What is Spina Bifida? SPINA BIFIDA ASSOCIATION OF SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] What is Spina Bifida? • The most common, permanent and disabling birth defect in the United States SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] Who is at risk? • All women who have started their menstrual cycle • Half of all pregnancies are not planned SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] Who is at risk? • 60 million women are at risk of having a baby born with Spina Bifida • 8 babies are born with Spina Bifida every day SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] Can Spina Bifida be prevented? • Exact cause is not known • Medical research confirms link between folic acid and Spina Bifida* * (and other birth defects) SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] Can Spina Bifida be prevented? • Women who take 400 mcg of folic acid every day reduce the risk by up to 70%. – BEFORE becoming pregnant – During first three months of pregnancy SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] What is folic acid? • B-vitamin that builds healthy cells • In most multivitamins • Foods – Leafy green vegetables (broccoli and spinach) – Fruits and juices (orange juice) – Folic acid-fortified breakfast cereals and other bread and grain products The surest way to get enough folic acid every day is to take a vitamin with folic acid. SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] What are the effects of Spina Bifida? • Ongoing medical challenges – – – – – – – *Full or partial paralysis Nervous system complications *Bladder and bowel control difficulties *Hydrocephalus Learning disabilities Depression Social and sexual issues SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] What are the effects of Spina Bifida? • Latex allergy – 70% of children and adolescents with Spina Bifida are sensitive to latex – Items made with latex include: • Pencil erasers • Toys like balls and balloons • Rubber bands SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] How does Spina Bifida happen? • First month of pregnancy – Before most women know they are pregnant • The spine does not close – Causes an opening or lesion – Damaged nerves may result in varying degrees of paralysis SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] What happens after birth? • Surgery – Reduces risk of infection – Further damage to the spinal cord • Life-long treatment and care SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] What will a child with SB need? • Catheterization • Accessible areas • Educational support • To be treated normally SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] The SBA: Our Mission • Promote prevention of Spina Bifida • Enhance the lives of all affected SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] What does the SBA do? • Serve as a liaison with local or nearby medical experts • Provide information and support • Engage in community activities SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] Additional Resources • Spina Bifida Association – National Resource Center: 1-800-621-3141 – www.spinabifidaassociation.org – sbaa@sbaa.org SPINA BIFIDA ASSOCIATION OF [NAME OF LOCAL SBA] Questions?