary Hopkins-Best has written in Adoptive Families, “Inattentiveness, impulsivity and hyperactivity in a recently adopted preschooler may be evidence of stress and confusion associated with a change in placement…Even trained and experienced professionals sometimes have difficulty determining whether a child truly has ADD or another condition with similar symptoms.” Attention Deficit Disorder and Attention Deficit Hyperactivity Disorder (ADD and ADHD) A child with ADD or ADHD typically is easily distracted, has difficulty following through on instructions from others, fails to finish tasks, has difficulty sticking to one activity before jumping into another, has difficulty organizing work, often loses things necessary for tasks or activities, often engages in physically dangerous activities without understanding the danger involved, often doesn’t seem to listen to what is said, is fidgety or always on the move, has angry outbursts, is very sensitive to criticism and/or is very impulsive. This condition generally shows up before the child is seven years old. be a visual perception problem, which is commonly characterized by letter and word reversals. This is one of the most common disabilities and generally causes reading difficulty. Auditory Processing/Discrimination Problems with auditory processing refer to the inability to recognize and interpret things that are heard. The child has difficulty discriminating similar sounds, can confuse the sequence of spoken sounds and has difficulty following a string of commands or directions. He or she has difficulty understanding when there is a lot of background noise and frequently requires repetition of material at a slower pace, clearly and concisely stated. The child’s hearing is perfectly normal. Dyspraxia A child with dyspraxia has difficulty performing complex movements, including muscle motions necessary for talking. Aphasia Aphasia is the complete inability to use language to communicate effectively. Apraxia A child with apraxia has difficulty making or planning movements. There is no paralysis. Dyslexia A child with dyslexia has unusual difficulty sounding out letters and a tendency to confuse words that sound or look similar. There may Dysgraphia A child with dysgraphia exhibits unusual difficulty in expressing thoughts on paper and with the act of writing itself. Symptoms include difficulty grasping pens and pencils, and illegible penmanship. Dysphasia A child with dysphasia has difficulty in using language to communicate that is not caused by physical impairment. Dyscalculia A child with dyscalculia has difficulty comprehending simple mathematical functions. Children with this disability often do not perceive shapes and may confuse mathematical symbols. Dysomia A child with dysomia does not have the ability to recall the names of common objects. Visual Perceptual Processing Disorder Problems with visual processing cause the child to be unable to differentiate between foreground and background and causes difficulty in differentiating between similar looking numbers, letter, shapes, objects and symbols. Problems may include habitually skipping over lines. The social worker who observes the child demonstrating symptoms in one or more of the above areas (or where the parents report that the child demonstrates symptoms indicative of a learning disability) is encouraged to refer the family for a complete evaluation with a specialist. Early diagnosis and intervention can teach the child ways to compensate for and cope with their learning difficulties. 6. SPECIAL EDUCATION AND HELP FOR CHILDREN WITH DELAYS Most parents have the ability to recognize the progress and development of their children. Adoptive parents often have heightened concerns for their children because of their early life experiences. It is best to take action early when children appear to have developmental delays or uneven progress. Research has repeatedly shown the value of early intervention. It is important for adoption agencies to be aware of local and national resources for parents whose children have special needs. Agencies can direct parents to services through their public school system where the federally-mandated special education system is available to everyone. Agencies should also be able to inform parents about the nearest specialists who have experience with some of the very specific needs of children who have experienced institutionalization, malnutrition or early trauma that may be impacting their progress. The Special Education System and Early Intervention Programs Parents who are concerned about the progress of their children can access services through the special education system. All children between the ages of 0 and 21 are guaranteed special education services if evaluations determine they are eligible. These rights are provided through federal law, which each state must support. There are strict timelines for each process in obtaining services and clear guidelines for all parts of the process. Parents need to exercise the rights they have in order to ensure the best learning environment for their children, such as rights to access to all records, notification of any meetings and testing that considers children’s cultural background and language. The first step in obtaining services is to request an evaluation, which will then determine if the child is eligible for special education. For school-age children, parents begin this process at the local public school (even if the child is in private school). Parents should write a request to the principal and outline their concerns. A school professional can also put forward this request. At an initial review of the child, professionals will determine whether the child should be “screened” for services. In the case of infants, toddlers and pre-schoolers, parents can contact the local school district, state department of public health or department of social services to find the nearest program that screens or assesses children between the ages of 0 to 5. Universities may also have referral resources for parents. Children ages 3 and younger are often referred to early intervention (EI) programs, which are generally open to assessing and treating any child who is suspected of showing developmental delays. Nearly all orphanage children are in this category. The School-Age Child with Special Needs The screening process is conducted by a school committee and involves reports by school personnel, parents and other adults who know the child. The goal is to determine whether there is sufficient evidence of disabilities and the kinds of assessments or tests that should be done to determine the child’s educational needs. If the committee recommends assessments, parents need to consent to the tests. Information is also gathered in greater depth about the child’s performance in school or developmentally. Parents play a critical role in providing information about the child’s early progress and current challenges. Assessments must be provided at no cost. If parents want to use an independent evaluator, the committee must approve him in order to have the costs covered. After the assessments are finished (within 45 days) the committee has 30 days in which to meet to determine what services, if any, are appropriate. This is a very important part of the process, and parents should be prepared to advocate for the kinds of services they believe their child needs. To receive services, children must be “coded” with disabilities in: mental retardation, serious emotional disturbance, learning disabilities, autism, deafness/hearing impairment, blindness/visual impairment, physical disabilities, speech and language impairments or other health impairments. Every student with a disability that affects his or her ability to learn is entitled to receive a free, appropriate public education in the least restrictive environment that effectively meets his or her needs. The program and its goals will be defined in a critical document called the Individualized Education Program, or IEP. This document should set goals and objectives that can be measured and outline exactly how and when the child will receive services. Parents can include goals that they define. Progress and additional issues will be considered with the IEP in mind, so parents must concentrate energy on making the document work for them. Despite the depth and breadth of special education services and laws in the United States, parents are likely to be unhappy unless they become knowledgeable and involved in the process. Private Services Parents sometimes prefer to turn to professionals in a private practice to support their children. They may feel that those professionals understand their children better or that they can receive more intensive services in a quicker time. For adoptive parents, this often involves turning to professionals who understand some of the unique issues of adoption, which may be impacting or causing their children’s disabilities. The costs for private services will not be reimbursed by the school system unless they are recommended in the IEP. However, if the school system cannot provide an appropriate education in a public school, they must pay for a private school. To Obtain the Best Services One of the most important aspects of special education is that the more parents know, the more they can be equal partners with education professionals, and the more likely they are to obtain the services they want for their children. Parents will need to do considerable research and outreach to find the best help for their children. Section Six lists some useful informational and professional resources. 7. Post-Arrival Medical Report Form for Adopted Children from Overseas Note to physician: Please refer to the American Academy of Pediatrics 1997 “Redbook”, The Report of the Committee on Infectious Diseases if there are any questions about a procedure or the need for testing. All tests should be performed, regardless of any tests or results reported from the other country. ________________________ Name of Child ________________________ Date of Birth __________________________________________ Address Completed Tests _________ Hepatitis B profile, to include hepatitis B surface antigen and antibodies to hepatitis B surface and core antigens. (If positive for hepatitis B surface antigen, child was evaluated for the presence of hepatitis Be antigen, transaminase evaluation and hepatitis D serology.) Hepatitis C antibody test PPD (Mantoux) test Fecal examination for ova and parasites. (If symptomatic, child also received stool culture for salmonella, shigella, yersinia and compylbacter.) VDRL or RPR Complete blood count with erythrocyte indices Urinalysis Vision and hearing screening HIV-1 antibody test for all children and HIV-1 culture or PCR for infants under 15 months of age Lead level testing (for all children irrespective of age) Thyroid function testing, if child comes from an iodine-deficient area such as China or central Russia Start immunizations. (If child is >2 years, may check titer first. Otherwise, repeat all series with the exception of Korea. _________ _________ _________ _________ _________ _________ _________ _________ _________ _________ _________ Comments: ________________________________________________________________________ ________________________________________________________________________ Child’s Measurements (age at determination) ____________Height ___________Weight _________ Head Circumference Recommendation for any further screening or evaluations: ________________________________________________________________________ ________________________________________________________________________ _____________________________ M.D. Signature Address ____________________ ____________________ ________________ Date Physician, please return this report to address at the top of this form as soon as the tests are completed. Thank you. 8. PROBLEMS IN ADOPTED CHILDREN RELATED TO SENSORY INTEGRATION Sensory integration is the neurological organization of our senses – the way in which the brain organizes and interprets information that is received from our senses. Sensory experiences include touch, movement, body awareness, sight, sound and the pull of gravity. In most cases, children develop sensory integration through normal, everyday activities. Their brains receive information through the senses, process it, then respond automatically to incoming stimuli. Sensory integration is the foundation for moving, learning, speaking and interacting with the environment. There are some children for whom sensory integration does not develop as efficiently as it should, and this can contribute to later problems in behavior, learning and development. Sensory integration dysfunction often interferes with the development of children who have been institutionalized. It frequently co-exists with learning disabilities and attention deficits. Children with SID can be either hyporeactive or hyper-reactive, meaning they either avoid sensation or seek more sensation. Children who have sensory integration dysfunction benefit from early treatment services, so it is important for the social worker to be aware of the symptoms of this condition. If a child is suspected of having SID, the adoptive family should be encouraged to seek a professional evaluation and take advantage of early intervention treatment services. Listed below are descriptions of symptoms associated with SID. When a child exhibits one or more of the symptoms These descriptions are being printed with the permission of the author, Lynn A. Balzer-Martin, Ph.D. with frequency, intensity and duration, the social worker should strongly encourage the family to seek a sensory integration evaluation with an occupational therapist specializing in SID. In addition to the descriptions below, there is a two-part assessment questionnaire, the Balzer-Martin Preschool Screening Questionnaire for parents and the questionnaire for teachers, included in this Post-Placement Packet that could be a useful screening tool for social workers. Poor Tactile Discrimination Poor tactile discrimination refers to difficulty in identifying touch. Characteristics include: Constantly touching everything Using his hand as though it were an unfamiliar object Difficulty holding a pencil or pen General difficulty with fine motor tasks Putting on gloves or socks in unusual ways Child may know he has been touched but be unable to identify where he has been touched Relying on vision to do certain motor tasks where this should not be necessary (e.g. buttoning or unbuttoning) Using mouth to explore objects (in children above 2 years of age) because mouth gives more information than the hands Preferring long sleeves and pants even in warm weather or short sleeves and pants even in cold weather Fails to orient to messiness around the mouth or nose Disliking getting hands or feet in messy materials such as sand, grass, finger paint, paste, mud or similar things Tactile defensiveness is a tendency to react negatively and emotionally to touch sensations. A child who is defensive may not only react to the actual touch, but also to the possibility that someone may touch her. Acting silly in the classroom, playing the role of the “class clown” Displaying unusual needs for touching some surfaces or textures Characteristics include: Touching and feeling everything in sight, may include bumping or touching others Experiencing difficulty in social situations Sensitivity to light Tactile Defensiveness Disliking when people touch him, even in a friendly or affectionate way. Rubbing off kisses Reacting more negatively to being approached from behind than do other children Under-responsiveness to Touch Appearing distressed when people are near him, even though he is not being touched (i.e. difficulty standing in line, sitting in a circle) Under-responsiveness is a tendency to NOT react to some touch. Characteristics include: Avoiding touching certain surfaces or textures, such as some fabrics, blankets, carpets or stuffed toys Appearing to be unaware of touch unless it is very intense Responding better to firm touch and to touch from familiar persons Appearing not to react to pain from cuts, shots, scrapes or bruises Avoiding being touched on the face, hair or head. Washing his face, shampooing or getting a haircut may be especially difficult Biting own skin May especially enjoy hanging by arms or feet or particularly enjoy vibration. (These create strong sensory feedback.) Disliking being bathed or having fingernails cut Poor Processing of Proprioceptive Input This is a difficulty in interpreting sensations from the muscles, joints, ligaments and tendons. Vestibular Processing (Gravitational Insecurity) Gravitational insecurity refers to a difficulty tolerating passive movement off one’s center of gravity. Characteristics include: Characteristics include: Difficulty knowing where his body is in relation to objects Frequently breaking toys because he cannot judge how much pressure he is exerting. An older child may also break dishes when washing them or drop other delicate objects Unnatural fear of falling or heights Not enjoying playground equipment Becoming anxious when his feet leave the ground Disliking having his head upside down or tilted backwards, as in somersaults, rolling on the floor or rough-housing Tripping over obstacles in the environment or bumps into them Walking along banging a stick on a wall, fence or other objects Avoiding stepping or jumping down from a higher surface to a lower one Seeming to physically “tackle” everything Afraid to walk on a raised surface (although it seems low to others) Difficulty maintaining a seated position in a chair, poor posture Slow in performing movements such as getting into a car, moving from the front seat to the back or walking up or down a hill or over bumpy ground Taking a long time to learn to go up or down stairs and using the railing more than other children Messy written work, often with erasure holes Pressing too hard or too softly with a pencil Deliberately falling or crashing into things Constantly chewing on things such as gum, shirt, pencil, etc. Inefficient Processing of Vestibular Input Generally poor regulation of physical force. Seems like a “bull in a china shop” Inefficient processing of vestibular input refers to the difficulty interpreting gravity and movement sensations and knowing the position of the head in relation to the surface of the earth. Characteristics include: Increased tolerance to movement (under sensitivity). May seem to be a “thrill seeker” Decreased tolerance to movement (overly sensitive). May be fairly sedentary or cautious and hesitate to take risks Combined under-sensitivity AND over-sensitivity to movement. May seek intense movement experiences yet be unable to tolerate them Frequent stumbling and falling Poor postural responses, including low muscle tone. Child with low tone may have characteristics including: o Tendency to slump in chair or sprawl over chair and table o Constantly leaning head on hand or arm o Preference to lie down rather than sit upright o Not feeling solid or firm when you lift her up or move her limbs to help her get dressed o Fatigues easily during family outings or during physical activities o Has loose grasp on objects such as a pencil, scissors or spoon o Has a tight, tense grasp on objects Difficulty coordinating movements of the eyes Speech and/or language difficulties with problems processing auditory input Oral The child is sensitive to food textures (slimy or lumpy foods, crunchy foods or foods that require a lot of chewing) or is irritated with brushing teeth. The Balzer-Martin Preschool Screening Program (BAPS) MANUAL By Lynn A. Blazer-Martin, Ph.D., OTR And Carol Stock Kranowitz, MA Developed at St. Columba’s Nursery School 4201 Albemarle Street, NW Washington, DC 20016 Karen O. Strimple, Director Funded by The Katharine P. Maddux Foundation McLean, Virginia Printed with permission from the authors Sensorimotor History Questionnaire for Parents of Preschool Children Child’s Name ___________________________ Date______________ Name of person(s) filling out form ___________________________________________ Your responses will probably be most accurate if you first read all the statements below the question, checking off those that describe your child. Then circle “YES” if you have checked one or more statements; circle “NO” if none applies. Please include additional or different descriptions under “OTHER”. 1. Is your child particularly sensitive to touch? YES NO Did not always find touch to be calming or pleasurable as an infant Is more annoyed than other children the same age by a shampoo or face wash Reacts negatively to a haircut or having nails cut Is very picky about textures of clothing Is very fussy about clothing (e.g. dislikes collars or turtlenecks, is very annoyed by labels, often complains about socks, coats or hats, prefers only loose clothing) Is uncomfortable with long sleeves and pants, prefers as little clothing as possible Prefers long sleeves and pants, even in warm weather Avoids messy activities such as playdough, clay, mudpies, fingerpaints and cooking Overreacts to physically painful experiences Underreacts to physically painful experiences Tends to withdraw from a group, or to bump or push others in a group, is irritable in close quarters Other: _______________________________________________________________ _______________________________________________________________ 2. Does your child particularly enjoy fast-moving or spinning activities at the playground or at home, perhaps with little or no dizziness? YES NO Likes to swing very high and/or for long periods of time Frequently rides the playground merry-go-round where others run around to help keep the platform turning Especially likes movement experiences at home such as bouncing on furniture, using a rocking chair or being turned in a swivel chair Enjoys getting into an upside-down position (feet up, head down) Likes to initiate games where vision is occluded, such as putting a bandana over eyes, a bag over head, or just keeping eyes closed for fun Enjoys most of the fast and spinning kiddie rides when at an amusement park Other: _______________________________________________________________ _______________________________________________________________ 3. Does your child show particular caution in approaching activities involving fast movement or movement of the body through space? YES NO Tends to avoid swings or slides or uses them with hesitation Does not like riding a see-saw or going up and down an escalator Is cautious about heights and climbing Enjoys movement, which she/he initiates but does not like to be moved by others, particularly if the movement is unexpected Dislikes trying new movement activities or has difficulty learning them Has difficulty climbing or descending stairs or hills Tends to get motion sick in a car, airplane or elevator Other: _______________________________________________________________ _______________________________________________________________ 4. Does your child have unusual sensitivities to smell? YES NO YES NO YES NO YES NO YES NO Has difficulty identifying things by their smell Tends to complain that fairly normal odors are unpleasant Tends to ignore unpleasant odors when they are present Other: _______________________________________________________________ _______________________________________________________________ 5. Is your child particularly sensitive to noise (e.g. putting hands over ears when others are not bothered by sounds? Comments:___________________________________________________________ _____________________________________________________________________ 6. Have you ever had concerns regarding your child’s hearing, either in general, or in conjunction with ear infections? Comments:___________________________________________________________ _____________________________________________________________________ 7. Have you ever had concerns regarding your child’s speech and/or language skills? Comments:___________________________________________________________ _____________________________________________________________________ 8. Have you ever had concerns regarding your child’s vision? Comments:___________________________________________________________ _____________________________________________________________________ 9. Does your child have a more “loose” or “floppy” body build than others? YES NO Tends to slump in chair or sprawl over chair and table Does not feel very firm when you lift child up or move child’s limbs to dress Has difficulty turning knobs or handles that require some pressure Fatigues easily during family outings or during physical activities Has a loose grasp on objects such as a pencil, scissors, spoon or something she/he is carrying Has a rather tight, tense grasp on objects (to compensate for underlying looseness) Other: _______________________________________________________________ _______________________________________________________________ 10. Can your child easily orient his/her body effectively for dressing activities such as putting arms in sleeves, fingers in mittens or toes in socks? YES NO YES NO YES NO YES NO Comments: ___________________________________________________________ _____________________________________________________________________ 11. Do you feel that your child has already established a definite hand preference when using a crayon, marker, pencil, etc.? Comments: ___________________________________________________________ _____________________________________________________________________ 12. Does your child spontaneously engage in active physical games involving running, jumping and use of large play equipment? Comments: ___________________________________________________________ _____________________________________________________________________ 13. Does your child spontaneously seek out activities requiring manipulation of small objects? Enjoys Duplo, Legos Enjoys building with blocks Enjoys arts and crafts projects using small objects such as beads, straws, buttons, felt, cotton balls, etc. Other: _______________________________________________________________ _______________________________________________________________ 14. Does your child spontaneously choose to do activities involving the use of YES “tools” such as crayons, pencils, markers, scissors, etc.? Comments: ___________________________________________________________ _____________________________________________________________________ NO 15. Do you feel that your child has an adequate attention span for things, which she/he enjoys? YES NO YES NO YES NO Comments: ___________________________________________________________ _____________________________________________________________________ 16. Do you feel that your child tends to be restless or “fidgety” during times when quiet concentration is required? Comments: ___________________________________________________________ _____________________________________________________________________ 17. Has your child had difficulty regulating sleep patterns? Took longer than other infants to sleep through the night Had colic as a baby Never took naps, or gave up naps sooner than most children Now has difficulty falling asleep Still does not consistently sleep through the night Other: _______________________________________________________________ _______________________________________________________________ 18. Please share any other characteristics of your child, which you think it would be appropriate for us to know. Thank you. 10. BALZER-MARTIN PRESCHOOL SCREENING – TEACHER CHECKLIST Child’s Name___________________ Age (yrs. & mo.)________________ Teachers____________________________ Date________________________________ Compared to his/her peers, is this child ADEQUATE in: 1. Ability to tolerate touch stimulation? YES NO 2. Willingness to participate in messy activities (e.g. sand, playdough, fingerpaints, etc.)? YES NO Comments: ___________________________________________________________ ___________________________________________________________ Comments: ___________________________________________________________ ___________________________________________________________ 3. Ability to sit upright in a chair without slouching or sprawling over the table? YES NO YES NO YES NO YES NO YES NO Comments: ___________________________________________________________ ___________________________________________________________ 4. Ability to enjoy or participate in intense movement experiences such as swinging high, bounding vigorously or spinning around? Comments: ___________________________________________________________ ___________________________________________________________ 5. Ability to get outer clothing on and off? Comments: ___________________________________________________________ ___________________________________________________________ 6. Ability to move body in a smooth, coordinated manner (i.e. not moving in an awkward or unusual way? Comments: ___________________________________________________________ ___________________________________________________________ 7. Use of both hands together in two-handed activities, such as catching a large ball, using a rolling pin or beating rhythm sticks? Comments: ___________________________________________________________ ___________________________________________________________ 8. Method of grasping a pencil, marker or crayon? YES NO YES NO YES NO YES NO YES NO YES NO YES NO YES NO Comments: ___________________________________________________________ ___________________________________________________________ 9. Ability to use a pencil, marker or crayon effectively? Comments: ___________________________________________________________ ___________________________________________________________ 10. Ability to grasp scissors and to cut with them effectively? Comments: ___________________________________________________________ ___________________________________________________________ 11. Consistent use of one hand as dominant (i.e. preferred hand) when using markers, crayons or pencils? (Ages 4 and up) Comments: ___________________________________________________________ ___________________________________________________________ 12. Ability to maintain sufficient attention span for things she/he enjoys? Comments: ___________________________________________________________ ___________________________________________________________ 13. Ability to remain calm during routine classroom activities without becoming restless or fidgety? Comments: ___________________________________________________________ ___________________________________________________________ 14. Ability to eat and chew normally without noticeable difficulties such as being excessively messy, refusing certain textures or cramming food in mouth? Comments: ___________________________________________________________ ___________________________________________________________ In comparing this child with his/her peers, do you see PROBLEMS such as: 1. Overflow of movement in body parts not directly involved in an activity (e.g. tongue protrusion, jaw motion, movements in nondominant hand, etc.)? Comments: ___________________________________________________________ ___________________________________________________________ 2. Over-sensitivity to noises (e.g. putting hands over ears or complaining about sounds when others are not bothered)? YES NO YES NO 4. Auditory language difficulties (e.g. when following directions child looks to others YES for cues before responding, has difficulty changing or rephrasing verbalizations when she/he is not understood, gives short or very limited verbal responses, cannot recall names of people or objects)? NO Comments: ___________________________________________________________ ___________________________________________________________ 3. Vision stress (e.g. inattentiveness when drawing or doing puzzles, insistence on “sameness” in day-to-day activities, lack of good consistent eye contact, excessive shyness or unusual awkwardness)? Comments: ___________________________________________________________ ___________________________________________________________ Comments: ___________________________________________________________ ___________________________________________________________ 5. Other behaviors that you feel may be atypical for his/her stage of development (e.g. drooling, stuttering, unusual postures or movements, etc.)? Comments: ___________________________________________________________ ___________________________________________________________ YES NO 11. THE BALZER-MARTIN PRESCHOOL SCREENING PROGRAM CONTENTS A. “Catching Preschoolers Before They Fall: A Developmental Screening Using a Neurological Approach” by Carol Stock Kranowitz (Child Care Information Exchange, March 1992) B. Screening Program Schedule – when to plan a teacher-training workshop, when to advise parents about the screening, when to contact parents about results, etc. C. Pre-Screening Letter to Parents – a sample of an explanatory letter that accompanies the Parent Questionnaire D. Sensorimotor History Questionnaire for Parents of Preschool Children – 18 categories regarding child’s sensitivity to touch, reactions to playground equipment, language skills, motor skills, etc. E. Teacher Chicklist – 19 questions regarding a student’s use of classroom tools, ability to concentrate when necessary, use of both hands together when required, etc. F. Class Chart to help teachers gather information for Teacher Checklist G. Blueprint to prepare room for screening activities, equipment list, description of 11 screening items and 3-point scoring criteria for each H. Data Sheet to record the performances of children (6 per sheet) doing 11 items, with spaces for adding notes from parents’ and teachers’ information (sample provided) I. Post-Screening Letter to Parents – a “thank you” for parents’ cooperation, a review of what sensory integration is, why the screening is a valuable tool J. Promoting Sensory Integration at School and at Home – enjoyable activities that parents and teachers can encourage K. Copies of letters from parents whose children already receive therapy, addressed to parents whose children have recently been identified – articulate expressions of parents’ initial feelings L. “How to Start a Parent Group” – pointers from an experienced leader M. Follow-up Chart – for tracking the future progress of identified children (sample provided) To order, please fill out the form provided below, and send it with a check for $60.00 (U.S.), payable to St. Columba’s Nursery School, to the following address: BAPS c/o St. Columba’s Nursery School 4201 Albermarle Street, NW Washington, DC 20016 The Balzer-Martin Preschool Screening Program Manual Order Form Name _________________________________________________________________________ Title__________________________________________________________________________ School, Clinic, Etc.______________________________________________________________ Street Address__________________________________________________________________ City, State, Zip Code_____________________________________________________________ 1403 King Street, Suite 101 Alexandria, VA 22314 703-535-8045 Fax: 703-535-8049 http://www.jcics.org The Joint Council on International Children’s Services from North America is an association of licensed, not-for-profit child welfare agencies that serve children through intercountry adoption and relief efforts. The Joint Council advocates for homeless children around the world, provides a forum for sharing information enabling children to be served more effectively, promotes legislation and procedures that better meet the needs of children, disseminates information related to children’s issues and establishes guidelines and standards of practice that protect the rights of children, birth parents, and adoptive parents. JCICS has prepared the PostPlacement Guidelines and Tools for Adoption Professionals as an educational tool for its member organizations, signifying the importance we place on quality postplacement services. POST-PLACEMENT GUIDELINES AND TOOLS FOR ADOPTION PROFESSIONALS Section Four Information on Social Security, Recognition of the Adoption in State of Residence, Citizenship and Replacing Documents Joint Council provides this section for informational purposes only. Adoptive parents should check with the appropriate agencies to ensure that the information continues to be up-to-date. This resource guide may be freely reproduced and distributed to adoptive parents by member organizations of the Joint Council on International Children’s Services. SOCIAL SECURITY, RECOGNITION OF THE ADOPTION IN STATE OF RESIDENCE, CITIZENSHIP AND REPLACING DOCUMENTS This is intended for distribution by agencies to social workers and adoptive parents. Obtaining a Child’s Social Security Card Once the child has arrived, it is necessary for parents to apply for a social security card. They may apply for and receive a card even if the adoption is not considered final. It is necessary to have a social security number for all dependents that will be claimed on federal returns, so parents should apply well before their tax form is due. In addition to completing this application for a social security card, parents need the following documentation to apply for the card: 1. The child’s original birth certificate from birth country, plus adoption or guardianship papers 2. Proof of the child’s U.S. citizenship – a passport or certificate of citizenshipAlien Registration Card or his passport 3. Parent’s identification (passport, driver’s license, military I.D. but not a birth certificate. Parents will be asked to show original documents, so it is essential to bring their documents and to complete this process in person. Parents should never mail or surrender their child’s original documents, which may be difficult or impossible to replace. advisable to re-adopt the child or, in states whose laws provide for it, to have the foreign adoption decree recognized, reconfirmed or validated. All families are strongly advised to either have their completed foreign adoption reconfirmed or validated in their state of residence, if the state has this provision in its laws, or complete the adoption in the state of residence in cases where the adoption has not been finalized overseas or even when it has been finalized abroad and the state allows re-adoption. However, if the child obtained automatic citizenship pursuant to the Child Citizenship Act (see below), proof of citizenship (Social Security card, U.S. passport, etc.) are valid methods of identifying the legal rights of an adopted child. Obtaining Citizenship for an Adopted Child As of February 27, 2001, the Child Citizenship Act grants foreign-born children, including adopted children, who are living at a permanent United States’ residence automatic U.S. citizenship IF the children meet the following criteria: The Importance of Adoption or Re-adoption in the Family’s State of Residence Not all of the U.S. states recognize an adoption granted in the foreign country as a final adoption. Even in states that do, it is At least one adoptive parent is a U.S. citizen, The child is under 18 years of age, There is a full and final adoption of the child, and The child is admitted to the United States as an immigrant The Child Citizenship Act does apply retroactively if the above characteristics held true on February 27, 2001. If the final adoption was completed overseas, upon entry into the United States, the child becomes a citizen; if the adoption is completed in the United States, the child becomes a citizen on the day the adoption is finalized. Effective October 31, 2003, to apply for a Certificate of Citizenship, the parents need to fill out the form N-600, Application for Certificate of Citizenship. A copy of the N600 can be viewed and printed from the USCIS website http://www.bcis.gov. Children adopted after January 20, 2004 and brought to the U.S. on an IR-3 visa will automatically receive a Certificate of Citizenship approximately 45 days after entry into the United States. However, if a child enters on an IR-4 visa there is currently no automatic issuance of the certificate so families will need to file a N600 Form. Recovering a Child’s Adoption Documents from USCIS Files Occasionally a family returning from adopting their child overseas accidentally surrenders their only set of the child’s original documents to the U.S. Immigration at the port of entry. (This happens because the originals are generally included in the sealed visa packet, if the family or their representative did not provide photocopies to the U.S. Embassy when getting the child’s visa, since the sealed envelope must be surrendered to USCIS.) Using Form G884 with the office where you submitted the original document(s), families can request the return of those documents. The Form G884 is available for those in the United States by mail. 1403 King Street, Suite 101 Alexandria, VA 22314 703-535-8045 Fax: 703-535-8049 http://www.jcics.org The Joint Council on International Children’s Services from North America is an association of licensed, not-for-profit child welfare agencies that serve children through intercountry adoption and relief efforts. The Joint Council advocates for homeless children around the world, provides a forum for sharing information enabling children to be served more effectively, promotes legislation and procedures that better meet the needs of children, disseminates information related to children’s issues and establishes guidelines and standards of practice that protect the rights of children, birth parents, and adoptive parents. JCICS has prepared the PostPlacement Guidelines and Tools for Adoption Professionals as an educational tool for its member organizations, signifying the importance we place on quality postplacement services. POST-PLACEMENT GUIDELINES AND TOOLS FOR ADOPTION PROFESSIONALS Section Five 1. Putting Together Your Child’s Life Book 2. The Importance of a Forever Family Certificate 3. Forever Family Certificate 4. Forever Mother Certificate 5. Forever Father Certificate This section may be freely reproduced and distributed to adoptive parents by member organizations of the Joint Council on International Children’s Services. 1. PUTTING TOGETHER YOUR CHILD’S LIFE BOOK One of the most helpful things you can do for your adopted child is to prepare a Life Book especially for him or her, telling his or her story in words that a 4year-old can understand. (We use the age of four because that is when you will want to introduce the birth parents.) Often adoptive parents may not want to bring up what is feared to be a painful subject for everyone concerned, but the good news is that this necessary task can be presented in a very positive and productive way. A well-constructed adoption story, presented in pictures and text, can accomplish this Text task quite easily. Your child will want to take out the book again and again in his preschool years, so choose a photo album with plastic pages that you can leave out on the coffee table. The purpose of the Life Book is fourfold. You want to explain your child’s relationship with his or her birth parents and you, stress that he was loved and wanted, reassure him that you are a “forever family” (this is important because you want to assure him he will not lose you as well) and prove to him that you are your child’s “real” family. Picture Here is your forever family. Mom, Dad, and ________________ (child’s name). You, the child, and other family members (change the photo if new members are added). These are people from ___________(child’s country), the place where you were born. Color pictures from magazines or your own snapshots (include children). Mom and Dad wanted a child very, very much. Photo of Mom and Dad by themselves before the new child. Here is a picture of you when you were _______ (child’s age). Referral photo or pre-placement photo. You started out with another Mom and Dad. They were your first mother and father. Maybe they looked something like this man and woman. Artist’s representation; get an artistic friend if you don’t want to try, or use a magazine picture. Your first mother grew you inside her from a seed, but she couldn’t take care of a baby. She wanted to. You were a good baby. Picture of mother holding child, or child alone (can be drawn if no actual or magazine photo can be found). Your first mother and father wanted you to have a family that could take care of you. So they made a plan to have you adopted. That was when you came to us! Picture of Mom and Dad holding the child at the time of placement or soon thereafter. You can also mention that child came on an airplane and include a photo of a plane. Mommy and Daddy were SO happy when you came! Another photo of parents and child, with parents smiling. Now we are a family forever – Mommy, Daddy and you. A recent photo of the entire family. We are your real parents and you are our very own child! Photo of Mom, Dad and child. 2. THE IMPORTANCE OF A FOREVER FAMILY CERTIFICATE Adopted children may be distressed by the inevitable conflicts that arise within all normal families. “Will our family break up, like the last one did?” can be their unspoken fear. This may be hidden even from the child’s own consciousness. “Do my new parents really love me if they get mad at me sometimes?” The Forever Family Certificate, framed and hung in your children’s rooms, is a reminder that the love of their new family is strong and secure no matter what. Of course, you’ll be telling your children this from time to time, but a gold-seal certificate makes it official and conveys an explicit promise. It also provides a reminder of your enduring love at times when you may not even know your child is hurting and in need of reassurance. The Forever Family Certificate is also a reminder of the permanence of your family bonds. Adopted children who have already lost their first parents (and often at least one set of beloved caretakers as well) need ongoing reassurance in their early years that you are truly their parents forever. For you to keep repeating this explicitly over the years is not as helpful as an everpresent visual reminder on their wall, which they’ll be drawn to when they need it. Unfortunately, our society’s outdated definitions of adoption will inevitably lead some of your children’s playmates saying to them, “They’re not your real parents.” You should anticipate this problem and explain to your children, even before kindergarten, that you are their real parents because you are the ones that are raising them. THIS IS A SPECIAL WAY OF SAYING TO OUR VERY OWN CHILD ________________________________ We Are Your Forever Family We love you with a forever love. We will love and care for you always. We will share love and joy and happiness. And sometimes there will be problems and hurts and arguments, because all families are like that. But we will always love you no matter what, because forever parents are like that. _________ Mom and Dad THIS IS A SPECIAL WAY OF SAYING TO MY VERY OWN CHILD ________________________________ I Am Your Forever Mother I love you with a forever love. I will love and care for you always. I will share love and joy and happiness. And sometimes there will be problems and hurts and arguments, because all families are like that. But I will always love you no matter what, because forever mothers are like that. ________________ Mom THIS IS A SPECIAL WAY OF SAYING TO MY VERY OWN CHILD ________________________________ I Am Your Forever Father I love you with a forever love. I will love and care for you always. I will share love and joy and happiness. And sometimes there will be problems and hurts and arguments, because all families are like that. But I will always love you no matter what, because forever fathers are like that. ________________ Dad POST-PLACEMENT GUIDELINES 1403 King Street, Suite 101 Alexandria, VA 22314 703-535-8045 Fax: 703-535-8049 http://www.jcics.org The Joint Council on International Children’s Services from North America is an association of licensed, not-for-profit child welfare agencies that serve children through intercountry adoption and relief efforts. The Joint Council advocates for homeless children around the world, provides a forum for sharing information enabling children to be served more effectively, promotes legislation and procedures that better meet the needs of children, disseminates information related to children’s issues and establishes guidelines and standards of practice that protect the rights of children, birth parents, and adoptive parents. JCICS has prepared the PostPlacement Guidelines and Tools for Adoption Professionals as an educational tool for its member organizations, signifying the importance we place on quality postplacement services. AND TOOLS FOR ADOPTION PROFESSIONALS Section Six 1. International Adoption Resources 2. Specialized Therapy Resources 3. International Adoption Medical Professionals 4. Publications Joint Council provides this Resource Guide for informational purposes only. It is not an all-inclusive list, and parents should seek out all available resources and agencies. This resource guide may be freely reproduced and distributed to adoptive parents by member organizations of the Joint Council on International Children’s Services. 1. International Adoption Resources Joint Council on International Children’s Services from North America 1403 King Street, Suite 101 Alexandria, VA 22314 703-535-8045 http://www.jcics.org JCICS is an association of licensed, non-profit international adoption agencies, the membership includes parent/advocacy groups as well. Our primary mission is advocacy for homeless children around the world. We promote ethical practices in adoption and support efforts to improve services to children. Parent Network for the PostInstitutionalized Child PNPIC Box 613 Meadowlands, PA 15347 724-222-1766 http://www.pnpic.org PNPIC supports and educates about the medical, developmental, educational and emotional needs of children adopted from institutions around the world. It publishes The Post newsletter and provides other informational resources. Adoptive Families of America PO Box 5159 Brentwood, TN 37024 1-800-372-3000 http://www.adoptivefam.org AFA supports, educates and advocates on behalf of adoption-built families. It publishes Adoptive Families magazine and sells adoptive parenting resources. U.S. Department of State Office of Children’s Issues Room 4811 Overseas Citizens Services Washington, DC 20520-4818 202-647-2688 http://www.travel.state.gov/adopt.html The Office of Children’s Issues provides general information about international adoption and U.S. visa requirements. They can ensure that foreign authorities or courts do not discriminate against U.S. citizens, but they cannot become directly involved in the adoption process in another country. American Academy of Adoption Attorneys PO Box 33053 Washington, DC 20033-0053 202-832-2222 http://www.adoptionattorneys.org This organization consists of attorneys who make adoption a part of their legal practice. National Adoption Information Clearinghouse PO Box 1182 Washington, DC 20013-1182 1-888-251-0075 http://naic.acf.hhs.gov/index.cfm NAIC provides information on all aspects of adoption. 2. Specialized Therapy Resources Administration on Developmental Disabilities Administration for Children and Families U.S. Department of Health and Human Services Mail Stop: HHH 300-F 370 L'Enfant Promenade, S.W. Washington, D.C. 20447 202-690-6590 http://www.acf.dhhs.gov/programs/add/ The Administration on Developmental Disabilities ensures that individuals with developmental disabilities and their families participate in the design of and have access to culturally competent services, supports, and other assistance and opportunities that promote independence, productivity, integration and inclusion into the community. The website gives information on federally-funded programs that provide developmental disabilities programs. with speech, hearing and language disorders have access to quality services to help them communicate more effectively. They provide free brochures and referrals to therapists in your area. American Occupational Therapy Association Inc. (AOTA) PO Box 31220 Bethesda, MD 20824-1220 301-652-2682 http://www.aota.org AOTA is the nationally recognized professional association of more than 40,000 occupational therapists, occupational therapy assistants, and students of occupational therapy. These individuals work with people experiencing health problems such as stroke, spinal cord injuries, cancer, congenital conditions, developmental problems, and mental illness. They provide fact sheets, products and books about occupational therapy. ARC (formerly Association for Retarded Citizens of the U.S.) 1010 Wayne Avenue, Suite 650 Silver Spring, MD 20910 (301) 565-3842 http://www.thearc.org The ARC works to include all children and adults with cognitive, intellectual, and developmental disabilities in every community. They provide informational resources and other information regarding cognitive, intellectual and developmental disabilities. American Speech-Language-Hearing Association 10801 Rockville Pike Rockville, MD 20852 1-800-638-8255 http://www.asha.org ASHA is the professional, scientific and credentialing association for audiologists, speech pathologists and speech, language and hearing scientists. Their mission is to ensure that all people Attachment and Bonding Center of Ohio Gregory Keck, Ph.D. 12608 State Road, Suite 1 Cleveland, OH 44133 440-230-1960 http://www.abcofohio.net The Center specializes in treating children who have experienced developmental interruptions. Dr. Keck, author of Adopting the Hurt Child: Hope for Families with Special-Needs Kids, and his staff also treat individuals and families who are experiencing a variety of problems in the areas of adoption, such as attachment, substance abuse, sexual abuse and adolescent difficulties. ATTACh Association for Treatment and Training in the Attachment of Children PO Box 11347 Columbia, SC 29211 803-251-0120 http://www.attach.org ATTACh is an international coalition of professional and lay persons who are involved with children who have attachment difficulties. They provide clinical education, training and research on attachment, offer family support, including an open referral service to qualified professionals, and hold an annual conference on attachment and bonding. Children and Adults with Attention Deficit/Hyperactivity Disorder 8181 Professional Place, Suite 301 Landover, MD 20785 1-800-233-4050 http://www.chadd.org CHADD provides informational resources and conferences on ADD/ADHD. CHADD also produces a bimonthly magazine, Attention!, dedicated to providing detailed and relevant information on ADD/ADHD. Developmental Delay Resources 4401 East West Highway Suite 207 Bethesda, MD 20814 301-652-2263 http://www.devdelay.org DDR is dedicated to meeting the needs of those working with children who have developmental delays in sensory motor, language, social, and emotional areas. DDR publicizes research on determining identifiable factors that would put a child at risk and maintains a registry, tracking possible trends. DDR also provides a network for parents and professionals and current information after the diagnosis to support children with special needs. Federation for Children with Special Needs 95 Berkeley Street, Suite 104 Boston, MA 02116 http://www.fcsn.org The Federation is a center for parents and parent organizations to work together on behalf of children with special needs and their families. It also provides lists of parent centers for education and training in the special education process and system. Institute on Disability and Human Development 1640 West Roosevelt Chicago, IL 60608-6904 312-413-1647 http://www.uic.edu/depts/idhd The Family Clinic and the Children’s Program at IDHD provides family-focused, comprehensive assessment services for children identified with, or at risk of, developmental delays or other developmental problems. Consultation and training are available in the areas of child development, child language stimulation, behavioral change and early interventions. Learning Disabilities Association 4156 Library Road Pittsburgh, PA 15234-1349 412-341-1515 http://www.ldanatl.org LDA is a national association of professionals and parents that provides free listings of state learning disability associations as well as a list of resources. National Organization on Fetal Alcohol Syndrome 216 G Street, NE Washington, DC 20002 202-785-4585 http://www.nofas.org/main/index2.htm NOFAS is committed to raising public awareness of FAS—the leading known preventable cause of mental retardation and birth defects—and to developing and implementing innovative ideas in prevention, intervention, education and advocacy in communities throughout the nation. They provide updated information on studies of FAS and applicable conferences. Sensory Integration International The Ayres Clinic 1514 Cabrillo Avenue Torrance, CA 90501-2817 310-320-2335 http://home.earthlink.net/~sensoryint SII was founded by a group of occupational therapists dedicated to helping people with disabilities related to sensory integration problems. They bring together professionals, individuals, families and researchers who want to know more about SI. They offer workshops to introduce parents and teachers to sensory integration and its connection with learning and behavior, train occupational and physical therapists in the evaluation and treatment of sensory integrative dysfunction in children and offer publications and a resource system to connect parents and teachers with therapists and programs providing sensory integration services. 3. International Adoption Medical Professionals International adoption specialties are relatively new in pediatrics, but are certainly increasing. Most of the physicians listed below have traveled extensively in the countries that place children for adoption; many are adoptive parents themselves; most have excellent written materials regarding common medical issues involved in intercountry adoption. They are generally available for pre-adoption and postadoption consultations. Many clinics and doctors will review videos and medical records of children. Parents can consult with these doctors via phone, fax and e-mail, sometimes at no charge. Parents are strongly urged to have their internationally adopted children evaluated by medical professionals as soon as possible after arrival in the U.S. Professionals with experience evaluating these children can suggest specific interventions and referrals (to occupational therapists, speech/language pathologists, etc.), can recommend general and country-specific tests, and can provide family counseling on medical issues. The list below represents some of the best-known adoption medical professionals, but we suggest that you contact your agency or parent support group to see if there is a clinic or international adoption specialist in your geographical area, if one is not listed here. This is not meant to be an all-inclusive list, and we will inevitably have overlooked some fine resources. Joint Council would appreciate hearing about any international adoption clinics or specialists who are not listed here, and will try to include them in our next update. Andrew Adesman, M.D. Evaluation Center for Adoption Schneider Children’s Hospital 269-01 76th Avenue New Hyde Park, NY 11040 718-470-4000 The Evaluation Center for Adoption provides comprehensive pre-adoption and post-adoption evaluations. Pre-adoption evaluations include a review of videotapes, photographs and medical referral information. A detailed assessment of the child’s medical and developmental status is generally provided within 24 to 48 hours. If additional information is needed, specific follow-up questions are formulated and the supplemental information reviewed when available. For emergencies overseas, telephone consultation with the Medical Director is available around-the-clock. Families living near or traveling through New York City may bring their newly adopted child for a baseline medical examination and developmental assessment. Parents will be provided with a written list of recommended laboratory tests and other suggested diagnostic studies for their pediatrician. Jane Aronson, D.O. International Pediatric Health Services, PLLC 151 East 62nd Street, Suite 1A New York, NY 10021 212-207-6666 http://www.orphandoctor.com International Pediatric Health Services, PLLC provides medical guidance for families adopting from abroad from the very beginning of the process. Written materials are available. Dr. Aronson reviews medical abstracts and videos of Russian and Eastern European children and does pre-adoption consultations in the office as well as by phone, fax or e-mail. Travel kits and travel preparation can be provided by Dr. Aronson’s office. The travel preparation class is actually a childcare class to help parents with basic health issues of young children. Special attention is given to the transition behavior of children recently adopted from orphanages. Dr. Aronson is available for consultation with families who have medical questions while they are abroad and provides complete medical and developmental services in New York after the child’s arrival. Julia M. Bledsoe, M.D. The Center for Adoption Medicine University of Washington Pediatric Care Center 4245 Roosevelt Way N.W. Seattle, WA 98105 206-598-3006 Dr. Bledsoe is a general pediatrician in Seattle whose practice includes more than 50% adoptees, primarily from overseas. Dr. Bledsoe provides ongoing pediatric care as well as preadoptive consultation and overseas on-call support to families who reside both locally and afar. Her pre-adoptive consultations are performed by telephone, usually in the evenings and on weekends. In addition, Dr. Bledsoe is employed at the University of Washington Fetal Alcohol Syndrome Clinic, working on the diagnosis of FAS. The Section of Pediatric Infectious Disease at Riley Hospital created an International Adoption Clinic in 1999. The clinic is staffed by physicians trained in Pediatric Infectious Disease, Geographic Medicine and General Diagnostic Pediatrics. Referrals can be made before planned adoptions. (Pre-adoptive sessions and review of medical information provides important education information for parents prior to arrival.) After adoption, children undergo a comprehensive evaluation with special emphasis on issues related to infections, immunization, nutrition, birth defects and psychosocial development. Nutritionists, physical therapists, developmental pediatric experts and the world-class pediatric subspecialists at Riley Hospital are available as needed to assist in the evaluation and management of adopted children. Margaret Hostetter, M.D. Deborah Borchers, M.D., F.A.A.P. Dr. Borchers is a pediatrician in private practice with a strong interest personally in adoption, as she is the mother of two daughters adopted from China. She is a local resource in the Cincinnati area for adoption information and networking. Dr. Borchers can review videotapes and other medical materials before placement and can provide medical and developmental assessments after a child’s arrival. She can make referrals for families to specialists and can provide ongoing follow-up care for children in her geographical area. Professor of Pediatrics Director, Yale International Adoption Clinic 464 Congress Avenue New Haven, CT 06519 203-737-1623 Dr. Hostetter, together with colleagues Dr. Dana Johnson (see listing), Sandra Iverson and Kay Dole, pioneered the concept of specialized medical evaluations for internationally adopted children at the University of Minnesota in 1986. Dr. Hostetter has personally examined more than 1500 adoptees and brought the “Minnesota model” to Yale in July of 1998. Evaluations include history and physical exam by a nurse practitioner, full developmental exam by a developmental pediatrician and complete medical testing by Dr. Hostetter of her colleague, Dr. Michael Capello. James H. Conway, M.D. Jerri Ann Jenista, M.D. Center for International Adoption and Geographic Medicine Riley Hospital for Children, University of Indiana 702 Barnhill Drive – 1740X Indianapolis, IN 46202 317-274-7260 http://www.rileyhospital.org 551 Second Street Ann Arbor, MI 48103 734-668-0419 Eastgate Pediatric Center 4357 Ferguson Drive, Suite 150 Cincinnati, OH 45245 513-753-2820 In terms of pre-adoption services, Dr. Jenista can review any country’s medical records and/or videos. She provides post-adoption medical consultation for parents, schools and healthcare providers. She has extensive written educational materials for physicians, parents and agencies. She provides primary care for adopted children with more complex medical issues. She provides workshops and seminars for all parties involved in adoption. consultation, including a preliminary medical and developmental evaluation and referral assistance if the child requires ongoing care by medical or development specialists. Dana Johnson, M.D., Ph.D. Winthrop University Hospital International Adoption Program 120 Mineola Blvd, Suite 210 Mineola, NY 11501 516-663-4570 http://www.winthrop.org Co-Director, University of Minnesota International Adoption Clinic MMC211 420 Delaware Street SE Minneapolis, MN 55455-0378 Dr. Johnson, along with Sandra Iverson, CPNP, is Co-Director of the University of Minnesota’s International Adoption Clinic. With Dr. Margaret Hostetter, Sandra Iverson and Kay Dole, Dr. Johnson pioneered the concept of medical evaluations for internationally adopted children at the University of Minnesota in 1986. The International Adoption Clinic can provide the following services: pre-adoption evaluation and interpretation of referral medical information and videotapes, post-arrival medical and developmental assessments, postplacement assistance in developmental, behavioral and school issues, free literature on a wide variety of adoption/medical issues, and opportunities to participate in ongoing research on the effects of early childhood institutionalization. Edward M. Kolb, M.D. Internationally Adopted Children’s Clinic 8200 Dodge Street Omaha, NE 68114-4113 402-955-4165 http://www.chsomaha.org The Internationally Adopted Children’s Clinic at Children’s Hospital helps families and their primary care physicians in the process of welcoming a newly adopted child from abroad into their new American family. The clinic can be consulted at several stages of international adoption. They provide: pre-placement evaluations of children, including a review of foreign medical records, post-placement medical Paul Lee, M.D. The International Adoption Program at Winthrop University Hospital can provide medical reviews of any health information, including videotapes and pictures. They offer a travel preparatory consultation for families to provide simple management guidelines for common medical problems encountered and basic childcare needs. Once the child arrives in the U.S., Dr. Lee performs a comprehensive medical evaluation, including a complete physical examination, developmental assessment and laboratory testing. Immunizations to bring the child up to date are also available. Anna M. Mandalakas, M.D., M.S. Karen Olness, M.D. Adoption Health Service Rainbow Center for International Child Health 11100 Euclid Avenue, MS 6038 Cleveland, OH 44106-6038 216-844-3224 http://www.rainbowadoptionclinic.org The Rainbow Center pre-adoption consultation includes a lengthy meeting with a staff physician to review both medical record information and concerns about postinstitutionalized children. The post-adoption assessment includes infectious disease screening, developmental assessment, and in some cases, various specialty referrals. Followup visits are scheduled, and all information is passed on to the child’s primary care physician. A developmental and behavioral consult is also available, which can help identify behaviors and developmental delays that could be missed, misunderstood or inappropriately diagnosed in cases of children from institutions. The consult can help sort out concerns, develop a plan and make appropriate referrals. The Rainbow Center also offers a Child Traveler Health Service, pediatric expertise for families and children traveling overseas. speech and language evaluations, which are available at the center. Audiologic evaluations are also available. She gives talks on adoption and post-institutionalization issues to local groups. Laurie Miller, M.D. Kathleen Comfort, PT, MHA 841 W. Bradley Place Chicago, IL 60613-3902 773-975-8560 International Adoption Clinic and Floating Hospital for Children New England Medical Center Box 286 750 Washington Street, 2nd floor Bston, MA 02111 617-636-8121 http://www.nemc.org/adoption At the International Adoption Clinic, children and their families receive individualized attention and a comprehensive evaluation. Preadoption consultation and review of medical records, photos and videos is available. Evaluation after arrival includes medical, developmental and nutritional issues as well as screening tests. The clinic provides evaluation and treatment of children with behavior, learning or neurological problems. Long-term coordinated and comprehensive care for children with special needs, including school consultations, is also available. Lisa Nalven, M.D. Valley Health Center for Child Development and Wellness 505 Goffell Rd. Ridgewood, NJ 07450 201-447-8151 Dr. Nalven can provide pre-placement consultations and medical record and video reviews. She can also provide medical and developmental evaluations of internationally adopted children upon arrival in the U.S. and consultation for children with ongoing developmental and behavioral concerns. She can provide case management and referral to appropriate specialty therapists, including physical therapy, occupational therapy and Todd Ochs, M.D. Dr. Ochs can evaluate and interpret referral information and videotapes prior to adoption. He can also provide post-arrival medical and developmental assessments. He can provide post-placement assistance in developmental, behavioral and school issues, plus free literature on a wide variety of adoption and medical issues. Dr. Ochs is the adoptive father of a child with special needs from China. Alice Rothman, M.D., M.P.H. Vanderbilt Children’s Hospital Clinic for International Adoption 5028 Medical Center East Nashville, TN 37232 615-936-6800 The Clinic for International Adoption at Vanderbilt Children’s Hospital was established to provide a resource for internationally adopted children, their families and their primary care providers in Tennessee. The clinic is staffed by general pediatricians and developmental psychologists and provides a medical and psychological consultation service for internationally adopted children. The clinic staff is able to provide pre-adoption review of medical records and travel advice. The clinic performs post-adoption medical, developmental and behavioral evaluations and works with the family and the primary care physician to provide follow up as needed. Elaine Schulte, M.D., M.P.H. Albany Medical College Department of Pediatrics, MC-88 47 New Scotland Avenue Albany, NY 12208 578-262-6086 Dr. Schulte provides care to children in both an outpatient, ambulatory setting and an inpatient, tertiary care at Children’s Hospital. The mission of the College and Hospital is to provide medical care to children, educate medical students and medical residents and conduct research. Dr. Schulte specializes in international adoption, lead poisoning prevention, immunization practices and pediatric residency education. Sarah Springer, M.D. Department of Pediatrics, Mercy Hospital of Pittsburgh 1515 Locust Street Pittsburgh, PA 15219 Dr. Springer can provide pre-placement consultations, including medical record and video reviews of internationally adopted children. Upon the child’s arrival, the medical and developmental evaluations include the following: medical and developmental screening, immunizations and medical treatments, ongoing medical care, developmental monitoring for geographically close families and case management and referral to appropriate specialty therapists. Dr. Springer also gives talks on adoption and postinstitutionalization issues to local groups. She does not provide ongoing counseling or psychotherapy, but she can provide referrals. Mary Staat, M.D., M.P.H. International Adoption Center Cincinnati Children’s Hospital Medical Center 3333 Burnet Avenue, mail location 7036 Cincinnati, OH 45229-3039 513-636-2877 http://www.cincinnatichildrens.org/iac The International Adoption Center located at Children’s Hospital Medical Center in Cincinnati is designed to offer four coordinated services for internationally adopted children: pre-adoption consultation, post-adoption evaluation, community outreach and research. Dr. Staat can evaluate videotapes and medical histories of potential adoptees, assist the family in preparing for the trip abroad and include information on immunizations, medical supplies and disease prevention. The Center has a collaborative relationship with Occupational Therapy and the Cincinnati Center for Developmental Disorders as well. As part of a comprehensive multi-disciplinary center, the International Adoption Center can readily call on experts in gastroenterology, neurology, genetics, psychology, cardiology, physical therapy and other specialties as needed. 4. Publications Newsletters Books Getting Started Adopted Child No longer published; back issues available http://www.raisingadoptedchildren.com 202-882-1794 Adoption/Medical News Editor: William Pierce Subscription - $36/year Back issues can be ordered ($10/issue nonsubscribers, $4/issues subscribers) PO Box 1253 State College, PA 16804 http://www.adoptionmedicalnews.com 814-364-2449 Newsletter published ten times per year The Post Parent Network for the Post-Institutionalized Child Po Box 613 Meadowlands, PA 15347 724-222-1766 http://www.pnpic.org Magazines Adoptive Families Magazine 42 West 38th Street, Suite 901 New York, NY 10018 1-800-372-3300 Bimonthly magazine Fostering Families Today 246 S. Cleveland Avenue Loveland, CO 80537 http://www.fosteringfamiliestoday.com Quarterly magazine Roots and Wings Adoption Magazine PO Box 577 Hackettstown, NJ 07840 908-637-8828 http://www.rootsandwingsmagazine.com Quarterly magazine Are Those Kids Yours? American Families with Children Adopted from Other Countries By Cheri Register (The Free Press, 1991) The author’s interviews with many parents and adoptees make this an excellent, comprehensive overview of the joys and challenges of living in and parenting an international family. Report on Intercountry Adoption By International Concerns for Children (ICC, 2001) This essential book includes a directory of most U.S. agencies placing children from overseas, with descriptions of their programs. It also includes a selection of articles on aspects of intercountry adoption. The $25 price includes ten updates during the year. Transracial Parenting Project Self-Awareness Tool: Are You Ready to Parent a Child of Another Race, Culture or Ethnicity? By Jeanette Wiedemeier Bower (North American Council on Adoptable Children, 1998) This workbook is designed to educate parents on what it truly means to parent a child from another race or culture. Parents can work on the exercises by themselves or with their agency or parent support group. A training curriculum is available to accompany the workbook. Lifebooks: Creating a Treasure for the Adopted Child By Beth O’Malley (Adoption Works, 2000) LifeBooks:Creating a Treasure for the Adopted Child is an easy to read guide which explains all the details. Beth O'Malley offers concrete suggestions and tips on everything from tricky text to adding your precious photos The Growing Child Being Adopted: The Lifelong Search for Self By David Brodzinsky, Marshall Schechter and Robin Henig (Doubleday, 1993) This book explores the inner world of adoptees as they develop, mature, and seek answers to questions of loss and identity. Helping Children Cope with Separation and Loss By Claudia L. Jewett-Jarratt (Harvard Common Press, 1994) This book provides many practical techniques for easing a child through the normal stages of grieving. Adopting the Older Child By Claudi L. Jewett (Harvard Common Press, 1990) This book is still the class volume for families adopting or considering adopting an older child. It is filled with caring advice on handling the transition from “honeymoon” period through the testing phase to full integration into the new family. How to Raise an Adopted Child By Judith Schaffer and Christina Lindstrom (NAL/Dutton, 1991) This book addresses many concerns of parents and children as they grow. It is meant to be reread and consulted over the years. Attachment, Trauma and Healing: Understanding and Treating Attachment Disorder in Children and Families By Terry M. Levy and Michael Orlans (Child Welfare League of America, 1998) This book examines the causes of attachment disorder, and provides in-depth discussion on effective solutions - including attachmentfocused assessment and diagnosis, specialized training and education for caregivers, the controversial "in arms" treatment for children and caregivers, and early intervention and prevention programs for high-risk families. Real Parents, Real Children: Parenting the Adopted Child By Holly van Gulden and Lisa M. Bartels-Rabb (Crossroads, 1993) Indispensable to understanding how adopted children commonly think about and understand adoption, this book offers practical advice from bonding with an adopted baby to adolescent issues. Don’t Touch My Heart: Healing the Pain of an Unattached Child By Lynda G. Mansfield and Christopher H. Waldmann (Pinon Press, 1994) This story of Jonathan, a child with attachment disorder, provides insights into beneficial therapies as well as hope for families of children who have an inability to trust due to early abuse and neglect. Your Baby and Child By Penelope Leach (Alfred A. Knopf, 1997) This is a popular parenting book by a psychologist who emphasizes building a strong bond with your child by responding fully to his or her needs. Helping the Child Who Doesn’t Fit In By Stephen Nowicki and Marshall Duke (Peachtree Publishers, 1992) This book is a guide to helping a child who has difficulty with expressive and receptive nonverbal communication. It gives concrete examples and suggestions to help your child adjust. Children with Special Needs Adopting the Hurt Child By Gregory C. Keck and Regina M. Kupecky (Pinon Press, 1995) Written by two of the foremost authorities on attachment problems, this book gives hope and encouragement to parents whose children resist attachment. How to Reach and Teach ADD/ADHD Children By Sandra Rief (Jossey-Bass, 1993) This book is comprehensive resource that addresses the "whole child, " as well as the team approach to meeting the needs of students with attention deficit hyperactivity disorder. It includes management techniques that promote on-task behavior and language arts, whole language, and multi-sensory instruction strategies that maintain student attention and keep students involved. The Out-of-Sync Child: Recognizing and Coping with Sensory Integration Dysfunction By Carol Kranowitz and Larry Silver (Perigee, 2002) This guide, written by an expert in the field, explains how SI Dysfunction can be confused with ADD, learning disabilities, and other problems. It tells how parents can recognize the problem-and offers a drug-free treatment approach for children who need help. Reaching Out to Children with FAS/FAE: A Handbook for Teachers, Counselors and Parents Who Live and Work with Children Affected by Fetal Alcohol Syndrome/Effect By Diane Davis (Center for Applied Research in Education, 1994) This important resource makes available a wealth of ready-to-use information and procedures for diagnosing, teaching and parenting the child affected by FAS/FAE. Included are detailed activities for working with children so affected and a special section with useful teaching, training and resource materials. Troubled Transplants By Richard J. Delaney and Frank R. Kunstal (Wood’n Barnes, 1993) This book provides strategies and insights on helping children with behavioral difficulties and their families. Empowered Families, Successful Children: Early Intervention Programs that Work By Susan Epps and Barbara Jackson (American Psychological Association, 2000) This book presents a family-centered model for early childhood intervention based on the developmental concerns of children as well as their specific strengths and competencies, emphasizing the importance of environmental and family supports and integration with the community. Behavior Management The Challenging Child By Stanley Greenspan (Addison-Wesley, 1996) This book is an optimistic and reassuring book that describes the five “difficult” types of children and how to live happily with them Child Behavior By Frances Ilg, M.D., Louise Bathes Ames and Sidney Baker (HarperCollings, 1992) Along with a discussion of what is typical, normal behavior for children at various ages and stages up to 9 years old, this classic has sections on how to handle typical problems. It is highly recommended as a quick reference book for parents to consult again and again as their child meets new challenges. Children: The Challenge By Rudolf Dreikurs (NAL/Dutton, 1991) This and other books by Dreikurs are classics that teach logical consequences and stressreducing parenting skills that are useful with all children. The Parent’s Guide By Stephen McCarney and Angela Bauer (Hawthrone Educational Services, 1992) This valuable guide presents alternative approaches to each and every behavior problem, so parents can explore what works for their particular child.