Dense en dan?? Ruud Pijnappel Mammaradioloog National Expert and Training Center for Breast Cancer Screening NABON BOOG 17 april 2014 HAVE AN ULTRASOUND » Are You Dense | Our Stories | Dr. Nancy Cappello's Story 20- 09- 13 11:18 Sign Up to receive more info/Contact Us "Exposing the Secret" Jewelry Designs by Susan A. Katz for Are You Dense, Inc. About Us Our Stories Make a Donation News & Events Resources A DOZEN STATE DENSITY LAWS: IS YOUR STATE ONE OF THEM? » RESOURCE - ARE YOU DENSE BROCHURE & PAMPHLET » OUR STORIES DR. NANCY CAPPELLO'S STORY I did what the medical field and the countless number of cancer advocacy groups told me. I ate healthy, exercised daily, had yearly mammograms AND had no first-degree relative with breast cancer. Little did I know at the time that there was information about my health and my life that was being kept from me – the patient – and others like me. I call it the best-kept secret - but it WAS known in the medical community. I have dense breast tissue – and women like me (2/3 of pre-menopausal and 1/4 of post menopausal) have less than a 48% chance of having breast cancer detected by a mammogram. In November 2003 I had my yearly mammogram and my “Happy Gram” report that I received determined “no significant findings”. Two months later at my annual exam in January, my doctor felt a ridge in my right breast and sent me for another mammogram and an ultrasound. The mammogram revealed “nothing” yet the ultrasound detected a large 2.5 cm tumor, which was later confirmed to be stage 3c breast cancer. So on February 3, 2004 my life changed when I heard those dreaded words, “You have cancer.” I asked what most women would ask – thinking that I was an educated patient - “Why didn’t the mammogram find my cancer”? It was the first time that I was informed that I have dense breast tissue and its significance. What is dense tissue, I asked? Dense tissue appears white on a mammogram and cancer appears white – thus there is no contrast to detect the cancer (It is like looking for a polar bear in a snowstorm). I asked my physician why wasn’t I informed that I have dense breast tissue and that mammograms are limited in detecting cancer in women with dense breast tissue? The response was “it is not the standard protocol.” So I went on a quest – for research – and found that there have been 7 major studies with over 42,000 women that demonstrate that by supplementing mammograms with ultrasounds increases detection from 48% to 97% for women with dense tissue. I also learned that women with dense tissue have a 5x greater risk of getting breast cancer. We have double jeopardy – a greater risk of having cancer AND are less likely to have cancer detected by mammography alone. I endured a mastectomy, reconstruction, 8 chemotherapy treatments and 24 radiation treatments. The pathology report confirmed – stage 3c cancer - because the cancer had traveled outside of the breast - to my lymph nodes. Eighteen lymph nodes were removed and thirteen contained cancer – AND REMEMBER - "On February 3, 2004, I was diagnosed with Stage 3c breast cancer two months after receiving a "normal" mammography report. Less than 48% of women with Stage 3c breast cancer are alive after five years." - Nancy M. Cappello, Ph.D. a "normal" mammogram just weeks before. Is that early detection? So, how many women are like me and had normal mammograms and may have a hidden intruder stealing their life? That question has perplexed me since my diagnosis and I am on a quest to expose this best-kept secret of dense breast tissue to ensure that women with dense breast tissue receive screening and diagnostic measures to find cancer at its earliest stage. Please join the breast density inform movement by supporting the work of Are You Dense, Inc. to ensure that ALL women have access to an early breast cancer diagnosis. Early Detection saves lives and spares the life-long anguish of families whose love-ones die prematurely from breast cancer that goes undetected, even with yearly screening. Hence, cancer is not found until it is large enough to be felt and subsequently determined to be at a later stage where survival is low. Home | About Us | Our Stories | Make a Donation | News & Events | Resources | Contact Us © 2008–2013, Are You Dense, Inc. All rights reserved. Site designed and hosted by The Worx Group. Email the webmaster. Follow us on Facebook: Follow us on Twitter: se.webarchive http:/ / www.areyoudense.org/ worx cm s_published/ stories_page13.shtm l Pagina 1 van 2 Pagina 1 van 1 NABON BOOG 17 april 2014 NABON BOOG 17 april 2014 DENS NABON BOOG 17 april 2014 Feiten /vragen • • • • Diagnostiek middels mammografie: lastig Minder goede locoregionale controle? Meer bestraling (Boost) nodig? Overleving niet slechter Eriksson, Breast Cancer Res. 2013 Jul Gierach, JNCI 2012 Maskarinek, Breast Cancer Res. 2013 Jan Saadatmand, BMC Cancer 2012 Zhang, Breast Cancer Res. 2013 Jan NABON BOOG 17 april 2014 Dens breast Risk 4-6 times Densiteit Afname Sensitiviteit RR Neemt toe NABON BOOG 17 april 2014 Richtlijn: Mammacarcinoom (2.0) NABON BOOG 17 april 2014 Densiteit NABON BOOG 17 april 2014 Diagnostiek • • • • • • Mammografie Tomosynthese 3D echo MRI CESM PEM NABON BOOG 17 april 2014 Screening NABON BOOG 17 april 2014 Bron: LETB 2014 (XIII) Interval carcinoom NABON BOOG 17 april 2014 Bron: LETB 2014 (XIII) Mammografie • ACR 4: 60-62% tumoren • ACR 1: 80-87% Carney, Ann Intern Med 2003 Bron: LETB 2014 (XIII) NABON BOOG 17 april 2014 Diagnostiek • • • • • • Mammografie Tomosynthese 3D echo MRI CESM PEM NABON BOOG 17 april 2014 Beperkingen van Mammografie • Camouflage: mist kanker in ≈ 30% • Nabootsen laesies: hoog verwijs % – Additionele imaging (US, MRI, biopt) – Hoge kosten – Angst NABON BOOG 17 april 2014 Overprojectie weefsel 2D • Camoufleert laesies • Drogbeeld laesie Laesie overschaduwd in 2D NABON BOOG 17 april 2014 Tomosynthese NABON BOOG 17 april 2014 3D Mammografie NABON BOOG 17 april 2014 Praktijk 2D FFDM 1 slice of DBT NABON BOOG 17 april 2014 Tomosynthese beperkingen Scantijd / bewegingsartefacten Stralingsdosis 2x mammogram Enorme dataset Dubbele beoordelingstijd Matig voor microcalcificaties NABON BOOG 17 april 2014 Tomosynthese en densiteit Ciatto et al Lancet Oncol 2013 NABON BOOG 17 april 2014 Tomosynthese en densiteit Waldherr AJR 2013 NABON BOOG 17 april 2014 Tomosynthese en densiteit Skaane Radiology 2013 NABON BOOG 17 april 2014 Conclusie Tomosynthese ACR 4 • EUSOBI oktober 2013 • RSNA december 2013 • ECR maart 2014 • EBCC maart 2014 Tomo betere sensitiviteit bij alle densiteiten Dosis issue: synthetische 2D bij ACR 3 en 4 niet beter! Geen specifieke cijfers voor ACR 4 NABON BOOG 17 april 2014 Diagnostiek • • • • • • Mammografie Tomosynthese 3D echo MRI CESM PEM NABON BOOG 17 april 2014 Ultrasound ABVS NABON BOOG 17 april 2014 Extremely Dense Tissue – Normal Study 3D Echo (ABVS) Sensitiviteit: 97% Fout positief: 19% Giuliano, Clin Imaging 2013 Lander, Semin Roentgenol. 2011 NABON BOOG 17 april 2014 NABON BOOG 17 april 2014 ‘The diagnostic accuracy of the ABVS is almost identical to that of HHUS in breast imaging’ NABON BOOG 17 april 2014 Berg JAMA 2008 / Bae Radiology 2014 Detectie Echo • Toevoeging van US: 3,4 - 4,2/1000 meer • 1/3 ACR4 • US only • Retrospect mammo 81% 19% NABON BOOG 17 april 2014 Maar………. Time consuming minimaal 20 minuten per patient FOUT POSITIEF • 8,8% gebiopteerd op basis US • PPV: 9% Ter vergelijk PPV mammogram screening: 67% NABON BOOG 17 april 2014 Conclusie ABVS ACR 4 • EUSOBI oktober 2013 • RSNA december 2013 • ECR maart 2014 • EBCC maart 2014 ABVS nog geen plaats veroverd NABON BOOG 17 april 2014 Diagnostiek • • • • • • Mammografie Tomosynthese 3D echo MRI CESM PEM NABON BOOG 17 april 2014 NABON BOOG 17 april 2014 Dense Trial Normaal risicoprofiel 50-75 jaar via screening ACR 4 (computed) BI-RADS 1 of 2 screening MRI 4.800 versus controlegroep 29.000 (Momenteel inclusie 1300 MRI) NABON BOOG 17 april 2014 MRI Dense Trial UMC Utrecht AvL / NKI VUMC UMC Radboud Jeroen Bosch (Den Bosch) Maastricht UMC Ziekenhuis Groep Twente (Almelo) Albert Schweitzer Ziekenhuis (Dordrecht) NABON BOOG 17 april 2014 Conclusie MRI ACR 4 • EUSOBI oktober 2013 • RSNA december 2013 • ECR maart 2014 • EBCC maart 2014 MRI? NABON BOOG 17 april 2014 Diagnostiek • • • • • • Mammografie Tomosynthese 3D echo MRI CESM PEM NABON BOOG 17 april 2014 CESM • Contrast Enhanced Spectral Mammography • Mammogram 2 energieniveau’s • IV jodiumhoudend contrast Lobbes et al. Clin Radiol 2013 NABON BOOG 17 april 2014 CESM image voorbeeld A Dank aan Marc Lobbes, radioloog MUMC B C NABON BOOG 17 april 2014 CESM - Geen informatie Densiteit - Stralingsdosis: + 80% - IV contrast Lobbes et al Eur Radiol DOI 10.1007/s00330 NABON BOOG 17 april 2014 CESM vs MRI • 25% ACR 4 • CESM >> Mammografie • CESM ≈ MRI Fallenberg et al Eur Radiol (2014) 24:256 NABON BOOG 17 april 2014 Conclusie CESM ACR 4 • EUSOBI oktober 2013 • RSNA december 2013 • ECR maart 2014 • EBCC maart 2014 Zeer goede initiële resultaten! (Veelbelovend) NABON BOOG 17 april 2014 PEM • 18F-FDG intravenous • Resting 60 minutes • Image acquisition - Duur - Hoge stralingsdosis - Langdurige compressie (10-20 minuten per borst) NABON BOOG 17 april 2014 Conclusie PEM ACR 4 • EUSOBI oktober 2013 • RSNA december 2013 • ECR maart 2014 • EBCC maart 2014 Duur Hoge stralenbelasting Langdurig onderzoek NABON BOOG 17 april 2014 NABON BOOG 17 april 2014 Take home ACR 4 • • • • • • • Anatomische naar functionele imaging Mammo sensitiviteit: 60% Tomo: ACR 4? ABVS: Fout positief! MRI: Dens Trial afwachten CESM: zeer veelbelovend PEM: duur, veel straling • Geen bewezen alternatief voor mammogram • Meedelen densiteit zinvol????? NABON BOOG 17 april 2014 www.eusobi.org Prof Monica Morrow (MSKCC, USA) Prof Christiane Kuhl (Aachen, D) Prof Elisabeth Morris (MSKCC, USA) Prof Arnie Purushotham (King’s College, UK) Prof Paul van Diest (UMCUtrecht, NL) Dr. Gabe Sonke (NKI / AvL, NL) Prof Fiona Gilbert (Cambridge, UK) Prof Czernin (Los Angeles, USA) NABON BOOG 17 april 2014