Cambodia Diabetes self-help groups MoPoTsyo Patient Information Centre Maurits van Pelt Our Main Message Diabetes Peer Educator networks should be integrated in the primary health care system But most Health Policy makers say “Chronic Disease interventions are not cost effective” “Chronic Diseases are a black hole, especially for secondary prevention among patients……..” Cambodia Health Sector Donors . External assistance focus by programs budgets only 1% for Non Communicable Diseases (NCD) although they cause more than half of disease and death P1 – Mgt&Admin P2 – MCH P3 – CDC P4 – NCD P5 – Serv Del We say: This lack of policies….breeds poverty! Markets move fast to grab opportunities; Markets create confusing information; Product safety concerns increase Willingness-to-Pay Biggest spender on product promotion wins Consumers do not know what would be their best choice The market’s natural response is supply side centred; All factors combined: It leaves many unmet needs… Premature disability replaces productivity Elements of the Diabetes context Lack of trained Doctors and Nurses; After training, they are severely underpaid; Public health system is only for acute cases; Chronic patients supplement health staff income…; A profitable patient is an ignorant one…; Question: If formal health staff has no incentive to transfer knowledge + skills to chronic patients……then who has ? Diabetics are: Rich.. ? Overweight.. ? Old.. ? Too low educated to self-manage? We often assume that we understand the problems We set priorities for low income countries…. This can be terrifying.. Proposed thesis : “Diabetes Peer Educator Networks are a worthwhile investment for Low Income Countries in Asia like Cambodia” Demand side organisation in NCD A Diabetes Peer Educator Network in an Operational District (a.k.a. zône de santé) led by a manager (a.k.a. DPM) in charge of community based Diabetes Peer Educators The Diabetes Peer Educator Is a self-managing Diabetes patient who may have any profession except health service provider & Is Literate Is Volunteer Was trained 6 weeks in Diabetes Peer Education Has passed the Peer Educator exam What do DM patients actually need ? A) Understand how they can keep their blood glucose and blood pressure always within the safe margins: • lifestyle (type of food, exercise, kg) • right medication • self-measuring B) Understand how they can keep this affordable; Benefit 1: Earlier Detection Immediate Effects: Distribute urine glucose strips for self - testing: one per adult; Detect DM earlier (70% did not know it) Increase reservoir of aware DM from 30% to 41% in Yr 1 (Yr 2 > 50%) Peer Educator Assesses: Presence of Urine glucose Fasting Blood Glucose Blood Pressure Heart rate BMI Waist circumference Feet inspection, nerve d. etc. …..reports to her/his DPM Benefit 2: Transfers Knowledge + skills DM patients self-testing urine during last month 15% 1% Did not do urine self test Did 1 or 2 urine self tests 84% Did more than 2 urine self tests Benefit 3: Lifestyle changes <12 months BMI Changes in rural program 23% 11% 66% weight improved becoming too skinny / even skinnier becoming too fat / even fatter Benefit 4: No stress on health services BenefitRural 4: Program: the number of diabetes Dr consultations during the first 15 months in the first 388 registered diabetics nr of medical consultations • Avoiding early medicalisation 728 Medical Consultations in 15 months Average 1.8 consult per patient, 160 DM did not yet meet with the Doctor 15 14 13 12 11 10 9 8 7 6 5 4 3 2 1 0 0% 10% 20% 30% 40% 50% Benefit 5: Cost Containment 1 million patients: 350.000 DM + 700.000 High BP Annual drug bill remains too high if supply side controls while the demand side pays (USD 250 million). Annual drug bill can be low, if demand side controls AND pays (USD 40 million, is mostly affordable…); There will still be a role for targeted subsidies for new poor DM; Benefit 6: Quality of Life DM Patients feel better because they: - Regain control over their health Spend less than before on health care Can get health information that they need Benefit 7: Biological outcomes 133 randomly selected DM patients more than 3 months registered in Rural Program Fasting Blood Glucose (norm is FBG<126 mg/dl) FBG > 200 5% FBG 126 - 200 43% FBG < 126 52% Benefit 7: Overall lower BG Ang Roka OD HbA1c result July 2008 (124 DM patients randomized) 17% HbA1c < 7.5% 7.5 < HbA1c < 9% 16% HbA1c >9% 67% Benefit 7: Blood Pressure among DM Rural Diabetics Blood Pressure after 6 months (N=133) 50.0% 30.0% 10.0% -10.0% Syst≤130 or Diast≤75 Syst≤140 Diast.≤90 Syst>140 or Diast>90 baseline 45.1% 36.1% 18.7% after 6 months 45.1% 37.3% 17.6% Example Ang Roka OD 133.000 inhabitants Example Ang Roka OD 133.000 inhabitants Peer Educator network running costs USD 6700 per year for 665 (2nd year-) diabetics USD 10 per diabetic per year at current levels A Peer A Day Keeps the Doctor Away! www.mopotsyo.org