Keynote address: Musculoskeletal conditions as a challenge for policy making Professor Paul Emery President of EULAR Professor of Rheumatology, University of Leeds Co-President, Fit for Work Coalition Musculoskeletal conditions as a challenge for policy making (Foundation: 1947) Scientific associations Health Professionals associations Patients organisations All aspects of RMDs (rheumatic and musculoskeletal diseases) Musculoskeletal conditions as a challenge for policy making EULAR mission: to improve the treatment, prevention and rehabilitation of musculoskeletal diseases; and thereby to reduce the burden or rheumatic diseases on the individual and society EULAR activity areas: Education & Research Translation into daily care Representation RMD community Musculoskeletal conditions as a challenge for policy making Relevance of Rheumatic and Musculoskeletal Diseases: Productivity and economic losses 120,000,000 EU citizens affected by RMDs (~1/4 of total population) Burden on Health and Social systems Individuals’ wellbeing affected Musculoskeletal conditions as a challenge for policy making Morbidity: Rheumatic and musculoskeletal diseases (RMDs) are the most prevalent group of diseases in Europe Quality of life of ~7.5% of the European population severely and permanently reduced by pain and functional impairment caused by RMDs Up to ⅓ of European citizens of all ages suffer from RMD at one point in their lifetime A survey on musculoskeletal pain concluded that: • 85% of people between 20 and 72 years suffered from musculoskeletal pain during the previous year • 15% of people between 20 and 72 years suffered from musculoskeletal pain every day during the previous year Musculoskeletal conditions as a challenge for policy making Costs: RMDs represent one of the highest costs to European health care and socioeconomic systems RMDs are the second most common reason for consulting a doctor (10-20% of primary care consultations) RMDs represent an economic burden of 240 Billion euro per year The direct costs of RMDs in EU is estimated to be of 2% of the GDP Workdays’ lost account for 650 Million euro loss per year Musculoskeletal conditions as a challenge for policy making Disability: RMDs represent the main cause of disability and premature retirement among European workers In Sweden, up to 60% of people on early retirement or longterm sick leave claim musculoskeletal problems as the reason In France, 6.5 million workdays were lost due to RMDs in 2005 Musculoskeletal conditions as a challenge for policy making The situation now: A more favourable context for people with RMDs in Europe: Increasing involvement of EU institutions EU legislation protecting working and environmental risks in place, but scattered Good examples of national governments’ commitment to fight against RMDs, but no overall strategy Musculoskeletal conditions as a challenge for policy making Recent EU initiatives on Rheumatic and Musculoskeletal Diseases: 2005: European Parliament Written Declaration 41/2005 on rheumatic diseases 2008: European Parliament Written Declaration 08/2008 on rheumatic diseases 2009: European Parliament Interest Group on rheumatic and musculoskeletal diseases 2010: Funding by European Commission of European musculoskeletal surveillance network project (EUMUSC.NET) 2010: Belgian EU Presidency Ministerial Conference on Chronic Illness & Conference on RMDs 2010: Council Conclusions on Chronic Illness 2010: European Disability Strategy 2011: Conference on the Burden of RMDs under the Hungarian Presidency of the EU Musculoskeletal conditions as a challenge for policy making Main EU Legislation related to work-related RMDs: 1989: Directive 89/654/EEC: minimum safety and health requirements for the workplace 1989: Directive 89/655/EEC: minimum safety and health requirements for the use of work equipment by workers at work 1990: Directive 90/269/EEC: minimum health and safety requirements for the manual handling of loads where there is a risk particularly of back injury to workers 1993: Directive 93/104/EC: organisation of working time. Factors such as repetitive work, monotonous work and fatigue 1998: Directive 98/37/EC: ergonomic principles for machinery and devices 2002: Directive 2002/44/EC: minimum health and safety requirements regarding the exposure of workers to the risks arising from physical agents (vibration) 2006: Directive 2006/42/EC: health and safety requirements relating to the design and construction of machinery 2011/2012: Integrative Directive on RMDs at workplace? Musculoskeletal conditions as a challenge for policy making Examples of national policy outcomes on RMDs and work(*): Finland: Government support for workability and functionality support for RMDs through the Minister of Labour France: RMDs as a national public health priority thanks to its existing RMDs national plan implemented by the Ministry of Work Germany: Agreement for improving working conditions for disabled people Lithuania: Multi-functional working group to solve RMD related issues Spain: Government support and announcement of a national strategy for RMDs. Catalonian regional plan on RMDs UK: “Fit note” instead of “Sick note” (*) Based on Fit for Work Musculoskeletal conditions as a challenge for policy making What is still needed? Despite the favourable context, there is still a long way to go… The Brussels Declaration: 6 key principles and recommendations to EU and Member States to address RMDs Musculoskeletal conditions as a challenge for policy making Causes Disease Management Healthcare services Prevention Treatments Biological/Genetic factors Socio-Economic factors Life-style factors Consequences on individuals Reduced participation in: Labour market 120 Million People with RMD Disabled People Education Social activities Recognition: “The European Union and its Member States should recognise the socioeconomic importance of rheumatic and musculoskeletal diseases of all ages and assign them appropriate priority” Musculoskeletal conditions as a challenge for policy making Causes Disease Management Healthcare services Prevention Treatments Biological/Genetic factors Socio-Economic factors Life-style factors Consequences on individuals Reduced participation in: Labour market 120 Million People with RMD Disabled People Education Social activities Research: “There is an urgent need to prioritise basic, and clinical research regarding the causes, predictors, management and impact of these chronic diseases” Musculoskeletal conditions as a challenge for policy making Causes Disease Management Healthcare services Prevention Treatments Biological/Genetic factors Socio-Economic factors Life-style factors Consequences on individuals Reduced participation in: Labour market 120 Million People with RMD Disabled People Education Social activities Inclusion: “The European Union and Member States should ensure that people with disabilities related to rheumatic and musculoskeletal diseases have the right to full inclusion in society; this encompasses optimisation of environmental and life-style factors, the availability of selfmanagement tools and respect for the right to a flexible education and work environment” Musculoskeletal conditions as a challenge for policy making Causes Disease Management Healthcare services Prevention Treatments Biological/Genetic factors Socio-Economic factors Life-style factors Consequences on individuals Reduced participation in: Labour market 120 Million People with RMD Disabled People Education Social activities Quality care: “People with rheumatic and musculoskeletal diseases should receive prompt access to high quality care, ideally in specialised centres, thus maximising long-term quality of life” Musculoskeletal conditions as a challenge for policy making Causes Disease Management Healthcare services Prevention Treatments Biological/Genetic factors Socio-Economic factors Life-style factors Consequences on individuals Reduced participation in: Labour market 120 Million People with RMD Disabled People Education Social activities Evidence base: “Management of rheumatic and musculoskeletal diseases should be in accordance with evidence-based recommendations in every European Union Member State” Musculoskeletal conditions as a challenge for policy making Causes Disease Management Healthcare services Prevention Treatments Biological/Genetic factors Socio-Economic factors Life-style factors Consequences on individuals Reduced participation in: Labour market 120 Million People with RMD Disabled People Education Social activities Patients’ involvement: “People with rheumatic and musculoskeletal diseases are experts in living with their condition and should be involved in the design, delivery and evaluation of their services” Musculoskeletal conditions as a challenge for policy making Follow up EU and Member States A European Union Strategy to fight musculoskeletal disorders, covering: public health and employment best practices, disability/antidiscrimination legislation, research National Action Plans to allow for holistic and integrated measures, covering: Access to treatment/care, specialised centres, training, work place regulation, disability aspects, research support, etc. Partnership between governments and stakeholders at EU and national level for exchange of information and best practices Musculoskeletal conditions as a challenge for policy making Thank you!