Changing the Paradigm of Neonatal Care Shoo Lee, MBBS, FRCPC, PhD Paediatrician-in-Chief, Mount Sinai Hospital; Professor of Paediatrics, Obstetrics & Gynecology, and Public Health, University of Toronto; Scientific Director, Institute of Human Development, Child & Youth Health, Canadian Institutes of Health Research Conflict of Interest • None to declare Canadian Neonatal NetworkTM Founded 1995 Edmonton Victoria Vancouver New Westminster Quebec City Saskatoon Calgary Regina Sherbrooke Montreal Winnipeg Ottawa London Kingston Toronto St John’s Moncton Fredericton St John Halifax Hamilton “Improve care through research” Neonatal Outcomes 1960-2000 1960-1985 1990-2000 Source: Congress of USA, Office of Tech Assessment, NTIS order #PB88-158902 4 EPIQ Conceptual Model Published evidence Evidence reviews Clinical studies/trials Local data Best practice examples Practice guidelines Evidence Process Data Outcomes Data Context Organizational culture Individual behavior Barriers to change Facilitation Leadership Change management Facilitation tools THE EPIQ PROJECT - Transforming Care through Clinical & Implementation Research Reduced Mortality, Morbidity and Hospital Length of Stay in Canadian Neonatal Intensive Care Units OBJECTIVE • Reduce mortality, major morbidity and hospital length of stay in NICU PROJECT • Pilot project in 12 sites outlining new practices for care • National scale-up of the new practices, implemented in 30 hospitals and 17 universities across Canada OUTCOMES (3 years) • • • • • 30% decrease in severe eye disease causing blindness 30% decrease in hospital acquired infection 30% decrease in severe intestinal infection with high mortality 2 days average reduction in length of hospital stay $7-10M annual cost savings Lee SK, Canadian Neonatal Network EPIQ Study Group, CMAJ 2009. DOI 10.1503/cmaj.081727 Family Integrated Care Family Integrated Care The Estonian Model Caring for Families Mothers health and wellbeing is considered essential to the baby’s wellbeing: - midwife - psychologist - physician • Atmosphere of team support; • Mother and baby are a unit, • Nurse partners mother in the baby’s care Estonia NICU Care Model Parents are Primary Care-Givers, not nurses Parents responsible for all care except IV, medication Parents participate in rounds, reports, charting Encourage developmental & kangaroo care Nurses are teachers and consultants Results = 30% reduction in NI 30% improvement in weight gain 20% reduction in LOS 50% reduction in nurse utilization improved parent/staff satisfaction Current Family Centered Care Baby Nurse Doctor Family Therapist Family Integrated Care Nurse Doctor Therapist Parent Volunteer Family Integrated Care Pilot • • • • • Funded by AHFMR/MOHLTC Formative pilot at Mt Sinai 2011 Eligible patients = CPAP or less support Parents and Providers as planning co-leads Tremendous support from parent volunteers • Planning, protocols, training modules, ethics, legal completed • 40 families Family Integrated Care Pilot Results Mount Sinai Hospital, Toronto • 25% improvement in weight gain • Decreased nosocomial infection - from 11.5% to zero • Reduced critical incident reports - from 10% to zero • Decreased parental stress • CIHR funding for cluster randomized controlled trial at 16 hospitals • NCE application for KT to all Level 2 NICUs NEC Strategies The Japanese Way NEC Incidence: Canada & Japan 8 7 6 5 Canada Japan 4 3 2 1 0 NEC Incidence (%) Japan NEC Strategy Exclusive breast milk feeding for <28 weeks Aggressive feeding – full feeds in one week Avoid12umbilical catheters % NEC Early10use of PIC lines to reduce skin breaks Use antibiotics only if evidence of infection 8 Transpyloric feeding catheters Formula 6 Probiotics Breast Milk Glycerin enema 4 Minimal handling 2 Encourage developmental & kangaroo care 0 Hosp A Hosp B Breast Milk for All Babies Winnipeg Montreal Vancouver Calgary Halifax Toronto “Back to Basics – learn to respect Nature” Health System Implications Parents Provide Care Milk Bank Developmental care Improved feeding Enhanced Follow-Up Appropriate use Of technology FAMILY INTEGRATED CARE Re-develop Facilities Improved outcomes GentleR Change in roles Re-organize Fewer staff Perinatal regionalization Re-train staff Reduced costs Thank You With acknowledgements: Canadian Neonatal Network Canadian Institutes of Health Research Michael Smith Foundation for Health Research Ontario Ministry of Health & Long Term Care Participating Institutions